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Assessment Procedures

Child engagement in daily life measure V2: validation of psychometric properties for children with cerebral palsy

, ORCID Icon, , &
Pages 3912-3921 | Received 31 Aug 2021, Accepted 23 Oct 2022, Published online: 02 Nov 2022

References

  • Bartlett D, Chiarello L, McCoy S, et al. The move and PLAY study: an example of comprehensive rehabilitation outcomes research. Phys Ther. 2010;90(11):1660–1672.
  • Morris C, Janssens A, Shilling V, et al. Meaningful health outcomes for paediatric neurodisability: stakeholder prioritization and appropriateness of patient reported outcome measures. Health Qual Life Outcomes. 2015;13:87.
  • Vargus-Adams JN, Martin LK. Measuring what matters in CP: a breadth of important domains and outcome measures. Arch Phys Med Rehabil. 2009;90(12):2089–2095.
  • Wright FV, Majnemer A. The concept of a toolbox of outcome measures for children with cerebral palsy: why, what, and how to use? J Child Neurol. 2014;29(8):1055–1065.
  • Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25.
  • Andresen EM. Criteria for assessing the tools of disability outcomes research. Arch Phys Med Rehabil. 2000;81(12 Suppl 2):S15–S20.
  • Majnemer A. Benefits of using outcome measures in pediatric rehabilitation. Phys Occup Ther Pediatr. 2010;30(3):165–167.
  • Chiarello LA. Excellence in promoting participation: striving for the 10 Cs. Pediatr Phys Ther. 2017;29:S16–S22.
  • Granlund M. Participation – challenges in conceptualization, measurement and intervention. Child Care Health Dev. 2013;39(4):470–473.
  • Palisano R, Chiarello L, King G, et al. Participation-based therapy for children with physical disabilities. Dis Rehabil. 2012;34(12):1041–1052.
  • Imms C, Adair B, Keen D, et al. “Participation”: a systematic review of language, definitions, and constructs used in intervention research with children with disabilities. Dev Med Child Neurol. 2016;58(1):29–38.
  • King G. Perspectives on measuring participation: going forward. Child Care Health Dev. 2013;39(4):466–469.
  • Resch C, Van Kruijsbergen M, Ketelaar M, et al. Assessing participation of children with acquired brain injury and cerebral palsy: a systematic review of measurement properties. Dev Med Child Neurol. 2020;62(4):434–444.
  • Palisano RJ, Chiarello LA, McCoy SW, et al. Use of the child engagement in daily life and ease of caregiving for children to evaluate change in young children with cerebral palsy. Phys Occup Ther Pediatr. 2015;35(3):280–295.
  • Mobbs CA, Spittle AJ, Johnston LM. Participation measures for infants and toddlers aged birth to 23 months: a systematic review. Phys Occup Ther Pediatr. 2021;41(6):567–589.
  • American Physical Therapy Association. Guide to physical therapist practice 3.0. Alexandria, VA: American Physical Therapy Association, 2014.
  • Laposha I, Smallfield S. Examining the occupational therapy definition of self-care: a scoping review. Occup Ther Health Care. 2020;34(2):99–115.
  • Chiarello L, Palisano R, Maggs J, et al. Family priorities for activity and participation of children and youth with cerebral palsy. Phys Ther. 2010;90(9):1254–1264.
  • Palisano R, Chiarello LA, Avery L, On Track Study Team, et al. Self-care trajectories and reference percentiles for children with cerebral palsy. Phys Occup Ther Pediatr. 2020;40(1):62–78.
  • Harvey A, Robin J, Morris ME, et al. A systematic review of measures of activity limitation for children with cerebral palsy. Dev Med Child Neurol. 2008;50(3):190–198.
  • Chiarello L, Palisano R, McCoy SW, et al. Child engagement in daily life: a measure of participation for children with cerebral palsy. Disabil Rehabil. 2014;36(21):1804–1816.
  • Palisano RJ, Haley SM, Westcott SL, et al. Pediatric physical therapy outcomes management system. Pediatr Phys Ther. 1999;11:220.
  • Alghamdi M, Chiarello L, Avery L, et al. Ease of caregiving for children: re-validation of psychometric properties of the measure for children with cerebral palsy up to 11 years of age. Dev Neurorehabil. 2020;23(3):166–175.
  • Alghamdi M, Chiarello L, Palisano R, et al. Understanding participation of children with cerebral palsy in family and recreational activities. Res Dev Disabil. 2017;69:96–104.
  • Chiarello LA, Palisano R, Avery L, On Track Study Team, et al. Longitudinal trajectories and reference percentiles for participation in family and recreational activities of children with cerebral palsy. Phys Occup Ther Pediatr. 2021;41(1):18–37.
  • Fritz A, Hoffman E, Randall C, et al. The concurrent and construct validity of the self-care domain of the child engagement in daily life measure. Pediatr Phys Ther. 2014;26(1):164.
  • Bartlett D, McCoy S, Chiarello LA, On Track Study Team, et al. A collaborative approach to decision making through developmental monitoring to provide individualized services for children with cerebral palsy. Phys Ther. 2018;98(10):865–875.
  • Eliasson A-C, Krumlinde-Sundholm L, Rösblad B, et al. The manual ability classification system (MACS) for children with cerebral palsy: scale development and evidence of validity and reliability. Dev Med Child Neurol. 2006;48(7):549–554.
  • Hidecker MJC, Paneth N, Rosenbaum PL, et al. Developing and validating the communication function classification system (CFCS) for individuals with cerebral palsy. Dev Med Child Neurol. 2012;54(8):737–742.
  • Bartlett DJ, Galuppi B, Palisano RJ, et al. Consensus classifications of gross motor, manual ability, and communication function classification systems between therapists and parents of children with cerebral palsy. Dev Med Child Neurol. 2016;58(1):98–99.
  • Willse JT. Mixture Rasch models with JMLE; 2015. https://cran.r-project.org/web/packages/mixRasch/mixRasch.pdf.
  • Masters GN, Wright BD. Rating scale analysis. Rasch measurement. Chicago: Mesa Press; 1982.
  • Rubio VJ, Aguado D, Hontangas PM, et al. Psychometric properties of an emotional adjustment measure: an application of the graded response model. Eur J Psychol Assess. 2007;23(1):39–46.
  • Revelle W, Rocklin T. Very simple structure: an alternative procedure for estimating the optimal number of interpretable factors. Multivariate Behav Res. 1979;14(4):403–414.
  • Ruscio J, Roche B. Determining the number of factors to retain in an exploratory factor analysis using comparison data of known factorial structure. Psychol Assess. 2012;24(2):282–292.
  • Linacre JM. WINSTEPS Rasch measurement computer program [software] WINSTEPS.com. Chicago: WINSTEPS; 2006.
  • Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86(2):420–428.
  • Cicchetti DV. Guidelines, criteria, and rules of thumb for evaluating normed and standardized assessment instruments in psychology. Psychol Assess. 1994;6(4):284–290.
  • Courtney M. Determining the number of factors to retain in EFA: using the SPSS R–Menu v2 0 to make more judicious estimations. Pract Assess Res Eval. 2013;18:8.
  • Mitchell LE, Ziviani J, Boyd RN. Habitual physical activity of independently ambulant children and adolescents with cerebral palsy: are they doing enough? Phys Ther. 2015;95(2):202–211.
  • Woodmansee C, Hahne A, Imms C, et al. Comparing participation in physical recreation activities between children with disability and children with typical development: a secondary analysis of matched data. Res Dev Disabil. 2016;49–50:268–276.
  • Haley SM, Coster WJ, Ludlow LH, et al. Pediatric evaluation of disability inventory (PEDI): development, standardization, and administration manual. Boston (MA): New England Medical Center Hospitals, Inc.; 1992.
  • Burgess A, Boyd RN, Ziviani J, et al. Self-care and manual ability in preschool children with cerebral palsy: a longitudinal study. Dev Med Child Neurol. 2019;61(5):570–578.
  • Jang J, Jeon J, Kim H, et al. Validity and reliability of functional independence measure for children (WeeFIM) for children with cerebral palsy. Inquiry. 2022;59:004695802110724–004695802110712.
  • Douglas JA, Roussos LA, Stout W. Item-bundle DIF hypothesis testing: Identifying suspect bundles and assessing their differential functioning. J Educational Measurement. 1996;33(4):465–484.
  • King G, Wright V, Russell DJ. Understanding paediatric rehabilitation therapists’ lack of use of outcome measures. Disabil Rehabil. 2011;33(25–26):2662–2671.

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