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Research Papers

‘Nobody can take the stress away from me’: a qualitative study on experiences of partners of patients with cancer regarding their work and health

ORCID Icon, ORCID Icon, , ORCID Icon & ORCID Icon
Pages 1696-1704 | Received 11 Jan 2022, Accepted 30 Apr 2022, Published online: 23 May 2022

References

  • Li QP, Mak YW, Loke AY. Spouses' experience of caregiving for cancer patients: a literature review. Int Nurs Rev. 2013;60(2):178–187.
  • Kayser K, Watson L, Andrade J. Cancer as a "we-disease": examining the process of coping from a relational perspective. Families, Systems, & Health. 2007;25(4):404–418.
  • Northouse LL, Katapodi MC, Schafenacker AM, et al. The impact of caregiving on the psychological well-being of family caregivers and cancer patients. Semin Oncol Nurs. 2012;28(4):236–245.
  • Goren A, Gilloteau I, Lees M, et al. Quantifying the burden of informal caregiving for patients with cancer in Europe. Support Care Cancer. 2014;22(6):1637–1646.
  • Applebaum AJ, Breitbart W. Care for the cancer caregiver: a systematic review. Palliat Support Care. 2013;11(3):231–252.
  • Stenberg U, Ekstedt M, Olsson M, et al. Living close to a person with cancer: a review of the international literature and implications for social work practice. J Gerontol Soc Work. 2014;57(6–7):531–555.
  • Sánchez Sánchez E, González Baena AC, González Cáliz C, et al. Prevalence of anxiety and depression in prostate cancer patients and their spouses: an unaddressed reality. Prostate Cancer. 2020;2020:4393175.
  • Fletcher BS, Miaskowski C, Given B, et al. The cancer family caregiving experience: an updated and expanded conceptual model. Eur J Oncol Nurs. 2012;16(4):387–398.
  • Cohee A, Storey S, Winger JG, et al. A cohort study of quality of life in partners of young breast cancer survivors compared to partners of healthy controls. J Patient Rep Outcomes. 2020;4(1):19.
  • Caruso R, Nanni MG, Riba MB, et al. The burden of psychosocial morbidity related to cancer: patient and family issues. Int Rev Psychiatry. 2017;29(5):389–402.
  • Bradley CJ, Dahman B. Time away from work: employed husbands of women treated for breast cancer. J Cancer Surviv. 2013;7(2):227–236.
  • Kamal KM, Covvey JR, Dashputre A, et al. A systematic review of the effect of cancer treatment on work productivity of patients and caregivers. J Manag Care Spec Pharm. 2017;23(2):136–162.
  • Hollenbeak CS, Short PF, Moran J. The implications of cancer survivorship for spousal employment. J Cancer Surviv. 2011;5(3):226–234.
  • Ohlsson-Nevo E, Andershed B, Nilsson U, et al. Life is back to normal and yet not – partners' and patient's experiences of life of the first year after colorectal cancer surgery. J Clin Nurs. 2012;21(3–4):555–563.
  • Green J, Thorogood N. Qualitative methods for health research. 4th ed. Thousand Oaks, USA: SAGE Publications; 2018.
  • Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357.
  • Balfe M, Butow P, O'Sullivan E, et al. The financial impact of head and neck cancer caregiving: a qualitative study. Psychooncology. 2016;25(12):1441–1447.
  • Ochoa CY, Buchanan Lunsford N, Lee Smith J. Impact of informal cancer caregiving across the cancer experience: a systematic literature review of quality of life. Palliat Support Care. 2020;18(2):220–240.
  • Coenen P, Zegers AD, Stapelfeldt CM, et al. Cross-cultural translation and adaptation of the readiness for return to work questionnaire for Dutch cancer survivors. Eur J Cancer Care. 2021;30(2):e13383.
  • Toh SH, Howie EK, Coenen P, et al. "From the moment I wake up I will use it…every day, very hour": a qualitative study on the patterns of adolescents' mobile touch screen device use from adolescent and parent perspectives. BMC Pediatr. 2019;19(1):30.
  • Kvale S, Brinkmann S. Interviews: learning the craft of qualitative research interviewing. Thousand Oaks, USA: Sage; 2009.
  • Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101.
  • Turner AI, Smyth N, Hall SJ, et al. Psychological stress reactivity and future health and disease outcomes: a systematic review of prospective evidence. Psychoneuroendocrinology. 2020;114:104599.
  • Fujinami R, Otis-Green S, Klein L, et al. Quality of life of family caregivers and challenges faced in caring for patients with lung cancer. Clin J Oncol Nurs. 2012;16(6):E210–20.
  • Stephens C, Westmaas JL, Kim J, et al. Gender differences in associations between cancer-related problems and relationship dissolution among cancer survivors. J Cancer Surviv. 2016;10(5):865–873.
  • Wadhwa D, Burman D, Swami N, et al. Quality of life and mental health in caregivers of outpatients with advanced cancer. Psychooncology. 2013;22(2):403–410.
  • Longo CJ, Fitch M, Deber RB, et al. Financial and family burden associated with cancer treatment in Ontario, Canada. Support Care Cancer. 2006;14(11):1077–1085.
  • de Moor JS, Dowling EC, Ekwueme DU, et al. Employment implications of informal cancer caregiving. J Cancer Surviv. 2017;11(1):48–57.
  • Vos EE, de Bruin SR, van der Beek AJ, et al. It’s like juggling, constantly trying to keep all balls in the air”: a qualitative study of the support needs of working caregivers taking care of older adults. IJERPH. 2021;18(11):5701.
  • Angioli R, Capriglione S, Aloisi A, et al. Economic impact among family caregivers of patients with advanced ovarian cancer. Int J Gynecol Cancer. 2015;25(8):1541.
  • Sharp L, Torp S, van Hoof E, et al. Cancer and its impact on work among the self-employed: a need to bridge the knowledge gap. Eur J Cancer Care. 2017;26(5):e12746.
  • Eriksson E, Wejåker M, Danhard A, et al. Living with a spouse with chronic illness – the challenge of balancing demands and resources. BMC Public Health. 2019;19(1):422.
  • Sklenarova H, Krümpelmann A, Haun MW, et al. When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors. Cancer. 2015;121(9):1513–1519.
  • Adams E, Boulton M, Rose PW, et al. A qualitative study exploring the experience of the partners of cancer survivors and their views on the role of primary care. Support Care Cancer. 2012;20(11):2785–2794.
  • Otis-Green S, Juarez G. Enhancing the social well-being of family caregivers. Semin Oncol Nurs. 2012;28(4):246–255.
  • Greidanus MA, de Rijk AE, Frings-Dresen MHW, et al. The use and perceived usefulness of an online toolbox targeted at employers (MiLES intervention) for enhancing successful return to work of cancer survivors. J Occup Rehabil. 2021;31(2):393–404.

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