References
- Cohen S. Social relationships and health. Am Psychol. 2004;59:676–684.
- Dow CM, Roche PA, Ziebland S. Talk of frustration in the narratives of people with chronic pain. Chronic Illn. 2012;8(3):176–191.
- Gustafsson M, Eckholm J, Ohman A. From shame to respect: musculoskeletal pain patients’ experience of a rehabilitation programme, a qualitative study. J Rehabil Med. 2004;36:97–103.
- Morley S, Davies C, Barton S. Possible selves in chronic pain: self-pain enmeshment, adjustment and acceptance. Pain. 2005;115:84–94.
- Mason VL, Skevington SM, Osborn M. Development of a pain and discomfort module for use with the WHOQOL-100. Qual Life Res. 2004;13:1139–1152.
- Schmidt A, Corcoran K, Grahame R, et al. How do people with chronically painful joint hypermobility syndrome make decisions about activity? Br J Pain. 2015;9:157–166.
- Honkasalo M. Vicissitudes of pain and suffering: chronic pain and liminality. Med Anthropol. 2001;19:319–353.
- Martensson L, Liedberg GM. Occupational life trajectories in the context of chronic pain and immigration. Scand J Occup Ther. 2016;23:383–390.
- Kool MB, van Middendorp H, Boeije H, et al. Understanding the lack of understanding: invalidation from the perspective of the patient with fibromyalgia. Arthritis Rheum. 2009;61:1650–1656.
- Linton SJ, Flink IK, Nilsson E, et al. Can training in empathetic validation improve medical students’ communication with patients suffering pain? a test of concept. Pain Rep. 2017;2:e600.
- Shenk CE, Fruzzetti AE. The impact of validating and invalidating responses on emotional reactivity. J Soc Clin Psychol. 2011;30:163–183.
- Cano A, Barterian JA, Heller JB. Empathic and nonempathic interaction in chronic pain couples. Clin J Pain. 2008;24:678–684.
- Barker KK. Listening to lyrica: contested illnesses and pharmaceutical determinism. Soc Sci Med. 2011;73:833–842.
- Matthias MS, Parpart AL, Nyland KA, et al. The patient-provider relationship in chronic pain care: providers' perspectives. Pain Med. 2010;11:1688–1697.
- Glenton C. Chronic back pain sufferers: striving for the sick role. Soc Sci Med. 2003;57:2243–2252.
- Birk LB. Erasure of the credible subject: an autoethographic account of chronic pain. Cult Stud. 2013;13:390–399.
- Sim J, Madden S. Illness experience in fibromyalgia syndrome: a metasynthesis of qualitative studies. Soc Sci Med. 2008;67:57–67.
- Slade SC, Molloy E, Keating JL. Stigma experienced by people with nonspecific chronic low back pain: a qualitative study. Pain Med. 2009;10:143–154.
- Ghavidel-Parsa B, Maafi AA, Aarabi Y, et al. Correlation of invalidation with symptom severity and health status in fibromyalgia. Rheumatology. 2015;54:482–486.
- Wernicke S, de Witt Huberts J, Wippert P. The pain of being misunderstood: invalidation of pain complaints in chronic low back pain patients. J Health Psychol. 2017;22:135–147
- Vangronsveld KL, Linton SJ. The effect of validating and invalidating communication on satisfaction, pain and affect in nurses suffering from low back pain during a semi-structured interview. Eur J Pain. 2012;16:239–246.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
- Nowell LS, Norris JM, White DE, et al. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Meth. 2017;16:1–13.
- Johnson NS, Harwood EM, Nguyen R. “You have to go through it and have your children”: reproductive experiences among women with vulvodynia. BMC Pregnancy Childb. 2015;15:114. http://creativecommons.org/licenses/by/4.0
- Hadi MA, Alldred DP, Briggs M, et al. 'Treated as a number, not treated as a person': a qualitative exploration of the perceived barriers to effective pain management of patients with chronic pain. BMJ Open. 2017;7:e016454. http://creativecommons.org/licenses/by-nc/4.0/
- Antoniou T, Ala-Leppilampi K, Shearer D, et al. “Like being put on an ice floe and shoved away”: a qualitative study of the impacts of opioid-related policy changes on people who take opioids. Int J Drug Policy. 2019;66:15–22. http://creativecommons.org/licenses/BY-NC-ND/4.0/
- Kostova Z, Caiata-Zufferey M, Schulz PJ. Can social support work virtually? evaluation of rheumatoid arthritis patients’ experiences with an interactive online tool. Pain Res Manag. 2015;20:199–209. http://creativecommons.org/licenses/by-nc/4.0/
- Gilbert P. Compassion focused therapy: distinctive features. New York (NY): Routledge/Taylor & Francis Group; 2010.
- Bee P, McBeth J, MacFarlane GJ, et al. Managing chronic widespread pain in primary care: a qualitative study of patient perspectives and implications for treatment delivery. BMC Musculoskelet Disord. 2016;17:354. http://creativecommons.org/licenses/by/4.0/
- Nøst TH, Steinsbekk A, Riseth L, et al. Expectations towards participation in easily accessible pain management interventions: a qualitative study. BMC Health Serv Res. 2017;17:712. http://creativecommons.org/licenses/by/4.0/
- Broom AF, Kirby ER, Adams J, et al. On Illegitimacy, suffering and recognition: a diary study of women living with chronic pain. Sociology. 2015;49:712–731.
- LePage K, Selk A. What do patients want? a needs assessment of vulvodynia patients attending a vulvar diseases clinic. Sex Med. 2016;4:e242–e248. http://creativecommons.org/licenses/by-nc-nd/4.0/
- Brooks EA, Unruh A, Lynch ME. Exploring the lived experience of adults using prescription opioids to manage chronic noncancer pain. Pain Res Manag. 2015;20:15–22. http://creativecommons.org/licenses/by-nc/4.0
- Poulin PA, Nelli J, Tremblay S, et al. Chronic pain in the emergency department: a pilot mixed-methods cross-sectional study examining patient characteristics and reasons for presentations. Pain Res Manag. 2016;2016:1–10. https://creativecommons.org/licenses/by/4.0/
- Leiper DA, Elliott AM, Hannaford PC. Experiences and perceptions of people with headache: a qualitative study. BMC Fam Pract. 2006;7:27–37. http://creativecommons.org/licenses/by/2.0
- Persson M, Winkvist A, Dahlgren L, et al. “Struggling with daily life and enduring pain”: a qualitative study of the experiences of pregnant women living with pelvic girdle pain. BMC Pregnancy Childb. 2013;13:111. http://creativecommons.org/licenses/by/2.0
- Haller H, Saha FJ, Ebner B, et al. Emotional release and physical symptom improvement: a qualitative analysis of self-reported outcomes and mechanisms in patients treated with neural therapy. BMC Complement Altern Med. 2018;18:311. http://creativecommons.org/licenses/by/4.0/
- Wenham A, Atkin K, Woodman J, et al. Self-efficacy and embodiment associated with Alexander Technique lessons or with acupuncture sessions: a longitudinal qualitative sub-study within the ATLAS trial. Complement Ther Clin Pract. 2018;31:308–314. http://creativecommons.org/licenses/by/4.0
- Hara KW, Borchgrevink PC, Jacobsen HB, et al. Transdiagnostic group-based occupational rehabilitation for participants with chronic pain, chronic fatigue and common mental disorders. A Feasibility Study. Disabil Rehabil. 2018;40:2516–2526. http://creativecommons.org/licenses/by-nc-nd/4.0/
- Webster F, Perruccio AV, Jenkinson R, et al. Where is the patient in models of patient-centred care: a grounded theory study of total joint replacement patients. BMC Health Serv Res. 2013;13:531. http://creativecommons.org/licenses/by/2.0
- Baumeister RF, Leary MR. The need to belong: desire for interpersonal attachments as a fundamental human emotion. Psychol Bull. 1995;112:461–484.
- Tsai S, Crawford E, Strong J. Seeking virtual social support through blogging: a content analysis of published blog posts written by people with chronic pain. Digit Health. 2018;4:1–10. http://creativecommons.org/licenses/by/4.0/
- Lynch M, Sloane G, Sinclair C, et al. Resilience and art in chronic pain. Arts Health. 2013;5:51–67.
- Snelgrove S, Edwards S, Liossi C. A longitudinal study of patients' experiences of chronic low back pain using interpretative phenomenological analysis: changes and consistencies. Psychol Health. 2013;28:121–138.
- Upshur CC, Bacigalupe G, Luckmann R. “They don't want anything to do with you”: patient views of primary care management of chronic pain. Pain Med. 2010;11:1791–1798.
- Vroman K, Warner R, Chamberlain K. Now let me tell you in my own words: narratives of acute and chronic low back pain. Disabil Rehabil. 2009;31:976–987.
- Baumeister RF, Tice DM. Point-counterpoints: anxiety and social exclusion. J Soc Clin Psychol. 1990;9:165–195.
- Richardson JC. Establishing the (extra)ordinary in chronic widespread pain. Health. 2005;9:31–48.
- Cunningham MM, Jillings C. Individuals’ descriptions of living with fibromyalgia. Clin Nurs Res. 2006;15:258–273.
- Maly MR, Krupa T. Personal experience of living with knee osteoarthritis among older adults. Disabil Rehabil. 2007;29:1423–1433.
- Lavie-Ajayi M, Almog N, Krumer-Nevo M. Chronic pain as a narratological distress: a phenomenological study. Chronic Illn. 2012;8:192–200.
- Snelgrove S, Liossi C. An interpretative phenomenological analysis of living with chronic low back pain. Brit J Health Psychol. 2009;14:735–749.
- Monsivais DB. Decreasing the stigma burden of chronic pain. J Am Assoc Nurse Pract. 2013;25:551–556.
- Busch H. Appraisal and coping processes among chronic low back pain patients. Scand J Caring Sci. 2005;19:396–402.
- Howell SL. A theoretical model for caring for women with chronic nonmalignant pain. Qual Health Res. 1994;4:94–122.
- Holloway I, Sofaer-Bennett B, Walker J. The stigmatisation of people with chronic back pain. Disabil Rehabil. 2007;29:1456–1464.
- Dorflinger L, Kerns RD, Auerbach SM. Providers' roles in enhancing patients' adherence to pain self management. Behav Med Pract Policy Res. 2013;3:39–46.
- Fuertes JN, Anand P, Haggerty G, et al. The physician–patient working alliance and patient psychological attachment, adherence, outcome expectations, and satisfaction in a sample of rheumatology patients. Behav Med. 2015;41:60–68.
- Dickerson SS, Gruenewald TL, Kemeny ME. When the social self is threatened: shame, physiology, and health. J Personality. 2004;72:1191–1216.
- Werner A, Steihaug S, Malterud K. Encountering the continuing challenges for women with chronic pain: recovery through recognition. Qual Health Res. 2003;13:491–509.
- Juuso P, Skär L, Olsson M, et al. Meanings of being received and met by others as experienced by women with fibromyalgia. Qual Health Res. 2014;24:1381–1390.