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Research Article

“We are a unique breed”: strategies to enhance physical activity participation for preschool-aged children born extremely preterm, a mixed-methods study

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Pages 4111-4121 | Received 27 May 2022, Accepted 05 Nov 2022, Published online: 22 Nov 2022

References

  • Australian Institute of Health and Welfare [AIHW]. Australia’s mothers and babies. Australia: AIHW; 2022.
  • Blencowe H, Cousens S, Oestergaard MZ, et al. National, regional, and worldwide estimates of preterm birth rates in the year 2010 with time trends since 1990 for selected countries: a systematic analysis and implications. Lancet. 2012;379(9832):2162–2172.
  • Saigal S, Doyle LW. An overview of mortality and sequelae of preterm birth from infancy to adulthood. Lancet. 2008;371:9.
  • Spittle AJ, Cameron K, Doyle LW, et al. Motor impairment trends in extremely preterm children: 1991–2005. Pediatrics. 2018;141(4):e20173410.
  • Cheong JLY, Anderson PJ, Burnett AC, et al. Changing neurodevelopment at 8 years in children born extremely preterm since the 1990s. Pediatrics. 2017;139(6):e20164086.
  • Cameron KL, McGinley JL, Allison K, et al. Dance PREEMIE, a dance PaRticipation intervention for extremely prEterm children with motor impairment at prEschool age: an Australian feasibility trial protocol. BMJ Open. 2020;10(1):e034256.
  • Cameron KL, FitzGerald TL, Albesher RA, et al. Barriers and facilitators to community participation for preschool-age children born very preterm: a prospective cohort study. Dev Med Child Neurol. 2021;63(6):675–682.
  • FitzGerald TL, Kwong AKL, Cheong JLY, et al. Body structure, function, activity, and participation in 3- to 6-year-old children born very preterm: an ICF-based systematic review and meta-analysis. Phys Ther. 2018;98(8):691–704.
  • FitzGerald TL, Cameron KL, Albesher RA, et al. Strength, motor skills, and physical activity in preschool-aged children born either at less than 30 weeks of gestation or at term. Phys Ther. 2021;101(5):pzab037.
  • Spittle AJ, Dewey D, Nguyen TNN, et al. Rates of developmental coordination disorder in children born very preterm. J Pediatr. 2021;231:61–67.e2.
  • Global recommendations on physical activity for health: 5–17 years old [Internet]. World Health Organization [WHO]. 2011; [cited 2022 Mar 30]. Available from: https://www.who.int/dietphysicalactivity/physical-activity-recommendations-5-17years.pdf.
  • Barnett LM, van Beurden E, Morgan PJ, et al. Childhood motor skill proficiency as a predictor of adolescent physical activity. J Adolesc Health. 2009;44(3):252–259.
  • Imms C, Granlund M, Wilson PH, et al. Participation, both a means and an end: a conceptual analysis of processes and outcomes in childhood disability. Dev Med Child Neurol. 2017;59(1):16–25.
  • Goodway J, Ozmun J, Gallahue D. Understanding motor development: infants, children, adolescents, adults. 7th ed. New York: McGraw-Hill; 2012.
  • Kent M. The oxford dictionary of sports science and medicine. Third ed. New York: Oxford University Press; 2006.
  • Becker E, Dusing S. Participation is possible: a case report of integration into a community performing arts program. Physiother Theory Pract. 2010;26(4):275–280.
  • Anaby D, Hand C, Bradley L, et al. The effect of the environment on participation of children and youth with disabilities: a scoping review. Disabil Rehabil. 2013;35(19):1589–1598.
  • Shields N, Synnot AJ, Barr M. Perceived barriers and facilitators to physical activity for children with disability: a systematic review. Br J Sports Med. 2012;46(14):989–997.
  • Coulston FR, Cameron KL, Sellick KG, et al. Circus activities as a health intervention for children, youth, and adolescents: a scoping review. forthcoming.
  • Kriellaars DJ, Cairney J, Bortoleto MAC, et al. The impact of circus arts instruction in physical education on the physical literacy of children in grades 4 and 5. J Teach Phys Educ. 2019;38(2):162–170.
  • Coulston F, Cameron KL, Spittle A, et al. Circus activities as a health intervention for children, youths, and adolescents: a scoping review protocol. JBI Evid Synth. 2022;20(1):277–283.
  • Sakzewski L, Ziviani J, Poulsen A. The allure of the circus: embedding goals in a naturalistic leisure environment. In: Poulsen A, Ziviani J, & Cuskelly M, editors. Goal setting and motivation in therapy: engaging children and parents. London: Jessica Kingsley Publishers; 2015. p. 89–99.
  • Fournier C, Drouin MA, Marcoux J, et al. Cirque du monde as a health intervention. Can Fam Physician. 2014;60(11):e548–e553.
  • Loiselle F, Rochette A, Tétreault S, et al. Social circus program (Cirque du Soleil) promoting social participation of young people living with physical disabilities in transition to adulthood: a qualitative pilot study. Dev Neurorehabil. 2019;22(4):250–259.
  • Shields N, Synnot A, Kearns C. The extent, context and experience of participation in out-of-school activities among children with disability. Res Dev Disabil. 2015;47:165–174.
  • Consumer involvement and engagement toolkit [Internet]. Australian Clinical Trials Alliance [ACTA]. 2020; [cited 2022 Apr 20]. Available from: https://involvementtoolkit.clinicaltrialsalliance.org.au/.
  • Concannon TW, Grant S, Welch V, et al. Practical guidance for involving stakeholders in health research. J Gen Intern Med. 2019;34(3):458–463.
  • Goodman MS, Sanders Thompson VL. The science of stakeholder engagement in research: classification, implementation, and evaluation. Transl Behav Med. 2017;7(3):486–491.
  • Statement on consumer and community involvement in health and medical research [Internet]. National Health and Medical Research Council [NHMRC]. 2016; cited 2022 Jan 15]. Available from https://www.nhmrc.gov.au/about-us/publications/statement-consumer-and-community-involvement-health-and-medical-research.
  • Cheong JLY, Lee KJ, Boland RA, et al. Changes in long-term prognosis with increasing postnatal survival and the occurrence of postnatal morbidities in extremely preterm infants offered intensive care: a prospective observational study. Lancet Child Adolesc Health. 2018;2(12):872–879.
  • Doyle LW, Roberts G, Anderson PJ. Outcomes at age 2 years of infants <28 weeks’ gestational age born in Victoria in 2005. J Pediatr. 2010;156(1):49–53.
  • Williams J, Lee KJ, Anderson PJ. Prevalence of motor-skill impairment in preterm children who do not develop cerebral palsy: a systematic review. Dev Med Child Neurol. 2010;52(3):232–237.
  • Creswell JW, Plano Clark V. Designing and conducting mixed methods research. 3rd ed. Thousand Oaks: SAGE Publications; 2018.
  • Yin RK. Qualitative research from start to finish. 2nd ed. New York: Guilford Publications; 2015.
  • Birt L, Scott S, Cavers D, et al. Member checking: a tool to enhance trustworthiness or merely a nod to validation? Qual Health Res. 2016;26(13):1802–1811.
  • Gale NK, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13(1):117.
  • Hennink MM, Kaiser BN, Marconi VC. Code saturation versus meaning saturation: how many interviews are enough? Qual Health Res. 2017;27(4):591–608.
  • Shields N, Synnot A. Perceived barriers and facilitators to participation in physical activity for children with disability: a qualitative study. BMC Pediatr. 2016;16(1):9.
  • Shikako-Thomas K, Majnemer A, Law M, et al. Determinants of participation in leisure activities in children and youth with cerebral palsy: systematic review. Phys Occup Ther Pediatr. 2008;28(2):155–169.
  • Imms C, Reilly S, Carlin J, et al. Characteristics influencing participation of Australian children with cerebral palsy. Disabil Rehabil. 2009;31(26):2204–2215.
  • Kiuppis F. Inclusion in sport: disability and participation. Sport Soc. 2018;21(1):4–21.

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