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Research Article

Long-term social restrictions and lack of work activities during the COVID-19 pandemic: impact on the daily lives of people with intellectual disabilities

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 4122-4132 | Received 22 Dec 2021, Accepted 05 Nov 2022, Published online: 18 Nov 2022

References

  • World Health Organization (WHO). Mental health and psychosocial considerations during the COVID-19 outbreak. WHO; 18 March 2020 (No. WHO/2019-nCoV/MentalHealth/2020.1). https://apps.who.int/iris/bitstream/handle/10665/331490/WHO-2019-nCoV-MentalHealth-2020.1-eng.pdf.
  • Courtenay P, Perera B. COVID-19 and people with intellectual disability: impacts of a pandemic. Ir J Psychol Med. 2020;37(3):231–236.
  • Doody O, Keenan PM. The reported effects of the COVID-19 pandemic on people with intellectual disability and their carers: a scoping review. Ann Med. 2021;53(1):786–804.
  • Linehan C, Birkbeck G, Araten-Bergman T, et al. COVID-19 IDD: findings from a global survey exploring family members’ and pad staff’s perceptions of the impact of COVID-19 on individuals with intellectual and developmental disabilities (IDD) and their caregivers. HRB Open Res. 2022;5:27.
  • Ritchie H, Mathieu E, Rodés-Guirao L, et al. Coronavirus pandemic (COVID-19). Published online at OurWorldInData.org. Our World in Data. 2020. Available from: https://ourworldindata.org/coronavirus
  • Giesbers SAH, Hendriks AHC, Hastings RP, et al. Family-based social capital of emerging adults with and without mild intellectual disability. J Intellect Disabil Res. 2020;64(10):757–769.
  • Gilmore L, Cuskelly M. Vulnerability to loneliness in people with intellectual disability: an explanatory model. J Policy Practice Intellect Disabil. 2014;11(3):192–199.
  • Vereniging Gehandicaptenzorg Nederland (VGN). Advies bezoekregeling gehandicaptenzorg [Advice visitation arrangement disability care]. Utrecht: VGN; 2020. https://www.vgn.nl/nieuws/advies-bezoekregeling-gehandicaptenzorg
  • Embregts PJCM, Bogaard KJHM, Frielink N, et al. A thematic analysis into the experiences of people with a mild intellectual disability during the COVID-19 lockdown period. Int J Dev Disabil. 2022;68(4):578–582.
  • Lake JK, Jachyra P, Volpe T, et al. The wellbeing and mental health care experiences of adults with intellectual and developmental disabilities during COVID-19. J Ment Health Res Intellect Disabil. 2022;19(1):35–47.
  • Honingh A, Koelewijn A, Veneberg B, et al. Implications of COVID-19 regulations for people with visual and intellectual disabilities: lessons to learn from visiting restrictions. J Policy Pract Intellect Disabil. 2022;19(1):64–71.
  • Puyaltó C, Beltran M, Coll T, et al. Relationships of people with intellectual disabilities in times of pandemic: an inclusive study. Soc Sci. 2022;11(5):198.
  • Amor AM, Navas P, Verdugo MA, et al. Perceptions of people with intellectual and developmental disabilities about COVID-19 in Spain: a cross sectional study. J Intellect Disabil Res. 2021;65(5):381–396.
  • Ellenkamp JJH, Brouwers PM, Embregts PJCM, et al. Work environment-related factors in obtaining and maintaining work in a competitive employment setting for employees with intellectual disabilities: a systematic review. J Occup Rehabil. 2016;26(1):56–69.
  • Simoës C, Santos S. The impact of personal and environmental characteristics on quality of life of people with intellectual disability. Appl Res Qual Life. 2017;12(2):389–408.
  • Bigby C, Bould E, Beadle-Brown J. ‘Not as connected with people as they want to be’: optimising outcomes for people with intellectual disability in supported living arrangements. Melbourne: Living with Disability Research Centre, La Trobe University; 2015. (ISBN: 9781921915673)
  • Blick RN, Litz KS, Thornhill MG, et al. Do inclusive work environments matter? Effects of community-integrated employment on quality of life for individuals with intellectual disabilities. Res Dev Disabil. 2016;53-54:358–366.
  • Robertson J, Beyer S, Emerson E, et al. The association between employment and the health of people with intellectual disabilities: a systematic review. J Appl Res Intellect Disabil. 2019;32(6):1335–1348.
  • Voermans MAC, Taminiau EF, Giesbers SAH, et al. The value of competitive employmetn: in-depth accounts of people with intellectual disabilities. J Appl Res Intellect Disabil. 2021;34(1):239–249.
  • Donelly M, Hillman A, Stancliffe RJ, et al. The role of informal networks in providing effective work opportunities for people with an intellectual disability. Work. 2010;36(2):227–237.
  • Lysaght R, Petner-Arrey J, Howell-Moneta A, et al. Inclusion through work and productivity for persons with intellectual and developmental disabilities. J Appl Res Intellect Disabil. 2017;30(5):922–935.
  • Bowring D, Totsika V, Hastings R, et al. Challenging behaviours in adults with intellectual disability: a total population study and exploration of risk indices. Br J Clin Psychol. 2017;56(1):16–32.
  • Hall AC, Kramer J. Social capital through workplace connections: opportunities for workers with intellectual disabilities. J Soc Work Disabil Rehabil. 2009;8(3–4):146–170.
  • Majnemer A, McGrath PJ, Baumbusch J, et al. Time to be counted: COVID-19 and intellectual and developmental disabilities – an RSC policy briefing. FACETS. 2021;6:1337–1389.
  • Governor’s role in promoting disability employment in COVID-19 recovery strategies [internet]. National Governors Association. 2021 Mar 23 [cited 2021 Dec 17]. Available from: https://www.nga.org/center/publications/governors-role-in-promoting-disability-employment-in-covid-19-recovery-strategies/
  • Disability and employment, UK: 2019 [internet]. Office for National Statistics. 2019 Dec 2 [cited 2021 Dec 17]. Available from: https://www.ons.gov.uk/peoplepopulationandcommunity/healthandsocialcare/disability/bulletins/disabilityandemploymentuk/2019.
  • Berendsen E, van Deursen C, Dumhs L, et al. UWV Monitor Arbeidsparticipatie Arbeidsbeperkten 2020. Aan het werk zijn, komen en blijven van mensen met een arbeidsbeperking [EIA monitor labour participation of people with disabilities 2020. Being, entering and remaining in employment for people with a worklimitation]. Amsterdam; Uitvoeringsinstituut Werknemersverzekeringen [Employee Insurance Agency]: 2021.
  • Holland P. Will disabled workers be winners or losers in the post-COVID-19 labour market? Disabil. 2021;1(3):161–173.
  • Doyle L. ‘All in this together?’ A commentary on the impact of COVID-19 on disability day services in Ireland. Disab & Soc. 2021;36(9):1538–1542.
  • Kim MA, Yi J, Sung J, et al. Changes in life experiences of adults with intellectual disabilities in the COVID-19 pandemic in South Korea. Disabil Health J. 2021;14(4):101120.
  • Ontwikkeling in dagbesteding: Kansen en knelpunten [Development in day serivces: Opportunities and challenges] [internet]. Vereniging Gehandicaptenzorg Nederland [Dutch Organisation for Disability care]. 2021 Mar 15 [cited 2021 Dec 17]. Available from: https://www.vgn.nl/documenten/rapportage-ontwikkelingen-dagbesteding-maart-2021
  • Trip H, Northway R, Perkins E, et al. COVID-19: evolving challenges and opportunities for residential and vocational intellectual disability service providers. J Policy Pract Intellect Disabil. 2022;19(1):102–115.
  • Handreiking dagbesteding in de gehandicaptenzorg [Manual on the provision of day time activities in disability care] [internet]. Vereniging Gehandicaptenzorg Nederland [Dutch Organisation for Disability care]. 2020 Oct 30 [cited 2021 Dec 17]. Available from: https://www.vgn.nl/system/files/2020-10/Handreiking%20Dagbesteding%2030102020_0.pdf
  • Boeije H, van Schelven F, Verkaik R. Gevolgen van coronamaatregelen voor naasten van mensen met een verstandelijke beperking. Onderzoek naar kwaliteit van leven tijdens de tweede golf [Effects of covid-19 measures on relatives of people with intellectual disabilities. Research on quality of life during the second wave]. Utrecht: Nederlands Instituut voor Onderzoek van de Gezondheidszorg [Dutch Institute for Healthcare Research]; 2021.
  • de Klerk M, Oltshoorn M, Plaisier I, et al. SCP: Een jaar met Corona. Ontwikkelingen in de maatschappelijke gevolgen van corona [A Year with Corona. Trends in the social impact of corona]. The Hague: Sociaal Cultureel Planbureau [The Dutch Institute for Social Research]; 2021.
  • Marrone J, Swarbrick M. Long-term unemployment: a social determinant underaddressed within community behavioral health programs. Psychiatr Serv. 2020;71(7):745–748.
  • Smith JA, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method & research. London: Sage; 2009.
  • Schoufour JD, Mitnitski A, Rockwood K, et al. Development of a frailty index for older people with intellectual disabilities: results from the HA-ID study. Res Dev Disabil. 2013;34(5):1541–1555.
  • Smith JA, Osborn M. Interpretative phenomenological analysis. In Smith JA, editor. Qualitative psychology: a practical guide to research methods. London: Sage; 2008. p. 51–80.
  • Lunsky Y, Jahoda A, Navas P, et al. The mental health and well-being of adults with intellectual disability during the COVID-19 pandemic: a narrative review. J Policy Pract Intellect Disabil. 2022;19(1):35–47.
  • Schalock RL, Luckasson R, Tassé MJ. Intellectual disability: definition, diagnosis, classification, and systems of support. 12th ed. Washington (DC): American Association on Intellectual and Developmental Disabilities; 2021.
  • Parchomiuk M. Experiences of people with intellectual disabilities during the COVID-19 pandemic. A thematic synthesis. Int J Dev Disabil. 2022. https://doi.org/10.1080/20473869.2022.2072698
  • Purrington J, Beail N. The impact of COVID-19 on access to psychological services. AMHID. 2021;15(4):119–131.
  • Nouwens PJG, Lucas R, Embregts PJCM, et al. In plain sight but still invisible. A structured case analysis of people with mild intellectual disability or borderline intellectual functioning. J Intellect Dev Disabil. 2017;42(1):36–44.
  • Scheffers F, Van Vugt E, Moonen X. Resilience in the face of adversity in adults with an intellectual disability: a literature review. J Appl Res Intellect Disabil. 2020;33(5):828–838.
  • Scior K. Public awareness, attitudes and beliefs regarding intellectual disability: a systematic review. Res Dev Disabil. 2011;32(6):2164–2182.
  • Miltenburg E, Schaper J. Maatschappelijke gevolgen van corona. Verwachte gevolgen van corona voor de opvattingen en houdingen van Nederlanders [Social consequences of corona. Expected effects of corona on the views and attitudes of the Dutch population]. The Hague: Sociaal Cultureel Planbureau [The Dutch Institute for Social Research]; 2020.
  • Oudejans SCC, Spits ME, van Weeghel J. A cross-sectional survey of stigma towards people with a mental illness in the general public. The role of employment, domestic noise disturbance and age. Soc Psychiatry Psychiatr Epidemiol. 2021;56(9):1547–1554.
  • Wolfensberger W. A brief overview of social role valorisation. Ment Retard. 2000;38(2):105–123.
  • Dorozenko KP, Roberts LD, Bishop B. The identities and social roles of people with an intellectual disability: challenging dominant cultural worldviews, values and mythologies. Disabil Soc. 2015;30(9):1345–1364.
  • Forrester-Jones R, Barnes A. On being a girlfriend not a patient: the quest for an acceptable identity amongst people diagnosed with a severe mental illness. J Ment Health. 2008;17(2):153–172.
  • Giesbers SAH, Hendriks AHC, Jahoda A, et al. Living with support: experiences of people with mild intellectual disability. J Appl Res Intellect Disabil. 2019;32(2):446–456.
  • Pelleboer-Gunnink HA, van Weeghel J, Embregts PJCM. Public stigmatization of people with intellectual disabilities: a mixed-method population survey into stereotypes and their relationship with familiarity and discrimination. Disabil Rehabil. 2021;43(4):489–497.
  • Wilthagen T, Stolp M. De arbeidsmarkttrasitite: Naar meer waarde en meer werk [The labour market transition: towards more value and more jobs]. Arnhem: NSvP; 2021.