Living with stroke during the first year after onset: an instrumental case study exploring the processes that influence adjustment

References

• Gorelick PB. The global burden of stroke: persistent and disabling. Lancet Neurol. 2019;18(5):417–418.
   PubMed Web of Science ®Google Scholar
• Feigin VL, Nguyen G, Cercy K, GBD 2016 Lifetime Risk of Stroke Collaborators, et al. Global, regional, and country-specific lifetime risks of stroke, 1990 and 2016. N Engl J Med. 2018;379(25):2429–2437.
   PubMed Web of Science ®Google Scholar
• Markus HS, Martins S. COVID-19 and stroke—understanding the relationship and adapting services. A global world stroke organisation perspective. Int J Stroke. 2021;16(3):241–247.
   PubMed Web of Science ®Google Scholar
• Satink TM, Cup EHP, Ilott IP, et al. Patients’ views on the impact of stroke on their roles and self: a thematic synthesis of qualitative studies. Arch Phys Med Rehabil. 2013;94(6):1171–1183.
   PubMed Web of Science ®Google Scholar
• Salter K, Hellings C, Foley N, et al. The experience of living with stroke: a qualitative meta-synthesis. J Rehabil Med. 2008;40(8):595–602.
   PubMed Web of Science ®Google Scholar
• Hole E, Stubbs B, Roskell C, et al. The patient’s experience of the psychosocial process that influences identity following stroke rehabilitation: a metaethnography. ScientificWorldJournal. 2014;2014:349151–349113.
   PubMedGoogle Scholar
• Lou S, Carstensen K, Jørgensen CR, et al. Stroke patients’ and informal carers’ experiences with life after stroke: an overview of qualitative systematic reviews. Disabil Rehabil. 2017;39(3):301–313.
   PubMed Web of Science ®Google Scholar
• Ford A, Douglas J, O’Halloran R. The experience of close personal relationships after stroke: scoping review and thematic analysis of qualitative literature. Brain Impairment. 2021;1–31. doi:10.1017/BrImp.2021.12
   Web of Science ®Google Scholar
• Pedersen SG, Anke A, Aadal L, et al. Experiences of quality of life the first year after stroke in Denmark and Norway. A qualitative analysis. Int J Qual Stud Health Well-Being. 2019;14(1):1659540–1659540.
   PubMed Web of Science ®Google Scholar
• Kouwenhoven S, Kirkevold M, Engedal K, et al. The lived experience of stroke survivors with early depressive symptoms: a longitudinal perspective. Int J Qual Stud Health Well-Being. 2011;6(4):8491–8413.
   PubMed Web of Science ®Google Scholar
• Kouwenhoven SE, Kirkevold M, Engedal K, et al. Living a life in shades of grey’: experiencing depressive symptoms in the acute phase after stroke. J Adv Nurs. 2012;68(8):1726–1737.
   PubMed Web of Science ®Google Scholar
• Levack WMM, Kayes NM, Fadyl JK. Experience of recovery and outcome following traumatic brain injury: a metasynthesis of qualitative research. Disabil Rehabil. 2010;32(12):986–999.
   PubMed Web of Science ®Google Scholar
• Thomas EJ, Levack WMM, Taylor WJ. Self-reflective meaning making in troubled times: change in self-identity after traumatic brain injury. Qual Health Res. 2014;24(8):1033–1047.
   PubMed Web of Science ®Google Scholar
• Ylvisaker M, Feeney T. Reconstruction of identity after brain injury. Brain Impairment. 2000;1(1):12–28.
   Google Scholar
• Thomas EJ, Levack WMM, Taylor WJ. Rehabilitation and recovery of Self-identity. In: McPherson K, Gibson BE, Leplège A, editors. Rethinking rehabilitation: theory and practice. Boca Raton (FL): CRC Press; 2015. p. 163–292.
   Google Scholar
• Smith FE, Jones C, Gracey F, et al. Emotional adjustment post-stroke: a qualitative study of an online stroke community. Neuropsychol Rehabil. 2021;31(3):414–431.
   PubMed Web of Science ®Google Scholar
• Whiffin CJ, Ellis-Hill C. How does a narrative understanding of change in families post brain injury help us to humanise our professional practice? Brain Impairment. 2022;23(1):125–133.
   Web of Science ®Google Scholar
• D'Cruz K, Douglas J, Serry T. Personal narrative approaches in rehabilitation following traumatic brain injury: a synthesis of qualitative research. Neuropsychol Rehabil. 2019;29(7):985–1004.
   PubMed Web of Science ®Google Scholar
• D'Cruz K, Douglas J, Serry T. Narrative storytelling as both an advocacy tool and a therapeutic process: perspectives of adult storytellers with acquired brain injury. Neuropsychol Rehabil. 2020;30(8):1409–1429.
   PubMed Web of Science ®Google Scholar
• D’Cruz K, Douglas J, Serry T. Humanising brain injury rehabilitation: a qualitative study examining humanising approaches to engagement in the context of a storytelling advocacy programme. Brain Impair. 2022;23(1):91–103.
   Web of Science ®Google Scholar
• Todres L, Galvin K, Dahlberg K. Lifeworld-led healthcare: revisiting a humanising philosophy that integrates emerging trends. Med Health Care Philos. 2007;10(1):53–63.
   PubMedGoogle Scholar
• Kayes NM, Cummins C, McPherson KM, et al. Developing connections for engagement in stroke rehabilitation. Brain Impair. 2022;23(1):42–59.
   Web of Science ®Google Scholar
• Bright FAS, Kayes NM, McPherson KM, et al. Engaging people experiencing communication disability in stroke rehabilitation: a qualitative study. Int J Lang Commun Disord. 2018;53(5):981–994.
   PubMed Web of Science ®Google Scholar
• Lawton M, Sage K, Haddock G, et al. Speech and language therapists’ perspectives of therapeutic alliance construction and maintenance in aphasia rehabilitation post‐stroke. Int J Lang Commun Disord. 2018;53(3):550–563.
   PubMed Web of Science ®Google Scholar
• Stagg K, Douglas J, Iacono T. The perspectives of allied health clinicians on the working alliance with people with stroke-related communication impairment. Neuropsychol Rehabil. 2021;31(9):1390–1409.
   PubMed Web of Science ®Google Scholar
• Bishop M, Kayes N, McPherson K. Understanding the therapeutic alliance in stroke rehabilitation. Disabil Rehabil. 2021;43(8):1074–1083.
   PubMed Web of Science ®Google Scholar
• Rixon C. Connection: stories not statistics. Brain Impair. 2022;23(1):4–8.
   Web of Science ®Google Scholar
• Hodson T, Gustafsson L, Cornwell P. “Just got to live life as it comes": a case study of the spousal-dyad longitudinal mild stroke transitional experience. Brain Inj. 2019;33(9):1200–1207.
   PubMed Web of Science ®Google Scholar
• Eilertsen G, Kirkevold M, Bjørk IT. Recovering from a stroke: a longitudinal, qualitative study of older Norwegian women. J Clin Nurs. 2010;19(13–14):2004–2013.
   PubMed Web of Science ®Google Scholar
• Stake RE. Case studies. In: Denzin NK, Lincoln YS, editors. Handbook of qualitative research. 2nd ed. Thousand Oaks (CA): Sage Publications; 2000. p. 435–454.
   Google Scholar
• Charmaz K. Constructing grounded theory. 2nd ed. Los Angeles (CA): Sage; 2014.
   Google Scholar
• Balmer DF, Varpio L, Bennett D, et al. Longitudinal qualitative research in medical education: time to conceptualize time. Med Educ. 2021;55(11):1253–1260.
   PubMed Web of Science ®Google Scholar
• Yin RK, et al. Case study methods. In: Cooper H, Camic PM, Long DL, editors. APA handbook of research methods in psychology, vol 2: research designs: quantitative, qualitative, neuropsychological, and biological. Washington (DC): American Psychological Association (US); 2012. p. 141–155.
   Google Scholar
• Corbin JM, Strauss AL. Basics of qualitative research: techniques and procedures for developing grounded theory. 3rd ed: Thousand Oaks (CA): Sage Publications, Inc.; 2008.
   Google Scholar
• O'Brien BC, Harris IB, Beckman TJ, et al. Standards for reporting qualitative research: a synthesis of recommendations. Acad Med. 2014;89(9):1245–1251.
   PubMed Web of Science ®Google Scholar
• Shadden BB, Hagstrom F, Koski PR. Neurogenic communication disorders: life stories and the narrative self. 1st ed. San Diego (CA): Plural Publishing, Inc.; 2008.
   Google Scholar
• Holstein JA, Gubrium JF. The self we live by: narrative identity in a postmodern world. New York (NY): Oxford University Press; 2000.
   Google Scholar
• Douglas J, Drummond M, Knox L, et al. Rethinking social-relational perspectives in rehabilitation: traumatic brain injury as a case study. In: McPherson K, Gibson BE, Leplège A, editors. Rethinking rehabilitation: theory and practice. Boca Raton (FL): CRC Press; 2015. p. 137–154.
   Google Scholar
• Cooley CH. Human nature and the social order. New York (NY): Scribner; 1902. p. 1922.
   Google Scholar
• Franks DD, Gecas V. Autonomy and conformity in Cooley’s self-theory: the looking-glass self and beyond. Symbolic Interaction. 1992;15(1):49–68.
   Web of Science ®Google Scholar
• Stagg K, Douglas J, Iacono T. A scoping review of the working alliance in acquired brain injury rehabilitation. Disabil Rehabil. 2019;41(4):489–497.
   PubMed Web of Science ®Google Scholar
• Martin R, Levack WMM, Sinnott KA. Life goals and social identity in people with severe acquired brain injury: an interpretative phenomenological analysis. Disabil Rehabil. 2015;37(14):1234–1241.
   PubMed Web of Science ®Google Scholar
• Lyon I, Fisher P, Gracey F. Putting a new perspective on life": a qualitative grounded theory of posttraumatic growth following acquired brain injury. Disabil Rehabil. 2021;43(22):3225–3233.
   PubMed Web of Science ®Google Scholar
• Douglas JM. Conceptualizing self and maintaining social connection following severe traumatic brain injury. Brain Inj. 2013;27(1):60–74.
   PubMed Web of Science ®Google Scholar