Activity resumption after acquired brain injury: the influence of the social network as described by social workers

References

• Walsh ME, Galvin R, Loughnane C, et al. Community re-integration and long-term need in the first five years after stroke: results from a national survey. Disabil Rehabil. 2015;37:1834–1838.
   PubMed Web of Science ®Google Scholar
• McInnes K, Friesen CL, MacKenzie DE, et al. Mild traumatic brain injury (mtbi) and chronic cognitive impairment: a scoping review. PLoS One. 2017;12:e0174847.
   PubMed Web of Science ®Google Scholar
• Cawood J, Visagie S, Mji G. Impact of post-stroke impairments on activities and participation as experienced by stroke survivors in a Western Cape setting. S Afr J Occup Ther. 2016;46:10–15.
   Google Scholar
• Lefebvre H, Cloutier G, Josee Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22:535–543.
   PubMed Web of Science ®Google Scholar
• Finch E, French A, Ou RJ, et al. Participation in communication activities following traumatic brain injury: a time use diary study. Brain Inj. 2016;30:883–890.
   PubMed Web of Science ®Google Scholar
• Lexell EM, Alkhed AK, Olsson K. The group rehabilitation helped me adjust to a new life: experiences shared by persons with an acquired brain injury. Brain Inj. 2013;27:529–537.
   PubMed Web of Science ®Google Scholar
• Riley GA, Brennan AJ, Powell T. Threat appraisal and avoidance after traumatic brain injury: why and how often are activities avoided? Brain Inj. 2004;18:871–888.
   PubMed Web of Science ®Google Scholar
• Anderson S, Whitfield K. Social identity and stroke: ‘they don’t make me feel like, there’s something wrong with me’. Scand J Caring Sci. 2013;27:820–830.
   PubMed Web of Science ®Google Scholar
• Klinke ME, Hafsteinsdottir TB, Thorsteinsson B, et al. Living at home with eating difficulties following stroke: a phenomenological study of younger people’s experiences. J Clin Nurs. 2014;23:250–260.
   PubMed Web of Science ®Google Scholar
• Pallesen H. Body, coping and self-identity. A qualitative 5-year follow-up study of stroke. Disabil Rehabil. 2014;36:232–241.
   PubMed Web of Science ®Google Scholar
• Haun J, Rittman M, Sberna M. The continuum of connectedness and social isolation during post stroke recovery. J Aging Stud. 2008;22:54–64.
   PubMed Web of Science ®Google Scholar
• Egan M, Davis CG, Dubouloz CJ, et al. Participation and well-being poststroke: evidence of reciprocal effects. Arch Phys Med Rehabil. 2014;95:262–268.
   PubMed Web of Science ®Google Scholar
• Moeller D, Carpenter C. Factors affecting quality of life for people who have experienced a stroke. Int J Ther Rehabil. 2013;20:207–216.
   Google Scholar
• Cott CA, Wiles R, Devitt R. Continuity, transition and participation: preparing clients for life in the community post-stroke. Disabil Rehabil. 2007;29:1566–1574.
   PubMed Web of Science ®Google Scholar
• Whiteneck G, Dijkers MP. Difficult to measure constructs: conceptual and methodological issues concerning participation and environmental factors. Arch Phys Med Rehabil. 2009;90:22–35.
   PubMed Web of Science ®Google Scholar
• Hoyle M, Gustafsson L, Meredith P, et al. Participation after stroke: do we understand all the components and relationships as categorised in the ICF? Brain Impair. 2012;13:4–15.
   Web of Science ®Google Scholar
• Hammel J, Magasi S, Heinemann A, et al. Environmental barriers and supports to everyday participation: a qualitative insider perspective from people with disabilities. Arch Phys Med Rehabil. 2015;96:578–588.
   PubMed Web of Science ®Google Scholar
• Satink T, Josephsson S, Zajec J, et al. Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses. Disabil Rehabil. 2016;8:1–11.
   Google Scholar
• Wang PP, Badley EM, Gignac M. Exploring the role of contextual factors in disability models. Disabil Rehabil. 2006;28:135–140.
   PubMed Web of Science ®Google Scholar
• Jellema S, van Hees S, Zajec J, et al. What environmental factors influence resumption of valued activities post stroke: a systematic review of qualitative and quantitative findings. Clin Rehabil. 2017;31:936–947.
   PubMed Web of Science ®Google Scholar
• Jellema S, van der Sande R, van Hees S, et al. Role of environmental factors on resuming valued activities poststroke: a systematic review of qualitative and quantitative findings. Arch Phys Med Rehabil. 2016;97:991–1002.
   PubMed Web of Science ®Google Scholar
• Heinemann AW, Magasi S, Hammel J, et al. Environmental factors item development for persons with stroke, traumatic brain injury, and spinal cord injury. Arch Phys Med Rehabil. 2015;96:589–595.
   PubMed Web of Science ®Google Scholar
• Takada K, Sashika H, Wakabayashi H, et al. Social participation and quality-of-life of patients with traumatic brain injury living in the community: a mixed methods study. Brain Inj. 2016;30:1590–1598.
   PubMed Web of Science ®Google Scholar
• Noreau L, Boschen K. Intersection of participation and environmental factors: a complex interactive process. Arch Phys Med Rehabil. 2010;91:44–53.
   PubMed Web of Science ®Google Scholar
• Beckley MN. Community participation following cerebrovascular accident: impact of the buffering model of social support. Am J Occup Ther. 2006;60:129–135.
   PubMed Web of Science ®Google Scholar
• Gottlieb A, Golander H, Bar-Tal Y, et al. The influence of social support and perceived control on handicap and quality of life after stroke. Aging Clin Exp Res. 2001;13:11–15.
   Web of Science ®Google Scholar
• Dalemans RJ, De Witte LP, Beurskens AJ, et al. An investigation into the social participation of stroke survivors with aphasia. Disabil Rehabil. 2010;32:1678–1685.
   PubMed Web of Science ®Google Scholar
• Jorgensen DL. Applied social research methods: participant observation. Thousand Oaks (CA): SAGE Publications; 1989.
   Google Scholar
• Hammer B, Fletcher F, Hibbert A. Participant observation: enhancing the impact measurement in community based participatory research. Qual Rep. 2017;22:439–455.
   Web of Science ®Google Scholar
• Pu M-M. Spoken and written narratives: a comparative study. J Chin Lang Comp. 2006;16:37–61.
   Google Scholar
• Hsieh HF, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15:1277–1288.
   PubMed Web of Science ®Google Scholar
• Kubina L-A, Dubouloz C-J, Davis CG, et al. The process of re-engagement in personally valued activities during the two years following stroke. Disabil Rehabil. 2013;35:236–243.
   PubMed Web of Science ®Google Scholar
• Satink T, Josephsson S, Zajec J, et al. Self-management develops through doing of everyday activities: a longitudinal qualitative study of stroke survivors during two years post-stroke. BMC Neurol. 2016;16:221–234.
   PubMed Web of Science ®Google Scholar
• Arntzen C, Hamran T. Stroke survivors’ and relatives’ negotiation of relational and activity changes: a qualitative study. Scand J Occup Ther. 2016;23:39–49.
   PubMed Web of Science ®Google Scholar
• Grigorovich A, Forde S, Levinson D, et al. Restricted participation in stroke caregivers: who is at risk? Arch Phys Med Rehabil. 2015;96:1284–1290.
   PubMed Web of Science ®Google Scholar
• Godwin E, Chappell B, Kreutzer J. Relationships after TBI: a grounded research study. Brain Inj. 2014;28:398–413.
   PubMed Web of Science ®Google Scholar
• Rudman DL, Hebert D, Reid D. Living in a restricted occupational world: the occupational experiences of stroke survivors who are wheelchair users and their caregivers. Can J Occup Ther. 2006;73:141–152.
   PubMedGoogle Scholar
• Jellema S, Wijnen MA, Steultjens EM, et al. Valued activities and informal caregiving in stroke: a scoping review. Disabil Rehabil. 2018;17:1–12.
   Google Scholar
• McPherson CJ, Wilson KG, Chyurlia L, et al. The balance of give and take in caregiver-partner relationships: an examination of self-perceived burden, relationship equity, and quality of life from the perspective of care recipients following stroke. Rehabil Psychol. 2010;55:194–203.
   PubMed Web of Science ®Google Scholar
• Savundranayagam MY, Montgomery RJ. Impact of role discrepancies on caregiver burden among spouses. Res Aging 2010;32:175–199.
   Web of Science ®Google Scholar
• Pierce LL, Thompson TL, Govoni AL, et al. Caregivers’ incongruence: emotional strain in caring for persons with stroke. Rehabil Nurs. 2012;37:258–266.
   PubMed Web of Science ®Google Scholar
• Hawley CA, Ward AB, Magnay AR, et al. Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Inj. 2003;17:1–23.
   PubMed Web of Science ®Google Scholar
• Roscigno CI, Swanson KM. Parents’ experiences following children’s moderate to severe traumatic brain injury: a clash of cultures. Qual Health Res. 2011;21:1413–1426.
   PubMed Web of Science ®Google Scholar
• Elloker T, Rhoda AJ. The relationship between social support and participation in stroke: a systematic review. Afr J Disabil. 2018;7:357–366.
   PubMed Web of Science ®Google Scholar
• Dhand A, Luke DA, Lang CE, et al. Social networks and neurological illness. Nat Rev Neurol. 2016;12:605–612.
   PubMed Web of Science ®Google Scholar
• Flashman LA, McAllister TW. Lack of awareness and its impact in traumatic brain injury. NeuroRehabilitation 2002;17:285–296.
   PubMed Web of Science ®Google Scholar
• Van Heugten CM, Bertens D, Spikman J. Richtlijn neuropsychologische revalidatie [Guideline on neuropsychological rehabilitation]. Utrecht (The Netherlands): Nederlands Instituut Van Psychologen [the Dutch Association of Psychologists]; 2017.
   Google Scholar