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Research Papers

Health, wellness, and safety concerns of persons with moderate-to-severe traumatic brain injury and their family caregivers: a qualitative content analysis

ORCID Icon, , , &
Pages 685-695 | Received 07 Jan 2019, Accepted 27 Jun 2019, Published online: 12 Jul 2019

References

  • Centers for Disease Control and Prevention. TBI data and statistics [Internet]. 2017 [cited 2019 Jul 01]. Available from: https://www.cdc.gov/traumaticbraininjury/data/index.html
  • Dewan MC, Rattani A, Gupta S, et al. Estimating the global incidence of traumatic brain injury. J Neurosurg. 2018;1–18.
  • Schumacher R, Walder B, Delhumeau C, et al. Predictors of inpatient (neuro) rehabilitation after acute care of severe traumatic brain injury: an epidemiological study. Brain Inj. 2016;30:1186–1193.
  • Babikian T, Asarnow R. Neurocognitive outcomes and recovery after pediatric TBI: meta-analytic review of the literature. Neuropsychology. 2009;23:283.
  • de Koning ME, Spikman JM, Coers A, et al. Pathways of care the first year after moderate and severe traumatic brain injury—discharge destinations and outpatient follow-up. Brain Inj. 2015;29:423–429.
  • Mellick D, Gerhart KA, Whiteneck GG. Understanding outcomes based on the post-acute hospitalization pathways followed by persons with traumatic brain injury. Brain Inj. 2003;17:55–71.
  • Walker WC, Pickett TC. Motor impairment after severe traumatic brain injury: a longitudinal multicenter study. J Rehabil Res Dev. 2007;44:975.
  • Corrigan JD, Hammond FM. Traumatic brain injury as a chronic health condition. Arch Phys Med Rehabil. 2013;94:1199–1201.
  • Turner B, Fleming J, Parry J, et al. Caregivers of adults with traumatic brain injury: the emotional impact of transition from hospital to home. Brain Impair. 2010;11:281–292.
  • Turner B, Fleming J, Ownsworth T, et al. Perceived service and support needs during transition from hospital to home following acquired brain injury. Disabil Rehabil. 2011;33:818–829.
  • Lefebvre H, Levert MJ. Breaking the news of traumatic brain injury and incapacities. Brain Inj. 2006;20:711–718.
  • Pegg PO Jr., Auerbach SM, Seel RT, et al. The impact of patient-centered information on patients’ treatment satisfaction and outcomes in traumatic brain injury rehabilitation. Rehabil Psychol. 2005;50:366.
  • Levack WM, Siegert RJ, Dean SG, et al. Goal planning for adults with acquired brain injury: how clinicians talk about involving family. Brain Inj. 2009;23:192–202.
  • Rotondi AJ, Sinkule J, Balzer K, et al. A qualitative needs assessment of persons who have experienced traumatic brain injury and their primary family caregivers. J Head Trauma Rehabil. 2007;22:14–25.
  • Stone K. Enhancing preparedness and satisfaction of caregivers of patients discharged from an inpatient rehabilitation facility using an interactive website. Rehabil Nurs. 2014;39:76–85.
  • Leith KH, Phillips L, Sample PL. Exploring the service needs and experiences of persons with TBI and their families: the South Carolina experience. Brain Inj. 2004;18:1191–1208.
  • Nalder E, Fleming J, Cornwell P, et al. Linked lives: the experiences of family caregivers during the transition from hospital to home following traumatic brain injury. Brain Impair. 2012;13:108–122.
  • Weiss ME, Piacentine LB. Psychometric properties of the readiness for hospital discharge scale. J Nurs Measure. 2006;14:163.
  • Kreutzer JS, Livingston LA, Everley RS, et al. Caregivers’ concerns about judgment and safety of patients with brain injury: a preliminary investigation. PMR. 2009;1:723–728.
  • Tyson BT, Pham MT, Brown NT, et al. Patient safety considerations in the rehabilitation of the individual with cognitive impairment. Phys Med Rehabil Clin N Am. 2012;23:315–334.
  • Man D. A preliminary study to investigate the empowerment factors of survivors who have experienced brain damage in rehabilitation. Brain Inj. 2001;15:961–973.
  • Turner B, Fleming J, Ownsworth T, et al. Perceptions of recovery during the early transition phase from hospital to home following acquired brain injury: a journey of discovery. Neuropsychol Rehabil. 2011;21:64–91.
  • Turner B, Ownsworth T, Cornwell P, et al. Reengagement in meaningful occupations during the transition from hospital to home for people with acquired brain injury and their family caregivers. Am J Occup Ther. 2009;63:609–620.
  • Willer BS, Allen KM, Liss M, et al. Problems and coping strategies of individuals with traumatic brain injury and their spouses. Arch Phys Med Rehabil. 1991;72:460–464.
  • Lefebvre H, Cloutier G, Josée Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22:535–543.
  • Turner B, Fleming J, Cornwell P, et al. A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Inj. 2007;21:1119–1130.
  • Liddle J, Hayes R, Gustafsson L, et al. Managing driving issues after an acquired brain injury: strategies used by health professionals. Aust Occup Ther J. 2014;61:215–223. Aug
  • Man DWK, Lee EWT, Tong ECH, et al. Health services needs and quality of life assessment of individuals with brain injuries: a pilot cross-sectional study. Brain Inj. 2004;18:577–591.
  • Seel RT, Kreutzer JS, Rosenthal M, et al. Depression after traumatic brain injury: a national institute on disability and rehabilitation research model systems multicenter investigation. Arch Phys Med Rehabil. 2003;84:177–184.
  • Callahan D. The WHO definition of’health’. Hastings Cent Stud. 1973;1:77–87.
  • Adams T, Bezner J, Steinhardt M. The conceptualization and measurement of perceived wellness: integrating balance across and within dimensions. Am J Health Promot. 1997;11:208–218.
  • Bezner JR. Promoting health and wellness: implications for physical therapist practice. Phys Ther. 2015;95:1433–1444.
  • Cayne BS, Bolander DO. New Webster’s dictionary and thesaurus of the English language. New York (NY): Lexicon Publications; 1991.
  • Caplan B, Bogner J, Brenner L, et al. Factors affecting caregiver burden 1 year after severe traumatic brain injury: a prospective nationwide multicenter study. J Head Trauma Rehabil. 2015;30:411–423.
  • Kolakowsky-Hayner SA, Bellon K, Yang Y. Unintentional injuries after TBI: potential risk factors, impacts, and prevention. NeuroRehabilitation. 2016;39:363–370.
  • Novack TA, Bush BA, Meythaler JM, et al. Outcome after traumatic brain injury: pathway analysis of contributions from premorbid, injury severity, and recovery variables. Arch Phys Med Rehabil. 2001;82:300–305.
  • Vaishnavi S, Rao V, Fann JR. Neuropsychiatric problems after traumatic brain injury: unraveling the silent epidemic. Psychosomatics. 2009;50:198–205.
  • Jennekens N, De Casterlé BD, Dobbels F. A systematic review of care needs of people with traumatic brain injury (TBI) on a cognitive, emotional and behavioural level. J Clin Nurs. 2010;19:1198–1206.
  • Black N. Why we need qualitative research. J Epidemiol Community Health. 1994;48:425.
  • Kneafsey R, Gawthorpe D. Head injury: long-term consequences for patients and families and implications for nurses. J Clin Nurs. 2004;13:601–608.
  • Oyesanya TO. The experience of patients with ABI and their families during the hospital stay: a systematic review of qualitative literature. Brain Inj. 2017;31:151–173.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19:349–357.
  • Malec JF. Mayo-Portland adaptability inventory. Encyclopedia of clinical neuropsychology. Berlin, Germany: Springer; 2011. p. 1526–1530.
  • Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277–1288.
  • Elo S, Kyngäs H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
  • Morse JM. Determining sample size. Qual Health Res. 2000;10:3–5.
  • Sandelowski M. The problem of rigor in qualitative research. Ans Adv Nurs Sci. 1986;8:27–37.
  • Sandelowski M. Using qualitative research. Qual Health Res. 2004;14:1366–1386.
  • Liu VC, Mohammad I, Deol BB, et al. Post-discharge medication reconciliation: reduction in readmissions in a geriatric primary care clinic. J Aging Health. 2018;089826431879557.
  • Ponniah A, Anderson B, Shakib S, et al. Pharmacists’ role in the post-discharge management of patients with heart failure: a literature review. J Clin Pharm Ther. 2007;32:343–352.
  • Brooks DN, Aughton ME, Bond MR, et al. Cognitive sequelae in relationship to early indices of severity of brain damage after severe blunt head injury. J Neurol Neurosurg Psychiatry. 1980;43:529–534.
  • Wong D, Sinclair K, Seabrook E, et al. Smartphones as assistive technology following traumatic brain injury: a preliminary study of what helps and what hinders. Disabil Rehabil. 2017;39:2387–2394.
  • Oyesanya TO, Ward EC. Mental health in women with traumatic brain injury: a systematic review on depression and hope. Health Care Women Int. 2016;37:45–74.
  • Baumann CR, Werth E, Stocker R, et al. Sleep–wake disturbances 6 months after traumatic brain injury: a prospective study. Brain. 2007;130:1873–1883.
  • Parcell DL, Ponsford JL, Redman JR, et al. Poor sleep quality and changes in objectively recorded sleep after traumatic brain injury: a preliminary study. Arch Phys Med Rehabil. 2008;89:843–850.
  • Shekleton JA, Parcell DL, Redman JR, et al. Sleep disturbance and melatonin levels following traumatic brain injury. Neurology. 2010;74:1732–1738.
  • Theadom A, Rowland V, Levack W, et al. Exploring the experience of sleep and fatigue in male and female adults over the 2 years following traumatic brain injury: a qualitative descriptive study. BMJ Open. 2016;6:e010453.
  • Nalder E, Fleming J, Cornwell P, et al. Reflections on life: experiences of individuals with brain injury during the transition from hospital to home. Brain Inj. 2013;27:1294–1303.
  • Self M, Driver S, Stevens L, et al. Physical activity experiences of individuals living with a traumatic brain injury: a qualitative research exploration. Adapt Phys Activ Q. 2013;30:20–39.
  • Huggins JM, Brown JN, Capehart B, et al. Medication adherence in combat veterans with traumatic brain injury. Am J Health Syst Pharm. 2011;68:254–258.
  • Douglas JM. Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Inj. 2013;27:60–74.
  • Gracey F, Palmer S, Rous B, et al. “Feeling part of things”: personal construction of self after brain injury. Neuropsychol Rehabil. 2008;18:627–650.
  • Muenchberger H, Kendall E, Neal R. Identity transition following traumatic brain injury: a dynamic process of contraction, expansion and tentative balance. Brain Inj. 2008;22:979–992.
  • Hart T, Vaccaro MJ. Goal intention reminding in traumatic brain injury: a feasibility study using implementation intentions and text messaging. Brain Inj. 2017;31:297–303.
  • Charters E, Gillett L, Simpson GK. Efficacy of electronic portable assistive devices for people with acquired brain injury: a systematic review. Neuropsychol Rehabil. 2015;25:82–121.
  • Jamieson M, Cullen B, McGee-Lennon M, et al. Technological memory aid use by people with acquired brain injury. Neuropsychol Rehabil. 2017;27:919–936.
  • Jones TM, Dean CM, Hush JM, et al. A systematic review of the efficacy of self-management programs for increasing physical activity in community-dwelling adults with acquired brain injury (ABI). Syst Rev. 2015;4:51.
  • Seel RT, Macciocchi S, Velozo CA, et al. The safety assessment measure for persons with traumatic brain injury: item pool development and content validity. NeuroRehabilitation. 2016;39:371–387.

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