3,038
Views
4
CrossRef citations to date
0
Altmetric
Research Papers

“Loneliness can also kill:” a qualitative exploration of outcomes and experiences of the SUPERB peer-befriending scheme for people with aphasia and their significant others

Pages 5015-5024 | Received 13 Nov 2020, Accepted 23 Apr 2021, Published online: 04 Jun 2021

References

  • Flowers HL, AlHarbi MA, Mikulis D, et al. MRI-based neuroanatomical predictors of dysphagia, dysarthria, and aphasia in patients with first acute ischemic – Stroke. Cerebrovasc Dis Extra. 2017;7(1):21–34.
  • Hackett ML, Pickles K. Part I: frequency of depression after stroke: an updated systematic review and meta-analysis of observational studies. Int J Stroke. 2014;9(8):1017–1025.
  • Kauhanen ML, Korpelainen JT, Hiltunen P, et al. Poststroke depression correlates with cognitive impairment and neurological deficits. Stroke (1970). 1999;30(9):1875–1880.
  • Northcott S, Hilari K. Why do people lose their friends after a stroke? Int J Lang Commun Disord. 2011;46(5):524–534.
  • Brown K, Davidson B, Worrall LE, et al. “Making a good time”: the role of friendship in living successfully with aphasia . Int J Speech Lang Pathol. 2013;15(2):165–175.
  • Tsouna-Hadjis E, Vemmos KN, Zakopoulos N, et al. First-stroke recovery process: the role of family social support. Arch Phys Med Rehabil. 2000;81(7):881–887.
  • Boden-Albala B, Litwak E, Elkind MSV, et al. Social isolation and outcomes post stroke. Neurology. 2005;64(11):1888–1892.
  • Lincoln N, Worthington E, Mannix K. A survey of the management of mood problems after stroke by clinical psychologists. Clinical Psychology Forum. 2012;231:28–33.
  • Stroke NCGf. https://www.strokeaudit.org/SupportFiles/Documents/Guidelines/2016-National-Clinical-Guideline-for-Stroke-5t-(1).aspx.
  • Allida S, Cox KL, Hsieh C-F, et al. Pharmacological, psychological, and non-invasive brain stimulation interventions for treating depression after stroke. Cochrane Database Syst Rev. 2020;(1):CD003437.
  • Baker C, Worrall L, Rose M, et al. A systematic review of rehabilitation interventions to prevent and treat depression in post-stroke aphasia. Disabil Rehabil. 2018;40(16):1870–1892.
  • Solomon P. Peer support/peer provided services underlying processes, benefits, and critical ingredients. Psychiatr Rehabil J. 2004;27(4):392–401.
  • Repper J, Carter T. A review of the literature on peer support in mental health services. J Ment Health. 2011;20(4):392–411.
  • Hoey LM, Ieropoli SC, White VM, et al. Systematic review of peer-support programs for people with cancer. Patient Educ Couns. 2008;70(3):315–337.
  • Mead N, Lester H, Chew-Graham C, et al. Effects of befriending on depressive symptoms and distress: systematic review and meta-analysis. Br J Psychiatry. 2010;196(2):96–101.
  • Kessler D, Egan M, Kubina L-A. Peer support for stroke survivors: a case study. BMC Health Serv Res. 2014;14(1):256–256.
  • Hargroves DT. M. Life after stroke: commissioning guidance for clinical commissioning groups and local authority commissioners. 2017 [cited 2021 May 20]. Available from: https://www.england.nhs.uk/south/wp-content/uploads/sites/6/2017/07/life-after-stroke.pdf
  • Burn E, Chevalier A, Leverton M, et al. Patient and befriender experiences of participating in a befriending programme for adults with psychosis: a qualitative study. BMC Psychiatry. 2020;20(1):1–9.
  • McCorkle BH, Dunn EC, Wan YM, et al. Compeer friends: a qualitative study of a volunteer friendship programme for people with serious mental illness. Int J Soc Psychiatry. 2009;55(4):291–305.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
  • Hilari K, Behn N, Marshall J, et al. Adjustment with aphasia after stroke: study protocol for a pilot feasibility randomised controlled trial for SUpporting wellbeing through PEeR Befriending (SUPERB). Pilot Feasibility Stud. 2019;5(1):1–16.
  • Turner L, Shamseer L, Altman DG, et al. Consolidated standards of reporting trials (CONSORT) and the completeness of reporting of randomised controlled trials (RCTs) published in medical journals. Cochrane Database Syst Rev. 2012;(11):MR000030–MR000030.
  • Moss B, Northcott S, Behn N, et al. Emotion is of the essence …. number one priority: a nested qualitative study exploring psychosocial adjustment to stroke and aphasia. Int J Lang Commun Disord. 2021. DOI:10.1111/1460-6984.12616
  • Hilari K, Behn N, James K, et al. Supporting wellbeing through peer-befriending (SUPERB) for people with aphasia: a feasibility randomised controlled trial. Clin Rehabil. 2021. DOI:10.1177/0269215521995671
  • Northcott S, Behn N, Monnelly K, et al. “You get good rewardings for it”: a qualitative exploration of befrienders’ experiences delivering peer befriending to people with aphasia in the SUPERB feasibility trial. 2021.
  • Turner-Stokes L, Kalmus M, Hirani D, et al. The depression intensity scale circles (DISCs): a first evaluation of a simple assessment tool for depression in the context of brain injury. J Neurol Neurosurg Psychiatr. 2005;76(9):1273–1278.
  • Kertesz A. The western aphasia battery – revised (WAB-R). London, UK: Pearson Clinical; 2006.
  • Rautakoski P. Training total communication. Aphasiology. 2011;25(3):344–365.
  • Ritchie J, Lewis J. Qualitative research practice: a guide for social science students and researchers. London: SAGE; 2003.
  • Skea ZC, MacLennan SJ, Entwistle VA, et al. Enabling mutual helping? Examining variable needs for facilitated peer support. Patient Educ Couns. 2011;85(2):e120–e125.
  • Pound C. Reciprocity, resources, and relationships: new discourses in healthcare, personal, and social relationships*. Int J Speech Lang Pathol. 2011;13(3):197–206.
  • Smith R, Drennan V, Mackenzie A, et al. Volunteer peer support and befriending for carers of people living with dementia: an exploration of volunteers’ experiences. Health Soc Care Community. 2018;26(2):158–166.
  • Worrall L, Sherratt S, Rogers P, et al. What people with aphasia want: their goals according to the ICF. Aphasiology. 2011;25(3):309–322.
  • Bucki B, Spitz E, Baumann M. Emotional and social repercussions of stroke on patient-family caregiver dyads: analysis of diverging attitudes and profiles of the differing dyads. PLOS One. 2019;14(4):e0215425.
  • Bray L, Carter B, Sanders C, et al. Parent-to-parent peer support for parents of children with a disability: a mixed method study. Patient Educ Couns. 2017;100(8):1537–1543.
  • Volunteer Now. Good practice guidelines for setting up a befriending service. 2011 [cited 2021 May 20]. Available from: https://www.befriending.co.uk/r/24693-volunteer-now-good-practice-in-setting-up-a-befriending-service
  • Simpson A, Quigley J, Henry SJ, et al. Evaluating the selection, training, and support of peer support workers in the United Kingdom. J Psychosoc Nurs Ment Health Serv. 2014;52(1):31–40.