References
- Arsenault M, Goupil G, Poirier N. Perceptions de la transition vers la vie adulte d’adolescents et de jeunes adultes ayant un trouble du spectre de l’autisme [the transition to adulthood: perceptions of adolescents and young adults with autism spectrum disorder]. Rev de Psychoéduc. 2017;45(1):25–40. French.
- Sosnowy C, Silverman C, Shattuck P. Parents’ and young adults’ perspectives on transition outcomes for young adults with autism. Autism. 2018;22(1):29–39.
- Ministère de la Santé et des Services sociaux du Québec. Plan d’action sur le trouble du spectre de l’autisme 2017–2022—Des actions structurantes pour les personnes et leur famille [Action plan on autism spectrum disorder 2017–2022—Structuring actions for the persons and their family]. Québec: Gouvernement du Québec; 2017. (Publications du ministère de la Santé et des Services sociaux; no. 16-824-06W). French.
- Office of the High Commissioner for Human Rights. Convention on the rights of persons with disabilities. United Nations; 2006.
- Kenny L, Hattersley C, Molins B, et al. Which terms should be used to describe autism? Perspectives from the UK autism community. Autism. 2016;20(4):442–462.
- Chamak B, Bonniau B. Trajectories, long-term outcomes and family experiences of 76 adults with autism spectrum disorder. J Autism Dev Disord. 2016;46(3):1084–1095.
- Gray K, Keating C, Taffe J, et al. Adult outcomes in autism: community inclusion and living skills. J Autism Dev Disord. 2014;44(12):3006–3015.
- Bal VH, Kim S-H, Cheong D, et al. Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age. Autism. 2015;19(7):774–784.
- Dorismond M, Boucher C, Poirier N. Adultes autistes – mieux comprendre les conditions de leur intégration sociale [autistic adultes – better understand the conditions of their social inclusion.] Perspect Infirm. 2015;12(3):47–51. French.
- Duncan A, Ruble LA, Meinzen-Derr J, et al. Preliminary efficacy of a daily living skills intervention for adolescents with high-functioning autism spectrum disorder. Autism. 2018;22(8):983–994.
- Lauzon J-A. Portrait de la situation des milieux de vie, autre que le milieu familial d'origine, des adultes autistes [Overview of the living environment situation, other than the family home, of autistic adults]. Fédération québécoise de l’autisme. 2019. (Avis et prises de position). French.
- Ministère de la santé et des services sociaux du Québec. Bilan 2008–2011 et perspectives – Un geste porteur d’avenir: Des services aux personnes présentant un trouble envahissant du développement, à leurs familles et à leurs proches [Review 2008-2011 and outlook – A promising gesture: Services for people with pervasive developmental disorders, their families and relatives]. Québec: Gouvernement du Québec; 2012. (Publications du ministère de la Santé et des Services sociaux; no. 12-724-01F). French.
- Couture M, Barrière-Dion M, France Beauregard F, et al. Regards croisés sur la participation sociale des adultes ayant un trouble du spectre de l’autisme; une étude qualitative et quantitative [Perspectives on the social participation of adults with autism spectrum disorder; a qualitative and quantitative study]. Fonds de recherche du Québec – Société et culture; 2020. (Rapport de recherche – Programme actions concertées; no. 2016-AU-195754). French.
- American Psychiatric Association. Diagnostic and statistical manual of mental disorders DSM5. 5th ed. Arlington (VA): American Psychiatric Publishing; 2013.
- Ghanouni P, Quirke S, Blok J, et al. Independent living in adults with autism spectrum disorder: stakeholders’ perspectives and experiences. Res in Dev Disabl. 2021;49(2):660–668.
- Kapp SK. Social support, well-being, and quality of life among individuals on the autism spectrum. Pediatrics. 2018;141(Supplement_4):S362–S368.
- Anderson KA, Sosnowy C, Kuo AA, et al. Transition of individuals with autism to adulthood: a review of qualitative studies. Pediatrics. 2018;141(Suppl 4):S318–S327.
- Hayes SA, Watson SL. The impact of parenting stress: a meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. J Autism Dev Disord. 2013;43(3):629–642.
- Cappe É, Poirier N, Sankey C, et al. Quality of life of French Canadian parents raising a child with autism spectrum disorder and effects of psychosocial factors. Qual Life Res. 2018;27(4):955–967.
- Schiltz H, McVey A, Magnus B, et al. Examining the links between challenging behaviors in youth with ASD and parental stress, mental health, and involvement: applying an adaptation of the family stress model to families of youth with ASD. J Autism Dev Disord. 2018;48(4):1169–1180.
- Vasilopoulou E, Nisbet J. The quality of life of parents of children with autism spectrum disorder: a systematic review. Res in Autism Spectr Disord. 2016;23(C):36–49.
- Ministère de l’Éducation et de l’Enseignement supérieur. Guide pour soutenir la démarche de transition de l'école vers la vie active (TEVA) [Guide to support the transition process from school to active life]. Québec: Gouvernement du Québec; 2018. French.
- Desmarais C, Lamontagne MÈ, St-Pierre MC, et al. Planifier la transition de l’école à la vie adulte (TÉVA) des jeunes handicapés: quelles sont les meilleures pratiques pour le Québec? [Planning the transition from school to adulthood for young people with disabilities: what are the best practices for Quebec?]. Fonds de recherche du Québec – Société et culture. 2020. (Rapport de recherche – Programme actions concertées; no. 2019-0HPR-264170). French.
- Snell-Rood C, Ruble L, Kleinert H, et al. Stakeholder perspectives on transition planning, implementation, and outcomes for students with autism spectrum disorder. Autism. 2020;24(5):1164–1176.
- Turcotte P-L, Côté C, Coulombe K, et al. Social participation during transition to adult life among young adults with High-Functioning autism spectrum disorders: experiences from an exploratory multiple case study. Occup Ther in Ment Health. 2015;31(3):234–252.
- Caouette M. Options résidentielles pour les adultes ayant une déficience intellectuelle ou un trouble du spectre de l’autisme [Residential options for adults with intellectual disability or autism spectrum disorder]. Conference presented by L’Accompagnateur. 2021. Nov 11. French.
- Marcotte J, Grandisson M, Piquemal C, et al. Supporting independence at home of people with autism spectrum disorder: literature review. Can J Occup Ther. 2020;87(2):100–116.
- Bottema-Beutel K, Kapp SK, Lester JN, et al. Avoiding ableist language: suggestions for autism researchers. Autism in Adulthood. 2021;3(1):18–29.
- INDCP: International Network on the Disability Creation Process [Internet]. Québec (CA): International Network on the Disability Creation Process; n.d. The Model; [cited 2022 Jan 6]; [about 3 screens]. Available from: https://ripph.qc.ca/en/hdm-dcp-model/the-model/
- Bagatell N. From cure to community: transforming notions of autism. Ethos. 2010;38(1):33–55.
- Robertson SM. Neurodiversity, quality of life, and autistic adults: shifting research and professional focuses onto real-life challenges. Disabil Stud Q. 2009;30(1).
- Egilson ST, Jakobsdóttir G, Ólafsdóttir LB. Parent perspectives on home participation of high-functioning children with autism spectrum disorder compared with a matched group of children without autism spectrum disorder. Autism. 2018;22(5):560–570.
- Miller DJ. Educator perceptions of visual support systems and social skills for young adults with autism spectrum disorders [dissertation thesis]. Minneapolis (MN): Walden University; 2017.
- Tissot C, Evans R. Visual teaching strategies for children with autism. Early Child Dev and Care. 2003;173(4):425–433.
- Hedges SH, Odom SL, Hume K, et al. Technology use as a support tool by secondary students with autism. Autism. 2018;22(1):70–79.
- Ribu K, Patel T. Developing a user-centred planning tool for young adults with development disorders: a research-based teaching project. Stud in Health Technol and Inform. 2016;229:283–286.
- Pfeiffer B, Coster W, Snethen G, et al. Caregivers’ perspectives on the sensory environment and participation in daily activities of children with autism spectrum disorder. Am J of Occup Ther. 2017;71(4):49–57.
- Schiavone N, Szczepanik D, Koutras J, et al. Caregiver strategies to enhance participation in children with autism spectrum disorder. OTJR. 2018;38(4):235–244.
- Nicolaidis C, Raymaker D, Kapp SK, et al. The AASPIRE practice-based guidelines for the inclusion of autistic adults in research as co-researchers and study participants. Autism. 2019;23(8):2007–2019.
- Bertilsdotter R. Doing it differently: emancipatory autism studies within a neurodiverse academic space. Disabil and Soc. 2019;34(7–8):1082–1101.
- Fortin F, Gagnon J. Fondements et étapes du processus de recherche: méthodes quantitatives et qualitatives [Foundations and steps of the research process: quantitative and qualitative methods]. 3rd ed. Montréal (Qc): Chenelière education. 2015. French.
- Bradshaw C, Atkinson S, Doody O. Employing a qualitative description approach in health care research. Glob Qual Nurs Res. 2017;4:1–8.
- Sandelowski M. Whatever happened to qualitative description? Res. Nurs. Health. 2000;23(4):334–340.
- Evans J, Jones P. The walking interview: methodology, mobility and place. Appl Geogr. 2011;31(2):849–858.
- Harrington C, Foster M, Rodger S, et al. Engaging young people with autism spectrum disorder in research interviews. Br J Learn Disabil. 2014;42(2):153–161.
- Preece D, Jordan R. Obtaining the views of children and young people with autism spectrum disorders about their experience of daily life and social care support. Br J of Learn Disabil. 2010;38(1):10–20.
- Hsieh H-F, Shannon SE. Three approaches to qualitative content analysis. Qual Health Res. 2005;15(9):1277–1288.
- Skillman M, Cross-Barnet C, Friedman Singer R, et al. A framework for rigorous qualitative research as a component of mixed method rapid-cycle evaluation. Qual Health Res. 2019;29(2):279–289.
- Patton MQ. Qualitative evaluation & research methods: integrating theory and practice. 4th ed. Saint Paul (MN): SAGE Publications; 2015. Chapter 8, Qualitative Analysis and Interpretation; p. 520–650.
- Lincoln YS, Guba EG. But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. In Mathison S, editor. Enduring issues in evaluation: the 20th anniversary of the collaboration between NDE and AEA (new directions for evaluation fo evaluation, number 114). Jossey-Bass and the American Evaluation Association (AEA); 2007. p. 15–25.
- den Houting J. Neurodiversity: an insider’s perspective. Autism. 2019;23(2):271–273.
- Scott M, Milbourn B, Falkmer M, et al. Factors impacting employment for people with autism spectrum disorder: a scoping review. Autism. 2019;23(4):869–901.
- Thompson C, Bölte S, Falkmer T, et al. Viewpoints on how students with autism can best navigate university. Scand J of Occup Ther. 2019;26(4):294–305.
- Caouette M, Plichon R, Lussier-Desrochers D. Autodétermination et création du « chez-soi »: un nouvel enjeu pour les technologies de soutien aux personnes en situation de handicap [Self-determination and creation of « home »: A new challenge for supportive technologies for people disabling situation]. Terminal; 2014. 116. French
- Cheak-Zamora NC, Maurer-Batjer A, Malow BA, et al. Self-determination in young adults with autism spectrum disorder. Autism. 2020;24(3):605–616.
- Lai M-C, Lombardo MV, Auyeung B, et al. Sex/gender differences and autism: setting the scene for future research. J Am Acad Child Adolesc Psychiatry. 2015;54(1):11–24.
- Milner V, McIntosh H, Colvert E, et al. A qualitative exploration of the female experience of Autism Spectrum Disorder (ASD). J Autism Dev Disord. 2019;49(6):2389–2402.
- Strang JF, van der Miesen AIR, Caplan R, et al. Both sex- and gender-related factors should be considered in autism research and clinical practice. Autism. 2020;24(3):539–543.