The experiences of inaccessibility and ableism related to physical activity: a photo elicitation study among individuals with multiple sclerosis

References

• Oliver M. Social work with disabled people. 1st ed. Basingstoke (UK): Palgrave Macmilllan; 1983. p. 1–208.
   Google Scholar
• Oliver M. The social model of disability: thirty years on. Disabil Soc. 2013;28(7):1024–1026.
   Web of Science ®Google Scholar
• Wendell S. Toward a feminist theory of disability. Hypatia. 1989;4(2):104–124.
   PubMedGoogle Scholar
• Wendell S. The rejected body. 1st ed. London (UK): Routledge; 1996. p. 117–138.
   Google Scholar
• Wendell S. Unhealthy disabled: treating chronic illnesses as disabilities. Hypatia. 2001;16(4):17–33.
   Google Scholar
• Thomas C. Sociologies of disability and illness: contested ideas in disability studies and medical sociology. New York (NY): Palgrave Macmilllan; 2007. p. 1–182.
   Google Scholar
• Thomas C. Disability and impairment. In: Swain J, French S, Barnes C, Thomas C, editors. Disabling barriers - enabling environments. 3rd ed. London: SAGE; 2014. p. 9–15.
   Google Scholar
• Reeve D. Negotiating psycho-emotional dimensions of disability and their influence on identity constructions. Disabil Soc. 2002;17(5):493–508.
   Web of Science ®Google Scholar
• Reeve D. Towards a psychology of disability: the emotional effects of living in a disabling society. In: Goodley D, Lawthom R, editors. Disability and psychology. 1st ed. New York (NY): Palgrave Macmilllan; 2006. p. 94–110.
   Google Scholar
• Crow L. Lying down anyhow: an autoethnography. Qual Inq. 2014;20(3):359–361.
   Web of Science ®Google Scholar
• Clare E. Exile and pride: disability, queerness and liberation. 1st ed. Boston (MA): South End Press; 1999.
   Google Scholar
• Clare E. Brilliant imperfection: grappling with cure. 1st ed. Durham (NC): Duke University Press; 2017. p. 1–218.
   Google Scholar
• Mingus M. Moving toward the ugly: a politic beyond desirability [Internet]. Leaving Evidence. 2011. [cited 2018 May 4]. Available from: https://leavingevidence.wordpress.com/2011/08/22/moving-toward-the-ugly-a-politic-beyond-desirability/
   Google Scholar
• Campbell FK. Contours of ableism: the production of disability and abledness. First. London: Palgrave Macmilllan; 2009. p. 1–231.
   Google Scholar
• Sawcer S, Hellenthal G, Pirinen M, et al. Genetic risk and a primary role for cell-mediated immune mechanisms in multiple sclerosis. Nature. 2011;476(7359):214–219.
   PubMed Web of Science ®Google Scholar
• Compston A, Coles A. Multiple sclerosis. Lancet. 2008;372(9648):1502–1517. Oct 25 [cited 2014 Jul 11].
   PubMed Web of Science ®Google Scholar
• Bogart KR. The role of disability self-concept in adaptation to congenital or acquired disability. Rehabil Psychol. 2014;59(1):107–115.
   PubMed Web of Science ®Google Scholar
• Thompson AJ, Toosy AT, Ciccarelli O. Pharmacological management of symptoms in multiple sclerosis: current approaches and future directions. Lancet Neurol. 2010;9(12):1182–1199.
   PubMed Web of Science ®Google Scholar
• Lai B, Young H-J, Bickel CS, et al. Current trends in exercise intervention research, technology, and behavioral change strategies for people with disabilities: a scoping review. Am J Phys Med Rehabil. 2017;96(10):748–761.
   PubMed Web of Science ®Google Scholar
• Latimer-Cheung AE, Martin Ginis KA, Hicks AL, et al. Development of evidence-informed physical activity guidelines for adults with Multiple Sclerosis. Arch Phys Med Rehabil. 2013;94(9):1829–1836. Available from: http://www.ncbi.nlm.nih.gov/pubmed/23770262
   PubMed Web of Science ®Google Scholar
• Motl RW, Pilutti LA. Is physical exercise a multiple sclerosis disease modifying treatment? Expert Rev Neurother. 2016;16(8):951–960.
   PubMed Web of Science ®Google Scholar
• Motl RW, Sandroff BM. Benefits of exercise training in multiple sclerosis. Curr Neurol Neurosci Rep. 2015;15(9):62.
   PubMed Web of Science ®Google Scholar
• Kinnett-Hopkins D, Adamson B, Rougeau K, et al. People with MS are less physically active than healthy controls but as active as those with other chronic diseases: an updated meta-analysis. Mult Scler Relat Disord. 2017;13:38–43.
   PubMed Web of Science ®Google Scholar
• Hubbard E. a, Motl RW, Manns PJ. The descriptive epidemiology of daily sitting time as a sedentary behavior in multiple sclerosis. Disabil Health J. 2015;8(4):594–601.
   PubMed Web of Science ®Google Scholar
• Learmonth YC, Motl RW. Physical activity and exercise training in multiple sclerosis: a review and content analysis of qualitative research identifying perceived determinants and consequences. Disabil Rehabil. 2015;8288(October):1–16.
   Google Scholar
• Adamson BC, Adamson MD, Littlefield MM, Motl RW. ‘Move it or lose it’: perceptions of the impact of physical activity on multiple sclerosis symptoms, relapse and disability identity. Qual Res Sport Exerc Heal. 2017;10(4):457–475.
   Web of Science ®Google Scholar
• Martin JJ. Benefits and barriers to physical activity for individuals with disabilities: a social-relational model of disability perspective. Disabil Rehabil. 2013;35(24):2030–2037.
   PubMed Web of Science ®Google Scholar
• Adamson BC. The role of exercise in negotiating an identity as disabled: A qualitative exploration of the experiences of individuals with multiple sclerosis [Internet]. University of Illinois at Urbana-Champaign; 2018. Available from: http://hdl.handle.net/2142/101502
   Google Scholar
• McRuer R. Crip theory: cultural signs of queerness and disability. New York City: NYU University Press; 2006.
   Google Scholar
• Crawford R. Health as a meaningful social practice. Health (London). 2006;10(4):401–420.
   PubMed Web of Science ®Google Scholar
• Pain H. A literature review to evaluate the choice and use of visual methods. Int J Qual Methods. 2012;11(4):303–319.
   Web of Science ®Google Scholar
• Sebastião E, Gálvez PAE, Bobitt J, et al. Visual and participatory research techniques: photo-elicitation and its potential to better inform public health about physical activity and eating behavior in underserved populations. J Public Health. 2016;24(1):3–7.
   Google Scholar
• Hughes M, Burton AE, Dempsey RC. ‘I am free in my wheelchair but pain does have a say in it though’: the meaning and experience of quality of life when living with paraplegia and chronic pain. J Health Psychol. 2019;24(10):1356–1367.
   PubMed Web of Science ®Google Scholar
• Fritz H, Lysack C. “I see it now”: using photo elicitation to understand chronic illness self-management. Can J Occup Ther. 2014;81(4):247–255.
   PubMed Web of Science ®Google Scholar
• Smith J, Osborn M. Interpretative phenomenological analysis. In: Smith J, editor. Qualitative psychology: a practical guide. London: Sage; 2003. p. 229–254. Available from: http://search.ebscohost.com/login.aspx?direct=true&profile=ehost&scope=site&authtype=crawler&jrnl=17525616&AN=53920709&h=R7OnANKucW65EOVyhhF1Zav4N0um3RkCeqOfCl6%2FUF633ChHXk5H4gOQ7FqCI9eSfrputN2DJE4I6llZksL7Rg%3D%3D&crl=c
   Google Scholar
• Markula P, Silk M. Qualitative research for physical culture. 1st ed. New York (NY): Palgrave Macmilllan; 2011. p. 1–252.
   Google Scholar
• Sallis JF, Owen N, Fisher EB. Ecological models of health behavior. Heal Behav Heal Educ Theory, Res Pract. 2008;4:465–486.
   Google Scholar
• Brocki JM, Wearden AJ. A critical evaluation of the use ofinterpretative phenomenological analysis (IPA) in health psychology. Psychol Health. 2006;21(1):87–108.
   Web of Science ®Google Scholar
• Smith J, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. 1st ed. Los Angeles (CA): SAGE; 2009.
   Google Scholar
• Tracy SJ. Qualitative quality: eight “big-tent” criteria for excellent qualitative research. Qual Inq. 2010;16(10):837–851.
   Web of Science ®Google Scholar
• Smith B, McGannon KR. Developing rigor in qualitative research: problems and opportunities within sport and exercise psychology. Int Rev Sport Exerc Psychol. 2017;9858(November):1–21.
   Google Scholar
• Godin G, Shephard RJ. A simple method to assess exercise behavior in the community. Can J Appl Sport Sci. 1985;10(3):141–146.
   PubMedGoogle Scholar
• Ratzker PK, Feldman JM, Scheinberg LC, et al. Self-assessment of neurologic impairment in multiple sclerosis. Neurorehabil Neural Repair. 1997;11(4):207–211.
   Google Scholar
• Olkin R, Hayward H, Abbene MS, et al. The experiences of microaggressions against women with visible and invisible disabilities. J Soc Issues. 2019;75(3):757–785.
   Web of Science ®Google Scholar
• Keller RM, Galgay CE. Microaggressive experiences of people with disabilities. In: Sue DW, editor. Microaggressions and marginality: manifestation, dynamics, and impact. Hoboken (NJ): John Wiley & Sons Inc.; 2010. p. 241–267.
   Google Scholar
• Simpson J, McMillan H, Reeve D. Reformulating psychological difficulties in people with Parkinson’s disease: the potential of a social relational approach to disablism. Parkinsons Dis. 2013;2013:1–8.
   Web of Science ®Google Scholar
• Reicher S, Spears R, Haslam S. The social identity approach in social psychology. In: Wetherell M, Mohanty C, editors. The SAGE handbook of identities. London: SAGE Publications Inc.; 2010. p. 45–62.
   Google Scholar
• Dirth TP, Branscombe NR. Recognizing ableism: a social identity analysis of disabled people perceiving discrimination as illegitimate. J Soc Issues. 2019;75(3):786–813.
   Web of Science ®Google Scholar
• Pape TLB, Kim J, Weiner B. The shaping of individual meanings assigned to assistive technology: a review of personal factors. Disabil Rehabil. 2002;24(1–3):5–20.
   PubMed Web of Science ®Google Scholar
• Best R, Edelman L, Krieger LH, et al. Multiple disadvantages: an empirical test of intersectionality theory in EEO litigation. Law Soc Rev. 2011;45(4):991–1025.
   Web of Science ®Google Scholar
• Fakolade A, Latimer-Cheung A, Parsons T, et al. A concerns report survey of physical activity support needs of people with moderate-to-severe MS disability and family caregivers. Disabil Rehabil. 2019;41(24):1–12.
   PubMed Web of Science ®Google Scholar
• Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology. 1983;33(11):1444–1452
   PubMed Web of Science ®Google Scholar
• Godin G. The Godin-Shephard leisure-time physical activity questionnaire. Heal Fit J Canada. 2011;4:18–22.
   Google Scholar