The end of being a straight child: an autoethnography of coping with adolescent idiopathic scoliosis

References

• Sackett DL, Rosenberg WM, Gray JA. Evidence based medicine: what it is and what it isn’t. BMJ. 1996;312:71–72.
   PubMed Web of Science ®Google Scholar
• Gupta M. Improved health or improved decision making? The ethical goals of EBM. J Eval Clin Pract. 2011;17:957–963.
   PubMed Web of Science ®Google Scholar
• Kelly MP, Heath I, Howick J, et al. The importance of values in evidence-based medicine. BMC Med Ethics. 2015;16:69.
   PubMed Web of Science ®Google Scholar
• Greenhalgh T, Howick J, Maskrey N. Evidence based medicine: a movement in crisis? BMJ. 2014;348:g3725.
   PubMed Web of Science ®Google Scholar
• Mudge S, Stretton C, Kayes N. Are physiotherapists comfortable with person-centred practice? An autoethnographic insight. Disabil Rehabil. 2014;36:457–463.
   PubMed Web of Science ®Google Scholar
• Leplege A, Gzil F, Cammelli M, et al. Person-centredness: conceptual and historical perspectives. Disabil Rehabil. 2007;29:1555–1565.
   PubMed Web of Science ®Google Scholar
• Gzil F, Lefeve C, Cammelli M, et al. Why is rehabilitation not yet fully person-centred and should it be more person-centred? Disabil Rehabil. 2007;29:1616–1624.
   PubMed Web of Science ®Google Scholar
• Geyh S, Peter C, Müller R, et al. The personal factors of the International Classification of Functioning, Disability and Health in the literature – a systematic review and content analysis. Disabil Rehabil. 2011;33:1089–1102.
   PubMed Web of Science ®Google Scholar
• Müller R, Geyh S. Lessons learned from different approaches towards classifying personal factors. Disabil Rehabil. 2015;37:430–438.
   PubMed Web of Science ®Google Scholar
• Leonardi M, Sykes CR, Madden RC, et al. Do we really need to open a classification box on personal factors in ICF? Disabil Rehabil. 2016;38:1327–1328.
   PubMed Web of Science ®Google Scholar
• Hresko MT. Clinical practice. Idiopathic scoliosis in adolescents. N Engl J Med. 2013;368:834–841.
   PubMed Web of Science ®Google Scholar
• Negrini S, Grivas TB, Kotwicki T, et al. Why do we treat adolescent idiopathic scoliosis? What we want to obtain and to avoid for our patients. SOSORT 2005 Consensus paper. Scoliosis 2006;1:4.
   PubMedGoogle Scholar
• Negrini S, Dincer F, Kiekens C, et al. Evidence based position paper on physical and rehabilitation medicine (PRM) practice for people with spinal deformities during growth. The European PRM position (UEMSPRM Section). Eur J Phys Rehab Med 2017;53:125–131.
   PubMed Web of Science ®Google Scholar
• McMorris RO. Faulty posture. Pediatr Clin North Am. 1961;8:213–224.
   PubMedGoogle Scholar
• Andry N. L’orthopédie, ou, L’art de prevenir et corriger dans les enfans les difformitez du corps. [Orthopaedia or the art of correcting and preventing deformities in children]. Paris: Alix; 1741. French.
   Google Scholar
• Ponseti IV. History of orthopaedic surgery. Iowa Orthop J. 1991;11:59–64.
   Google Scholar
• Tones M, Moss N, Polly DW Jr. A review of quality of life and psychosocial issues in scoliosis. Spine (Phila Pa 1976). 2006;31:3027–3038.
   PubMed Web of Science ®Google Scholar
• Carrasco BMI, Ruiz S. Perceived self-image in adolescent idiopathic scoliosis: an integrative review of the literature. Rev Esc Enferm Usp. 2014;48:748–757.
   PubMed Web of Science ®Google Scholar
• Carrasco BMI, Ruiz SMC. Idiopathic adolescent scoliosis: living with a physical deformity. Texto Contexto Enferm 2016;25:e3640014.
   Google Scholar
• UK National Screening Committee. UK NSC recommendation on adolescent idiopathic scoliosis (AIS). 2016 Jul. https://legacyscreening.phe.org.uk/scoliosis.
   Google Scholar
• US Preventive Services Task Force. Screening for Adolescent Idiopathic Scoliosis. US Preventive Services Task Force Recommendation Statement. JAMA 2018;319:165–172.
   PubMed Web of Science ®Google Scholar
• Muncey T. Doing autoethnography. Int J Qual Methods. 2005;4:69–86.
   Google Scholar
• Ellis C, Bochner AP. Autoethnography, personal narrative, reflexivity: researcher as subject. In: Denzin NK, Lincoln YS, editors. Handbook of qualitative research. California (CA): Sage, Thousand Oaks; 2000. p. 733–768.
   Google Scholar
• Kvale S, Brinkmann S. InterViews: learning the craft of qualitative research interviewing. 2nd ed. Los Angeles (LA): Sage; 2009.
   Google Scholar
• Laslett B, Church K, Gullestad M, et al. Personal narratives as sociology. Cont Soc. 1999;28:391–401.
   Google Scholar
• Wall S. Easier said than done: writing an autoethnography. Int J Qual Methods. 2008;7:38–53.
   Google Scholar
• Weinstein SL, Dolan LA, Cheng JCY, et al. Adolescent idiopathic scoliosis. Lancet 2008;371:1527–1537.
   PubMed Web of Science ®Google Scholar
• Konieczny MR, Senyurt H, Krauspe R. Epidemiology of adolescent idiopathic scoliosis. J Child Orthop. 2013;7:3–9.
   PubMedGoogle Scholar
• Horne JP, Flannery R, Usman S. Adolescent idiopathic scoliosis: diagnosis and management. Am Fam Physician 2014;89:193–198.
   PubMed Web of Science ®Google Scholar
• Płaszewski M, Nowobilski R, Kowalski P, et al. Screening for scoliosis: different countries’ perspectives and evidence-based health care. Int J Rehab Res. 2012;35:13–19.
   PubMed Web of Science ®Google Scholar
• Płaszewski M, Bettany-Saltikov J. Are current scoliosis school screening recommendations evidence-based and up to date? A best evidence synthesis umbrella review. Eur Spine J. 2014;23:2572–2585.
   PubMed Web of Science ®Google Scholar
• Hresko MT, Talwalkar VR, Schwend RM. Position statement – screening for the early detection for idiopathic scoliosis in adolescents. SRS/POSNA/AAOS/AAP Position Statement 9/2/2015 v2. https://www.srs.org/about-srs/news-and-announcements/position-statement—screening-for-the-early-detection-for-idiopathic-scoliosis-in-adolescents.
   Google Scholar
• Taylor TK, Bushell G, Ghosh P, et al. School screening for scoliosis: a Pandora’s box. Aust N Z J Surg 1978;48:2–3.
   PubMedGoogle Scholar
• Dickson RA, Weinstein SL. Bracing (and screening)-yes or no? J Bone Joint Surg Br. 1999;81:193–198.
   PubMed Web of Science ®Google Scholar
• Sarwark JF, Davis MM. Evolving recommendations for scoliosis screening: a compelling need for further research. JAMA 2018;319:127–129.
   PubMed Web of Science ®Google Scholar
• Linker B. A dangerous curve: the role of history in America’s scoliosis screening programs. Am J Public Health. 2012;102:606–616.
   PubMed Web of Science ®Google Scholar
• Sanders AE, Andras LM, Iantorno SE, et al. Clinically significant psychological and emotional distress in 32% of adolescent idiopathic scoliosis patients. Spine Deform. 2018;6:435–440.
   PubMedGoogle Scholar
• Wisniewski LC. Off kilter: a woman’s journey to peace with scoliosis, her mother, and her Polish heritage. Nashville (TN): Pearlsong Press; 2008.
   Google Scholar
• Neville-Jan A. Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child. Disabil Soc 2004;19:113–127.
   Web of Science ®Google Scholar
• Bombard Y, Baker GR, Orlando E, et al. Engaging patients to improve quality of care: a systematic review. Implement Sci. 2018;13:98.
   PubMed Web of Science ®Google Scholar
• Rahman T, Bowen JR, Takemitsu M, et al. The association between brace compliance and outcome for patients with idiopathic scoliosis. J Pediatr Orthop. 2005;25:420–422.
   PubMed Web of Science ®Google Scholar
• Romano M, Minozzi S, Bettany-Saltikov J. Exercises for adolescent idiopathic scoliosis. Cochrane Database Syst Rev 2012;8:CD007837.
   Google Scholar
• Kayes NM, McPherson KM. Human technologies in rehabilitation: ‘Who’ and ‘How’ we are with our clients. Disabil Rehabil. 2012;34:1907–1911.
   PubMed Web of Science ®Google Scholar
• Gilman SL. “Stand up straight”: notes toward a history of posture. J Med Humanit. 2014;35:57–83.
   PubMedGoogle Scholar
• Sacks O. A leg to stand on. London (UK): Picador; 2012.
   Google Scholar
• McDougall J, Wright V, Rosenbaum P. The ICF model of functioning and disability: incorporating quality of life and human development. Dev Neurorehabil. 2010;13:204–211.
   PubMed Web of Science ®Google Scholar
• Dreyfus HL. Medicine as combining natural and human science. J Med Philos. 2011;36:335–341.
   PubMed Web of Science ®Google Scholar
• Dreyfus HL. Holism and hermeneutics. Rev Metaphys. 1980;34:3–23.
   Web of Science ®Google Scholar
• Stahl D. Imaging and imagining illness. Becoming whole in a broken body. Eugene (OR): Cascade Books; 2018.
   Google Scholar