What is important in supporting self-management in community stroke rehabilitation? A Q methodology study

References

• Stroke Association. Stroke recoveries at risk. London: Stroke Association; 2021.
   Google Scholar
• Global Burden of Disease 2016 Neurology Collaborators. Global, regional, and national burden of neurological disorders, 1990–2016: a systematic analysis for the global burden of disease study 2016. Lancet Neurol. 2019;18:459–480.
   PubMed Web of Science ®Google Scholar
• The Stroke Association. State of the nation. London: Stroke Association; 2018.
   Google Scholar
• Gallacher KI, Batty GD, McLean G, et al. Stroke, multimorbidity and polypharmacy in a nationally representative sample of 1,424,378 patients in Scotland: implications for treatment burden. BMC Med. 2014;12(1):151.
   PubMedGoogle Scholar
• Averbe L, Avis S, Chrichton S, et al. The long-term outcomes of depression up to 10 years after stroke; the South London stroke register. J Neurol Neurosurg Psychiatry. 2014;85:514–521.
   PubMed Web of Science ®Google Scholar
• Rudd AG, Bowen A, Young G, et al. National clinical guideline for stroke. London: Royal College of Physicians; 2017.
   Google Scholar
• Scottish Government. Scottish stroke improvement plan. Edinburgh: Scottish Government; 2014.
   Google Scholar
• World Health Organisation. Rehabilitation competency framework. Geneva: World Health Organisation; 2020.
   Google Scholar
• Lennon S, McKenna S, Jones F. Self-management programmes for people post stroke: a systematic review. Clin Rehabil. 2013;27(10):867–878.
   PubMed Web of Science ®Google Scholar
• Fu V, Weatherall M, McPherson K, et al. Taking charge after stroke: a randomized controlled trial of a person-centered, self-directed rehabilitation intervention. Int J Stroke. 2020;15(9):954–964.
   PubMed Web of Science ®Google Scholar
• Fryer CE, Luker JA, McDonnell MN, et al. Self-management programmes for quality of life in people with stroke. Cochrane Database Syst Rev. 2016;2016(8):CD010442.
   PubMedGoogle Scholar
• NHS National Services Scotland. Scottish stroke improvement programme report. Edinburgh: NHS; 2016.
   Google Scholar
• Gallacher K, Morrison D, Jani B, et al. Uncovering treatment burden as a key concept for stroke care: a systematic review of qualitative research. PLOS Med. 2013;10(6):e1001473.
   PubMed Web of Science ®Google Scholar
• Gallacher KI, May CR, Langhorne P, et al. A conceptual model of treatment burden and patient capacity in stroke. BMC Fam Pract. 2018;19(1):9.
   PubMedGoogle Scholar
• Morgan HM, Entwistle VA, Cribb A, et al. We need to talk about purpose: a critical interpretive synthesis of health and social care professionals' approaches to self-management support for people with long-term conditions. Health Expect. 2017;20(2):243–259.
   PubMed Web of Science ®Google Scholar
• Kidd L, Booth J, Lawrence M, et al. Implementing supported self-management in community based stroke care: a secondary analysis of nurses’ perspectives. JCM. 2020;9(4):e985.
   Google Scholar
• Kidd L, Lawrence M, Booth J, et al. Development and evaluation of a nurse-led, tailored stroke self-management intervention. BMC Health Serv Res. 2015;15:359.
   PubMed Web of Science ®Google Scholar
• Hancock N, Houghton J. People 1st: bridges training and improvement programme executive summary. UK: University of East Anglia; 2020. Available from: https://www.hee.nhs.uk/sites/default/files/documents/People%201st%20executive%20summary_0.pdf
   Google Scholar
• Kidd L, Duncan Millar J, Mason H, et al. Supported self-management in community stroke rehabilitation: what is it and how does it work? A protocol for a realist evaluation study. BMJ Open. 12(1):e055491.
   PubMed Web of Science ®Google Scholar
• Pawson R, Tilley Pawson R, Tilley N. Realistic evaluation. UK: SAGE Publications; 1997.
   Google Scholar
• Wong G, Westhorp G, Manzano A, et al. RAMESES II reporting standards for realist evaluations. BMC Med. 2016;14(1):96.
   PubMed Web of Science ®Google Scholar
• Westhorp G. Realist impact evaluation: an introduction. London: Overseas Development Institute; 2014.
   Google Scholar
• Greenhalgh J, Pawson R, Wright J, et al. Functionality and feedback: a protocol for a realist synthesis of the collation, interpretation and utilisation of PROMs data to improve patient care. BMJ Open. 2014;4(7):e005601.
   PubMed Web of Science ®Google Scholar
• Watts S, Stenner P. Doing Q methodological research: theory, method and interpretation. London: Sage; 2012.
   Google Scholar
• Brown S. Political subjectivity: applications of Q methodology in political science. New Haven (CT): Yale University Press; 1980.
   Google Scholar
• Manzano A. The craft of interviewing in realist evaluation. Evaluation. 2016;22(3):342–360.
   Web of Science ®Google Scholar
• Baker R, Thompson C, Mannion R. Q methodology in health economics. J Health Serv Res Policy. 2006;11(1):38–45.
   PubMedGoogle Scholar
• Emmel N. Sampling and choosing cases in qualitative research: a realist approach. London: Sage; 2013.
   Google Scholar
• PQMETHOD [Internet]. Munich; Peter Schmolck; 2021 [cited 2021 Nov]. Available from: http://schmolck.org/qmethod/
   Google Scholar
• Banasick S. Ken-Q analysis (version 1.0.6) [Software]. Available from: https://shawnbanasick.github.io/ken-q-analysis/
   Google Scholar
• Brown SR. A primer on Q methodology. Oper Subject. 1993;16:91–138.
   Google Scholar
• Watts S, Stenner P. Doing Q methodology: theory method and interpretation. Qual Res Psychol. 2005;2(1):67–69.
   Google Scholar
• Bright FAS, Reeves B. Creating therapeutic relationships through communication: a qualitative metasynthesis from the perspectives of people with communication impairment after stroke. Disabil Rehabil. 2020. DOI:10.1080/09638288.2020.1849419.
   Web of Science ®Google Scholar
• Tomaselli G, Buttigieg SC, Rosano A, et al. Person-centered care from a relational ethics perspective for the delivery of high quality and safe healthcare: a scoping review. Front Public Health. 2020;8:44.
   PubMed Web of Science ®Google Scholar
• Jones F, Gage H, Drummond A, et al. Feasibility study of an integrated stroke self-management programme: a cluster-randomised controlled trial. BMJ Open. 2016;6(1):e008900.
   PubMed Web of Science ®Google Scholar
• Wherton J, Greenhalgh T, Shaw S. Expanding video consultation services at pace and scale in Scotland during the COVID-19 pandemic: national mixed methods case study. J Med Internet Res. 2021;23(10):e31374.
   PubMed Web of Science ®Google Scholar
• Levack WMM, Dean SG, Siegert RJ, et al. Navigating patient-centered goal setting in inpatient stroke rehabilitation: how clinicians control the process to meet perceived professional responsibilities. Patient Educ Couns. 2011;85(2):206–213.
   PubMed Web of Science ®Google Scholar
• Scobbie L, Brady MC, Duncan EAS, et al. Goal attainment, adjustment and disengagement in the first year after stroke: a qualitative study. Neuropsychol Rehabil. 2021;31(5):691–709.
   PubMed Web of Science ®Google Scholar
• Jones F, McKevitt C, Riazi A, et al. How is rehabilitation with and without an integrated self-management approach perceived by UK community-dwelling stroke survivors? A qualitative process evaluation to explore implementation and contextual variations. BMJ Open. 2017;7(4):e014109.
   PubMed Web of Science ®Google Scholar