1,868
Views
1
CrossRef citations to date
0
Altmetric
Reviews

Psychosocial interventions affecting global perceptions of control in people with Parkinson’s disease: a scoping review

ORCID Icon, ORCID Icon, ORCID Icon & ORCID Icon
Pages 443-452 | Received 22 Apr 2022, Accepted 12 Jan 2023, Published online: 23 Jan 2023

References

  • Wallston KA, Wallston BS, Smith S, et al. Perceived control and health. Curr Psychol. 1987;6(1):5–25.
  • Skinner EA. A guide to constructs of control. J Pers Soc Psychol. 1996;71(3):549–570.
  • Eccles FJR, Simpson J. A review of the demographic, clinical and psychosocial correlates of perceived control in three chronic motor illnesses. Disabil Rehabil. 2011;33(13-14):1065–1088.
  • Chipperfield JG, Perry RP, Stewart TL. Perceived control. In: Encyclopedia of human behavior. 2nd ed. Burlington, USA: Elsevier; 2012. p. 42–48. http://dx.doi.org/10.1016/B978-0-12-375000-6.00109-9
  • Pearlin LI, Schooler C. The Structure of coping. J Health Soc Behav. 1978;19(1):2–21.
  • Rotter J. Generalized expectancies for internal versus external control of reinforcement. Psychol Monogr Gen Appl. 1966;80(1):1–28. http://psycnet.apa.org/journals/mon/80/1/1/
  • Bandura A. Self-efficacy mechanism in human agency. Am Psychol. 1982;37(2):122–147.
  • Sirois FM. The control beliefs inventory. Unpublished manual. Ottawa, Ontario, Canada: Carleton University; 2003.
  • Shaw A, Kapnek M, Morelli NA. Measuring Creative Self-Efficacy: an item response theory analysis of the creative Self-Efficacy scale. Front Psychol. 2021;12:678033.
  • Tinetti ME, Richman D, Powell L. Falls efficacy as a measure of fear of falling. J Gerontol. 1990;45:239–243.
  • Fuchs T, Koch SC. Embodied affectivity: on moving and being moved. Front Psychol. 2014;5:1–12.
  • Dempster M, Howell D, McCorry NK. Illness perceptions and coping in physical health conditions: a meta-analysis. J Psychosom Res. 2015;79(6):506–513.
  • Thompson SC, Kyle DJ. The role of perceived control in coping with the losses associated with chronic illness. In: Harvey J, Miller E, editors. Loss and trauma: general and close relationship perspectives. New York: Routledge; 2000. p. 131–145. http://psycnet.apa.org/record/2000-05604-009
  • Reich JW, Infurna FJ. Perceived Control: theory, research, and practice in the first 50 years. New York: Oxford University Press; 2016.
  • Walker J. Control and the psychology of health: theory, measurement, and applications. Philadelphia: Open University; 2001. https://books.google.co.uk/books?id=IOfaAAAAMAAJ
  • Zarotti N, Simpson J, Fletcher I. ‘I have a feeling I can’t speak to anybody’: a thematic analysis of communication perspectives in people with huntington’s disease. Chronic Illn. 2019;15(1):61–73.
  • Zarotti N, Coates E, McGeachan A, HighCALS Study Group, et al. Health care professionals’ views on psychological factors affecting nutritional behaviour in people with motor neuron disease: a thematic analysis. Br J Health Psychol. 2019;24(4):953–969.
  • Bishop M, Frain MP, Tschopp MK. Self-management, perceived control, and subjective quality of life in multiple sclerosis: an exploratory study. Rehabil Couns Bull. 2008;52:46–56.
  • Zarotti N, Eccles F, Broyd A, et al. Third wave cognitive behavioural therapies for people with multiple sclerosis: a scoping review. Disabil Rehabil. 2022;6:1–16.
  • Eccles FJR, Craufurd D, Smith A, et al. Experiences of Mindfulness-Based cognitive therapy for premanifest huntington’s disease. J Huntingtons Dis. 2021;10(2):277–291.
  • Verity D, Eccles FJRR, Boland A, et al. Does perceived control mediate the relationship between stigma and well-being for individuals with Parkinson’s disease? J Neurol Sci. 2020;14:116841.
  • Walihagen MI, Brod M, Reimer M, et al. Perceived Control and Well-Being in Parkinson’s disease. West J Nurs Res. 1997;19(1):11–31.
  • Kalia LV, Lang AE. Parkinson’s disease. Lancet. 2015;24:92–98.
  • Weintraub D, Burn DJ. Parkinson’s disease: the quintessential neuropsychiatric disorder. Mov Disord. 2011;26(6):1022–1031.
  • Dorsey ER, Constantinescu R, Thompson JP, et al. Projected number of people with Parkinson disease in the most populous nations, 2005 through 2030. Neurology. 2007;68(5):384–386.
  • Willis AW, Schootman M, Kung N, et al. Epidemiology and neuropsychiatric manifestations of young onset Parkinson’s disease in the United States. Park Relat Disord. 2013;19(2):202–206.
  • Daley DJ, Deane KHOO, Gray RJ, et al. Adherence therapy improves medication adherence and quality of life in people with Parkinson’s disease: a randomised controlled trial. Int J Clin Pract. 2014;68(8):963–971.
  • Simpson J, McMillan H, Reeve D. Reformulating psychological difficulties in people with Parkinson’s disease: the potential of a social relational approach to disablism. Parkinsons Dis. 2013;2013:608562.
  • Zarotti N, Eccles FJR, Foley JA, et al. Psychological interventions for people with Parkinson’s disease in the early 2020s: where do we stand? Psychol psychother theory. Res Pract. 2021;94:760–797.
  • Ghazi-Noori S, Chung TH, Deane K, et al. Therapies for depression in Parkinson’s disease. Cochrane Database Syst Rev. 2003;2010
  • Maffoni M, Giardini A, Pierobon A, et al. Stigma Experienced by Parkinson’s disease patients: a descriptive review of qualitative studies. Parkinsons Dis. 2017;2017:7203259.
  • Macleod AD, Grieve JWK, Counsell CE. A systematic review of loss of independence in Parkinson’s disease. J Neurol. 2016;263(1):1–10.
  • Prenger MTM, Madray R, Van Hedger K, et al. Social Symptoms of Parkinson’s disease stocchi F, editor. Parkinsons Dis. 2020;2020:1–10.
  • Simpson J, Chatzidamianos G, Fletcher I, et al. A new scale measuring adaptive perceived control for people with Parkinson’s: initial construction and further validation. J Neurol Sci. 2018;391:77–83.
  • Simpson J, Zarotti N, Varey S, et al. ‘It’s a double whammy’: a qualitative study of illness uncertainty in individuals with Parkinson’s disease in the context of COVID-19. Chronic Illn. 2021;18(4):174239532110431.
  • Robinson SA, Lachman ME. Perceived Control and behavior change. In: Reich JW, Infurna FJ, editor. Perceived control. New York (NY): Oxford University Press; 2016. p. 201–228.
  • Tyack C, Camic PM. Touchscreen interventions and the well-being of people with dementia and caregivers: a systematic review. Int Psychogeriatr. 2017;29(8):1261–1280.
  • Barlow MA, Liu SY, Wrosch C. Chronic illness and loneliness in older adulthood: the role of self-protective control strategies. Heal Psychol. 2015;34(8):870–879.
  • Marks R, Allegrante JP, Lorig K. A Review and synthesis of research evidence for Self-Efficacy-Enhancing interventions for reducing chronic disability: implications for health education practice (part II). Health Promot Pract. 2005;6(1):37–43.
  • Abou L, Alluri A, Fliflet A, et al. Effectiveness of physical therapy interventions in reducing fear of falling among individuals with neurologic diseases: a systematic review and meta-analysis. Arch Phys Med Rehabil. 2021;102(1):132–154.
  • Grether T, Sowislo JF, Wiese BS. Top-down or bottom-up? Prospective relations between general and domain-specific self-efficacy beliefs during a work-family transition. Pers Individ Dif. 2018;121:131–139. Available from
  • Shelton SH. Developing the construct of general self-efficacy. Psychol Rep. 1990;66(3):987–994.
  • Hortop EG, Wrosch C, Gagné M. The why and how of goal pursuits: effects of global autonomous motivation and perceived control on emotional well-being. Motiv Emot. 2013;37(4):675–687.
  • Chipperfield JG, Greenslade L. Perceived control as a buffer in the use of health care services. Journals Gerontol - Ser B Psychol Sci Soc Sci. 1999;54:146–154.
  • Emirza S, Öztürk EB, Şengönül AS. The quality of international mobility experiences, general self-efficacy and job search self-efficacy: a time-lagged investigation. Curr Psychol. 2021;40(4):1580–1591.
  • Peters M, Godfrey C, McInerney P, et al. Chapter 11: scoping reviews (2020 version). In: Aromataris E, Munn Z, editors. JBI Manual for evidence synthesis. JBI; 2020. p. 406–451. https://synthesismanual.jbi.global
  • Grimshaw J. A knowledge synthesis chapter. 2010. http://www.cihr-irsc.gc.ca/e/41382.html
  • Arksey H, O'Malley L. Scoping studies: towards a methodological framework. Int J Soc Res Methodol. 2005;8(1):19–32.
  • Peters MDJ, Marnie C, Tricco AC, et al. Updated methodological guidance for the conduct of scoping reviews. JBI Evid Implement. 2021;19(1):3–10.
  • Cutler DM. Behavioral Health interventions: what works and why? In: Anderson NB, Bulatao RA, Cohen B, editor. Critical Perspectives on Racial and Ethnic Differences in Health in Late Life. Washington (DC): National Academies Press (US); 2004. p. 643–676.
  • Schwarzer R, Jerusalem M. Generalized Self-Efficacy scale. In: Weinman J, editor. Measures in health psychology: a user’s portfolio. Causal and control beliefs. Windsor: NFER-NELSON; 1995. p. 35–37.
  • Thompson SC, Spacapan S. Perceptions of control in vulnerable populations. J Soc Issues. 1991;47(4):1–21.
  • Wallston KA, Stein MJ, Smith CA. Form C of the MHLC scales: a Condition-Specific measure of locus of control. J Pers Assess. 1994;63(3):534–553.
  • Michie S, Richardson M, Johnston M, et al. The behavior change technique taxonomy (v1) of 93 hierarchically clustered techniques: building an international consensus for the reporting of behavior change interventions. Ann Behav Med. 2013;46(1):81–95.
  • Pearce G, Parke HL, Pinnock H, et al. The PRISMS taxonomy of self-management support: derivation of a novel taxonomy and initial testing of its utility. J Health Serv Res Policy. 2016;21(2):73–82.
  • Hindle JV, Watermeyer TJ, Roberts J, et al. Goal-orientated cognitive rehabilitation for dementias associated with Parkinson’s disease-A pilot randomised controlled trial. Int J Geriatr Psychiatry. 2018;33(5):718–728.
  • Connor KI, Cheng EM, Barry F, et al. Randomized trial of care management to improve Parkinson disease care quality. Neurology. 2019;92(16):E1831–E1842.
  • Advocat J, Enticott J, Vandenberg B, et al. The effects of a mindfulness-based lifestyle program for adults with Parkinson’s disease: a mixed methods, wait list controlled randomised control study. BMC Neurol. 2016;16(1):166.
  • Sajatovic M, Ridgel AL, Walter EM, et al. A randomized trial of individual versus group-format exercise and self-management in individuals with Parkinson’s disease and comorbid depression. Patient Prefer Adherence. 2017;11:965–973.
  • Vandenberg BE, Advocat J, Hassed C, et al. Mindfulness-based lifestyle programs for the self-management of Parkinson’s disease in Australia. Health Promot Int. 2019;34(4):668–676.
  • Pappa K, Doty T, Taff SD, et al. Self-Management program participation and social support in Parkinson’s disease: mixed methods evaluation. Phys Occup Ther Geriatr. 2017;35(2):81–98.
  • Lorig K, Stewart A, Ritter P, et al. Outcome measures for health education and other health care interventions. Thousand Oaks (CA): sage Publications, Inc; 1996.
  • Soundy A, Collett J, Lawrie S, et al. A qualitative study on the impact of first steps-a peer-led educational intervention for people newly diagnosed with Parkinson’s disease. Behav Sci (Basel). 2019;9(10):107.
  • Wallston BS, Wallston KA, Kaplan GD, et al. Maides S a. Development and validation of the health locus of control (HLC) scale. J Consult Clin Psychol. 1976;44(4):580–585.
  • Ritter VC, Bonsaksen T. Improvement in quality of life following a multidisciplinary rehabilitation program for patients with Parkinson’s disease. J Multidiscip Healthc. 2019;12:219–227.
  • Prewitt CM, Charpentier JC, Brosky JA, et al. Effects of dance classes on cognition, depression, and Self-Efficacy in Parkinson’s disease. Am J Dance Ther. 2017;39(1):126–141.
  • Bognar S, DeFaria A, O’Dwyer C, et al. C. More than just dance: experiences of people with Parkinson’s disease in a dance program…Canadian physiotherapy association national congress 2016 may 26-28 Victoria BC. Physiother Canada. 2016;68:37.
  • Morris ME, Slade SC, Wittwer JE, et al. Online Dance therapy for people with Parkinson’s disease: feasibility and impact on consumer engagement. Neurorehabil Neural Repair. 2021;35(12):1076–1087.
  • Cucca A, Rocco D, Acosta A, et al. Art therapy for Parkinson’s disease. Park Relat Disord. 2021;84:148–154.
  • Gruber-Baldini AL, Velozo C, Romero S, et al. Validation of the PROMIS® measures of self-efficacy for managing chronic conditions. Qual Life Res. 2017;26(7):1915–1924.
  • Wallston KA. The validity of the multidimensional health locus of control scales. J Health Psychol. 2005;10(5):623–631.
  • Estrada-Bellmann I, Meléndez-Flores JD, Cámara-Lemarroy CR, et al. Determinants of self-efficacy in patients with Parkinson’s disease. Arq Neuropsiquiatr. 2021;79(8):686–691.
  • Shulman LM, Velozo C, Romero S, et al. Comparative study of PROMIS self-efficacy for managing chronic conditions across chronic neurologic disorders. Qual Life Res. 2019;28(7):1893–1901.
  • Nilsson MH, Hagell P, Iwarsson S. Psychometric properties of the general Self-Efficacy scale in Parkinson’s disease. Acta Neurol Scand. 2015;132(2):89–96.
  • Pagnini F, Bercovitz K, Langer E. Perceived control and mindfulness: implications for clinical practice. J Psychother Integr. 2016;26(2):91–102.
  • Prinsen CAC, Vohra S, Rose MR, et al. Core Outcome measures in effectiveness trials (COMET) initiative: protocol for an international delphi study to achieve consensus on how to select outcome measurement instruments for outcomes included in a “core outcome set. Trials. 2014;15(1):1–7.
  • Nowell LS, Norris JM, White DE, et al. Thematic Analysis: striving to meet the trustworthiness criteria. Int J Qual Methods. 2017;16:1–13.
  • Zarotti N, Dale M, Eccles F, et al. Psychological Interventions for people with huntington’s disease: a call to arms. JHD. 2020;9(3):231–243.
  • Zarotti N, Mayberry E, Ovaska-Stafford N, et al. Psychological interventions for people with motor neuron disease: a scoping review. Amyotroph Lateral Scler Front Degener. 2021;22(1-2):1–11.
  • Simpson J, Eccles FJ, Zarotti N. Extended evidence-based guidance on psychological interventions for psychological difficulties in individuals with Huntington’s disease, Parkinson’s disease, motor neurone disease, and multiple sclerosis 2021. https://zenodo.org/record/4593883#.YdNTgy-l2DU
  • Kabat-Zinn J. Mindfulness-based interventions in context: past, present, and future. Clin Psychol Sci Pract. 2003;10(2):144–156.
  • Teasdale JD, Segal ZV, Williams JMG, et al. Prevention of relapse/recurrence in major depression by mindfulness-based cognitive therapy. J Consult Clin Psychol. 2000;68(4):615–623.
  • Cheng C, Cheung SF, Chio JHM, et al. Cultural meaning of perceived control: a meta-analysis of locus of control and psychological symptoms across 18 cultural regions. Psychol Bull. 2013;139(1):152–188.
  • Grob A, Little TD, Wanner B, Euronet, et al. Adolescents’ well-being and perceived control across 14 sociocultural contexts. J Pers Soc Psychol. 1996;71(4):785–795.
  • Beck AT. Cognitive therapy: Nature and relation to behavior therapy. Behav Ther. 1970;1(2):184–200.
  • Hofmann SG, Asnaani A, Vonk IJJ, et al. Efficacy of cognitive behavioral therapy: a review of meta-analyses. Cognit Ther Res. 2012;36(5):427–440.
  • Wilson BA, Winegardner J, van Heugten CM, et al. Neuropsychological rehabilitation: the international handbook. New York (NY): Psychology Press; 2017.
  • Walsh J. Psychoeducation in mental health. Oxford: Oxford Unversity Press; 2010.
  • Larsen MH, Mengshoel AM, Andersen MH, et al. “A bit of everything”: health literacy interventions in chronic conditions – a systematic review. Patient Educ Couns. 2022;105(10):2999–3016.
  • Macht M, Gerlich C, Ellgring H, et al. Patient education in Parkinson’s disease: formative evaluation of a standardized programme in seven european countries. Patient Educ Couns. 2007;65(2):245–252.
  • Bishop SR, Lau M, Shapiro S, et al. Mindfulness: a proposed operational definition. Clin Psychol Sci Pract. 2004;11(3):230–241.
  • Kabat-Zinn J. Full catastrophe living: using the wisdom of your body and mind to face stress, pain, and illness. New York (NY): Delta; 1990.
  • Biddle S, Mutrie N. Psychology of physical activity: determinants, Well-Being and interventions. New York (NY): Routledge; 2007. https://www.taylorfrancis.com/books/9781134211937
  • Bognar S, DeFaria AM, O’Dwyer C, et al. More than just dancing: experiences of people with Parkinson’s disease in a therapeutic dance program. Disabil Rehabil. 2017;39(11):1073–1078.