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Perspectives in Rehabilitation

Use of the International Classification of Functioning, Disability and Health to support goal-setting practices in pediatric rehabilitation: a rapid review of the literature

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 884-894 | Received 22 May 2019, Accepted 10 Jul 2019, Published online: 25 Jul 2019

References

  • Boyle CA, Decoufle P, Yeargin-Allsopp M. Prevalence and health impact of developmental disabilities in US children. Pediatrics 1994;93:399–403.
  • Newacheck PW, Inkelas M, Kim SE. Health services use and health care expenditures for children with disabilities. Pediatrics 2004;114:79–85.
  • Rogers ML, Hogan DP. Family Life With Children With Disabilities: The Key Role of Rehabilitation. J Marriage and Family. 2003;65:818–833.
  • Buizer AI, Martens BHM, Grandbois van Ravenhorst C. Effect of continuous intrathecal baclofen therapy in children: a systematic review. Dev Med Child Neurol. 2019;61:128–134.
  • Nguyen L, Di Rezze B, Mesterman R, et al. Effects of Botulinum Toxin Treatment in Nonambulatory Children and Adolescents With Cerebral Palsy: Understanding Parents’ Perspectives. J Child Neurol. 2018;33:724–733.
  • Cristella G, Filippi MC, Mori M, et al. Evaluation of hand function in patients with unilateral cerebral palsy who underwent multilevel functional surgery: a retrospective observational study. Eur J Phys Rehabil Med. 2018;55:123–130.
  • Lindsay S, Hounsell KG. Adapting a robotics program to enhance participation and interest in STEM among children with disabilities: a pilot study. Disabil Rehabil. 2017;Assistive:694–704.
  • Ulrich T, Heinen F, Borggraefe I, et al. Practical Recommendations for Robot-Assisted Treadmill Therapy (Lokomat) in Children with Cerebral Palsy: Indications, Goal Setting, and Clinical Implementation within the WHO-ICF Framework. Neuropediatrics 2015;46:248–260.
  • Palacios-Ceña D, Fernández-de-las-Peñas C, Lambeck J, et al. What areas of functioning are influenced by aquatic physiotherapy? Experiences of parents of children with cerebral palsy. Dev Neurorehabil. 2017;21:506–514.
  • Bamm EL, Rosenbaum P. Family-centered theory: origins, development, barriers, and supports to implementation in rehabilitation medicine. Arch Phys Med Rehabil. 2008;89:1618–1624.
  • King S, Teplicky R, King G, et al. Family-Centered Service for Children With Cerebral Palsy and Their Families: A Review of the Literature. Semin Pediatr Neurol. 2004;11:78–86.
  • Rosenbaum P. Clinical review Cerebral palsy: what parents and doctors want to know. BMJ. 2003;326:970–974.
  • Rosenbaum P, King S, Law M, et al. Family-centred service: A conceptual framework and research review. Phys Occup Ther Pediatr. 1998;18:1–20.
  • Hanna K, Rodger S. Feature Article Towards family-centred practice in paediatric occupational therapy: A review of the literature on parent-therapist collaboration. 2002;14–24.
  • Coyne I. Families and health-care professionals’ perspectives and expectations of family-centred care: hidden expectations and unclear roles. Health Expect. 2015;18:796–808.
  • Shields L, Pratt J, Hunter J. Family centred care: a review of qualitative studies. J Clin Nurs. 2006;15:1317–1323.
  • MacKean GL, Thurston WE, Scott CM. Bridging the divide between families and health professionals’ perspectives on family-centred care. Health Expect. 2005;8:74–85.
  • King G, Chiarello L. Family-Centered Care for Children With Cerebral Palsy: Conceptual and Practical Considerations to Advance Care and Practice. J Child Neurol. 2014;29:1046–1054.
  • Armstrong J. The Benefits and Challenges of Interdisciplinary, Client-Centred, Goal Setting in Rehabilitation. New Zeal J Occup Ther. 2008;55:20–25.
  • Ostensjø S, Oien I, Fallang B. Goal-oriented rehabilitation of preschoolers with cerebral palsy–a multi-case study of combined use of the Canadian Occupational Performance Measure (COPM) and the Goal Attainment Scaling (GAS). Dev Neurorehabil. 2008;11:252–259.
  • Lammi BM, Law M. The effects of family-centred functional therapy on the occupational performance of children with cerebral palsy. Can J Occup Ther. 2003;70:285–297.
  • World Health Organization. International Classification of Functioning, Disability and Health (ICF). Geneva, Switzerland: World Health Organization; 2001.
  • Björck-Åkesson E, Wilder J, Granlund M, et al. The International Classification of Functioning, Disability and Health and the version for children and youth as a tool in child habilitation/early childhood intervention - Feasibility and usefulness as a common language and frame of reference for practic. Disabil Rehabil. 2010;32:S125–S138.
  • Darrah J, Wiart L, Magill-Evans J, et al. Are family-centred principles, functional goal setting and transition planning evident in therapy services for children with cerebral palsy? Child Care Health Dev. 2012;38:41–47.
  • Sheehan A, Angeli JM, Harpster KL, et al. Patient- and caregiver-identified preferences: Dimensions of change in developmental therapy treatment goals. Dev Neurorehabil. 2018;22:39–46.
  • Wiart L. Goal Setting in Paediatric Rehabilitation. In: Siegert RJ, Levack WMM, editors. Rehabil. Goal Setting Theory, Pract. Evid. Boca Raton: Taylor & Francis; 2015. p. 291–304.
  • Jeglinsky I, Brogren Carlberg E, Autti-Räm I. How are actual needs recognized in the content and goals of written rehabilitation plans? Disabil Rehabil. 2014;36:441–451.
  • Siebes RC, Ketelaar M, Gorter JW, et al. Transparency and tuning of rehabilitation care for children with cerebral palsy: A multiple case study in five children with complex needs. Dev Neurorehabil. 2007;10:193–204.
  • Mesterman R, Gorter JW, Harvey A, et al. Botulinum Toxin Type A in Children and Adolescents With Severe Cerebral Palsy: A Retrospective Chart Review. J Child Neurol. 2014;29:210–213.
  • Pritchard-Wiart L, Phelan SK. Goal setting in paediatric rehabilitation for children with motor disabilities: a scoping review. Clin Rehabil. 2018;32:954–966.
  • Löwing K, Hamer EG, Bexelius A, et al. Exploring the relationship of family goals and scores on standardized measures in children with cerebral palsy, using the ICF-CY. Dev Neurorehabil. 2011;14:79–86.
  • Dalen HE, Nyquist A, Saebu M, et al. Implementation of ICF in goal setting in rehabilitation of children with chronic disabilities at Beitostolen Healthsports Centre. Disabil Rehabil. 2013;35:198–205.
  • McDougall J, Wright V. The ICF-CY and Goal Attainment Scaling: benefits of their combined use for pediatric practice. Disabil Rehabil. 2009;31:1362–1372.
  • Arksey H, O'Malley L. Scoping studies: Towards a methodological framework. Int. J. Soc. Res. Methodol. Theory Pract. 2005;8:19–32.
  • Khangura S, Konnyu K, Cushman R. Evidence summaries: A rapid review method. Syst Rev. 2012;1:20146–24053.
  • Dobbins M. Rapid Review Guidebook [Internet]. 2017; [cited 2019 Mar 20]. Available from: https://www.nccmt.ca/uploads/media/media/0001/01/a816af720e4d587e13da6bb307df8c907a5dff9a.pdf
  • World Health Organization. Rapid reviews to strength health policy and systems: a practical guide [Internet]. 2017 [cited 2019 May 17]. Available from: https://www.who.int/alliance-hpsr/resources/publications/rapid-review-guide/en/
  • Khangura S, Polisena J, Clifford TJ, et al. Rapid review: An emerging approach to evidence synthesis in health technology assessment. Int J Technol Assess Health Care. 2014;30:20–27.
  • Tricco AC, Antony J, Zarin W, et al. A scoping review of rapid review methods. BMC Med. 2015; 13:224.
  • Abrami PC, Borokhovski E, Bernard RM, et al. Issues in conducting and disseminating brief reviews of evidence. Evid Policy. 2010;6:371–389.
  • Allen KD, Wilczynski SM, Evans JH. Pediatric rehabilitation: Defining a field, a focus, and a future. Int J Rehab Health. 1997;3:25–40.
  • Elo S, Kyngä H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
  • Backman E, Granlund M, Karlsson A-K. Documentation of everyday life and health care following gastrostomy tube placement in children: a content analysis of medical records. Disabil Rehabil. 2019;1–11.
  • Bexelius A, Carlberg EB, Löwing K. Quality of goal setting in pediatric rehabilitation—A SMART approach. Child Care Health Dev. 2018;44:850–856.
  • Darrah J, Wiart L, Magill-Evans J. Do therapists’ goals and interventions for children with cerebral palsy reflect principles in contemporary literature? Pediatr Phys Ther. 2008;20:334–339.
  • Law M, Imms C, Mathews S, et al. Optimising leisure participation: a pilot intervention study for adolescents with physical impairments. Disabil Rehabil. 2016;38:963–971.
  • Jeglinsky I, Salminen A, Carlberg EB, et al. Rehabilitation planning for children and adolescents with cerebral palsy. J Pediatr Rehabil Med. 2012; 5:203–215.
  • Lustenberger NA, Prodinger B, Dorjbal D, et al. Compiling standardized information from clinical practice: using content analysis and ICF Linking Rules in a goal-oriented youth rehabilitation program. Disabil Rehabil. 2017;0:1–9.
  • Nguyen L, Mesterman R, Gorter JW. Development of an inventory of goals using the International Classification of Functioning, Disability and Health in a population of non-ambulatory children and adolescents with cerebral palsy treated with botulinum toxin A. BMC Pediatr. 2018;18:1.
  • Nijhuis BJ, Reinders-Messelink HA, de Blécourt AC, et al. Goal setting in Dutch paediatric rehabilitation. Are the needs and principal problems of children with cerebral palsy integrated into their rehabilitation goals? Clin Rehabil. 2008;22:348–363.
  • Nijhuis BJ, Reinders-Messelink HA, de Blécourt AC, et al. Needs, problems and rehabilitation goals of young children with cerebral palsy as formulated in the rehabilitation activities profile for children. J Rehabil Med. 2008;40:347–354.
  • Preston N, Clarke M, Bhakta B. Development of a framework to define the functional goals and outcomes of botulinum toxin A spasticity treatment relevant to the child and family living with cerebral palsy using the International Classification of Functioning, Disability and Health for Children and Youth. J Rehabil Med. 2011;43:1010–1015.
  • Rainey L, Van Nispen R, Van Rens G. Evaluating rehabilitation goals of visually impaired children in multidisciplinary care according to ICF-CY guidelines. Acta Ophthalmol. 2014;92:689–696.
  • Robertson CMT, Deforge SM, Dosman CF. Goal setting within a tertiary-level early developmental intervention program. Paediatr. Child Heal. 2017;22:184–189.
  • Williams U, Rosenbaum P, Gorter JW, et al. Psychometric properties and parental reported utility of the 19-item “ 'About My Child' (AMC-19) measure”. BMC Pediatr. 2018;18:174
  • Wade D. Goal setting in rehabilitation: an overview of what, why and how. Clin Rehabil. 2009; 23:291–295.
  • Law M, Baptiste S, McColl M, et al. The Canadian occupational performance measure: an outcome measure for occupational therapy. Can J Occup Ther. 1990;57:82–87.
  • Verkerk GJ, Wolf MJM, Louwers AM, et al. The reproducibility and validity of the Canadian Occupational Performance Measure in parents of children with disabilities. Clin Rehabil. 2006;20:980–988.
  • Cusick A, Lannin N. a, Lowe K. Adapting the Canadian Occupational Performance Measure for use in a paediatric clinical trial. Disabil. Rehabil. 2007;29:761–766.
  • The Canadian Occupational Performance Measure. Properties of the COPM [Internet]. 2019 [cited 2019 Mar 20]. Available from: http://www.thecopm.ca/casestudy/psychometric-properties-of-the-copm/
  • Sherman RE, Kiresuk T. Goal attainment scaling: A general method for evaluating comprehensive community mental health programs. Community Ment Health J. 1968;4:443–453.
  • Steenbeek D, Ketelaar M, Galama K, et al. Goal attainment scaling in paediatric rehabilitation: A critical review of the literature. Dev Med Child Neurol. 2007;49:550–556.
  • Steenbeek D, Ketelaar M, Galama K, et al. Goal attainment scaling in paediatric rehabilitation: A report on the clinical training of an interdisciplinary team. Child Care Health Dev. 2008;34:521–529.
  • Costa UM, Brauchle G, Kennedy-Behr A. Collaborative goal setting with and for children as part of therapeutic intervention. Disabil Rehabil. 2017;39:1589–1600.
  • Wiart L, Ray L, Darrah J, et al. Parents’ perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disabil Rehabil. 2010;32:248–258.
  • Franki I, De Cat J, Deschepper E, et al. A clinical decision framework for the identification of main problems and treatment goals for ambulant children with bilateral spastic cerebral palsy. Res Dev Disabil. 2014;35:1160–1176.
  • Westby C. Application of the ICF in children with language impairments. Semin Speech Lang. 2007;28:265–272.
  • Vargus-Adams JN, Martin LK. Domains of importance for parents, medical professionals and youth with cerebral palsy considering treatment outcomes. Child Care Health Dev. 2011;37:276–281.
  • Vroland-Nordstrand K, Eliasson A-C, Jacobsson H, et al. Can children identify and achieve goals for intervention? A randomized trial comparing two goal-setting approaches. Dev Med Child Neurol. 2016;58:589–596.
  • Rosenbaum P, Gorter JW. The “F-words” in childhood disability: I swear this is how we should think. Child Care Health Dev. 2012;38:457–463.
  • Cross A, Rosenbaum P, Grahovac D, et al. Knowledge mobilization to spread awareness of the ‘F-words’ in childhood disability: lessons from a family-researcher partnership. Child Care Health Dev. 2015;41:947–953.
  • Cross A, Rosenbaum P, Grahovac D, et al. A Web-Based Knowledge Translation Resource for Families and Service Providers (The “F-Words” in Childhood Disability Knowledge Hub): Developmental and Pilot Evaluation Study. JMIR Rehabil Assist Technol. 2018;5:e10439.
  • CanChild. Research in Practice: F-Words in Childhood Disability Knowledge Hub. [Internet]. 2019 [cited 2019 May 17]. Available from: https://canchild.ca/en/research-in-practice/f-words-in-childhood-disability/f-words-tools
  • Majnemer A, Shikako-Thomas K, Lach L, et al. Rehabilitation service utilization in children and youth with cerebral palsy. Child Care Health Dev. 2014;40:275–282.
  • Toomey M, Nicholson D, Carswell A. The clinical utility of the Canadian occupational performance measure. Can J Occup Ther. 1995;62:242–249.

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