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Research Papers

Follow-up care and adherence to self-management activities in rehabilitation for patients with rheumatic and musculoskeletal diseases: results from a multicentre cohort study

ORCID Icon, , , , , , , , , , , & ORCID Icon show all
Pages 8001-8010 | Received 30 Mar 2021, Accepted 13 Nov 2021, Published online: 30 Nov 2021

References

  • Murray CJ, Vos T, Lozano R, et al. Disability-adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990–2010: a systematic analysis for the global burden of disease study 2010. Lancet. 2012;380(9859):2197–2223.
  • van der Heijde D, Daikh DI, Betteridge N, et al. Common language description of the term rheumatic and musculoskeletal diseases (RMDs) for use in communication with the lay public, healthcare providers and other stakeholders endorsed by the European League Against Rheumatism (EULAR) and the American College of Rheumatology (ACR). Ann Rheum Dis. 2018;77(6):829–832.
  • Lin X, Zhang X, Guo J, et al. Effects of exercise training on cardiorespiratory fitness and biomarkers of cardiometabolic health: a systematic review and meta-analysis of randomized controlled trials. J Am Heart Assoc. 2015;4(7):e002014.
  • Al Maini M, Adelowo F, Al Saleh J, et al. The global challenges and opportunities in the practice of rheumatology: white paper by the world forum on rheumatic and musculoskeletal diseases. Clin Rheumatol. 2015;34(5):819–829.
  • Knittle K, De Gucht V, Maes S. Lifestyle- and behaviour-change interventions in musculoskeletal conditions. Best Pract Res Clin Rheumatol. 2012;26(3):293–304.
  • Dures E, Hewlett S. Cognitive-behavioural approaches to self-management in rheumatic disease. Nat Rev Rheumatol. 2012;8(9):553–559.
  • Iversen MD, Hammond A, Betteridge N. Self-management of rheumatic diseases: state of the art and future perspectives. Ann Rheum Dis. 2010;69(6):955–963.
  • de Ridder D, Geenen R, Kuijer R, et al. Psychological adjustment to chronic disease. Lancet. 2008;372(9634):246–255.
  • Klokkerud M, Hagen KB, Lochting I, et al. Does the content really matter? A study comparing structure, process, and outcome of team rehabilitation for patients with inflammatory arthritis in two different clinical settings. Scand J Rheumatol. 2012;41(1):20–28.
  • McCuish WJ, Bearne LM. Do inpatient multidisciplinary rehabilitation programmes improve health status in people with long-term musculoskeletal conditions? A service evaluation. Musculoskelet Care. 2014;12(4):244–250.
  • Barlow J, Wright C, Sheasby J, et al. Self-management approaches for people with chronic conditions: a review. Patient Educ Couns. 2002;48(2):177–187.
  • Kralik D, Koch T, Price K, et al. Chronic illness self-management: taking action to create order. J Clin Nurs. 2004;13(2):259–267.
  • Sackett DL, Haynes RB. Compliance with therapeutic regimens. Baltimore (MD): John Hopkins University Press; 1976. p. 293.
  • Bailey DL, Holden MA, Foster NE, et al. Defining adherence to therapeutic exercise for musculoskeletal pain: a systematic review. Br J Sports Med. 2018.
  • World Health Organization. Adherence to long term therapies. Evidence for action. Geneva: World Health Organization; 2003.
  • McKay CD, Verhagen E. 'Compliance' versus 'adherence' in sport injury prevention: why definition matters. Br J Sports Med. 2016;50(7):382–383.
  • Horne R, Chapman SC, Parham R, et al. Understanding patients' adherence-related beliefs about medicines prescribed for long-term conditions: a meta-analytic review of the Necessity-Concerns Framework. PLoS One. 2013;8(12):e80633.
  • Horne R, Albert A, Boone C. Relationship between beliefs about medicines, adherence to treatment, and disease activity in patients with rheumatoid arthritis under subcutaneous anti-TNFα therapy. Patient Prefer Adherence. 2018;12:1099–1111.
  • Kjeken I, Bo I, Ronningen A, et al. A three-week multidisciplinary in-patient rehabilitation programme had positive long-term effects in patients with ankylosing spondylitis: randomized controlled trial. J Rehabil Med. 2013;45(3):260–267.
  • Bearne LM, Byrne AM, Segrave H, et al. Multidisciplinary team care for people with rheumatoid arthritis: a systematic review and meta-analysis. Rheumatol Int. 2016;36(3):311–324.
  • Berdal G, Bø I, Dager TN, et al. Structured goal planning and supportive telephone follow-up in rheumatology care: results from a pragmatic, stepped-wedge, cluster-randomized trial. Arthritis Care Res. 2018;70(11):1576–1586.
  • World Health Organization. World report on disability. Geneva: World Health Organization; 2011.
  • Cott CA. Client-centred rehabilitation: client perspectives. Disabil Rehabil. 2004;26(24):1411–1422.
  • World Health Organization. Rehabilitation in health systems. Geneva: World Health Organization; 2017.
  • Johansen I, Klokkerud M, Anke A, et al. A quality indicator set for use in rehabilitation team care of people with rheumatic and musculoskeletal diseases; development and pilot testing. BMC Health Serv Res. 2019;19(1):265.
  • Sand-Svartrud AL, Berdal G, Valaas HL, et al. Associations between patient-reported quality of healthcare and clinical outcomes. A rehabilitation cohort study; submitted for publication to BMC Musculoskeletal Disorders on 12 November 2021 UTC.
  • World Health Organization. Continuity and coordination of care: a practice brief to support implementation of the WHO framework on integrated people-centred health services. Licence: CC BY-NC-SA 3.0 IGO. Geneva: World Health Organization; 2018.
  • World Health Assembly, 69. Framework on integrated, people-centred health services: report by the Secretariat. Document number A69/39. World Health Organization; 2016.
  • Clemente D, Leon L, Foster H, et al. Systematic review and critical appraisal of transitional care programmes in rheumatology. Semin Arthritis Rheum. 2016;46(3):372–379.
  • Berdal G, Smedslund G, Dagfinrud H, et al. Design and effects of supportive followup interventions in clinical care of patients with rheumatic diseases: a systematic review with meta-analysis. Arthritis Care Res. 2015;67(2):240–254.
  • Yun DW, Choi JS. Person-centered rehabilitation care and outcomes: a systematic literature review. Int J Nurs Stud. 2019;93:74–83.
  • Dager TN, Kjeken I, Berdal G, et al. Rehabilitation for patients with rheumatic diseases: patient experiences of a structured goal planning and tailored follow-up programme. SAGE Open Med. 2017;5:2050312117739786.
  • Hamnes B, Berdal G, Bø I, et al. Patients' experiences with goal pursuit after discharge from rheumatology rehabilitation: a qualitative study. Musculoskelet Care. 2021;19(3):249–258.
  • Klokkerud M, Dagfinrud H, Uhlig T, et al. Developing and testing a consensus-based core set of outcome measures for rehabilitation in musculoskeletal diseases. Scand J Rheumatol. 2018;47(3):225–234.
  • Hjermstad MJ, Fayers PM, Haugen DF, et al. Studies comparing numerical rating scales, verbal rating scales, and visual analogue scales for assessment of pain intensity in adults: a systematic literature review. J Pain Symptom Manage. 2011;41(6):1073–1093.
  • Jones CJ, Rikli RE, Beam WC. A 30-s chair-stand test as a measure of lower body strength in community-residing older adults. Res Q Exerc Sport. 1999;70(2):113–119.
  • Strand BH, Dalgard OS, Tambs K, et al. Measuring the mental health status of the Norwegian population: a comparison of the instruments SCL-25, SCL-10, SCL-5 and MHI-5 (SF-36). Nord J Psychiatry. 2003;57(2):113–118.
  • Magnussen LH, Lygren H, Anderson B, et al. Validation of the Norwegian version of Hannover Functional Ability Questionnaire. Spine. 2010;35(14):E646–E653.
  • Westaway MD, Stratford PW, Binkley JM. The Patient-Specific Functional Scale: validation of its use in persons with neck dysfunction. J Orthop Sports Phys Ther. 1998;27(5):331–338.
  • Johnsen LG, Hellum C, Nygaard OP, et al. Comparison of the SF6D, the EQ5D, and the oswestry disability index in patients with chronic low back pain and degenerative disc disease. BMC Musculoskelet Disord. 2013;14:148.
  • Bentsen BG, Natvig B, Winnem M. Questions you didn't ask? COOP/WONCA charts in clinical work and research. World organization of colleges, academies and academic associations of general practitioners/family physicists. Fam Pract. 1999;16(2):190–195.
  • Hamnes B, Garratt A, Kjeken I, et al. Translation, data quality, reliability, validity and responsiveness of the Norwegian version of the Effective Musculoskeletal Consumer Scale (EC-17). BMC Musculoskelet Disord. 2010;11:21.
  • Berdal G, Sand-Svartrud A-L, Bø I, et al. Aiming for a healthier life: a qualitative content analysis of rehabilitation goals in patients with rheumatic diseases. Disabil Rehabil. 2018;40(7):765–778.
  • Osteras N, Moseng T, Bodegom-Vos LV, et al. Implementing a structured model for osteoarthritis care in primary healthcare: a stepped-wedge cluster-randomised trial. PLoS Med. 2019;16(10):e1002949.
  • Sand-Svartrud AL, Berdal G, Valaas HL, et al. A quality indicator set for rehabilitation services for people with rheumatic and musculoskeletal diseases demonstrates adequate responsiveness in a pre-post evaluation. BMC Health Serv Res. 2021;21(1):164.
  • Kinge JM, Knudsen AK, Skirbekk V, et al. Musculoskeletal disorders in Norway: prevalence of chronicity and use of primary and specialist health care services. BMC Musculoskelet Disord. 2015;16:75.
  • Macfarlane GJ, Kronisch C, Dean LE, et al. EULAR revised recommendations for the management of fibromyalgia. Ann Rheum Dis. 2017;76(2):318–328.
  • The Norwegian Directorate of Health. Muskel- og skjelettsmerter – uten leddhevelser, uten inflammasjonparametre: Helsedirektoratet; 2015. Available from: https://www.helsedirektoratet.no/veiledere/prioriteringsveiledere/revmatologi/tilstander-for-revmatologi/muskel-og-skjelettsmerter/muskel-og-skjelettsmerter-uten-leddhevelser-uten-inflammasjonparametre-ikke-rett#null-begrunnelse
  • Fechtner S, Bethge M. Effects of rehabilitation aftercare on work participation in patients with musculoskeletal disorders: a propensity score-matched analysis. Int J Rehabil Res. 2018;41(1):74–80.
  • Picorelli AM, Pereira LS, Pereira DS, et al. Adherence to exercise programs for older people is influenced by program characteristics and personal factors: a systematic review. J Physiother. 2014;60(3):151–156.
  • Knittle K, De Gucht V, Hurkmans E, et al. Explaining physical activity maintenance after a theory-based intervention among patients with rheumatoid arthritis: process evaluation of a randomized controlled trial. Arthritis Care Res. 2016;68(2):203–210.
  • Schoo AMM, Morris ME, Bui QM. Predictors of home exercise adherence in older people with osteoarthritis. Physiother Can. 2005;57(3):179–187.
  • Garfield S, Clifford S, Eliasson L, et al. Suitability of measures of self-reported medication adherence for routine clinical use: a systematic review. BMC Med Res Methodol. 2011;11:149.
  • Sallis JF, Saelens BE. Assessment of physical activity by self-report: status, limitations, and future directions. Res Q Exerc Sport. 2000;71 Suppl. 2:1–14.
  • Hall AM, Kamper SJ, Hernon M, et al. Measurement tools for adherence to non-pharmacologic self-management treatment for chronic musculoskeletal conditions: a systematic review. Arch Phys Med Rehabil. 2015;96(3):552–562.