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Research Papers

Mothers’ perception of cerebral palsy in a low-income country of West Africa: a cross-sectional study

ORCID Icon, , &
Pages 4767-4774 | Received 04 Sep 2020, Accepted 16 Apr 2021, Published online: 15 May 2021

References

  • Oskoui M, Coutinho F, Dykeman J, et al. An update on the prevalence of cerebral palsy: a systematic review and meta-analysis. Dev Med Child Neurol. 2013;55(6):509–519.
  • Kakooza-Mwesige A, Andrews C, Peterson S, et al. Prevalence of cerebral palsy in Uganda: a population-based study. Lancet Glob Health. 2017;5(12):e1275–e1282.
  • Raina P, O'Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115(6):e626–36.
  • Majnemer A, Shevell M, Law M, et al. Indicators of distress in families of children with cerebral palsy. Disab Rehab. 2012;34(14):1202–1207.
  • Gona JK, Mung'ala-Odera V, Newton CR, et al. Caring for children with disabilities in Kilifi, Kenya: what is the carer's experience? Child Care Health Dev. 2011;37(2):175–183.
  • Zuurmond M, Nyante G, Baltussen M, et al. A support programme for caregivers of children with disabilities in Ghana: understanding the impact on the wellbeing of caregivers. Child Care Health Dev. 2019;45(1):45–53.
  • Patel P, Baier J, Baranov E, et al. Health beliefs regarding pediatric cerebral palsy among caregivers in Botswana: a qualitative study. Child care Health Develop. 2017;43(6):861–868.
  • WHO. The International classification of functioning, disability and health, children and youth version: ICF-CY. Geneva: WHO; 2007.
  • Sogbossi ES, Houekpetodji D, Kpadonou TG, et al. A cross-sectional study of the clinical profile of children with cerebral palsy in Benin, a West African low-income country. J Child Neurol. 2019;34(13):842–850.
  • Andrews C, Kakooza-Mwesige A, Almeida R, et al. Impairments, functional limitations, and access to services and education for children with cerebral palsy in Uganda: a population-based study. Develop Med Child Neurol. 2020;62(4):454–462.
  • Bronfenbrenner U, Morris PA. The bioecological model of human development. In: Lerner RM, editor. Handbook of child psychology: vol.1. Theoretical models of human development. John Wiley & Sons; 2006. p. 793–828.
  • Abubakar A, Van Baar A, Fischer R, et al. Socio-cultural determinants of health-seeking behaviour on the Kenyan coast: a qualitative study. PLoS One. 2013;8(11):e71998.
  • Zuurmond M, O’Banion D, Gladstone M, et al. Evaluating the impact of a community-based parent training programme for children with cerebral palsy in Ghana. PLoS One. 2018;13(9):e0202096.
  • Rosenbaum P. Family and quality of life: key elements in intervention in children with cerebral palsy. Develop Med Child Neurol. 2011;53(Suppl 4):68–70.
  • Kuo DZ, Houtrow AJ, Arango P, et al. Family-centered care: current applications and future directions in pediatric health care. Mat Child Health J. 2012;16(2):297–305.
  • Paget A, Mallewa M, Chinguo D, et al. It means you are grounded" – caregivers' perspectives on the rehabilitation of children with neurodisability in Malawi. Disab Rehab. 2016;38(3):223–234.
  • Tilahun D, Hanlon C, Fekadu A, et al. Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey. BMC Health Serv Res. 2016;16(1):152.
  • Stein RE, Jessop DJ. The impact on family scale revisited: further psychometric data. JDBP. 2003;24(1):9–16.
  • Boudas R, Jegu J, Grollemund B, et al. Cross-cultural French adaptation and validation of the Impact On Family Scale (IOFS). Health Qual Life Outcome. 2013;11:67.
  • Hanley B, Tassé MJ, Aman MG, et al. Psychometric properties of the family support scale with head start families. J Child Fam Stud. 1998;7(1):69–77.
  • Dunst CJ, Trivette CM, Hamby DW. Technical manual for measuring and evaluating family support program quality and benefits. Asheville (NC): Winterberry Press; 2006.
  • Palisano RJ, Rosenbaum P, Bartlett D, et al. Content validity of the expanded and revised Gross Motor Function Classification System. Develop Med Child Neurol. 2008;50(10):744–750.
  • Cans C, Dolk H, Platt M, et al. Recommendations from the SCPE collaborative group for defining and classifying cerebral palsy. Develop Med Neurol. 2007;49(109);35–38.
  • Popping R. Analyzing open-ended questions by means of text analysis procedures. Bulletin de Méthodologie Sociologique [Bull Sociol Methodol]. 2015;128(1):23–39.
  • Donald KA, Kakooza AM, Wammanda RD, et al. Pediatric cerebral palsy in Africa: where are we? J Child Neurol. 2015;30(8):963–971.
  • Dambi JM, Mandizvidza C, Chiwaridzo M, et al. Does an educational workshop have an impact on caregivers' levels of knowledge about cerebral palsy? A comparative, descriptive cross-sectional survey of Zimbabwean caregivers. Mal Med J. 2017;28(4):167–173.
  • Shevell AH, Shevell M. Doing the "talk": disclosure of a diagnosis of cerebral palsy. J Child Neurol. 2013;28(2):230–235.
  • Gona JK, Newton CR, Hartley S, et al. A home-based intervention using augmentative and alternative communication (AAC) techniques in rural Kenya: what are the caregivers' experiences? Child Care Health Dev. 2014;40(1):29–41.
  • McCormick MC, Stemmler MM, Athreya BH. The impact of childhood rheumatic diseases on the family. Arth Rheumat. 1986;29(7):872–879.
  • WHO. Global health observatory data repository. Mortality and global health estimates: World Health Organization; 2018 [cited 2020 Jan 5]. Available from: https://apps.who.int/gho/data/node.main.ChildMortLevels?lang=en.
  • Davis E, Shelly A, Waters E, et al. The impact of caring for a child with cerebral palsy: quality of life for mothers and fathers. Child Care Health Develop. 2010;36(1):63–73.

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