Exploring the psychosocial needs of persons with lower extremity amputation and feasibility of internet cognitive behavioural therapy: a qualitative study

References

• Pezzin LE, Dillingham TR, MacKenzie EJ. Rehabilitation and the long-term outcomes of persons with trauma-related amputations. Arch Phys Med Rehabil. 2000;81(3):292–300.
   PubMed Web of Science ®Google Scholar
• Fortington LV, Dijkstra PU, Bosmans JC, et al. Change in health-related quality of life in the first 18 months after lower limb amputation: a prospective, longitudinal study. J Rehabil Med. 2013;45(6):587–594.
   PubMed Web of Science ®Google Scholar
• Turner AP, Meites TM, Williams RM, et al. Suicidal ideation among individuals with dysvascular lower extremity amputation. Arch Phys Med Rehabil. 2015;96(8):1404–1410.
   PubMed Web of Science ®Google Scholar
• Ziegler-Graham K, MacKenzie EJ, Ephraim PL, et al. Estimating the prevalence of limb loss in the United States: 2005 to 2050. Arch Phys Med Rehabil. 2008;89(3):422–429.
   PubMed Web of Science ®Google Scholar
• Mayo AL, Hitzig S, Cimino S. A depiction of rehabilitation patients 65 years and younger with dysvascular lower extremity amputation. Can Prosthet Orthot J. 2019;2:1–1.
   Google Scholar
• Horgan O, MacLachlan M. Psychosocial adjustment to lower-limb amputation: a review. Disabil Rehabil. 2004;26(14–15):837–850.
   PubMed Web of Science ®Google Scholar
• Singh R, Ripley D, Pentland B, et al. Depression and anxiety symptoms after lower limb amputation: the rise and fall. Clin Rehabil. 2009;23(3):281–286.
   PubMed Web of Science ®Google Scholar
• Pedras S, Carvalho R, Pereira MG. A predictive model of anxiety and depression symptoms after a lower limb amputation. Disabil Health J. 2018;11(1):79–85.
   PubMed Web of Science ®Google Scholar
• Darnall BD, Ephraim P, Wegener ST, et al. Depressive symptoms and mental health service utilization among persons with limb loss: results of a national survey. Arch Phys Med Rehabil. 2005;86(4):650–658.
   PubMed Web of Science ®Google Scholar
• Bennett J. Limb loss: the unspoken psychological aspect. J Vasc Nurs. 2016;34(4):128–130.
   PubMedGoogle Scholar
• McDonald S, Sharpe L, Blaszczynski A. The psychosocial impact associated with diabetes‐related amputation. Diabet Med. 2014;31(11):1424–1430.
   PubMed Web of Science ®Google Scholar
• McKechnie PS, John A. Anxiety and depression following traumatic limb amputation: a systematic review. Injury. 2014;45(12):1859–1866.
   PubMed Web of Science ®Google Scholar
• Schaffalitzky E, Gallagher P, Maclachlan M, et al. Understanding the benefits of prosthetic prescription: exploring the experiences of practitioners and lower limb prosthetic users. Disabil Rehabil. 2011;33(15–16):1314–1323.
   PubMed Web of Science ®Google Scholar
• Delea S, Buckley C, Hanrahan A, et al. Management of diabetic foot disease and amputation in the Irish health system: a qualitative study of patients’ attitudes and experiences with health services. BMC Health Serv Res. 2015;15(1):251.
   PubMedGoogle Scholar
• Archer KR, Castillo RC, MacKenzie EJ, et al. Perceived need and unmet need for vocational, mental health, and other support services following severe lower-extremity trauma. Arch Phys Med Rehabil. 2010;91(5):774–780.
   PubMed Web of Science ®Google Scholar
• David D, Cristea I, Hofmann SG. Why cognitive behavioral therapy is the current gold standard of psychotherapy. Front Psychiatry. 2018;9:4.
   PubMed Web of Science ®Google Scholar
• Bond FW, Dryden W. Handbook of brief cognitive behaviour therapy. Hoboken (NJ): Wiley; 2005.
   Google Scholar
• Andersson G. Using the internet to provide cognitive behaviour therapy. Behav Res Ther. 2009;47(3):175–180.
   PubMed Web of Science ®Google Scholar
• Nobis S, Lehr D, Ebert DD, et al. Efficacy of a web-based intervention with mobile phone support in treating depressive symptoms in adults with type 1 and type 2 diabetes: a randomized controlled trial. Diabetes Care. 2015;38(5):776–783.
   PubMed Web of Science ®Google Scholar
• Van Bastelaar KM, Pouwer F, Cuijpers P, et al. Web-based depression treatment for type 1 and type 2 diabetic patients: a randomized, controlled trial. Diabetes Care. 2011;34(2):320–325.
   PubMed Web of Science ®Google Scholar
• Mehta S, Peynenburg VA, Hadjistavropoulos HD. Internet-delivered cognitive behaviour therapy for chronic health conditions: a systematic review and meta-analysis. J Behav Med. 2019;42(2):169–187.
   PubMed Web of Science ®Google Scholar
• Compen F, Bisseling E, Schellekens M, et al. Face-to-face and internet-based mindfulness-based cognitive therapy compared with treatment as usual in reducing psychological distress in patients with cancer: a multicenter randomized controlled trial. J Clin Oncol. 2018;36(23):2413–2421.
   PubMed Web of Science ®Google Scholar
• Friesen LN, Hadjistavropoulos HD, Schneider LH, et al. Examination of an internet-delivered cognitive behavioural pain management course for adults with fibromyalgia: a randomized controlled trial. Pain. 2017;158(4):593–604.
   PubMed Web of Science ®Google Scholar
• Glozier N, Christensen H, Naismith S, et al. Internet-delivered cognitive behavioural therapy for adults with mild to moderate depression and high cardiovascular disease risks: a randomised attention-controlled trial. PLoS One. 2013;8(3):e59139.
   PubMed Web of Science ®Google Scholar
• Andersson G, Cuijpers P, Carlbring P, et al. Guided internet‐based vs. face‐to‐face cognitive behavior therapy for psychiatric and somatic disorders: a systematic review and meta‐analysis. World Psychiatry. 2014;13(3):288–295.
   PubMed Web of Science ®Google Scholar
• Buhrman M, Fältenhag S, Ström L, et al. Controlled trial of internet-based treatment with telephone support for chronic back pain. Pain. 2004;111(3):368–377.
   PubMed Web of Science ®Google Scholar
• Jasper K, Weise C, Conrad I, et al. Internet-based guided self-help versus group cognitive behavioral therapy for chronic tinnitus: a randomized controlled trial. Psychother Psychosom. 2014;83(4):234–246.
   PubMed Web of Science ®Google Scholar
• Williams DA, Kuper D, Segar M, et al. Internet-enhanced management of fibromyalgia: a randomized controlled trial. Pain. 2010;151(3):694–702.
   PubMed Web of Science ®Google Scholar
• Andersson G, Cuijpers P, Carlbring P, et al. Effects of internet-delivered cognitive behaviour therapy for anxiety and mood disorders. Psychiatry. 2007;2:9–14.
   Google Scholar
• Gratzer D, Khalid-Khan F. Internet-delivered cognitive behavioural therapy in the treatment of psychiatric illness. CMAJ. 2016;188(4):263–272.
   PubMed Web of Science ®Google Scholar
• Srivastava K, Chaudhury S. Rehabilitation after amputation: psychotherapeutic intervention module in Indian scenario. Sci World J. 2014;2014:1–6.
   Google Scholar
• Sandelowski M. Whatever happened to qualitative description? Res Nurs Health. 2000;23(4):334–340.
   PubMed Web of Science ®Google Scholar
• Sandelowski M. What’s in a name? Qual Descript Rev Res Nurs Health. 2010;33(1):77–84.
   PubMed Web of Science ®Google Scholar
• Cresswell JW. Qualitative, quantitative, and mixed methods approaches. Res Design. 2003;3–26.
   Google Scholar
• Damschroder LJ, Aron DC, Keith RE, et al. Fostering implementation of health services research findings into practice: a consolidated framework for advancing implementation science. Implement Sci. 2009;4(1):50–15.
   PubMed Web of Science ®Google Scholar
• Braun V, Clarke V, Hayfield N, et al. Thematic analysis. In: Liamputtong P, editor. Handbook of research methods in health social sciences. Singapore: Springer Singapore; 2018. P. 1–18.
   Google Scholar
• Murray CD, Forshaw MJ. The experience of amputation and prosthesis use for adults: a metasynthesis. Disabil Rehabil. 2013;35(14):1133–1142.
   PubMed Web of Science ®Google Scholar
• Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–216.
   Web of Science ®Google Scholar
• Gualtieri L, Phillips J, Rosenbluth S, et al. Digital literacy: a barrier to adoption of connected health technologies in older adults. J Med Internet Res. 2018;20(9):12–12.
   Google Scholar
• Chislett M, Ploughman M, McCarthy J. Factors associated with prolonged length of stay and failed lower limb prosthetic fitting during inpatient rehabilitation. Arch Rehabil Res Clin Transl. 2020;2(4):100084.
   PubMedGoogle Scholar
• Kayssi A, Dilkas S, Dance DL, et al. Rehabilitation trends after lower extremity amputations in Canada. Pm R. 2017;9(5):494–501.
   PubMedGoogle Scholar
• Hadden K, Martin R, Prince L, et al. Patient health literacy and diabetic foot amputations. J Foot Ankle Surg. 2019;58(5):877–879.
   PubMed Web of Science ®Google Scholar
• Lee SP, Chien LC, Chin T, et al. Financial difficulty in community-dwelling persons with lower limb loss is associated with reduced self-perceived health and wellbeing. Prosthet Orthot Int. 2020;44(5):290–297.
   PubMed Web of Science ®Google Scholar
• Guilcher SJ, Craven BC, Lemieux-Charles L, et al. Secondary health conditions and spinal cord injury: an uphill battle in the journey of care. Disabil Rehabil. 2013;35(11):894–906.
   PubMed Web of Science ®Google Scholar
• Kahle JT, Highsmith MJ, Schaepper H, et al. Predicting walking ability following lower limb amputation: an updated systematic literature review. Technol Innov. 2016;18(2–3):125–137.
   PubMedGoogle Scholar
• Reichmann JP, Bartman KR. An integrative review of peer support for patients undergoing major limb amputation. J Vasc Nurs. 2018;36(1):34–39.
   PubMed Web of Science ®Google Scholar
• Singh R, Hunter J, Philip A, et al. Gender differences in amputation outcome. Disabil Rehabil. 2008;30(2):122–125.
   PubMed Web of Science ®Google Scholar
• Holzer LA, Sevelda F, Fraberger G, et al. Body image and self-esteem in lower-limb amputees. PloS One. 2014;9(3):e92943.
   PubMed Web of Science ®Google Scholar
• Demet K, Martinet N, Guillemin F, et al. Health related quality of life and related factors in 539 persons with amputation of upper and lower limb. Disabil Rehabil. 2003;25(9):480–486.
   PubMed Web of Science ®Google Scholar
• Eiser C, Darlington AS, Stride CB, et al. Quality of life implications as a consequence of surgery: limb salvage, primary and secondary amputation. Sarcoma. 2001;5(4):189–195.
   PubMedGoogle Scholar
• Harness N, Pinzur MS. Health related quality of life in patients with dysvascular transtibial amputation. Clin Orthop Relat Res. 2001; (383): 204–207.
   PubMed Web of Science ®Google Scholar
• Graham AK, Lattie EG, Powell BJ, et al. Implementation strategies for digital mental health interventions in health care settings. Am Psychol. 2020;75(8):1080–1092.
   PubMed Web of Science ®Google Scholar