A Chinese version of the young children’s participation and environment measure: psychometric evaluation in a Hong Kong sample

References

• World Health Organization. International classification of functioning, disability, and health. Geneva: World Health Organization; 2001.
   Google Scholar
• Law M. Participation in the occupations of everyday life. Am J Occup Ther. 2002;56:640–649.
   PubMed Web of Science ®Google Scholar
• Babulal GM, Bakhshi P, Kopriva S, Ali SA, et al. Measuring participation for persons with mental illness: a systematic review assessing relevance of existing scales for low and middle income countries. BMC Psychol. 2015;3:36.
   PubMedGoogle Scholar
• Dunst CJ, Hamby D, Trivette CM, et al. Young children’s participation in everyday family and community activity. Psychol Rep. 2002;91:875–897.
   PubMed Web of Science ®Google Scholar
• Bernheimer LP, Weisner TS. Let me just tell you what I do all day. The family story at the center of intervention research and practice. Infants Young Child. 2007;20:192–201.
   Web of Science ®Google Scholar
• Coster W, Khetani MA. Measuring participation of children with disabilities: issues and challenges. Disabil Rehabil. 2008;30:639–648.
   PubMed Web of Science ®Google Scholar
• Bornstein MH, Hendricks C. Screening for developmental disabilities in developing countries. Soc Sci Med. 2013;97:307–315.
   PubMed Web of Science ®Google Scholar
• Boyle CA, Boulet S, Schieve LA, et al. Trends in the prevalence of developmental disabilities in US children, 1997-2008. Pediatrics. 2011;127:1034–1042.
   PubMed Web of Science ®Google Scholar
• Benjamin TE, Lucas-Thompson RG, Little LM, et al. Participation in early childhood educational environments for young children with and without developmental disabilities and delays: a mixed methods study. Phys Occup Ther Pediatr. 2017;37:87–107.
   PubMed Web of Science ®Google Scholar
• Khetani M, Graham JE, Alvord C. Community participation patterns among preschool-aged children who have received Part C early intervention services. Child Care Health Dev. 2013;39:490–499.
   PubMed Web of Science ®Google Scholar
• Chien CW, Rodger S, Copley J. Differences in patterns of physical participation in recreational activities between children with and without intellectual and developmental disability. Res Dev Disabil. 2017;67:9–18.
   PubMed Web of Science ®Google Scholar
• Tang KM, Chen TY, Lau VW, et al. Clinical profile of young children with mental retardation and developmental delay in Hong Kong. Hong Kong Med J. 2008;14:97–102.
   PubMedGoogle Scholar
• Labour and Welfare Bureau. Hong Kong Fact Sheet – Rehabilitation. [cited 2019 Sep 24]. Available from: http://www.lwb.gov.hk/eng/factsheet/HKFS_rehabilitation.htm
   Google Scholar
• UN General Assembly. Convention on the Rights of Persons with Disabilities: resolution/adopted by the General Assembly. 24 January 2007 [cited 2019 Sep 24]. A/RES/61/106. Available from: http://www.refworld.org/docid/45f973632.html
   Google Scholar
• Social Welfare Department. Pre-school Rehabilitation Services. [cited 2019 Jul 27]. Available from: https://www.swd.gov.hk/en/index/site_pubsvc/page_rehab/sub_listofserv/id_serpresch/
   Google Scholar
• Lam SF, Wong BP, Leung D, et al. How parents perceive and feel about participation in community activities. The comparison between parents of preschoolers with and without Autism Spectrum Disorders. Autism. 2010;14:359–377.
   PubMed Web of Science ®Google Scholar
• Leung GP, Chan CC, Chung RC, Pang MY. Determinants of activity and participation in preschoolers with developmental delay. Res Dev Disabil. 2011;32:289–296.
   PubMed Web of Science ®Google Scholar
• Chien CW, Rodger S, Copley J, et al. Measures of participation outcomes related to hand use for 2- to 12-year-old children with disabilities: a systematic review. Child Care Health Dev. 2014;40:458–471.
   PubMed Web of Science ®Google Scholar
• Phillips RL, Olds T, Boshoff K, et al. Measuring activity and participation in children and adolescents with disabilities: a literature review of available instruments. Aust Occup Ther J. 2013;60:288–300.
   PubMed Web of Science ®Google Scholar
• Hwang JL. The reliability and validity of the School Function Assessment-Chinese version. OTJR: Occup Particip Health. 2005;25:44–54.
   Web of Science ®Google Scholar
• Kang LJ, Hwang AW, Palisano RJ, et al. Validation of the Chinese version of the Assessment of Preschool Children’s Participation for children with physical disabilities. Dev Neurorehabil. 2017;20:266–273.
   PubMed Web of Science ®Google Scholar
• Anaby D, Law M, Coster W, et al. The mediating role of the environment in explaining participation of children and youth with and without disabilities across home, school, and community. Arch Phys Med Rehabil. 2014;95:908–917.
   PubMed Web of Science ®Google Scholar
• Albrecht EC, Khetani MA. Environmental impact on young children’s participation in home-based activities. Dev Med Child Neurol. 2017;59:388–394.
   PubMed Web of Science ®Google Scholar
• Khetani MA, Graham JE, Davies PL, et al. Psychometric properties of the Young Children’s Participation and Environment Measure. Arch Phys Med Rehabil. 2015;96:307–316.
   PubMed Web of Science ®Google Scholar
• Khetani MA. Validation of environmental content in the Young Children’s Participation and Environment Measure. Arch Phys Med Rehabil. 2015;96:317–322.
   PubMed Web of Science ®Google Scholar
• Jarvis JM, Choong K, Khetani MA. Associations of participation-focused strategies and rehabilitation service use with caregiver stress after pediatric critical illness. Arch Phys Med Rehabil. 2019;100:703–710.
   PubMed Web of Science ®Google Scholar
• Khetani MA, Albrecht EC, Jarvis JM, et al. Determinants of change in home participation among critically ill children. Dev Med Child Neurol. 2018;60:793–800.
   PubMed Web of Science ®Google Scholar
• Di Marino E, Tremblay S, Khetani M, et al. The effect of child, family and environmental factors on the participation of young children with disabilities. Disabil Health J. 2018;11:36–42.
   PubMed Web of Science ®Google Scholar
• Arestad KE, MacPhee D, Lim CY, et al. Cultural adaptation of a pediatric functional assessment for rehabilitation outcomes research. BMC Health Serv Res. 2017;17:658.
   PubMed Web of Science ®Google Scholar
• Astrom FM, Khetani M, Axelsson AK. Young Children’s participation and environment measure: Swedish cultural adaptation. Phys Occup Ther Pediatr. 2018;38:329–342.
   PubMed Web of Science ®Google Scholar
• Lim CY, Law M, Khetani M, et al. Establishing the cultural equivalence of the Young Children’s Participation and Environment Measure (YC-PEM) for use in Singapore. Phys Occup Ther Pediatr. 2016;36:422–439.
   PubMed Web of Science ®Google Scholar
• Bult MK, Verschuren O, Jongmans MJ, et al. What influences participation in leisure activities of children and youth with physical disabilities? A systematic review. Res Dev Disabil. 2011;32:1521–1529.
   PubMed Web of Science ®Google Scholar
• Majnemer A, Shevell M, Law M, et al. Participation and enjoyment of leisure activities in school-aged children with cerebral palsy. Dev Med Child Neurol. 2008;50:751–758.
   PubMed Web of Science ®Google Scholar
• Derguy C, M’Bailara K, Michel G, et al. The need for an ecological approach to parental stress in autism spectrum disorders: the combined role of individual and environmental factors. J Autism Dev Disord. 2016;46:1895–1905.
   PubMed Web of Science ®Google Scholar
• Leung C, Mak R, Lau V, et al. Development of a preschool developmental assessment scale for assessment of developmental disabilities. Res Dev Disabil. 2010;31:1358–1365.
   PubMed Web of Science ®Google Scholar
• Berry JO, Jones WH. The parental stress scale: initial psychometric evidence. J Soc Pers Relat. 1995;12:463–472.
   Web of Science ®Google Scholar
• Cheung S. Psychometric properties of the Chinese version of the parental stress scale. Psychologia. 2000;43:253–261.
   Web of Science ®Google Scholar
• Leung C, Tsang SK. The Chinese Parental Stress Scale: psychometric evidence using Rasch modeling on clinical and nonclinical samples. J Pers Assess. 2010;92:26–34.
   PubMed Web of Science ®Google Scholar
• Beaton DE, Bombardier C, Guillemin F, et al. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine. 2000;25:3186–3191.
   PubMed Web of Science ®Google Scholar
• Chien CW, Li-Tsang CWP, Cheung PPP, et al. Development and psychometric evaluation of the Chinese version of the Participation and Environment Measure for Children and Youth. Disabil Rehabil. 2019. DOI:https://doi.org/10.1080/09638288.2018.1553210
   Google Scholar
• Collins D. Pretesting survey instruments: an overview of cognitive methods. Qual Life Res. 2003;12:229–238.
   PubMed Web of Science ®Google Scholar
• Nunnally JC, Bernstein IH. Psychometric theory. New York: McGraw-Hill; 1994.
   Google Scholar
• Haley SM, Fragala-Pinkham MA. Interpreting change scores of tests and measures used in physical therapy. Phys Ther. 2006;86:735–743.
   PubMed Web of Science ®Google Scholar
• Fritz CO, Morris PE, Richler JJ. Effect size estimates: current use, calculations, and interpretation. J Exp Psychol Gen. 2012;141:2–18.
   PubMed Web of Science ®Google Scholar
• Portney LG, Watkins MP. Foundation of clinical research: application to practice. 2nd ed. Upper Saddle River (NJ): Prentice Hall Health; 2000.
   Google Scholar
• Hobart JC, Thompson AJ. The five item Barthel index. J Neurol Neurosurg Psychiatry. 2001;71:225–230.
   PubMed Web of Science ®Google Scholar
• Census and Statistics Department. Hong Kong 2016. Population By-census – Summary Results. [cited 2019 Sep 24]. Available from: https://www.statistics.gov.hk/pub/B11200942016XXXXB0100.pdf
   Google Scholar
• Coster W, Bedell G, Law M, et al. Psychometric evaluation of the Participation and Environment Measure for Children and Youth. Dev Med Child Neurol. 2011;53:1030–1037.
   PubMed Web of Science ®Google Scholar
• Lim CY, Law M, Khetani M, et al. Psychometric evaluation of the Young Children’s Participation and Environment Measure (YC-PEM) for use in Singapore. Phys Occup Ther Pediatr. 2018;38:316–328.
   PubMed Web of Science ®Google Scholar
• Chiu MM, Ho E. Family effects on student achievement in Hong Kong. Asia Pac J Educ. 2006;26:21–35.
   Google Scholar
• Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59:16–25.
   PubMed Web of Science ®Google Scholar
• Wu J, Singh M. Wishing for dragon children: ironies and contradictions in China’s education reform and the Chinese diaspora’s disappointments with Australian education. Aust Educ Res. 2004;31:29–44.
   Web of Science ®Google Scholar