Development and psychometric evaluation of the Chinese version of the Participation and Environment Measure for Children and Youth

References

• Coster W, Khetani MA. Measuring participation of children with disabilities: issues and challenges. Disabil Rehabil. 2008;30:639–648.
   PubMed Web of Science ®Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther. 2002;56:640–649.
   PubMed Web of Science ®Google Scholar
• World Health Organization. International classification of functioning, disability, and health. Geneva: World Health Organization; 2001.
   Google Scholar
• Bedell GM, Khetani MA, Cousins MA, et al. Parent perspectives to inform development of measures of children's participation and environment. Arch Phys Med Rehabil. 2011;92:765–773.
   PubMed Web of Science ®Google Scholar
• Harding J, Harding K, Jamieson P, et al. Children with disabilities' perceptions of activity participation and environments: a pilot study. Can J Occup Ther. 2009;76:133–144.
   PubMed Web of Science ®Google Scholar
• Anaby D, Law M, Coster W, et al. The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school, and community. Arch Phys Med Rehabil. 2014;95:908–917.
   PubMed Web of Science ®Google Scholar
• Chien CW, Branjerdporn G, Rodger S, et al. Exploring environmental restrictions on participation of children with developmental disability. J Intellect Dev Disabil. 2017;42:61–73.
   Web of Science ®Google Scholar
• Gee Kee E, Chien CW, Rodger S, et al. Examining the association between children's hand skill performance and participation in everyday life. J Occup Ther School Early Interv. 2014;7:246–259.
   Google Scholar
• Palisano RJ, Chiarello LA, Orlin M, et al. Determinants of intensity of participation in leisure and recreational activities by children with cerebral palsy. Dev Med Child Neurol. 2011;53:142–149.
   PubMed Web of Science ®Google Scholar
• Soref B, Ratzon NZ, Rosenberg L, et al. Personal and environmental pathways to participation in young children with and without mild motor disabilities. Child Care Health Dev. 2012;38:561–571.
   PubMed Web of Science ®Google Scholar
• Hammal D, Jarvis SN, Colver AF. Participation of children with cerebral palsy is influenced by where they live. Dev Med Child Neurol. 2004;46:292–298.
   PubMed Web of Science ®Google Scholar
• Barr M, Shields N. Identifying the barriers and facilitators to participation in physical activity for children with Down syndrome. J Intellect Disabil Res. 2011;55:1020–1033.
   PubMed Web of Science ®Google Scholar
• Lawlor K, Mihaylov S, Welsh B, et al. A qualitative study of the physical, social and attitudinal environments influencing the participation of children with cerebral palsy in northeast England. Pediatr Rehabil. 2006;9:219–228.
   PubMedGoogle Scholar
• Heah T, Case T, McGuire B, et al. Successful participation: the lived experience among children with disabilities. Can J Occup Ther. 2007;74:38–47.
   PubMedGoogle Scholar
• Palisano RJ, Chiarello LA, King GA, et al. Participation-based therapy for children with physical disabilities. Disabil Rehabil. 2012;34:1041–1052.
   PubMed Web of Science ®Google Scholar
• Imms C, Mathews S, Richmond KN, et al. Optimising leisure participation: a pilot intervention study for adolescents with physical impairments. Disabil Rehabil. 2016;38:963–971.
   PubMed Web of Science ®Google Scholar
• Anaby DR, Law MC, Majnemer A, et al. Opening doors to participation of youth with physical disabilities: an intervention study. Can J Occup Ther. 2016;83:83–90.
   PubMed Web of Science ®Google Scholar
• Law MC, Darrah J, Pollock N, et al. Focus on function: a cluster, randomized controlled trial comparing child- versus context-focused intervention for young children with cerebral palsy. Dev Med Child Neurol. 2011;53:621–629.
   PubMed Web of Science ®Google Scholar
• Dunn W, Cox J, Foster L, et al. Impact of a contextual intervention on child participation and parent competence among children with autism spectrum disorders: a pretest-posttest repeated-measures design. Am J Occup Ther. 2012;66:520–528.
   PubMed Web of Science ®Google Scholar
• Graham F, Rodger S, Ziviani J. Effectiveness of occupational performance coaching in improving children's and mothers' performance and mothers' self-competence. Am J Occup Ther. 2013;67:10–18.
   PubMed Web of Science ®Google Scholar
• Chien CW, Rodger S, Copley J, et al. Measures of participation outcomes related to hand use for 2- to 12-year-old children with disabilities: a systematic review. Child Care Health Dev. 2014;40:458–471.
   PubMed Web of Science ®Google Scholar
• Ziviani J, Desha L, Feeney R, et al. Measures of participation outcomes and environmental considerations for children with acquired brain injury: a systematic review. Brain Impair. 2010;11:93–112.
   Web of Science ®Google Scholar
• Adolfsson M, Malmqvist J, Pless M, et al. Identifying child functioning from an ICF-CY perspective: everyday life situations explored in measures of participation. Disabil Rehabil. 2011;33:1230–1244.
   PubMed Web of Science ®Google Scholar
• Phillips RL, Olds T, Boshoff K, et al. Measuring activity and participation in children and adolescents with disabilities: a literature review of available instruments. Aust Occup Ther J. 2013;60:288–300.
   PubMed Web of Science ®Google Scholar
• Rainey L, van Nispen R, van der Zee C, et al. Measurement properties of questionnaires assessing participation in children and adolescents with a disability: a systematic review. Qual Life Res. 2014;23:2793–2808.
   PubMed Web of Science ®Google Scholar
• Sakzewski L, Boyd R, Ziviani J. Clinimetric properties of participation measures for 5- to 13-year-old children with cerebral palsy: a systematic review. Dev Med Child Neurol. 2007;49:232–240.
   PubMed Web of Science ®Google Scholar
• Chien CW, Brown T. Assessing children's occupation and participation. In: Rodger S, Kennedy-Behr A, editors. Occupation-centred practice with children: a practical guide for occupational therapists. 2nd ed. Oxford (UK): Wiley-Blackwell; 2017. p. 133–163.
   Google Scholar
• Coster W, Bedell G, Law M, et al. Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Dev Med Child Neurol. 2011;53:1030–1037.
   PubMed Web of Science ®Google Scholar
• Coster W, Law M, Bedell G, et al. Development of the Participation and Environment Measure for Children and Youth: conceptual basis. Disabil Rehabil. 2012;34:238–246.
   PubMed Web of Science ®Google Scholar
• Khetani M, Marley J, Baker M, et al. Validity of the Participation and Environment Measure for Children and Youth (PEM-CY) for Health Impact Assessment (HIA) in sustainable development projects. Disabil Health J. 2014;7:226–235.
   PubMed Web of Science ®Google Scholar
• Khetani MA, Cliff AB, Schelly C, et al. Decisional support algorithm for collaborative care planning using the Participation and Environment Measure for Children and Youth (PEM-CY): a mixed methods study. Phys Occup Ther Pediatr. 2015;35:231–252.
   Web of Science ®Google Scholar
• CanChild. PEM-CY – Participation and Environment Measure – Children and Youth. [cited 2018 Oct 12]. Available at: https://canchild.ca/en/shop/2-pem-cy-participation-and-environment-measure-children-and-youth.
   Google Scholar
• Jeong Y, Law M, Stratford P, et al. Cross-cultural validation and psychometric evaluation of the Participation and Environment Measure for Children and Youth in Korea. Disabil Rehabil. 2016;38:2217–2228.
   PubMed Web of Science ®Google Scholar
• Egilson ST, Jakobsdottir G, Olafsson K, et al. Community participation and environment of children with and without autism spectrum disorder: parent perspectives. Scand J Occup Ther. 2017;24:187–196.
   PubMed Web of Science ®Google Scholar
• Simpson K, Keen D, Adams D, et al. Participation of children on the autism spectrum in home, school, and community. Child Care Health Dev. 2018;44:99–107.
   PubMed Web of Science ®Google Scholar
• Milićević M, Nedović G. Comparative study of home and community participation among children with and without cerebral palsy. Res Dev Disabil. 2018;80:74–83.
   PubMed Web of Science ®Google Scholar
• Labour and Welfare Bureau. Hong Kong fact sheet – rehabilitation. [cited 2017 Dec 14]. Available at: http://www.lwb.gov.hk/eng/factsheet/HKFS_rehabilitation.htm.
   Google Scholar
• UN General Assembly. Convention on the rights of persons with disabilities: resolution/adopted by the General Assembly, 24 January 2007, A/RES/61/106. [cited 2017 Dec 14]. Available at: http://www.refworld.org/docid/45f973632.html.
   Google Scholar
• Lam SF, Wong BP, Leung D, et al. How parents perceive and feel about participation in community activities. The comparison between parents of preschoolers with and without Autism Spectrum Disorders. Autism. 2010;14:359–377.
   PubMed Web of Science ®Google Scholar
• Chan HS, Lau PH, Fong KH, et al. Neuroimpairment, activity limitation, and participation restriction among children with cerebral palsy in Hong Kong. Hong Kong Med J. 2005;11:342–350.
   PubMedGoogle Scholar
• Fong SS, Lee VY, Chan NN, et al. Motor ability and weight status are determinants of out-of-school activity participation for children with developmental coordination disorder. Res Dev Disabil. 2011;32:2614–2623.
   PubMed Web of Science ®Google Scholar
• Tsang WW, Guo X, Fong SS, et al. Activity participation intensity is associated with skeletal development in pre-pubertal children with developmental coordination disorder. Res Dev Disabil. 2012;33:1898–1904.
   PubMed Web of Science ®Google Scholar
• Leung GP, Chan CC, Chung RC, et al. Determinants of activity and participation in preschoolers with developmental delay. Res Dev Disabil. 2011;32:289–296.
   PubMed Web of Science ®Google Scholar
• Hwang AW, Yen CF, Liou TH, et al. Development and validation of the ICF-CY-Based Functioning Scale of the Disability Evaluation System–Child Version in Taiwan. J Formos Med Assoc. 2015;114:1170–1180.
   PubMed Web of Science ®Google Scholar
• Hwang AW, Yen CF, Liou TH, et al. Participation of children with disabilities in Taiwan: the gap between independence and frequency. PLoS One. 2015;10:e0126693
   PubMed Web of Science ®Google Scholar
• Hwang AW, Liou TH, Bedell GM, et al. Psychometric properties of the Child and Adolescent Scale of Participation–traditional Chinese version. Int J Rehabil Res. 2013;36:211–220.
   PubMed Web of Science ®Google Scholar
• Kang LJ, Yen CF, Bedell G, et al. The Chinese version of the Child and Adolescent Scale of Environment (CASE-C): validity and reliability for children with disabilities in Taiwan. Res Dev Disabil. 2015;38:64–74.
   PubMed Web of Science ®Google Scholar
• Chien CW, Rodger S, Copley J, et al. Comparative content review of children's participation measures using the International Classification of Functioning, Disability and Health-Children and Youth. Arch Phys Med Rehabil. 2014;95:141–152.
   PubMed Web of Science ®Google Scholar
• Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25:3186–3191.
   PubMed Web of Science ®Google Scholar
• World Health Organization. WHOQOL Study Protocol. WHO/MNH/PSF/93.9. Geneva: World Health Organization; 1993.
   Google Scholar
• Chien CW, Wang JD, Yao G, et al. Development and validation of a WHOQOL-BREF Taiwanese audio player-assisted interview version for the elderly who use a spoken dialect. Qual Life Res. 2007;16:1375–1381.
   PubMed Web of Science ®Google Scholar
• Collins D. Pretesting survey instruments: an overview of cognitive methods. Qual Life Res. 2003;12:229–238.
   PubMed Web of Science ®Google Scholar
• Nunnally JC, Bernstein IH. Psychometric theory. New York: McGraw-Hill; 1994.
   Google Scholar
• Richman J, Makrides L, Prince B. Research methodology and applied statistics. Part 3: measurement procedures in research. Physiother Can. 1980;32:201–206.
   PubMedGoogle Scholar
• Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59:16–25.
   PubMed Web of Science ®Google Scholar
• Rosenblum S, Sachs D, Schreuer N. Reliability and validity of the Children's Leisure Assessment Scale. Am J Occup Ther. 2010;64:633–641.
   PubMed Web of Science ®Google Scholar
• Amini M, Hassani Mehraban A, Rostamzadeh O, et al. Psychometric properties of the Iranian-Children Participation Questionnaire (I-CPQ) when used with parents of preschool children with cerebral palsy. Occup Ther Health Care. 2017;31:341–351.
   PubMed Web of Science ®Google Scholar
• Lin CY, Updegraff JA, Pakpour AH. The relationship between the theory of planned behavior and medication adherence in patients with epilepsy. Epilepsy Behav. 2016;61:231–236.
   PubMed Web of Science ®Google Scholar
• Cook KF, Kallen MA, Amtmann D. Having a fit: impact of number of items and distribution of data on traditional criteria for assessing IRT's unidimensionality assumption. Qual Life Res. 2009;18:447–460.
   PubMed Web of Science ®Google Scholar
• Cheng CP, Luh WM, Yang AL, et al. Agreement of children and parents scores on Chinese version of Pediatric Quality of Life Inventory 4.0: further psychometric development. Appl Res Qual Life. 2016;11:891–906.
   Web of Science ®Google Scholar
• DiStefano C, Liu J, Jiang N, et al. Examination of the weighted root mean square residual: evidence for trustworthiness? Struct Equ Modeling. 2018;25:453–466.
   Web of Science ®Google Scholar
• Hu L, Bentler PM. Fit indices in covariance structure modeling: sensitivity to underparameterized model misspecification. Psychol Methods. 1998;3:424–453.
   Web of Science ®Google Scholar
• Cohen JW. Statistical power analysis for the behavioral sciences. Hillsdale (NJ): Lawrence Erlbaum Associates; 1988.
   Google Scholar
• Rosseel Y. lavaan: an R package for structural equation modeling. J Stat Softw. 2012;48:1–36.
   Web of Science ®Google Scholar
• Chien CW, Rodger S, Copley J. Parent-reported participation in children with moderate-to-severe developmental disabilities: preliminary analysis of associated factors using the ICF. Int J Disabil Dev Ed. 2017;64:483–496.
   Web of Science ®Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil. 2009;90:S22–S35.
   PubMed Web of Science ®Google Scholar
• Jeong Y, Law M, Stratford P, et al. Measuring participation of children and environmental factors at home, school, and in community: construct validation of the Korean PEM-CY. Phys Occup Ther Pediatr. 2017;37:541–554.
   PubMed Web of Science ®Google Scholar
• Longo E, Badia M, Orgaz BM. Patterns and predictors of participation in leisure activities outside of school in children and adolescents with cerebral palsy. Res Dev Disabil. 2013;34:266–275.
   PubMed Web of Science ®Google Scholar
• Mc Manus V, Corcoran P, Perry IJ. Participation in everyday activities and quality of life in pre-teenage children living with cerebral palsy in South West Ireland. BMC Pediatr. 2008;8:50.
   PubMed Web of Science ®Google Scholar
• Ullenhag A, Krumlinde-Sundholm L, Granlund M, et al. Differences in patterns of participation in leisure activities in Swedish children with and without disabilities. Disabil Rehabil. 2014;36:464–471.
   PubMed Web of Science ®Google Scholar
• Graham F, Rodger S, Ziviani J. Coaching parents to enable children's participation: an approach for working with parents and their children. Aust Occup Ther J. 2009;56:16–23.
   PubMed Web of Science ®Google Scholar
• Chiu MM, Ho ESC. Family effects on student achievement in Hong Kong. Asia Pac J Educ. 2006;26:21–35.
   Google Scholar
• Wu J, Singh M. Wishing for dragon children: ironies and contradictions in China's education reform and the Chinese diaspora's disappointments with Australian education. Aust Educ Res. 2004;31:29–44.
   Web of Science ®Google Scholar
• Lim CY, Law M, Khetani M, et al. Establishing the cultural equivalence of the Young Children's Participation and Environment Measure (YC-PEM) for use in Singapore. Phys Occup Ther Pediatr. 2016;36:422–439.
   PubMed Web of Science ®Google Scholar