How do people with chronic pain explain their use, or non-use, of pain-related healthcare services? A qualitative study of patient experiences

References

• Breivik H, Collett B, Ventafridda V, et al. Survey of chronic pain in Europe: prevalence, impact on daily life, and treatment. Eur J Pain. 2006;10(4):287–333.
   PubMed Web of Science ®Google Scholar
• Dueñas M, Ojeda B, Salazar A, et al. A review of chronic pain impact on patients, their social environment and the health care system. J Pain Res. 2016;9:457–467.
   PubMed Web of Science ®Google Scholar
• Andersson HI, Ejlertsson G, Leden I, et al. Impact of chronic pain on health care seeking, self care, and medication. Results from a population-based Swedish study. J Epidemiol Commun Health. 1999;53(8):503–509.
   PubMed Web of Science ®Google Scholar
• Paananen MV, Taimela SP, Tammelin TH, et al. Factors related to seeking health care among adolescents with musculoskeletal pain. Pain. 2011;152(4):896–903. Apr
   PubMed Web of Science ®Google Scholar
• Mose S, Kent P, Smith A, et al. Trajectories of musculoskeletal healthcare utilization of people with chronic musculoskeletal pain – a population-based Cohort Study. Clin Epidemiol. 2021;13:825–843.
   PubMed Web of Science ®Google Scholar
• Lentz TA, Harman JS, Marlow NM, et al. Factors associated with persistently high-cost health care utilization for musculoskeletal pain. PLoS ONE. 2019;14(11):e0225125.
   PubMed Web of Science ®Google Scholar
• Christina E, Pernilla Å, Ingrid D, et al. Association between health care utilization and musculoskeletal pain. A 21-year follow-up of a population cohort. Scand J Pain. 2020;20(3):533–543.
   PubMed Web of Science ®Google Scholar
• Beyera GK, O'Brien J, Campbell S. Health-care utilisation for low back pain: a systematic review and meta-analysis of population-based observational studies. Rheumatol Int. 2019;39(10):1663–1679.
   PubMed Web of Science ®Google Scholar
• Ferreira ML, Machado G, Latimer J, et al. Factors defining care‐seeking in low back pain—a meta‐analysis of population based surveys. Eur J Pain. 2010;14(7):747.e1–747-e7.
   PubMed Web of Science ®Google Scholar
• Esteve R, López-Martínez AE, Ruíz-Párraga GT, et al. Pain acceptance and pain-related disability predict healthcare utilization and medication intake in patients with non-specific chronic spinal pain. IJERPH. 2020;17(15):5556–5512.
   Web of Science ®Google Scholar
• Nalamachu S, Robinson RL, Viktrup L, et al. Pain severity and healthcare resource utilization in patients with osteoarthritis in the United States. Postgraduate Med. 2021;133(1):10–19.
   PubMed Web of Science ®Google Scholar
• Jonsdottir T, Jonsdottir H, Lindal E, et al. Predictors for chronic pain-related health care utilization: a cross-sectional nationwide study in Iceland. Health Expect. 2015;18(6):2704–2719.
   PubMed Web of Science ®Google Scholar
• Cameron L, Leventhal EA, Leventhal H. Symptom representations and affect as determinants of care seeking in a community-dwelling, adult sample population. Health Psychol. 1993;12(3):171–179.
   PubMed Web of Science ®Google Scholar
• Mose S, Kent P, Smith A, et al. Number of musculoskeletal pain sites leads to increased long-term healthcare contacts and healthcare related costs – a Danish population-based cohort study. BMC Health Serv Res. 2021;21(1):980.
   PubMed Web of Science ®Google Scholar
• Cornally N, McCarthy G. Help-seeking behaviour for the treatment of chronic pain. Br J Community Nurs. 2011;16(2):90–98.
   PubMedGoogle Scholar
• Huysmans E, Leemans L, Beckwée D, et al. The relationship between cognitive and emotional factors and healthcare and medication use in people experiencing pain: a systematic review. JCM. 2020;9(8):2486.
   Google Scholar
• Clewley D, Rhon D, Flynn T, et al. Health seeking behavior as a predictor of healthcare utilization in a population of patients with spinal pain. PLoS ONE. 2018;13(8):e0201348.
   PubMed Web of Science ®Google Scholar
• Rosendal M, Jarbøl DE, Pedersen AF, et al. Multiple perspectives on symptom interpretation in primary care research. BMC Fam Pract. 2013;14:167.
   PubMed Web of Science ®Google Scholar
• Elnegaard S, Andersen RS, Pedersen AF, et al. Self-reported symptoms and healthcare seeking in the general population—exploring “the symptom iceberg”. BMC Public Health. 2015;15:685.
   PubMed Web of Science ®Google Scholar
• Hannay DR. The symptom iceberg: a study of community health. London: Routledge & Kegan Paul; 1979.
   Google Scholar
• Van Griensven H. Patients’ experiences of living with persistent back pain. Int J Osteopathic Med. 2016;19:44–49.
   Web of Science ®Google Scholar
• Toye F, Belton J, Hannink E, et al. A healing journey with chronic pain: a meta-ethnography synthesizing 195 qualitative studies. Pain Med. 2021;22(6):1333–1344.
   PubMed Web of Science ®Google Scholar
• Nicola M, Correia H, Ditchburn G, et al. Invalidation of chronic pain: a thematic analysis of pain narratives. Disabil Rehabil. 2021;43(6):861–869.
   PubMed Web of Science ®Google Scholar
• Laugesen K, Ludvigsson JF, Schmidt M, et al. Nordic health registry-based research: a review of health care systems and key registries. Clin Epidemiol. 2021;13:533–554.
   PubMed Web of Science ®Google Scholar
• Jensen JC, Haahr JP, Frost P, et al. The significance of health anxiety and somatization in care-seeking for back and upper extremity pain. Fam Pract. 2012;29(1):86–95.
   PubMed Web of Science ®Google Scholar
• Jensen JC, Haahr JP, Frost P, et al. Do work-related factors affect care-seeking in general practice for back pain or upper extremity pain? Int Arch Occup Environ Health. 2013;86(7):799–808.
   PubMed Web of Science ®Google Scholar
• Digitisation of Mandatory Digital Post from public authorities; 2021. [cited 2022 Jun 08]. Available from: https://en.digst.dk/policy-and-strategy/mandatory-digitisation/digital-post/
   Google Scholar
• Muller U, Tanzler K, Burger A, et al. A pain assessment scale for population-based studies: development and validation of the pain module of the standard evaluation questionnaire. Pain. 2008;136(1-2):62–74.
   PubMed Web of Science ®Google Scholar
• Pedersen CB. The Danish civil registration system. Scand J Public Health. 2011;39(7 Suppl):22–25.
   PubMed Web of Science ®Google Scholar
• Schmidt M, Pedersen L, Sorensen HT. The Danish civil registration system as a tool in epidemiology. Eur J Epidemiol. 2014;29(8):541–549.
   PubMed Web of Science ®Google Scholar
• Fink P, Ewald H, Jensen J, et al. Screening for somatization and hypochondriasis in primary care and neurological in-patients: a seven-item scale for hypochondriasis and somatization. J Psychosom Res. 1999;46(3):261–273.
   PubMed Web of Science ®Google Scholar
• DSAM. Recommendation for Common Mental Disorders Questionnaire (CMDQ). The Danish College of General Practitioners. [cited 2020 Jun 12]. Available from: https://vejledninger.dsam.dk/funktionellelidelser/?mode=show Page&pageId=51
   Google Scholar
• Topp CW, Østergaard SD, Søndergaard S, et al. The WHO-5 well-being index: a systematic review of the literature. Psychother Psychosom. 2015;84(3):167–176.
   PubMed Web of Science ®Google Scholar
• Christiansen DH, McCray G, Winding TN, et al. Measurement properties of the musculoskeletal health questionnaire (MSK-HQ): a between country comparison. Health Qual Life Outcomes. 2020;18(1):1–11.
   PubMed Web of Science ®Google Scholar
• Brooks J, McCluskey S, Turley E, et al. The utility of template analysis in qualitative psychology research. Qual Res Psychol. 2015;12(2):202–222.
   PubMed Web of Science ®Google Scholar
• Ethics NCoHR. Act on Research Ethics Review of Health Research Projects; 2011. [cited 2020 May 25]. Available from: https://en.nvk.dk/rules-and-guidelines/act-on-research-ethics-review-of-health-research-projects
   Google Scholar
• Eriksen J, Sjogren P, Ekholm O, et al. Health care utilisation among individuals reporting long-term pain: an epidemiological study based on Danish National Health Surveys. Eur J Pain. 2004;8(6):517–523.
   PubMed Web of Science ®Google Scholar
• Hartvigsen J, Davidsen M, Sogaard K, et al. Self-reported musculoskeletal pain predicts long-term increase in general health care use: a population-based cohort study with 20-year follow-up. Scand J Public Health. 2014;42(7):698–704.
   PubMed Web of Science ®Google Scholar
• Leventhal H, Meyer D, Nerenz D. The common sense representation of illness danger. In: Rachman S, editor. Medical psychology. Vol. 2. New York (NY): PergamonElmsford; 1980. p. 7–30.
   Google Scholar
• Leventhal H, Phillips LA, Burns E. The Common-Sense Model of Self-Regulation (CSM): a dynamic framework for understanding illness self-management. J Behav Med. 2016;39(6):935–946.
   PubMed Web of Science ®Google Scholar
• Kristoffersen ES, Aaseth K, Grande RB, et al. Self-reported efficacy of complementary and alternative medicine: the Akershus study of chronic headache. J Headache Pain. 2013;14(1):36.
   PubMedGoogle Scholar
• Artus M, Croft P, Lewis M. The use of CAM and conventional treatments among primary care consulters with chronic musculoskeletal pain. BMC Fam Pract. 2007;8(1):26–14.
   PubMedGoogle Scholar
• Maher CG, O'Keeffe M, Buchbinder R, et al. Musculoskeletal healthcare: have we over‐egged the pudding? Int J Rheum Dis. 2019;22(11):1957–1960.
   PubMed Web of Science ®Google Scholar
• Brownlee S, Chalkidou K, Doust J, et al. Evidence for overuse of medical services around the world. The Lancet. 2017;390(10090):156–168.
   PubMed Web of Science ®Google Scholar
• Lennox Thompson B, Gage J, Kirk R. Living well with chronic pain: a classical grounded theory. Disabil Rehabil. 2020;42(8):1141–1152.
   PubMed Web of Science ®Google Scholar
• Nowell LS, Norris JM, White DE, et al. Thematic analysis: striving to meet the trustworthiness criteria. Int J Qual Methods. 2017;16(1):160940691773384. 2017/12/01
   Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
   PubMed Web of Science ®Google Scholar
• Ørtenblad L, Valentin GH, Carstensen K, et al. Smerter-en MTV om muligheder for tidlig målrettet indsats til smertepatienter (Pain – a HTA concerning opportunities for early interventions for pain patients). 2014.
   Google Scholar