Understanding activity participation 3-months after stroke: a mixed methodology study

References

• Feigin VL, Forouzanfar MH, Krishnamurthi R, et al. Global and regional burden of stroke during 1990-2010: findings from the Global Burden of Disease Study 2010. Lancet. 2014;383(9913):245–254.
   PubMed Web of Science ®Google Scholar
• Australian Institute of Health and Welfare. Australia’s health 2018. Canberra: AIHW; 2018.
   Google Scholar
• Andrew NE, Kilkenny M, Naylor R, et al. Understanding long-term unmet needs in Australian survivors of stroke. Int J Stroke. 2014;9(SA100):106–112.
   PubMedGoogle Scholar
• Chau JPC, Thompson DR, Twinn S, et al. Determinants of participation restriction among community dwelling stroke survivors: a path analysis. BMC Neurol. 2009;9:49.
   PubMed Web of Science ®Google Scholar
• Desrosiers J, Demers L, Robichaud L, et al. Short-term changes in and predictors of participation of older adults after stroke following acute care or rehabilitation. Neurorehabil Neural Repair. 2008;22(3):288–297.
   PubMed Web of Science ®Google Scholar
• Hartman-Maeir A, Soroker N, Ring H, et al. Activities, participation and satisfaction one-year post stroke. Disabil Rehabil. 2007;29(7):559–566.
   PubMed Web of Science ®Google Scholar
• Jette AM, Keysor J, Coster W, et al. Beyond function: predicting participation in a rehabilitation cohort. Arch Phys Med Rehabil. 2005;86(11):2087–2094.
   PubMed Web of Science ®Google Scholar
• Rochette A, Desrosiers J, Bravo G, et al. Changes in participation after a mild stroke: quantitative and qualitative perspectives. Top Stroke Rehabil. 2007;14(3):59–68.
   PubMed Web of Science ®Google Scholar
• Edwards DF, Hahn M, Baum C, et al. The impact of mild stroke on meaningful activity and life satisfaction. J Stroke Cerebrovasc Dis. 2006;15(4):151–157.
   PubMedGoogle Scholar
• Rochette A, Bravo G, Desrosiers J, et al. Adaptation process, participation and depression over six months in first-stroke individuals and spouses. Clin Rehabil. 2007;21(6):554–562.
   PubMed Web of Science ®Google Scholar
• Spitzer J, Tse T, Baum CM, et al. Mild impairment of cognition impacts on activity participation after stroke in a community-dwelling Australian cohort. OTJR (Thorofare N J). 2011;31(1):S8–S15.
   PubMed Web of Science ®Google Scholar
• Whiteford GE, Pereira RB. Occupation, inclusion and participation. In: Whiteford GE, Hocking C, editors. Occupational science: society, inclusion, participation. West Sussex (UK): Wiley-Blackwell; 2012. p. 187–207.
   Google Scholar
• World Health Organization. International classification of functioning, disability and health. Geneva: World Health Organization; 2001.
   Google Scholar
• White JH, MacKenzie L, Magin P, et al. The occupational experience of stroke survivors in a community setting. OTJR. 2008;28(4):160–167.
   Web of Science ®Google Scholar
• Erikson A, Park M, Tham K. Place integration through daily activities 1 year after stroke. Otjr. 2010;30(2):68–77.
   Web of Science ®Google Scholar
• Kessler D, Dubouloz CJ, Urbanowski R, et al. Meaning perspective transformation following stroke: the process of change. Disabil Rehabil. 2009;31(13):1056–1065.
   PubMed Web of Science ®Google Scholar
• Kubina LA, Dubouloz CJ, Davis CG, et al. The process of re-engagement in personally valued activities during the two years following stroke. Disabil Rehabil. 2013;35(3):236–243.
   PubMed Web of Science ®Google Scholar
• Lund A, Mangset M, Wyller TB, et al. Occupational transaction after stroke constructed as threat and balance. J Occup Sci. 2015;22(2):146–159.
   Web of Science ®Google Scholar
• Robison J, Wiles R, Ellis-Hill C, et al. Resuming previously valued activities post-stroke: who or what helps? Disabil Rehabil. 2009;31(19):1555–1566.
   PubMed Web of Science ®Google Scholar
• World Federation of Occupational Therapists. WFOT; nd. Available from: https://wfot.org/about/about-occupational-therapy
   Google Scholar
• Carey LM, Crewther S, Salvado O, et al. STroke imAging pRevention and treatment (START): a longitudinal stroke cohort study: clinical trials protocol. Int J Stroke. 2015;10(4):636–644.
   PubMed Web of Science ®Google Scholar
• Bazeley P. Analysing mixed methods data. In: Andrew S, Halcomb EJ, editors. Mixed method research for nursing and the health sciences. West Sussex (UK): Blackwell Publishing; 2009. P. 84–118.
   Google Scholar
• Creswell JW, Plano Clark VL. Designing and conducting mixed methods research. Thousand Oaks (CA): SAGE Publications; 2011.
   Google Scholar
• Muncey T. Does mixed methods constitute a change in paradigm? In: Andrew S, Halcomb EJ, editors. Mixed method research for nursing and the health sciences. West Sussex (UK): Blackwell Publishing; 2009. p. 13–30.
   Google Scholar
• Brott T, Adams HP Jr, Olinger CP, et al. Measurements of acute cerebral infarction: a clinical examination scale. Stroke. 1989;20(7):864–870.
   PubMed Web of Science ®Google Scholar
• Rankin J. Cerebral vascular accidents in patients over the age of 60. II. Prognosis. Scott Med J. 1957;2(5):200–215.
   PubMedGoogle Scholar
• Wilson JT, Hareendran A, Grant M, et al. Improving the assessment of outcomes in stroke: use of a structured interview to assign grades on the modified Rankin Scale. Stroke. 2002;33(9):2243–2246.
   PubMed Web of Science ®Google Scholar
• Williams JB, Kobak KA. Development and reliability of a structured interview guide for the Montgomery Asberg Depression Rating Scale (SIGMA). Br J Psychiatry. 2008;192(1):52–58.
   PubMed Web of Science ®Google Scholar
• Nasreddine ZS, Phillips NA, Bedirian V, et al. The Montreal Cognitive Assessment, MoCA: a brief screening tool for mild cognitive impairment. J Am Geriatr Soc. 2005;53(4):695–699.
   PubMed Web of Science ®Google Scholar
• Lyle RC. A performance test for assessment of upper limb function in physical rehabilitation treatment and research. Int J Rehabil Res. 1981;4(4):483–492.
   PubMed Web of Science ®Google Scholar
• Podsiadlo D, Richardson S. The timed “Up & Go”: a test of basic functional mobility for frail elderly persons. J Am Geriatr Soc. 1991;39(2):142–148.
   PubMed Web of Science ®Google Scholar
• Packer TL, Boshoff K, DeJonge D, et al. Activity card sort - Australia. Perth: School of Occupational Therapy, Curtin University of Technology; 2008.
   Google Scholar
• Tse T, Douglas J, Lentin P, et al. Measuring participation after stroke: a review of frequently used tools. Arch Phys Med Rehabil. 2013;94(1):177–192.
   PubMed Web of Science ®Google Scholar
• Tse T, Douglas J, Lentin P, et al. Reduction in retained activity participation is associated with depressive symptoms 3 months after mild stroke: an observational cohort study. J Rehabil Med. 2017;49(2):120–127.
   PubMed Web of Science ®Google Scholar
• Hesse-Biber SN, Leavy P. The practice of qualitative research. Los Angeles (CA): SAGE; 2011.
   Google Scholar
• Richards L. Handling qualitative data: a practical guide. London: SAGE; 2009.
   Google Scholar
• Creswell JW. Research Design: qualitative, quantitative, and mixed methods approaches. Thousand Oaks (CA): SAGE Publications; 2014.
   Google Scholar
• Lincoln YS, Guba EG. Naturalistic inquiry. Beverly Hills (CA): SAGE Publications; 1985.
   Google Scholar
• Schlegel D, Kolb SJ, Luciano JM, et al. Utility of the NIH Stroke Scale as a predictor of hospital disposition. Stroke. 2003;34(1):134–137.
   PubMed Web of Science ®Google Scholar
• Eriksson G, Tham K. The meaning of occupational gaps in everyday life in the first year after stroke. OTJR. 2010;30(4):184–192.
   Web of Science ®Google Scholar
• Westerlind E, Persson HC, Eriksson M, et al. Return to work after stroke: a Swedish nationwide registry-based study. Acta Neurol Scand. 2020;141(1):56–64.
   PubMed Web of Science ®Google Scholar
• Egan MY, Kessler D, Ceci C, et al. Problematising risk in stroke rehabilitation. Disabil Rehabil. 2016;38(23):2334–2344.
   PubMed Web of Science ®Google Scholar
• Wolf T, Koster J. Perceived recovery as a predictor of physical activity participation after mild stroke. Disabil Rehabil. 2013;35(14):1143–1148.
   PubMed Web of Science ®Google Scholar
• Wolf TJ, Chuh A, Floyd T, et al. Effectiveness of occupation-based interventions to improve areas of occupation and social participation after stroke: an evidence-based review. Am J Occup Ther. 2015;69(1):6901180060p1–690118006011.
   PubMed Web of Science ®Google Scholar
• Woodman P, Riazi A, Pereira C, et al. Social participation post stroke: a meta-ethnographic review of the experiences and views of community-dwelling stroke survivors. Disabil Rehabil. 2014;36(24):2031–2043.
   PubMed Web of Science ®Google Scholar
• Wood JP, Connelly DM, Maly MR. ‘Getting back to real living’: a qualitative study of the process of community reintegration after stroke. Clin Rehabil. 2010;24(11):1045–1056.
   PubMed Web of Science ®Google Scholar
• Heung RSM, Yuen Loke A. Leisure and older people: a concept analysis, and implications for nursing. Int J Aging Soc. 2012;1(2):55–68.
   Google Scholar
• Eriksson G, Aasnes M, Tistad M, et al. Occupational gaps in everyday life one year after stroke and the association with life satisfaction and impact of stroke. Top Stroke Rehabil. 2012;19(3):244–255.
   PubMed Web of Science ®Google Scholar
• Egan M, Davis CG, Dubouloz CJ, et al. Participation and well-being poststroke: evidence of reciprocal effects. Arch Phys Med Rehabil. 2014;95(2):262–268.
   PubMed Web of Science ®Google Scholar
• Tse T, Linden T, Churilov L, et al. Longitudinal changes in activity participation in the first year post-stroke and association with depressive symptoms. Disabil Rehabil. 2019;41(21):2548–2555.
   PubMed Web of Science ®Google Scholar
• de Jonge DM, Jones A, Phillips R, et al. Understanding the essence of home: older people’s experience of home in Australia. Occup Ther Int. 2011;18(1):39–47.
   PubMed Web of Science ®Google Scholar
• Wilcock A. A theory of the human need for occupation. J Occup Sci. 1993;1(1):17–24.
   Google Scholar
• Wilcock AA. An occupational perspective of health. Thorofare (NJ): Slack Incorporated; 2006.
   Google Scholar
• Yerxa EJ. An introduction to occupational science, a foundation for occupational therapy in the 21st century. Occup Ther Health Care. 1990;6(4):1–17.
   PubMedGoogle Scholar
• Yerxa EJ. Health and the human spirit for occupation. Am J Occup Ther. 1998;52(6):412–418.
   PubMed Web of Science ®Google Scholar
• Fallahpour M, Jonsson H, Joghataei MT, et al. “I am not living my life”: lived experience of participation in everyday occupations after stroke in Tehran. J Rehabil Med. 2013;45(6):528–534.
   PubMed Web of Science ®Google Scholar
• Christiansen C, Baum CM, Bass JD. Occupational therapy: performance, participation, and well-being. Thorofare (NJ): SLACK Incorporated; 2015.
   Google Scholar
• Taylor RR, Kielhofner G. Kielhofner’s model of human occupation: theory and application. Philadephia (PA): Wolters Kluwer Health; 2017.
   Google Scholar
• Townsend EA. Enabling occupation II: advancing an occupational therapy vision for health, well-being and justice through occupation. Ottawa: Canadian Association of Occupational Therapists; 2013.
   Google Scholar
• Heinemann AW, Magasi S, Hammel J, et al. Environmental factors item development for persons with stroke, traumatic brain injury, and spinal cord injury. Arch Phys Med Rehabil. 2015;96(4):589–595.
   PubMed Web of Science ®Google Scholar
• Jellema S, van der Sande R, van Hees S, et al. Role of environmental factors on resuming valued activities poststroke: a systematic review of qualitative and quantitative findings. Arch Phys Med Rehabil. 2016;97(6):991–1002.e1.
   PubMed Web of Science ®Google Scholar
• Hammel J, Magasi S, Heinemann A, et al. Environmental barriers and supports to everyday participation: a qualitative insider perspective from people with disabilities. Arch Phys Med Rehabil. 2015;96(4):578–588.
   PubMed Web of Science ®Google Scholar
• Mallinson T, Hammel J. Measurement of participation: intersecting person, task, and environment. Arch Phys Med Rehabil. 2010;91(9 Suppl):S29–S33.
   PubMed Web of Science ®Google Scholar
• Lee SW, Kielhofner G. Habituation: patterns of daily occupation. In: Taylor RR, Kielhofner G, editors. Kielhofner’s model of human occupation: theory and application. Philadelphia (PA): Wolters Kluwer Health; 2017. p. 57–73.
   Google Scholar
• Farnworth L, Fossey E. Occupational terminology interactive dialogue. J Occup Sci. 2003;10(3):150–153.
   Google Scholar
• Pemberton S, Cox D. What happened to the time? The relationship of occupational therapy to time. Br J Occup Ther. 2011;74(2):78–85.
   Web of Science ®Google Scholar
• O’Sullivan C, Chard G. An exploration of participation in leisure activities post-stroke. Aust Occup Ther J. 2010;57(3):159–166.
   PubMed Web of Science ®Google Scholar
• Wallenbert I, Jonsson H. Waiting to get better: a dilemma regarding habits in daily occupations after stroke. Am J Occup Ther. 2005;59(2):218–224.
   PubMed Web of Science ®Google Scholar
• Cogan AM, Carlson M. Deciphering participation: an interpretive synthesis of its meaning and application in rehabilitation. Disabil Rehabil. 2018;40(22):2692–2703.
   PubMed Web of Science ®Google Scholar
• Jalayondeja C, Kaewkungwal J, Sullivan PE, et al. Factors related to community participation by stroke victims six month post-stroke. Southeast Asian J Trop Med Public Health. 2011;42(4):1005–1013.
   PubMed Web of Science ®Google Scholar