References
- Hoskins HE. Bill 41 patients first act. 2016 Dec 8 [cited 2017 Jan 10]. Available from: http://www.ontla.on.ca/web/bills/bills_detail.do?locale=en&BillID=4215.
- Ministry of Labour. Family caregiver leave. 2015 Nov 20 [cited 2017 Jan 10]. Available from: https://www.labour.gov.on.ca/english/es/pubs/guide/caregiver.php.
- Kalra L, Evans A, Perez I. Training carers of stroke patients: a randomized controlled trial. Br Med J. 2004;328:1099. https://doi-org.myaccess.library.utoronto.ca/10.1136/bmj.328.7448.1099
- Forster A, Dickerson J, Young J, et al. A structured training programme for caregivers of inpatients after stroke (TRACS): a cluster randomised controlled trial and cost-effectiveness analysis. Lancet. 2013;382:2069–2076.
- Cameron JI, O’Connell C, Foley N, et al. Canadian Stroke Best Practice Recommendations: managing transitions of care following stroke, guidelines update 2016. Int J Stroke. 2016;11:807–822.
- White CL, Cantu AG, Trevino MM. Interventions for caregivers of stroke survivors: an update of the evidence. Clin Nurs Stud. 2015;3:87–95.
- Legg LA, Quinn TJ, Mahmood F, et al. Non-pharmacological interventions for caregivers of stroke survivors. Cochrane Database Syst Rev. 2011;(5):CD008179.
- Cameron JI, Naglie G, Gignac MAM, et al. Randomized clinical trial of the timing it right stroke family support program: research protocol. BMC Health Serv Res. 2014;14:18.
- Cameron JI, Naglie G, Green TL, et al. A feasibility and pilot randomized controlled trial of the “Timing it Right Stroke Family Support Program.” Clin Rehabil. 2015;29:1129–1140.
- Rochette A, Korner-Bitensky N, Desrosiers J. Actual vs. best practice for families post-stroke according to three rehabilitation disciplines. Acta Derm Venereol. 2007;39:513–519.
- Rochette A, Racine E, Lefebvre H, et al. Actual and ideal services in acute care and rehabilitation for relatives post-stroke from three perspectives: relatives, stroke clients and health professionals. J Rehabil Med. 2014;46:16–22.
- Clarke DJ, Godfrey M, Hawkins R, et al. Implementing a training intervention to support caregivers after stroke: a process evaluation examining the initiation and embedding of programme change. Imp Sci. 2013;8:96.
- Clarke DJ, Hawkins R, Sadler E, et al. Introducing structured caregiver training in stroke care: findings from the TRACS process evaluation study. BMC Open. 2014;4:e004473.
- Nilsen P. Making sense of implementation theories, models and frameworks. Implement Sci. 2015;10:53.
- Graham ID, Logan J, Harrison MB, et al. Lost in knowledge translation: time for a map? J Contin Educ Health Prof. 2006;26:13–24.
- Damshroder L, Aron D, Keith R, et al. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4:50.
- Lewis M, Trypuc J, Lindsay P, et al. Has Ontario's stroke system really made a difference? Healthc Q. 2006;9:50–59.
- Kapral MK, Fang J, Silver FL, et al. Effect of a provincial system of stroke care delivery on stroke care and outcomes. CMAJ. 2013;185:E483.
- Marshall MN. The key informant technique. Fam Pract. 1996;13:92–97.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
- Mauthner NS, Doucet AS. Reflexive accounts and accounts of reflexivity in qualitative data analysis. Sociology 2003;37:413–431.
- Coffey A, Atkinson P. Making sense of qualitative data: complementary research strategies. Thousand Oaks (CA): Sage Publications; 1996. Chapter 2, Concepts and coding; p. 26–53.
- Cameron JI, Naglie G, Silver F, et al. Stroke family caregivers’ support needs change across the care continuum: a qualitative study using the timing it right framework. Disabil Rehabil. 2013;35:315–324.
- Quinn K, Murray C, Malone C. Spousal experiences of coping with and adapting to caregiving for a partner who has a stroke: a meta-synthesis of qualitative research. Disabil Rehabil. 2014;36:185–198.
- Tsai PC, Yip PK, Tai JJ, et al. Needs of family caregivers of stroke patients: a longitudinal study of caregivers’ perspectives. Patient Prefer Adher. 2015;9:449–457.
- Hollander MJ, Liu G, Chappell NL. Who cares and how much? The imputed economic contribution to the Canadian healthcare system of middle-aged and older unpaid caregivers providing care to the elderly. Healthc Q. 2009;12:42–49.
- Hinojosa MS, Rittman M. Association between health education needs and stroke caregiver injury. J Aging Health. 2009;21:1040–1058.
- Cameron JI, Stewart DE, Streiner DL, et al. What makes family caregivers happy during the first 2 years post stroke? Stroke 2014;45:1084–1089.
- Grigorovich A, Forde S, Levinson D, et al. Restricted participation in stroke caregivers: who is at risk? Arch Phys Med Rehabil. 2015;96:1284–1290.
- Pellerin C, Rochette A, Racine E. Social participation of relatives post-stroke: the role of rehabilitation and related ethical issues. Disabil Rehabil. 2011;33:1055–1064.
- Greenwood N, Mackenzie A, Cloud GC, et al. Informal primary carers of stroke survivors living at home – challenges, satisfactions and coping: a systematic review of qualitative studies. Disabil Rehabil. 2009;31:337–351.
- Ganapathy V, Graham GD, DiBonaventura MD, et al. Caregiver burden, productivity loss, and indirect costs associated with caring for patients with poststroke spasticity. Clin Interv Aging. 2015;10:1793–1802.
- Kuluski K, Peckham A, Williams AP, et al. What gets in the way of person-centered care for people with multimorbidity? Lessons from Ontario, Canada. Healthc Q. 2016;19:17–23.
- Visser-Meily A, Post M, Gorter JW, et al. Rehabilitation of stroke patients needs a family-centered approach. Disabil Rehabil. 2006;28:1557–1561.
- Donner G, Fooks C, McReynolds J, et al. Bringing care home. 2015 [cited 2018 Jan 20]. Available from: http://health.gov.on.ca/en/public/programs/lhin/docs/hcc_report.pdf.
- Ministry of Health and Long-Term Care. Patients first: a roadmap to strengthen home and community care. Canada: Ministry of Health and Long-Term Care; 2015.
- Straus SE, Graham ID, Tetroe J. Knowledge translation in health care: moving from evidence to practice. Toronto (ON): BMJ Books; 2013.
- Heslin M, Forster A, Healey A, et al. A systematic review of the economic evidence for interventions for family carers of stroke patients. Clin Rehabil. 2016;30:119–133.
- Barendregt C, van der Poel A, van de Mheen D. Tracing selection effects in three non-probability samples. Eur Addict Res. 2005;11:124–131.