Advanced search
Publication Cover
Disability and Rehabilitation Volume 44, 2022 - Issue 12
Submit an article Journal homepage
3,732
Views
6
CrossRef citations to date
0
Altmetric
Research Papers

Out of sight, out of mind: long-term outcomes for people discharged home, to inpatient rehabilitation and to residential aged care after stroke

Elizabeth A. Lyncha Adelaide Nursing School, University of Adelaide, Adelaide, Australia;b NHMRC Centre for Research Excellence in Stroke Rehabilitation and Brain Recovery, Melbourne, AustraliaCorrespondence[email protected]
ORCID Iconhttps://orcid.org/0000-0001-8756-1051View further author information
ORCID Icon,
Angela S. Labbertonc Health Services Research Unit, Akershus University Hospital, Lørenskog, Norway;d Institute of Medicine, University of Oslo, Oslo, NorwayCorrespondence[email protected]
View further author information
,
Joosup Kime Stroke and Ageing Research Centre, Department of Medicine, Monash University, Clayton, Victoria, Australia;f The Florey Institute of Neuroscience and Mental Health, University of Melbourne, Heidelberg, AustraliaORCID Iconhttps://orcid.org/0000-0002-4079-0428View further author information
ORCID Icon,
Monique F. Kilkennyb NHMRC Centre for Research Excellence in Stroke Rehabilitation and Brain Recovery, Melbourne, Australia;e Stroke and Ageing Research Centre, Department of Medicine, Monash University, Clayton, Victoria, Australia;f The Florey Institute of Neuroscience and Mental Health, University of Melbourne, Heidelberg, AustraliaORCID Iconhttps://orcid.org/0000-0002-3375-287XView further author information
ORCID Icon,
Nadine E. Andrewb NHMRC Centre for Research Excellence in Stroke Rehabilitation and Brain Recovery, Melbourne, Australia;g Department of Medicine, Peninsula Clinical School, Central Clinical School, Monash University, Clayton, Victoria, AustraliaView further author information
,
Natasha A. Lanninh Department of Neuroscience, Monash University, Clayton, Victoria, Australia;i Occupational Therapy Department, Alfred Health, Prahran, AustraliaORCID Iconhttps://orcid.org/0000-0002-2066-8345View further author information
ORCID Icon,
Rohan Grimleye Stroke and Ageing Research Centre, Department of Medicine, Monash University, Clayton, Victoria, Australia;j Department of Medicine, Griffith University, Nathan, AustraliaView further author information
,
Steven G. Fauxk St Vincent’s Hospital, Sydney, Australia;l University of New South Wales, Sydney, AustraliaORCID Iconhttps://orcid.org/0000-0001-8846-216XView further author information
ORCID Icon &
Dominique A. Cadilhacb NHMRC Centre for Research Excellence in Stroke Rehabilitation and Brain Recovery, Melbourne, Australia;e Stroke and Ageing Research Centre, Department of Medicine, Monash University, Clayton, Victoria, Australia;f The Florey Institute of Neuroscience and Mental Health, University of Melbourne, Heidelberg, AustraliaView further author information
 show all
Pages 2608-2614 | Received 28 Apr 2020, Accepted 15 Nov 2020, Published online: 14 Dec 2020

References

  • The GBD 2016 Lifetime Risk of Stroke Collaborators Global, Regional, and Country-Specific Lifetime Risks of Stroke. New Eng J Med. 1990;379(25):2429–2437.
  • Stroke Foundation. Clinical Guidelines for Stroke Management 2017 Melbourne Australia. 2017. Available from: https://informme.org.au/Guidelines/Clinical-Guidelines-for-Stroke-Management-2017
  • Lynch EA, Luker JA, Cadilhac DA, et al. Inequities in access to rehabilitation: Exploring how acute stroke unit clinicians decide who to refer to rehabilitation. Disabil Rehabil. 2016;38(14):1415–1424.
  • Cadilhac DA, Lannin NA, Anderson C, et al. The Australian Stroke Clinical Registry Annual Report 2010. The George Institute for Global Health and National Stroke Research Institute; 2010. September 2010. Contract No.: 2.
  • Cadilhac DA, Lannin NA, Breen S, et al. The Australian Stroke Clinical Registry Annual Report 2017. The Florey Institute of Neuroscience and Mental Health; December 2017, Report No 9, 60 pages.
  • Andrew NE, Sundararajan V, Thrift AG, et al. Addressing the challenges of cross-jurisdictional data linkage between a national clinical quality registry and government-held health data. Aust N Z J Public Health. 2016;40(5):436–442.
  • Kilkenny MF, Kim J, Andrew NE, et al. Maximising data value and avoiding data waste: a validation study in stroke research. Med J Aust. 2019;210(1):27–31.
  • Cadilhac DA, Lannin NA, Anderson CS, et al. Protocol and pilot data for establishing the Australian stroke clinical registry. Int J Stroke. 2010;5(3):217–226.
  • The EuroQoL Group. EuroQoL-a new facility for the measurement of health-related quality of life. Health Policy. 1990;16:199–208.
  • Dorman PJ, Waddell F, Slattery J, et al. Is the EuroQol a valid measure of health-related quality of life after stroke? Stroke. 1997;28(10):1876–1882.
  • Pickard AS, Johnson JA, Feeny DH, et al. Agreement Between Patient and Proxy Assessments of Health-Related Quality of Life After Stroke Using the EQ-5D and Health Utilities Index. Stroke. 2004;35(2):607–612.
  • Charlson ME, Pompei P, Ales KL, et al. A new method of classifying prognostic comorbidity in longitudinal studies: Development and validation. J Chronic Dis. 1987;40(5):373–383.
  • Sundararajan V, Henderson T, Perry C, et al. New ICD-10 version of the Charlson Comorbidity Index predicted in-hospital mortality. J Clin Epidemiol. 2004;57(12):1288–1294.
  • de Groot V, Beckerman H, Lankhorst GJ, et al. How to measure comorbidity. a critical review of available methods. J Clin Epidemiol. 2003;56(3):221–229.
  • Schmidt M, Jacobsen JB, Johnsen SP, et al. Eighteen-year trends in stroke mortality and the prognostic influence of comorbidity. Neurology. 2014;82(4):340–350.
  • Australian Bureau of Statistics. Socio-economic indexes for areas (SEIFA) 2011. 2011. Available from: http://www.abs.gov.au/websitedbs/censushome.nsf/home/seifa
  • National Stroke Foundation. National stroke audit – rehabilitation services report. 2012. Melbourne (Australia): National Stroke Foundation.
  • Counsell C, Dennis M, McDowall M, et al. Predicting outcome after acute and subacute stroke: development and validation of new prognostic models. Stroke. 2002;33(4):1041–1047.
  • Cadilhac DA, Kilkenny MF, Levi C, et al. Risk-adjusted hospital mortality rates for stroke: evidence from the Australian Stroke Clinical Registry (AuSCR). Med J Aust. 2017;206(8):345–350.
  • Cadilhac DA, Andrew NE, Lannin NA, Australian Stroke Clinical Registry Consortium, et al. Quality of acute care and long-term quality of life and Survival: The Australian Stroke Clinical Registry. Stroke. 2017;48(4):1026–1032.
  • Andrew NE, Busingye D, Lannin NA, et al. The quality of discharge Care Planning in Acute Stroke Care: Influencing Factors and Association with Postdischarge Outcomes. J Stroke Cerebrovasc Dis. 2018;27(3):583–590.
  • Lynch EA, Mackintosh S, Luker JA, Hillier SL. Access to rehabilitation for patients with stroke in Australia. Med J Aust. 2019;210(1):21–26.
  • Rochette A, Tellier M. Falling through the cracks: A literature review to understand the reality of mild stroke survivors. Top Stroke Rehabil. 2009;16(6):454–462.
  • Langhorne P, Baylan S. Early Supported Discharge Trialists. Early supported discharge services for people with acute stroke. Cochrane Database Syst Rev. 2017;(7):CD000443.
  • Pereira S, Graham JR, Shahabaz A, et al. Rehabilitation of individuals with severe stroke: synthesis of best evidence and challenges in implementation. Top Stroke Rehabil. 2012;19(2):122–131.
  • Paker N, Buğdaycı D, Tekdöş D, et al. Impact of cognitive impairment on functional outcome in stroke. Stroke Res Treat. 2010;2010:652612.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.