3,146
Views
0
CrossRef citations to date
0
Altmetric
Perspectives on Rehabilitation

Therapy services for children and youth living in rural areas of high-income countries: a scoping review

Pages 1893-1915 | Received 30 Sep 2021, Accepted 30 Apr 2022, Published online: 24 May 2022

References

  • Rights UCoH. UN Commission on Human Rights, convention on the rights of the child; 1990 [cited 2022 Mar 18]. Available from: https://www.refworld.org/docid/3b00f03d30.html
  • Convention on the rights of persons with disabilities, 26; 2008.
  • Gallego G, Dew A, Lincoln M, et al. Access to therapy services for people with disability in rural Australia: a carers' perspective. Health Soc Care Community. 2017;25(3):1000–1010.
  • Anne S, Lieu JE, Cohen MS. Speech and language consequences of unilateral hearing loss: a systematic review. Otolaryngol Head Neck Surg. 2017;157(4):572–579.
  • Etzel-Wise D, Mears B. Adapted physical education and therapeutic recreation in schools. Interv School Clin. 2004;39(4):223–232.
  • Rothwell E, Piatt J, Mattingly K. Social competence: evaluation of an outpatient recreation therapy treatment program for children with behavioral disorders. Ther Recreat J. 2006;40(4):241.
  • Shapiro DR, Sayers LK. Who does what on the interdisciplinary team: regarding physical education for students with disabilities? Teach Except Child. 2003;35(6):32–38.
  • Tomblin JB, Oleson JJ, Ambrose SE, et al. The influence of hearing aids on the speech and language development of children with hearing loss. JAMA Otolaryngol Head Neck Surg. 2014;140(5):403–409.
  • Verhaert N, Willems M, Van Kerschaver E, et al. Impact of early hearing screening and treatment on language development and education level: evaluation of 6 years of universal newborn hearing screening (ALGO) in Flanders, Belgium. Int J Pediatr Otorhinolaryngol. 2008;72(5):599–608.
  • Heckman JJ. Policies to foster human capital. Res Econ. 2000;54(1):3–56.
  • Heckman J, editor. Investing in disadvantaged young children is both fair and efficient. The committee for economic development, the pew charitable trusts. New York (NY): PNC Financial Services Group; 2006.
  • Walker A, Alfonso MLPD, Colquitt GED, et al. “When everything changes:” parent perspectives on the challenges of accessing care for a child with a disability. Disabil Health J. 2016;9(1):157–161.
  • Barr M, Duncan J, Dally K. A systematic review of services to DHH children in rural and remote regions. J Deaf Stud Deaf Educ. 2018;23(2):118–130.
  • Urquhart D. Is everybody here? inclusion and exclusion of families with young children in the Ottawa area: a report. Ottawa: Social Planning Council of Ottawa; 2007.
  • Dew A, Bulkeley K, Veitch C, et al. Carer and service providers' experiences of individual funding models for children with a disability in rural and remote areas. Health Soc Care Commun. 2013;21(4):432–441.
  • Zablotsky B, Black L. Prevalence of children aged 3-17 years with developmental disabilities, by urbanicity: United States. Natl Health Stat Rep. 2015;2020(7):2018.
  • Grajo L, Candler C, Sarafian A. Interventions within the scope of occupational therapy to improve children's academic participation: a systematic review. Am J Occup Ther. 2020;74(2):7402180030p1–740218003p32.
  • Schaaf RC, Hunt J, Benevides T. Occupational therapy using sensory integration to improve participation of a child with autism: a case report. Am J Occup Ther. 2012;66(5):547–555.
  • Bischoff RJ, Reisbig AMJ, Springer PR, et al. Succeeding in rural mental health practice: being sensitive to culture by fitting in and collaborating. Contemp Fam Ther. 2014;36(1):1–16.
  • Yellowlees P, Marks S, Hilty D, et al. Using e-health to enable culturally appropriate mental healthcare in rural areas. Telemed J E Health. 2008;14(5):486–492.
  • Magnusson D, Sweeney F, Landry M. Provision of rehabilitation services for children with disabilities living in low- and middle-income countries: a scoping review. Disabil Rehabil. 2019;41(7):861–868.
  • Bright T, Wallace S, Kuper H. A systematic review of access to rehabilitation for people with disabilities in low- and middle-Income countries. IJERPH. 2018;15(10):2165.
  • Bush ML, Burton M, Loan A, et al. Timing discrepancies of early intervention hearing services in urban and rural cochlear implant recipients. Otol Neurotol. 2013;34(9):1630–1635.
  • Dew A, Bulkeley K, Veitch C, et al. Addressing the barriers to accessing therapy services in rural and remote areas. Disabil Rehabil. 2013;35(18):1564–1570.
  • Boisvert M, Lang R, Andrianopoulos M, et al. Telepractice in the assessment and treatment of individuals with autism spectrum disorders: a systematic review. Dev Neurorehabil. 2010;13(6):423–432.
  • Moher D, Liberati A, Tetzlaff J, et al. Reprint—preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Phys Ther. 2009;89(9):873–880.
  • Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
  • Pham MT, Rajić A, Greig JD, et al. A scoping review of scoping reviews: advancing the approach and enhancing the consistency. Res Synth Methods. 2014;5(4):371–385.
  • Miller SA, Forrest JL. Enhancing your practice through evidence-based decision making: PICO, learning how to ask good questions. J Evid Based Dent Pract. 2001;1(2):136–141.
  • Noyek S, Vowles C, Batorowicz B, et al. Direct assessment of emotional well-being from children with severe motor and communication impairment: a systematic review. Disabil Rehabil. 2020. DOI:10.1080/17483107.2020.1810334
  • World Bank country and lending groups: country classification. The World Bank; 2020. Available from: https://datahelpdesk.worldbank.org/knowledgebase/articles/906519-world-bank-country-and-lending-groups
  • Clarivate Analytics PA, USA: EndNote; 2021 [cited 2021]. Available from: https://endnote.com/
  • Covidence [cited 2020 Sep]. Available from: https://www.covidence.org/home files/12741/home.html.
  • Cahill SM, Beisbier S. Occupational therapy practice guidelines for children and youth ages 5–21 years. Am J Occup Ther. 2020;74(4):7404397010p1–740439701p48.
  • Palisano RJ, Kang L-J, Chiarello LA, et al. Social and community participation of children and youth with cerebral palsy is associated with age and gross motor function classification. Phys Ther. 2009;89(12):1304–1314.
  • WHO. International classification of functioning, disability and health. World Health Organization; 2021 [updated 2021; cited 2021]. Available from: https://www.who.int/classifications/international-classification-of-functioning-disability-and-health
  • WHO. Community-based rehabilitation: promoting ear and hearing care through CBR. Geneva (Switzerland): World Health Organization; 2012.
  • Fairweather GC, Lincoln MA, Ramsden R. Speech-language pathology teletherapy in rural and remote educational settings: decreasing service inequities. Int J Speech Lang Pathol. 2016;18(6):592–602.
  • Grogan-Johnson S, Gabel RM, Taylor J, et al. A pilot exploration of speech sound disorder intervention delivered by telehealth to school–age children. Int J Telerehabil. 2011;3(1):31–42.
  • Hayes D, Eclavea E, Dreith S, et al. From Colorado to Guam: infant diagnostic audiological evaluations by telepractice. Volta Rev. 2012;112(3):243–253.
  • Rourke R, Kong DCC, Bromwich M. Tablet audiometry in Canada's North: a portable and efficient method for hearing screening. Otolaryngol Head Neck Surg. 2016;155(3):473–478.
  • Anderson KL, Balandin S, Stancliffe RJ. Alternative service delivery models for families with a new speech generating device: perspectives of parents and therapists. Int J Speech Lang Pathol. 2015;17(2):185–195.
  • Jones C, Sharma M, Harkus S, et al. A program to respond to otitis media in remote australian aboriginal communities: a qualitative investigation of parent perspectives. BMC Pediatr. 2018;18(1):99.
  • Wiśniewska T, Protasiewicz-Fałdowska H, Pliszka M. The effect of comprehensive rehabilitation on correcting muscle imbalance in rural children from the Warmia and Mazury region. Pol Ann Med. 2012;19(1):27–31.
  • Ziviani J, Darlington Y, Feeney R, et al. Early intervention services of children with physical disabilities: complexity of child and family needs. Aust Occup Ther J. 2014;61(2):67–75.
  • Williams EN, McMeeken JM. Building capacity in the rural physiotherapy workforce: a paediatric training partnership. Rural Remote Health. 2014;14:2475.
  • Hussain R, Tait K. Parental perceptions of information needs and service provision for children with developmental disabilities in rural Australia. Disabil Rehabil. 2015;37(18):1609–1616.
  • Anderson K, Balandin S, Stancliffe R. Australian parents' experiences of speech generating device (SGD) service delivery. Dev Neurorehabil. 2014;17(2):75–83.
  • Brown HK, Ouellette-Kuntz H, Hunter D, et al. Unmet needs of families of school-aged children with an autism spectrum disorder. J Appl Res Intellect Disabil. 2012;25(6):497–508.
  • Chu C-L, Chiang C-H, Wu C-C, et al. Service system and cognitive outcomes for young children with autism spectrum disorders in a rural area of Taiwan. Autism. 2017;21(5):581–591.
  • Sutherland R, Trembath D, Hodge A, et al. Telehealth language assessments using consumer grade equipment in rural and urban settings: feasible, reliable and well tolerated. J Telemed Telecare. 2017;23(1):106–115.
  • Dall'Alba L, Gray M, Williams G, et al. Early intervention in children (0–6 years) with a rare developmental disability: the occupational therapy role. Hong Kong J Occup Ther. 2014;24(2):72–80.
  • Egilson ST. Parent perspectives of therapy services for their children with physical disabilities: parent perspectives of therapy services. Scand J Caring Sci. 2011;25(2):277–284.
  • White M, Hunt J, Connell C, et al. Paediatric neurological melioidosis: a rehabilitation case report. Rural Remote Health. 2016;16(1):3702.
  • Gudjonsdottir B, Gudmundsdottir SB. Mobility devices for children with physical disabilities: use, satisfaction and impact on participation. Disabil Rehabil. 2021. DOI:10.1080/17483107.2021.1913519
  • Zaidman-Zait A, Curle D, Jamieson JR, et al. Cochlear implantation among deaf children with additional disabilities: parental perceptions of benefits, challenges, and service provision. J Deaf Stud Deaf Educ. 2015;20(1):41–50.
  • Solovieva TI, Walls RT. Barriers to traumatic brain injury services and supports in rural setting. J Rehabil. 2014;80(4):10.
  • Ruggero L, McCabe P, Ballard KJ, et al. Paediatric speech-language pathology service delivery: an exploratory survey of Australian parents. Int J Speech Lang Pathol. 2012;14(4):338–350.
  • Mello MP, Goldman SE, Urbano RC, et al. Services for children with autism spectrum disorder: comparing rural and non-rural communities. Educ Train Autism Dev Disabil. 2016;51(4):355–365.
  • Cason J, Behl D, Ringwalt S. Overview of states' use of telehealth for the delivery of early intervention (IDEA part C) services. Int J Telerehab. 2012;4(2):39–46.
  • Monz BU, Houghton R, Law K, et al. Treatment patterns in children with autism in the United States: non-drug treatment for children with autism. Autism Res. 2019;12(3):517–526.
  • Little LM, Pope E, Wallisch A, et al. Occupation-based coaching by means of telehealth for families of young children with autism spectrum disorder. Am J Occup Ther. 2018;72(2):7202205020p1–7202205020p7.
  • Schmeler MR, Schein RM, McCue M, et al. Telerehabilitation clinical and vocational applications for assistive technology: research, opportunities, and challenges. Int J Telerehabil. 2009;1(1):59–72.
  • Camden C, Silva M. Pediatric teleheath: opportunities created by the COVID-19 and suggestions to sustain its use to support families of children with disabilities. Phys Occup Ther Pediatr. 2021;41(1):1–17.
  • Chen P-H, Liu T-W. A pilot study of telepractice for teaching listening and spoken language to mandarin-speaking children with congenital hearing loss. Deaf Educ Int. 2017;19(3–4):134–143.
  • Constantinescu G. Satisfaction with telemedicine for teaching listening and spoken language to children with hearing loss. J Telemed Telecare. 2012;18(5):267–272.
  • Coufal K, Parham D, Jakubowitz M, et al. Comparing traditional service delivery and telepractice for speech sound production using a functional outcome measure. Am J Speech Lang Pathol. 2018;27(1):82–90.
  • Grogan-Johnson S, Alvares R, Rowan L, et al. A pilot study comparing the effectiveness of speech language therapy provided by telemedicine with conventional on-site therapy. J Telemed Telecare. 2010;16(3):134–139.
  • Guiberson M. Telehealth measures screening for developmental language disorders in Spanish-speaking toddlers. Telemed J E Health. 2016;22(9):739–745.
  • Lee SAS. The treatment efficacy of multiple opposition phonological approach via telepractice for two children with severe phonological disorders in rural areas of west Texas in the USA. Child Lang Teach Ther. 2018;34(1):63–78.
  • Hines M, Bulkeley K, Dudley S, et al. Delivering quality allied health services to children with complex disability via telepractice: lessons learned from four case studies. J Dev Phys Disabil. 2019;31(5):593–609.
  • Sutherland R, Hodge A, Chan E, et al. Clinician experiences using standardised language assessments via telehealth. Int J Speech Lang Pathol. 2021;23(6):569–578.
  • Johnsson G, Kerslake R, Crook S. Delivering allied health services to regional and remote participants on the autism spectrum via video-conferencing technology: lessons learned. Rural Remote Health. 2019;19(3):5358.
  • Ganesan B, Fong K, Meena S, et al. Impact of COVID-19 pandemic lockdown on occupational therapy practice and use of telerehabilitation–a cross sectional study. Eur Rev Med Pharmacol Sci. 2021;25(9):3614–3622.
  • Jesus TS, Landry MD, Jacobs K. A 'new normal' following COVID-19 and the economic crisis: using systems thinking to identify challenges and opportunities in disability, telework, and rehabilitation. Work. 2020;67(1):37–46.
  • Golomb MR, Warden SJ, Fess E, et al. Maintained hand function and forearm bone health 14 months after an in-home virtual-reality videogame hand telerehabilitation intervention in an adolescent with hemiplegic cerebral palsy. J Child Neurol. 2011;26(3):389–393.
  • Srivastava A, Swaminathan A, Chockalingam M, et al. Tele-neurorehabilitation during the COVID-19 pandemic: implications for practice in low-and middle-income countries. Front Neurol. 2021;12:667925.
  • Hsu N, Monasterio E, Rolin O. Telehealth in pediatric rehabilitation. Phys Med Rehabil Clin N Am. 2021;32(2):307–317.
  • Batorowicz B, Smith M. Social context: communication, leisure and recreation. In: Green D, Imms C, editors. Participation: optimizing outcomes in childhood-onset neurodisability. London: Mac Keith Press; 2020. p. 67–82.
  • Gilroy J, Dew A, Barton R, et al. Environmental and systemic challenges to delivering services for aboriginal adults with a disability in Central Australia. Disabil Rehabil. 2021;43(20):2919–2929.
  • Pakulski LA. Addressing qualified personnel shortages for children who are deaf or hard of hearing with an interdisciplinary service learning program. Am J Audiol. 2011;20(2):S203–S219.
  • King G, Law M, King S, et al. A conceptual model of the factors affecting the recreation and leisure participation of children with disabilities. Phys Occup Ther Pediatr. 2003;23(1):63–90.
  • King G, Rigby P, Batorowicz B. Conceptualizing participation in context for children and youth with disabilities: an activity setting perspective. Disabil Rehabil. 2013;35(18):1578–1585.
  • Friedman DB, Foster C, Bergeron CD, et al. A qualitative study of recruitment barriers, motivators, and community-based strategies for increasing clinical trials participation among rural and urban populations. Am J Health Promot. 2015;29(5):332–338.
  • Batorowicz B, King G, Mishra L, et al. An integrated model of social environment and social context for pediatric rehabilitation. Disabil Rehabil. 2016;38(12):1204–1215.
  • Watter P, Rodger S, Marinac J, et al. Multidisciplinary assessment of children with developmental coordination disorder: using the ICF framework to inform assessment. Phys Occup Ther Pediatr. 2008;28(4):331–352.