Experiences of fatigue in daily life of people with acquired brain injury: a qualitative study

References

• Menon DK, Bryant C. Time for change in acquired brain injury. Lancet Neurol. 2019;18(1):28.
   PubMed Web of Science ®Google Scholar
• Headway. Acquired Brain Injury 2016–2017: statistics based on UK admissions. 2019. Available from: https://www.headway.org.uk/about-brain-injury/further-information/statistics/
   Google Scholar
• Ponsford JL, Ziino C, Parcell DL, et al. Fatigue and sleep disturbance following traumatic brain injury—their nature, causes, and potential treatments. J Head Trauma Rehabil. 2012;27(3):224–233.
   PubMed Web of Science ®Google Scholar
• Acciarresi M, Bogousslavsky J, Paciaroni M. Post-stroke fatigue: epidemiology, clinical characteristics and treatment. Eur Neurol. 2014;72(5–6):255–261.
   PubMed Web of Science ®Google Scholar
• Elf M, Eriksson G, Johansson S, et al. Self-reported fatigue and associated factors six years after stroke. PLoS One. 2016;11(8):e0161942.
   PubMed Web of Science ®Google Scholar
• Ponsford JL, Downing MG, Olver J, et al. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury. J Neurotrauma. 2014;31(1):64–77.
   PubMed Web of Science ®Google Scholar
• De Doncker W, Dantzer R, Ormstad H, et al. Mechanisms of poststroke fatigue. J Neurol Neurosurg Psychiatry. 2018;89(3):287–293.
   PubMed Web of Science ®Google Scholar
• Mollayeva T, Kendzerska T, Mollayeva S, et al. A systematic review of fatigue in patients with traumatic brain injury: the course, predictors and consequences. Neurosci Biobehav Rev. 2014;47:684–716.
   PubMed Web of Science ®Google Scholar
• Chaudhuri A, Behan PO. Fatigue in neurological conditions. Lancet. 2004;363(9413):978–988.
   PubMed Web of Science ®Google Scholar
• Leavitt VM, DeLuca J. Central fatigue: issues related to cognition, mood and behaviour; and psychiatric diagnoses. PM&R. 2010;2(5):332–337.
   Web of Science ®Google Scholar
• Cantor JB, Gordon W, Gumber S. What is post TBI fatigue? Neurorehabilitation. 2013;32(4):875–883.
   PubMed Web of Science ®Google Scholar
• Feigin VL, Barker-Collo S, Parag V, et al. Prevalence and predictors of 6-month fatigue in patients with ischemic stroke: a population-based stroke incidence study in Auckland, New Zealand, 2002–2003. Stroke. 2012;43(10):2604–2609.
   PubMed Web of Science ®Google Scholar
• Chaudhuri A, Behan P. Fatigue and basal ganglia. J Neurol Sci. 2000;179(1–2):34–42.
   PubMed Web of Science ®Google Scholar
• Andersen G, Christensen D, Kirkevold M, et al. Post-stroke fatigue and return to work: a 2-year follow-up. Acta Neurol Scand. 2012;125(4):248–253.
   PubMed Web of Science ®Google Scholar
• Jackson S, Mercer C, Singer BJ. An exploration of factors influencing physical activity levels amongst a cohort of people living in the community after stroke in the south of England. Disabil Rehabil. 2018;40(4):414–424.
   PubMed Web of Science ®Google Scholar
• Nicholson SL, Donaghy M, Johnston M, et al. A qualitative theory guided analysis of stroke survivors’ perceived barriers and facilitators to physical activity. Disabil Rehabil. 2014;36(22):1857–1868.
   PubMed Web of Science ®Google Scholar
• Ezekiel L, Collett J, Mayo NE, et al. Factors associated with participation in life situations for adults with stroke: a systematic review. Arch Phys Med Rehabil. 2019;100(5):945–955.
   PubMed Web of Science ®Google Scholar
• White JH, Gray KR, Magin P, et al. Exploring the experience of post-stroke fatigue in community dwelling stroke survivors: a prospective qualitative study. Disabil Rehabil. 2012;34(16):1376–1384.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Ormstad H, Kirkevold M. Experiences of poststroke fatigue: qualitative meta-synthesis. J Adv Nurs. 2013;69(3):514–525.
   PubMed Web of Science ®Google Scholar
• Theadom A, Rowland V, Levack W, et al. Exploring the experience of sleep and fatigue in male and female adults over the 2 years following traumatic brain injury: a qualitative descriptive study. BMJ Open. 2016;6(4):e010453.
   PubMed Web of Science ®Google Scholar
• Duncan F, Lewis SJ, Greig CA, et al. Exploratory longitudinal cohort study of associations of fatigue after stroke. Stroke. 2015;46(4):1052–1058.
   PubMed Web of Science ®Google Scholar
• Flinn NaStube JE. Post-stroke fatigue: qualitative study of three focus groups. Occup Ther Int. 2010;17(2):81–91.
   PubMed Web of Science ®Google Scholar
• Piercy KL, Troiano RP, Ballard R, et al. The Physical Activity Guidelines for Americans. JAMA. 2018;320(19):2020–2028.
   PubMed Web of Science ®Google Scholar
• Durcan D, Bell R. Local action on health inequalities: reducing social isolation across the lifecourse. London: UCL Institute of Health Equity; 2015.
   Google Scholar
• Bowen A, James M, Young G, editors. National clinical guideline for stroke. 5th ed. London: Royal College of Physicians; 2016.
   Google Scholar
• Barker-Collo S, Feigin VL, Dudley M. Post stroke fatigue – where is the evidence to guide practice? N Z Med J. 2007;120(1264):U2780–U2780.
   PubMedGoogle Scholar
• Marshall S, Bayley M, McCullagh S, et al. Updated clinical practice guidelines for concussion/mild traumatic brain injury and persistent symptoms. Brain Inj. 2015;29(6):688–700.
   PubMed Web of Science ®Google Scholar
• Wylie GR, Flashman LA. Understanding the interplay between mild traumatic brain injury and cognitive fatigue: models and treatments. Concussion. 2017;2(4):CNC50.
   PubMedGoogle Scholar
• Huguet A, McGrath P, Wheaton M, et al. Testing the feasibility and psychometric properties of a mobile diary (myWHI) in adolescents and young adults with headaches. JMIR mHealth uHealth. 2015;3(2):e39.
   PubMed Web of Science ®Google Scholar
• Schwandt T. Constructivist, interpretativist approaches to human inquiry. In: Denzin N, Lincoln Y, editors. From the landscape of qualitative research: theories and issues. Thousand Oaks: Sage; 1998. p. 221–259.
   Google Scholar
• Rubin H, Rubin I. Qualitative interviewing: the art of hearing data. 3rd ed. Thousand Oaks: Sage; 2012.
   Google Scholar
• Krupp LB, LaRocca NG, Muir-Nash J, et al. The fatigue severity scale. Application to patients with multiple sclerosis and systemic lupus erythematosus. Arch Neurol. 1989;46(10):1121–1123.
   PubMed Web of Science ®Google Scholar
• Herdman M, Gudex C, Lloyd A, et al. Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L). Qual Life Res. 2011;20(10):1727–1736.
   PubMed Web of Science ®Google Scholar
• Lerdal A, Kottorp A. Psychometric properties of the Fatigue Severity Scale-Rasch analyses of individual responses in a Norwegian stroke cohort. Int J Nurs Stud. 2011;48(10):1258–1265.
   PubMed Web of Science ®Google Scholar
• Whitehead L. The measurement of fatigue in chronic illness: a systematic review of unidimensional and multidimensional fatigue measures. J Pain Symptom Manage. 2009;37(1):107–128.
   PubMed Web of Science ®Google Scholar
• Ziino C, Ponsford J. Measurement and prediction of subjective fatigue following traumatic brain injury. J Int Neuropsychol Soc. 2005;11(4):416–425.
   PubMed Web of Science ®Google Scholar
• Valko PO, Bassetti CL, Bloch KE, et al. Validation of the Fatigue Severity Scale in a Swiss Cohort. Sleep. 2008;31(11):1601–1607.
   PubMed Web of Science ®Google Scholar
• Janssen MF, Pickard AS, Golicki D, et al. Measurement properties of the EQ-5D-5L compared to the EQ-5D-3L across eight patient groups: a multi-country study. Qual Life Res. 2013;22(7):1717–1727.
   PubMed Web of Science ®Google Scholar
• Ritchie J, Lewis J, McNaughton Nicholls C, et al. Qualitative research practice. 2nd ed. London: Sage Publications; 2013.
   Google Scholar
• Gale N, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13:117.
   PubMed Web of Science ®Google Scholar
• Palstam A, Törnbom M, Sunnerhagen KS. Experiences of returning to work and maintaining work 7 to 8 years after a stroke: a qualitative interview study in Sweden. BMJ Open. 2018;8(7):e021182.
   PubMed Web of Science ®Google Scholar
• Muller T, Apps M. Motivational fatigue: a neurocognitive framework for the impact of effortful exertion on subsequent motivation. Neuropsychologia. 2019;123:141–151.
   PubMed Web of Science ®Google Scholar
• Visser-Keizer AC, Hogenkamp A, Westerhof-Evers HJ, et al. Dutch multifactor fatigue scale: a new scale to measure the different aspects of fatigue after acquired brain injury. Arch Phys Med Rehabil. 2015;96(6):1056–1063.
   PubMed Web of Science ®Google Scholar
• Beaulieu-Bonneau S, Ouellet M-C. Fatigue in the first year after traumatic brain injury: course, relationship with injury severity, and correlates. Neuropsychol Rehabil. 2017;27(7):983–1001.
   PubMed Web of Science ®Google Scholar
• Ouellet M-C, Morin CM. Fatigue following traumatic brain injury: frequency, characteristics, and associated factors. Rehabil Psychol. 2006;51(2):140–149.
   Web of Science ®Google Scholar
• Kirkevold M, Christensen D, Andersen G, et al. Fatigue after stroke: manifestations and strategies. Disabil Rehabil. 2012;34(8):665–670.
   PubMed Web of Science ®Google Scholar
• Bushnik T, Englander J, Wright J. Patterns of fatigue and its correlates over the first 2 years after traumatic brain injury. J Head Trauma Rehabil. 2008;23(1):25–32.
   PubMed Web of Science ®Google Scholar
• van de Port IGL, Kwakkel G, Schepers VPM, et al. Is fatigue an independent factor associated with activities of daily living, instrumental activities of daily living and health-related quality of life in chronic stroke? Cerebrovasc Dis. 2007;23(1):40–45.
   PubMed Web of Science ®Google Scholar
• Cantor JB, Ashman T, Gordon W, et al. Fatigue after traumatic brain injury and its impact on participation and quality of life. J Head Trauma Rehabil. 2008;23(1):41–51.
   PubMed Web of Science ®Google Scholar
• Norlander A, Carlstedt E, Jönsson A-C, et al. Long-term predictors of social and leisure activity 10 years after stroke. Plos One. 2016;11(2):e0149395.
   PubMed Web of Science ®Google Scholar
• Crosby GA, Munshi S, Karat AS, et al. Fatigue after stroke: frequency and effect on daily life. Disabil Rehabil. 2012;34(8):633–637.
   PubMed Web of Science ®Google Scholar
• Ormstad H, Eilertsen G. A biopsychosocial model of fatigue and depression following stroke. Med Hypotheses. 2015;85(6):835–841.
   PubMed Web of Science ®Google Scholar
• Rochette A, Tribble DS, Desrosiers J, et al. Adaptation and coping following a first stroke: a qualitativ. Int J Rehabil Res. 2006;29(3):247–249.
   PubMed Web of Science ®Google Scholar
• Buono VL, Corallo F, Bramanti P, et al. Coping strategies and health-related quality of life after stroke: [research-article; cited 2015 Jul 27]. Available from: http://dxdoiorg/101177/1359105315595117
   Google Scholar
• Norrie J, Heitger M, Leathem J, et al. Mild traumatic brain injury and fatigue: a prospective longitudinal study. Brain Injury. 2010;24(13–14):1528–1538.
   PubMed Web of Science ®Google Scholar
• Karasz A, McKinley PS. Cultural differences in conceptual models of everyday fatigue: a vignette study. J Health Psychol. 2007;12(4):613–626.
   PubMed Web of Science ®Google Scholar
• Chan V, Mollayeva T, Ottenbacher KJ, et al. Clinical profile and comorbidity of traumatic brain injury among younger and older men and women: a brief research notes. BMC Res Notes. 2017;10(1).371.
   PubMedGoogle Scholar
• Fischer U, Arnold M, Nedeltchev K, et al. Impact of comorbidity on ischemic stroke outcome. Acta Neurol Scand. 2006;113(2):108–113.
   PubMed Web of Science ®Google Scholar