References
- Disabled World. Disability statistics: information, charts, graphs and tables [Internet]. 2021 [cited 2021 Dec 2]. Available from: https://www.disabled-world.com/disability/statistics.
- Australian Institute of Health and Welfare. Australia’s welfare. Canberra: ACT; 2013.
- US Census Bureau. Washington DC: American Community Survey (ACS); 2014.
- UN General Assembly. Convention on the rights of persons with disabilities: resolution adopted by the General Assembly, A/RES/61/106 [Internet]. 2007 [cited 2021 Dec 2]. Available from: http://www.unhcr.org/refworld/docid/45f973632.htm.
- UN General Assembly. Report of the special rapporteur on the rights of persons with disabilities (Theme: access to rights-based support for persons with disabilities) A/HRC/34/58 [Internet]. 2016 [cited 2021 Dec 2]. Available from: https://www.ohchr.org/EN/Issues/Disability/SRDisabilities/Pages/Reports.aspx.
- World Health Organization. World Report on Disability [Internet]. 2011 [cited 2021 Dec 2]. Available from: https://www.who.int/publications/i/item/world-report-on-disability.
- Lord J, Hutchison P. Individualised support and funding: building blocks for capacity building and inclusion. Disab Soc. 2003;18(1):71–86.
- Australian Government Department of Social Services. NDIS Quality and Safeguarding Framework [Internet]. Canberra. 2016 [cited 2022 Apr 28]. Available from: https://www.dss.gov.au/sites/default/files/documents/04_2017/ndis_quality_and_safeguarding_framework_final.pdf.
- Commonwealth of Australia (National Disability Insurance Scheme Quality and Safeguards Commission). NDIS Workforce Capability Framework. 2021.
- Redhead R. Supporting adults with an acquired brain injury in the community ‐ a case for specialist training for support workers. Social Care Neurodisability. 2010;1(3):13–20.
- Iacono T. Addressing increasing demands on Australian disability support workers. J Intellect Dev Disabil. 2010;35(4):290–295.
- Hewitt A, Larson S. The direct support workforce in community supports to individuals with developmental disabilities: issues, implications, and promising pactices. Ment Retard Dev Disabil Res Rev. 2007;13(2):178–187.
- Robinson S, Hall E, Fisher KR, et al. Using the ‘in-between’ to build quality in support relationships with people with cognitive disability: the significance of liminal spaces and time. Soc Cult Geogr. 2021;2021:1–20.
- Macdonald F, Charlesworth S. Cash for care under the NDIS: shaping care workers’ working conditions? J Ind Relat. 2016;58(5):627–646.
- Moskos M, Isherwood L. Individualised funding and its implications for the skills and competencies required by disability support workers in Australia. Labour Industry. 2019;29(1):34–51.
- McEwen J, Bigby C, Douglas J. What is good service quality? Day service staff’s perspectives about what it looks like and how it should be monitored. J Appl Res Intellect Disabil. 2021;34(4):1118–1126.
- Ungerson C, Yeandle S. Cash for care in developed welfare states. Hampshire and New York: Palgrave McMillan; 2007.
- Purcal C, Fisher KR, Laragy C. Analysing choice in Australian individual funding disability policies. Aust J Public Adm. 2014;73(1):88–102.
- Parliament of Australia. National disability insurance scheme act. Canberra: Parliament of Australia; 2013.
- Cortis N, Meagher G, Chan S, et al. Building an industry of choice: service quality, workforce capacity and consumer-centred funding in disability care: final report. Sydney: Social Policy Research Centre; 2013.
- Ryan R, Stanford J. A portable training entitlement system for the disability support services sector [Internet]. Canberra; 2018. Available from: https://www.tai.org.au.
- Judd MJ, Dorozenko KP, Breen LJ. Workplace stress, burnout and coping: a qualitative study of the experiences of australian disability support workers. Health Soc Care Comm. 2017;25(3):1109–1117.
- Robinson S, Graham A. Feeling safe, avoiding harm: safety priorities of children and young people with disability and high support needs. J Intellect Disabil. 2021;25(4):583–602.
- Mavromaras K, Moskos M, Mahuteau S, et al. Evaluation of the NDIS Final Report. 2018.
- National Disability Insurance Agency. COAG Disability Report Council Quarterly Report – 30 June 2018 [Internet]. National Disability Insurance Agency. 2018 [cited 2021 Dec 2]. Available from: https://www.ndis.gov.au/about-us/publications/quarterly-reports/archived-quarterly-reports-2017-18.
- Cortis N, Macdonald F, Davidson B, et al. Reasonable, necessary and valued: pricing disability services for quality support and decent jobs Further information [Internet]. 2017. Available from www.sprc.unsw.edu.au.
- Topping M, Douglas JM, Winkler D. Factors that influence the quality of paid support for adults with acquired neurological disability: scoping review and thematic synthesis. Disab Rehabil. 2020;2020:1–18.
- Wadensten B, Ahlström G. Ethical values in personal assistance: narratives of people with disabilities. Nurs Ethics. 2009;16(6):759–774.
- Bourke JA, Nunnerley JL, Sullivan M, et al. Relationships and the transition from spinal units to community for people with a first spinal cord injury: a New Zealand qualitative study. Disabil Health J. 2019;12(2):257–262.
- Braaf SC, Lennox A, Nunn A, et al. Experiences of hospital readmission and receiving formal carer services following spinal cord injury: a qualitative study to identify needs. Disabil Rehabil. 2018;40(16):1893–1899.
- Fadyl JK, McPherson KM, Kayes NM. Perspectives on quality of care for people who experience disability. BMJ Qual Saf. 2011;20(1):87–95.
- Nilsson C, Lindberg B, Skär L, et al. Meanings of balance for people with long-term illnesses. Br J Community Nurs. 2016;21(11):563–567.
- Yeung EYW, Partridge M, Irvine F. Satisfaction with social care: the experiences of people from chinese backgrounds with physical disabilities. Health Soc Care Commun. 2016;24(6):e144–e154.
- Gridley K, Brooks J, Glendinning C. Good practice in social care: the views of people with severe and complex needs and those who support them. Health Soc Care Commun. 2014;22(6):588–597.
- Martinsen B, Dreyer P. Dependence on care experienced by people living with Duchenne muscular dystrophy and spinal cord injury. J Neurosci Nurs. 2012;44(2):82–90.
- Wadensten B, Ahlström G. The struggle for dignity by people with severe functional disabilities. Nurs Ethics. 2009;16(4):453–465.
- Robinson S, Blaxland M, Fisher KR, et al. Recognition in relationships between young people with cognitive disabilities and support workers. Child Youth Serv Rev. 2020;116:105177.
- Robinson S, Graham A, Fisher KR, et al. Understanding paid support relationships: possibilities for mutual recognition between young people with disability and their support workers. Disab Soc. 2020;2020:1–26.
- Fisher KR, Robinson S, Neale K, et al. Impact of organisational practices on the relationships between young people with disabilities and paid social support workers. J Soc Work. 2021;21(6):1377–1398.
- Charmaz K. Constructing grounded theory: a practical guide through qualitative analysis. Thousand Oaks: SAGE; 2006.
- Corbin J, Strauss A. Basics of qualitative research: techniques and procedures for developing grounded theory. Los Angeles: Sage Publications; 2008.
- Tate RL. Assessing support needs for people with traumatic brain injury: the care and needs scale (CANS). Brain Inj. 2004;18(5):445–460.
- Topping M, Douglas J, Winkler D. General considerations for conducting online qualitative research and practice implications for interviewing people with acquired brain injury. Int J Qual Methods. 2021;20:160940692110196.
- Topping M, Douglas J, Winkler D. Adapting to remote interviewing methods to investigate the factors that influence the quality of paid disability support. Sage Research Methods: Doing Research Online. 2022.
- Minichiello V. In-depth interviewing: principles, techniques, analysis. 3rd ed. Simai-Aroni RA, Hays TN, editors. Sydney: Pearson Education Australia; 2008.
- QSR International Pty Ltd. NVivo [Internet]. 2020 [cited 2021 Dec 2]. Available from: https://www.qsrinternational.com/nvivo-qualitative-data-analysis-software/home?_ga=2.57117602.966813235.1638426383-1710954617.1638426383.
- Charmaz K. Constructing grounded theory. 2nd ed. Los Angeles: SAGE; 2014.
- Constantinou CS, Georgiou M, Perdikogianni M. A comparative method for themes saturation (CoMeTS) in qualitative interviews. Qual Res. 2017;17(5):571–588.
- Vasileiou K, Barnett J, Thorpe S, et al. Characterising and justifying sample size sufficiency in interview-based studies: systematic analysis of qualitative health research over a 15-year period. BMC Med Res Methodol. 2018;18(1):148.
- O’Brien BC, Harris IB, Beckman TJ, et al. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–1251.
- Pelleboer-Gunnink HA, van Oorsouw WMWJ, van Weeghel J, et al. Stigma research in the field of intellectual disabilities: a scoping review on the perspective of care providers. Int J Dev Disabil. 2019;67(3):168–187.