Delivering group support for people with aphasia in a virtual world: experiences of service providers

References

• Hilari K, Needle JJ, Harrison KL. What are the important factors in health-related quality of life for people with aphasia? A systematic review. Arch Phys Med Rehabil. 2012;93(1 Suppl.):S86–S95.
   PubMed Web of Science ®Google Scholar
• Davidson B, Howe T, Worrall L, et al. Social participation for older people with aphasia: the impact of communication disability on friendships. Top Stroke Rehabil. 2008;15(4):325–340.
   PubMed Web of Science ®Google Scholar
• Northcott S, Marshall J, Hilari K. What factors predict who will have a strong social network following a stroke? J Speech Lang Hear Res. 2016;59(4):772–783.
   PubMed Web of Science ®Google Scholar
• Cruice M, Worrall L, Hickson L. Quantifying aphasic people’s social lives in the context of non-aphasic peers. Aphasiology. 2006;20(12):1210–1225.
   Web of Science ®Google Scholar
• Kauhanen ML, Korpelainen JT, Hiltunen P, et al. Aphasia, depression, and non-verbal cognitive impairment in ischaemic stroke. Cerebrovasc Dis. 2000;10(6):455–461.
   PubMed Web of Science ®Google Scholar
• Shehata GA, El Mistikawi T, Risha ASK, et al. The effect of aphasia upon personality traits, depression and anxiety among stroke patients. J Affect Disord. 2015;172:312–313.
   PubMed Web of Science ®Google Scholar
• Rose ML, Attard MC. Practices and challenges in community aphasia groups in Australia: results of a national survey. Int J Speech Lang Pathol. 2015;17(3):241–251.
   PubMed Web of Science ®Google Scholar
• Sherratt S, Simmons-Mackie N. Shared humour in aphasia groups: “they should be called cheer groups”. Aphasiology. 2016;30(9):1039–1057.
   Web of Science ®Google Scholar
• Simmons-Mackie N, Elman RJ. Negotiation of identity in group therapy for aphasia: the aphasia café. Int J Lang Commun Disord. 2011;46(3):312–323.
   PubMed Web of Science ®Google Scholar
• Shadden B. Rebuilding identity through stroke support groups: embracing the person with aphasia and significant others. In: Elman R, editor. Group treatment of neurogenic communication disorders: the expert clinician’s approach. 2nd ed. San Diego: Plural Publishing Inc; 2007. p. 111–126.
   Google Scholar
• Attard MC, Loupis Y, Togher L, et al. The efficacy of an inter-disciplinary community aphasia group for living well with aphasia. Aphasiology. 2018;32(2):105–138.
   Web of Science ®Google Scholar
• Corsten S, Konradi J, Schimpf EJ, et al. Improving quality of life in aphasia—evidence for the effectiveness of the biographic-narrative approach. Aphasiology. 2014;28(4):440–452.
   Web of Science ®Google Scholar
• Elman RJ, Bernstein-Ellis E. The efficacy of group communication treatment in adults with chronic aphasia. J Speech Lang Hear Res. 1999;42(2):411–419.
   PubMed Web of Science ®Google Scholar
• Lanyon LE, Rose ML, Worrall L. The efficacy of outpatient and community-based aphasia group interventions: a systematic review. Int J Speech Lang Pathol. 2013;15(4):359–374.
   PubMed Web of Science ®Google Scholar
• Vickers CP. Social networks after the onset of aphasia: the impact of aphasia group attendance. Aphasiology. 2010;24(6–8):902–913.
   Web of Science ®Google Scholar
• Attard MC, Lanyon L, Togher L, et al. Consumer perspectives on community aphasia groups: a narrative literature review in the context of psychological well-being. Aphasiology. 2015;29(8):983–1019.
   Web of Science ®Google Scholar
• Attard MC, Loupis Y, Togher L, et al. Staff experiences of an interprofessional community aphasia group. Aphasiology. 2020;34(1):1–18.
   Web of Science ®Google Scholar
• Verna A, Davidson B, Rose T. Speech-language pathology services for people with aphasia: a survey of current practice in Australia. Int J Speech Lang Pathol. 2009;11(3):191–205.
   Web of Science ®Google Scholar
• Mumby K, Whitworth A. Evaluating the effectiveness of intervention in long-term aphasia post-stroke: the experience from CHANT (Communication Hub for Aphasia in North Tyneside). Int J Lang Commun Disord. 2012;47(4):398–412.
   PubMed Web of Science ®Google Scholar
• Van Der Gaag A, Smith L, Davis S, et al. Therapy and support services for people with long-term stroke and aphasia and their relatives: a six-month follow-up study. Clin Rehabil. 2005;19(4):372–380.
   PubMed Web of Science ®Google Scholar
• Hall N, Boisvert M, Steele R. Telepractice in the assessment and treatment of individuals with aphasia: a systematic review. Int J Telerehab. 2013;5(1):27–38.
   PubMedGoogle Scholar
• Hill AJ, Theodoros DG, Russell TG, et al. The effects of aphasia severity on the ability to assess language disorders via telerehabilitation. Aphasiology. 2009;23(5):627–642.
   Web of Science ®Google Scholar
• Woolf C, Caute A, Haigh Z, et al. A comparison of remote therapy, face to face therapy and an attention control intervention for people with aphasia: a quasi-randomised controlled feasibility study. Clin Rehabil. 2016;30(4):359–373.
   PubMed Web of Science ®Google Scholar
• Pitt R, Theodoros D, Hill AJ, et al. The development and feasibility of an online aphasia group intervention and networking program – TeleGAIN. Int J Speech Lang Pathol. 2019;21(1):23–36.
   PubMed Web of Science ®Google Scholar
• Pitt R, Hill AJ, Theodoros D, et al. “I definitely think it’s a feasible and worthwhile option”: perspectives of speech-language pathologists providing online aphasia group therapy. Aphasiology. 2018;32(9):1031–1053.
   Web of Science ®Google Scholar
• Pitt R, Theodoros D, Hill AJ, et al. The impact of the telerehabilitation group aphasia intervention and networking programme on communication, participation, and quality of life in people with aphasia. Int J Speech Lang Pathol. 2019;21(5):513–523.
   PubMed Web of Science ®Google Scholar
• Walker JP, Price K, Watson J. Promoting social connections in a synchronous telepractice, aphasia communication group. Perspect ASHA Sigs. 2018;3(18):32–42.
   Google Scholar
• Marshall J, Devane N, Talbot R, et al. A randomised trial of social support group intervention for people with aphasia: a novel application of virtual reality. PLOS One. 2020;15(9):e0239715.
   PubMed Web of Science ®Google Scholar
• Wilson S, Roper A, Marshall J, et al. Codesign for people with aphasia through tangible design languages. CoDesign. 2015;11(1):21–34.
   Web of Science ®Google Scholar
• Galliers J, Wilson S, Marshall J, et al. Experiencing EVA Park, a multi-user virtual world for people with aphasia. ACM Trans Access Comput. 2017;10(4):1–24.
   Web of Science ®Google Scholar
• Amaya A, Woolf C, Devane N, et al. Receiving aphasia intervention in a virtual environment: the participants’ perspective. Aphasiology. 2018;32(5):538–558.
   Web of Science ®Google Scholar
• Marshall J, Booth T, Devane N, et al. Evaluating the benefits of aphasia intervention delivered in virtual reality: results of a quasi-randomised study. PLOS One. 2016;11(8):e0160381.
   PubMed Web of Science ®Google Scholar
• Marshall J, Devane N, Edmonds L, et al. Delivering word retrieval therapies for people with aphasia in a virtual communication environment. Aphasiology. 2018;32(9):1054–1074.
   Web of Science ®Google Scholar
• Carragher M, Steel G, Talbot R, et al. Adapting therapy for a new world: storytelling therapy in EVA Park. Aphasiology. 2021;35(5):704–726.
   Web of Science ®Google Scholar
• Craig P, Dieppe P, Macintyre S, et al. Developing and evaluating complex interventions: the new medical research council guidance. Int J Nurs Stud. 2013;50(5):587–592.
   PubMed Web of Science ®Google Scholar
• Sekhon M, Cartwright M, Francis JJ. Acceptability of healthcare interventions: an overview of reviews and development of a theoretical framework. BMC Health Serv Res. 2017;17(1):1–13.
   PubMed Web of Science ®Google Scholar
• Wade VA, Eliott JA, Hiller JE. Clinician acceptance is the key factor for sustainable telehealth services. Qual Health Res. 2014;24(5):682–694.
   PubMed Web of Science ®Google Scholar
• Dunkley C, Pattie L, Wilson L, et al. A comparison of rural speech-language pathologists' and residents' access to and attitudes towards the use of technology for speech-language pathology service delivery. Int J Speech Lang Pathol. 2010;12(4):333–343.
   PubMed Web of Science ®Google Scholar
• Tucker JK. Perspectives of speech-language pathologists on the use of telepractice in schools: quantitative survey results. Int J Telerehabil. 2012;4(2):61–72.
   PubMedGoogle Scholar
• Mumby K, Whitworth A. Adjustment processes in chronic aphasia after stroke: exploring multiple perspectives in the context of a community-based intervention. Aphasiology. 2013;27(4):462–489.
   Web of Science ®Google Scholar
• Purves BA, Petersen J, Puurveen G. An aphasia mentoring program: perspectives of speech-language pathology students and of mentors with aphasia. Am J Speech Lang Pathol. 2013;22(2):S370–S379.
   PubMed Web of Science ®Google Scholar
• Tregea S, Brown K. What makes a successful peer-led aphasia support group? Aphasiology. 2013;27(5):581–598.
   Web of Science ®Google Scholar
• Kertesz A. Western aphasia battery-revised. San Antonio (TX): The Psychological Corporation; 2007.
   Google Scholar
• NatCen. NatCen Learning [Internet]; 2021 [cited 2021 Apr 27]. Available from: https://natcen.ac.uk/natcen-learning/
   Google Scholar
• Morse JM. Critical analysis of strategies for determining rigor in qualitative inquiry. Qual Health Res. 2015;25(9):1212–1222.
   PubMed Web of Science ®Google Scholar
• Spencer L, Ritchie J, Ormston R, et al. Analysis: principles and processes. In: Ritchie J, Lewis J, McNaughton Nicholls C, Ormston R, editors. Qualitative research practice: a guide for social science students and researchers. 2nd ed. London: Sage Publications Ltd; 2014. p. 269–293.
   Google Scholar
• Braun V, Clarke V, Hayfield N, et al. Thematic analysis. In: Liamputtong P, editor. Handbook of research methods in health social sciences. Singapore: Springer Nature; 2018.
   Google Scholar
• Delbecq AL, Van de Ven AH, Gustafson DH. Group techniques for program planning: a guide to nominal group and Delphi processes. Glenview (IL): Scott Foresman; 1975. p. 174.
   Google Scholar
• Wallace SJ, Worrall L, Rose T, et al. Which outcomes are most important to people with aphasia and their families? An international nominal group technique study framed within the ICF. Disabil Rehabil. 2017;39(14):1364–1379.
   PubMed Web of Science ®Google Scholar
• City, University of London. EVA Park early adopters [Internet]; 2021 [cited 2021 Apr 27]. Available from: https://evapark.city.ac.uk/?page_id=1286
   Google Scholar