1,020
Views
9
CrossRef citations to date
0
Altmetric
Research Papers

Significant others’ perspectives on person-centred information and communication technology in stroke rehabilitation – a grounded theory study

ORCID Icon, ORCID Icon & ORCID Icon
Pages 2115-2122 | Received 15 Feb 2018, Accepted 30 Nov 2018, Published online: 16 Jan 2019

References

  • Donnan GA, Fisher M, Macleod M, et al. Stroke. Lancet. 2008;371:1612–1623.
  • Ekstam L, Johansson U, Guidetti S, et al. The combined perceptions of people with stroke and their carers regarding rehabilitation needs 1 year after stroke: a mixed methods study. BMJ Open. 2015;5:e006784–e006784.
  • Camak DJ. Addressing the burden of stroke caregivers: a literature review. J Clin Nurs. 2015;24:2376–2382.
  • Sumathipala K, Radcliffe E, Sadler E, et al. Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illn. 2012;8:31–44.
  • Bergström A, Koch L, Andersson M, et al. Participation in everyday life and life satisfaction in persons with stroke and their caregivers 3-6 months after onset. J Rehabil Med. 2015;47:508–515.
  • Kamwesiga JT, Tham K, Guidetti S. Experiences of using mobile phones in everyday life among persons with stroke and their families in Uganda – a qualitative study. Disabil Rehabil. 2017;39:438–449.
  • Mawson S, Nasr N, Parker J, et al. Developing a personalised self-management system for post stroke rehabilitation; utilising a user-centred design methodology. Disabil Rehabil Assist Technol. 2014;9:521–528.
  • Pellerin C, Rochette A, Racine E. Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues. Disabil Rehabil. 2011;33:1055–1064.
  • Perry L, Middleton S. An investigation of family carers’ needs following stroke survivors’ discharge from acute hospital care in Australia. Disabil Rehabil. 2011;33:1890–1900.
  • Stone K. Enhancing preparedness and satisfaction of caregivers of patients discharged from an inpatient rehabilitation facility using an interactive website. Rehabil Nurs. 2014;39:76–85.
  • Bertilsson A-S, Ranner M, von Koch L, et al. A client-centred ADL intervention: three-month follow-up of a randomized controlled trial. Scand J Occup Ther. 2014;21:377–391.
  • Dean SG, Siegert RJ, Taylor WJ, editors. Interprofessional rehabilitation: a person-centred approach. Chichester, West Sussex. Ames, Iowa: Wiley-Blackwell; 2012.
  • Luker JA, Bernhardsson S, Lynch E, et al. Carers’ experiences, needs and preferences during inpatient stroke rehabilitation: a protocol for a systematic review of qualitative studies. Syst. Rev. 2015;4:
  • Ytterberg C, von Koch L, Erikson A. Abandoned to the strains of daily life: a qualitative study of the long-term experiences in partners to persons after a mild to moderate stroke. Disabil Rehabil. 2017;1–7.
  • Davoody N, Koch S, Krakau I, et al. Post-discharge stroke patients’ information needs as input to proposing patient-centred eHealth services. BMC Med. Inform Decis Mak. 2016;16:66.
  • Jaracz K, Grabowska-Fudala B, Górna K, et al. Burden in caregivers of long-term stroke survivors: Prevalence and determinants at 6 months and 5 years after stroke. Patient Educ Couns. 2015;98:1011–1016.
  • Kruithof WJ, Visser-Meily JMA, Post MWM. Positive caregiving experiences are associated with life satisfaction in spouses of stroke survivors. J. Stroke Cerebrovasc Dis. 2012;21:801–807.
  • Saywell N, Taylor D. Focus group insights assist trial design for stroke telerehabilitation: a qualitative study. Physiother Theory Pract. 2015;31:160–165.
  • van den Berg M, Crotty M, Liu E, et al. Early supported discharge by caregiver-mediated exercises and e-health support after stroke: a proof-of-concept trial. Stroke. 2016;47:1885–1892.
  • Frederiksberg K. Selvhjulpenhed, recovery og aktiv deltagelse underst⊘ttet af velfaerdsteknologi. Plan 2015–2018 [Internet]; 2014 [cited 2017 Oct 25]. Available from: www.frederiksberg.dk/∼/media/eDoc/2/4/0/240813-2510457-13-pdf.ashx].
  • Iosa M, Morone G, Fusco A, et al. Seven capital devices for the future of stroke rehabilitation. Stroke Res Treat. 2012;2012:1–9.
  • Sureshkumar K, Murthy GVS, Munuswamy S, et al. ‘Care for Stroke’, a web-based, smartphone-enabled educational intervention for management of physical disabilities following stroke: feasibility in the Indian context. BMJ Innov. 2015;1:127–136.
  • Tielbur BR, Rice Cella DE, Currie A, et al. Discharge huddle outfitted with mobile technology improves efficiency of transitioning stroke patients into follow-up care. Am J Med Qual. 2015;30:36–44.
  • Gustavsson M, Ytterberg C, Nabsen Marwaa M, et al. Experiences of using information and communication technology within the first year after stroke – a grounded theory study. Disabil Rehabil. 2018;40(5):561-568.
  • Lundberg S. The results from a two-year case study of an information and communication technology support system for family caregivers. Disabil Rehabil Assist Technol. 2014;9:353–358.
  • Torp S, Hanson E, Hauge S, et al. A pilot study of how information and communication technology may contribute to health promotion among elderly spousal carers in Norway: ICT and health among elderly spousal carers. Health Soc Care Community. 2007;16:75–85.
  • Laver KE, Schoene D, Crotty M, et al. Telerehabilitation services for stroke. In: The Cochrane Collaboration, editor. Cochrane Database Syst. Rev. Chichester, UK: John Wiley & Sons, Ltd; 2013.
  • Charmaz K. Constructing grounded theory. 2nd ed. London;Thousand Oaks, California: Sage; 2014.
  • Duncan PW, Bode RK, Min Lai S, et al. Rasch analysis of a new stroke-specific outcome scale: the stroke impact scale11No commercial party having a direct financial interest in the results of the research supporting this article has or will confer a benefit upon the author(s) or upon any organization with which the author(s) is/are associated. Arch Phys Med Rehabil. 2003;84:950–963.
  • Patton MQ, Patton MQ. Qualitative research and evaluation methods. 3rd ed. Thousand Oaks, Calif: Sage Publications; 2002.
  • Brinkmann S, Tanggaard L. Kvalitative metoder: en grundbog. Kbh.: Hans Reitzel; 2015.
  • Halkier B. Fokusgrupper. 2nd ed. Frederiksberg: Samfundslitteratur; 2012.
  • Malterud K. Fokusgrupper som forskningsmetode for medisin og helsefag. Oslo: Universitetsforlaget; 2012.
  • Arntzen C, Hamran T. Stroke survivors’ and relatives’ negotiation of relational and activity changes: a qualitative study. Scand J Occup Ther. 2016;23:39–49.
  • Bastawrous M, Gignac MA, Kapral MK, et al. Adult daughters providing post-stroke care to a parent: a qualitative study of the impact that role overload has on lifestyle, participation and family relationships. Clin Rehabil. 2015;29:592–600.
  • Atteih S, Mellon L, Hall P, et al. Implications of stroke for caregiver outcomes: Findings from the ASPIRE-S Study. Int J Stroke. 2015;10:918–923.
  • Gbiri CA, Olawale OA, Isaac SO. Stroke management: Informal caregivers’ burdens and strians of caring for stroke survivors. Ann Phys Rehabil Med. 2015;58:98–103.
  • Bakas T, Clark PC, Kelly-Hayes M, et al. Evidence for stroke family caregiver and dyad interventions: a statement for healthcare professionals from the American Heart Association and American Stroke Association. Stroke. 2014;45:2836–2852.
  • Satink T, Cup EH, Ilott I, et al. Patients' views on the impact of stroke on their roles and self: a thematic synthesis of qualitative studies. Arch Phys Med Rehabil. 2013;94:1171–1183.
  • Lindqvist E, Borell L. Computer-based assistive technology and changes in daily living after stroke. Disabil Rehabil Assist Technol. 2012;7:364–371.
  • Wingham J, Adie K, Turner D, et al. Participant and caregiver experience of the Nintendo Wii Sports™ after stroke: qualitative study of the trial of Wii™ in stroke (TWIST)). Clin Rehabil. 2015;29:295–305.
  • Edgar MC, Monsees S, Rhebergen J, et al. Telerehabilitation in stroke recovery: a survey on access and willingness to use low-cost consumer technologies. Telemed J E Health. 2017;23:421–429.
  • Sveriges kommuner och Landsting. Visionen för e-hälsoarbetet [Internet]; 2017 [cited 2018 Dec 14]. Available from: https://skl.se/halsasjukvard/ehalsa/visionenehalsoarbetet.8859.html.
  • Esbjerg kommune. Fremtidens velfaerd med ny teknologi [Internet]. 2016 [cited 2018 Jan 22]. Available from: http://dinsundhed.esbjergkommune.dk/om-sundhed/politikker-og-handleplaner/strategi-for-velfaerdsteknologi.aspx.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.