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Research Papers

Importance and difficulty with valued life activities for people with systemic sclerosis

ORCID Icon, , &
Pages 220-225 | Received 16 Jun 2020, Accepted 08 Jan 2022, Published online: 01 Feb 2022

References

  • Denton CP, Khanna D. Systemic sclerosis. Lancet. 2017;390(10103):1685–1699.
  • Morrisroe KB, Nikpour M, Proudman SM. Musculoskeletal manifestations of systemic sclerosis. Rheum Dis Clin North Am. 2015;41(3):507–518.
  • Castellví I, Eguiluz S, Escudero-Contreras A, et al. LAUDES study: impact of digital ulcers on hand functional limitation, work productivity and daily activities, in systemic sclerosis patients. Rheumatol Int. 2019;39(11):1875–1882.
  • Sierakowska M, Doroszkiewicz H, Sierakowska J, et al. Factors associated with quality of life in systemic sclerosis: a cross-sectional study. Qual Life Res. 2019;28(12):3347–3354.
  • Poole JL, Chandrasekaran A, Hildebrand K, et al. Participation in life situations by persons with systemic sclerosis. Disabil Rehabil. 2015;37(10):842–845.
  • Poole JL, Steen V. The use of the health assessment questionnaire (HAQ) to determine physical disability in systemic sclerosis. Arthritis Care Res. 1991;4(1):27–31.
  • Jaeger VK, Distler O, Maurer B, et al. Functional disability and its predictors in systemic sclerosis: a study from the DeSScipher project within the EUSTAR group. Rheumatology. 2018;57(3):441–450.
  • Sandqvist G, Eklund M. Daily occupations-performance, satisfaction and time use, and relations with well-being in women with limited systemic sclerosis. Disabil Rehabil. 2008;30(1):27–35.
  • Fries J, Spitz P, Kraines RG, et al. Measurement of patient outcome in arthritis. Arthritis Rheum. 1980;23(2):137–145.
  • Ware J, Sherbourne CD. The MOS-36 item short form health survey (SF-36).1. Conceptual framework and item selection. Med Care. 1992;30(6):473–483.
  • Mouthon L, Rannou F, Bérezné A, et al. Patient preference disability questionnaire in systemic sclerosis: a cross-sectional survey. Arthritis Rheum. 2008;59(7):968–973.
  • Johnson S, Hawker G, Davis A. The health assessment questionnaire disability index and scleroderma health assessment questionnaire in scleroderma trials: an evaluation of their measurement properties. Arthritis Rheum. 2005;53(2):256–252.
  • Schnitzer M, Hudson M, Baron M, et al. Disability in systemic sclerosis - a longitudinal observational study. J Rheumatol. 2011;38(4):685–692.
  • Peytrignet S, Denton CP, Lunt M, et al. Disability, fatigue, pain and their associates in early diffuse cutaneous systemic sclerosis: the european scleroderma observational study. Rheumatology. 2018;57(2):370–381.
  • Katz P, Morris A. Time use patterns among women with rheumatoid arthritis: association with functional limitations and psychological status. Rheumatology. 2007;46(3):490–495.
  • Katz PP, Morris A, Yelin EH. Prevalence and predictors of disability in valued life activities among individuals with rheumatoid arthritis. Ann Rheum Dis. 2006;65(6):763–769.
  • Katz PP, Morris A, Trupin L, et al. Disability in valued life activities among individuals with systemic lupus erythematosus. Arthritis Rheum. 2008;59(4):465–473.
  • Katz PP, Radvanski DC, Allen D, et al. Development and validation of a short form of the valued life activities disability questionnaire for rheumatoid arthritis. Arthritis Care Res. 2011;63(12):1664–1671.
  • Katz P, Gregorich S, Eisner M, et al. Disability in valued life activities among individuals with COPD and other respiratory conditions. J Cardiopulm Rehabil Prev. 2010;30(2):126–136.
  • Kelley K, Clark B, Brown V, et al. Good practice in the conduct and reporting of survey research. Int J Qual Health Care. 2003;15(3):261–266.
  • Khanna D, Clements PJ, Postlethwaite AE, et al. Does incorporation of aids and devices make a difference in the score of the health assessment questionnaire-disability index? Analysis from a scleroderma clinical trial. J Rheumatol. 2008;35:466–468.
  • Radloff LS. The CES-D scale: a self-report depression scale for research in the general population. Appl Psychol Meas. 1977;1(3):385–401.
  • Thombs BD, Taillefer SS, Hudson M, et al. Depression in patients with systemic sclerosis: a systematic review of the evidence. Arthritis Rheum. 2007;57(6):1089–1097.
  • Leino M, Tuominen S, Pirila L, et al. Effects of rheumatoid arthritis on household chores and leisure time activities. Rheumatol Int. 2015;35(11):1881–1888.
  • Gignac MAM, Cott C, Badley EM. Adaptation to chronic illness and disability and its relationship to perceptions of independence and dependence. J Gerontol. 2000;55B:P363–P373.
  • Nguyen C, Mouthon L, Mestre-Stanislas C, et al. Sensitivity to change in systemic sclerosis of the McMaster-Toronto arthritis patient preference disability questionnaire (MACTAR): shift in patient priorities over time. J Rheumatol. 2010;37(2):359–364.
  • Liem SIE, Meessen JMTA, Wolterbeek R, et al. Physical activity in patients with systemic sclerosis. Rheumatol Int. 2018;38(3):443–453.
  • Lee JJ, Gignac MA, Johnson SR. Employment outcomes in systemic sclerosis. Best Pract Res Clin Rheumatol. 2021;35(3):10.
  • Khanna D, Serrano J, Berrocal V, et al. A randomized controlled trial to evaluate an Internet-Based Self-Management program in systemic sclerosis. Arthritis Care & Res. 2019;3:435–447.

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