Severe malaria-related disability in Ethiopian children from the perspectives of caregivers: an interpretive description study

References

• Prasad N, Murdoch DR, Reyburn H, et al. Etiology of severe febrile illness in low- and Middle-Income countries: a systematic review. PLoS One. 2015;10(6):e0127962.
   PubMed Web of Science ®Google Scholar
• Kaboré B, Post A, Lompo P, et al. Aetiology of acute febrile illness in children in a high malaria transmission area in west africa. Clin Microbiol Infect. 2021;27(4):590–596.
   PubMed Web of Science ®Google Scholar
• Marks F, Liu J, Soura AB, et al. Pathogens that cause acute febrile illness among children and adolescents in Burkina Faso, Madagascar, and Sudan. Clin Infect Dis. 2021;73(8):1338–1345.
   PubMed Web of Science ®Google Scholar
• Tegegne Y, Worede A, Derso A, et al. The prevalence of malaria among children in Ethiopia: a systematic review and Meta-Analysis. J Parasitol Res. 2021;2021:6697294.
   PubMed Web of Science ®Google Scholar
• Kwenti TE, Kwenti TDB, Latz A, et al. Epidemiological and clinical profile of paediatric malaria: a cross sectional study performed on febrile children in five epidemiological strata of malaria in Cameroon. BMC Infect Dis. 2017;17(1):499.
   PubMedGoogle Scholar
• Kunuanunua TS, Nsibu CN, Bodi JM, et al. Severe malaria in children: a descriptive report from kinshasa, the democratic republic of Congo. J Trop Pediatr. 2015;61(4):272–278.
   PubMed Web of Science ®Google Scholar
• Taylor C, Namaste SML, Lowell J, et al. Estimating the fraction of severe malaria among Malaria-Positive children: analysis of household surveys in 19 Malaria-Endemic countries in africa. Am J Trop Med Hyg. 2021;104(4):1375–1382.
   PubMed Web of Science ®Google Scholar
• Roca-Feltrer A, Carneiro I, Armstrong Schellenberg JRM. Estimates of the burden of malaria morbidity in Africa in children under the age of 5 years. Trop Med Int Health. 2008;13(6):771–783.
   PubMed Web of Science ®Google Scholar
• Carter JA, Mung’ala-Odera V, Neville BGR, et al. Persistent neurocognitive impairments associated with severe falciparum malaria in kenyan children. J Neurol Neurosurg Psychiatry. 2005;76(4):476–481.
   PubMed Web of Science ®Google Scholar
• Langfitt JT, McDermott MP, Brim R, et al. Neurodevelopmental impairments 1 year after cerebral malaria. Pediatrics. 2019;143(2):e20181026.
   PubMed Web of Science ®Google Scholar
• Maitland K. Severe malaria in african children—the need for continuing investment. N Engl J Med. 2016;375(25):2416–2417.
   PubMed Web of Science ®Google Scholar
• Manning L, Laman M, Davis WA, et al. Clinical features and outcome in children with severe Plasmodium falciparum malaria: a Meta-Analysis. PLoS One. 2014;9(2):e86737.
   PubMed Web of Science ®Google Scholar
• Engeda EH, Aldersey HM, Davison CM, et al. Severe malaria-related disability in african children: a scoping review. Disabil Rehabil. 2022;19:1–9.
   Google Scholar
• Bongo PP, Dziruni G, Muzenda-Mudavanhu C. The effectiveness of community-based rehabilitation as a strategy for improving quality of life and disaster resilience for children with disability in rural Zimbabwe. Jamba. 2018;10(1):442–442.
   PubMedGoogle Scholar
• Asher L, Fekadu A, Hanlon C, et al. Development of a Community-Based rehabilitation intervention for people with schizophrenia in Ethiopia. PLoS One. 2015;10(11):e0143572.
   PubMed Web of Science ®Google Scholar
• Asher L, Hanlon C, Birhane R, et al. Community-based rehabilitation intervention for people with schizophrenia in Ethiopia (RISE): a 12 month mixed methods pilot study. BMC Psychiatry. 2018;18(1):250.
   PubMedGoogle Scholar
• Ngubane M, Chetty V. Caregiver satisfaction with a multidisciplinary community-based rehabilitation programme for children with cerebral palsy in South Africa. South African Family Prac. 2017;59(1):35–40.
   Web of Science ®Google Scholar
• Paget A, Mallewa M, Chinguo D, et al. “It means you are grounded” – caregivers’ perspectives on the rehabilitation of children with neurodisability in Malawi. Disabil Rehabil. 2016;38(3):223–234.
   PubMed Web of Science ®Google Scholar
• Bright T, Wallace S, Kuper H. A systematic review of access to rehabilitation for people with disabilities in low- and Middle-Income countries. IJERPH. 2018;15(10):2165.
   Web of Science ®Google Scholar
• International Classification of Functioning. Disability and health: ICF. Geneva: World Health Organization; 2001.
   Google Scholar
• Huang H-H, Sun T-H, Lin C-I, et al. Contextual factors and mastery motivation in young children with and without cerebral palsy: a systematic review. Front Pediatr. 2017;5:224–224.
   PubMed Web of Science ®Google Scholar
• Maciver D, Rutherford M, Arakelyan S, et al. Participation of children with disabilities in school: a realist systematic review of psychosocial and environmental factors. PLoS One. 2019;14(1):e0210511.
   PubMed Web of Science ®Google Scholar
• Thorne S. Interpretive description. USA: Routledge; 2016.
   Google Scholar
• Teodoro IPP, Rebouças V, Thorne S, et al. Interpretive description: a viable methodological approach for nursing research. . Esc Anna Nery. 2018;22(3):e20170287.
   Google Scholar
• Thompson Burdine J, Thorne S, Sandhu G. Interpretive description: a flexible qualitative methodology for medical education research. Med Educ. 2021;55(3):336–343.
   PubMed Web of Science ®Google Scholar
• White NJ. Severe malaria. Malar J. 2022;21(1):284.
   PubMed Web of Science ®Google Scholar
• Malterud K, Siersma VD, Guassora AD. Sample size in qualitative interview studies: guided by information power. Qual Health Res. 2016;26(13):1753–1760.
   PubMed Web of Science ®Google Scholar
• Braun V, Clarke V. To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales. Qual Res Sport Exerc Health. 2021;13(2):201–216.
   Web of Science ®Google Scholar
• Braun V, Clarke V. Reflecting on reflexive thematic analysis. Qual Res Sport Exerc Health. 2019;11(4):589–597.
   Web of Science ®Google Scholar
• Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol. 2021;18(3):328–352.
   Web of Science ®Google Scholar
• Phillippi J, Lauderdale J. A guide to field notes for qualitative research: context and conversation. Qual Health Res. 2018;28(3):381–388.
   PubMed Web of Science ®Google Scholar
• Byrne D. A worked example of braun and clarke’s approach to reflexive thematic analysis. Qual Quant. 2022;56(3):1391–1412.
   Google Scholar
• van Nes F, Abma T, Jonsson H, et al. Language differences in qualitative research: is meaning lost in translation? Eur J Ageing. 2010;7(4):313–316.
   PubMed Web of Science ®Google Scholar
• Smith HJ, Chen J, Liu X. Language and rigour in qualitative research: Problems and principles in analyzing data collected in mandarin. BMC Med Res Methodol. 2008;8(1):44.
   PubMedGoogle Scholar
• Korstjens I, Moser A. Series: Practical guidance to qualitative research. Part 4: trustworthiness and publishing. Eur J Gen Pract. 2018;24(1):120–124.
   PubMed Web of Science ®Google Scholar
• Morse JM. Critical analysis of strategies for determining rigor in qualitative inquiry. Qual Health Res. 2015;25(9):1212–1222.
   PubMed Web of Science ®Google Scholar
• Janesick VJ. Peer debriefing. Hoboken, New Jersey: The Blackwell Encyclopedia of Sociology.
   Google Scholar
• Marian C. The research audit trail: methodological guidance for application in practice. Electr J Business Res Methods. 2020;18(2):166–177.
   Google Scholar
• Bangirana P, Opoka RO, Boivin MJ, et al. Neurocognitive domains affected by cerebral malaria and severe malarial anemia in children. Learn Individ Differ. 2016;46:38–44.
   PubMed Web of Science ®Google Scholar
• Ssenkusu JM, Hodges JS, Opoka RO, et al. Long-term behavioral problems in children with severe malaria. Pediatrics. 2016;138(5):e20161965.
   PubMed Web of Science ®Google Scholar
• Carter JA, Murira GM, Ross AJ, et al. Speech and language sequelae of severe malaria in kenyan children. Brain Inj. 2003;17(3):217–224. Mar
   PubMed Web of Science ®Google Scholar
• Idro R, Marsh K, John CC, et al. Cerebral malaria: mechanisms of brain injury and strategies for improved neurocognitive outcome. Pediatr Res. 2010;68(4):267–274. Oct
   PubMed Web of Science ®Google Scholar
• Ogundele MO. Behavioural and emotional disorders in childhood: a brief overview for paediatricians. World J Clin Pediatr. 2018;7(1):9–26.
   PubMedGoogle Scholar
• Jang J, Dixon DR, Tarbox J, et al. Symptom severity and challenging behavior in children with ASD. Res Autism Spectrum Disord. 2011;5(3):1028–1032.
   Web of Science ®Google Scholar
• National Collaborating Centre for Mental H. National Institute for Health and Care Excellence: guidelines. Challenging behaviour and learning disabilities: Prevention and interventions for people with learning disabilities whose behaviour challenges. London. 2015.
   Google Scholar
• Mutlu A, Büğüşan S, Kara ÖK. Impairments, activity limitations, and participation restrictions of the international classification of functioning, disability, and health model in children with ambulatory cerebral palsy. Saudi Med J. 2017;38(2):176–185.
   PubMed Web of Science ®Google Scholar
• Haverman L, Limperg PF, Young NL, et al. Paediatric health-related quality of life: what is it and why should we measure it? Arch Dis Child. 2017;102(5):393–400.
   PubMed Web of Science ®Google Scholar
• Fayed N, Davis AM, Streiner DL, et al. Children’s perspective of quality of life in epilepsy. Neurology. 2015;84(18):1830–1837.
   PubMed Web of Science ®Google Scholar
• Matza LS, Swensen AR, Flood EM, et al. Assessment of health-related quality of life in children: a review of conceptual, methodological, and regulatory issues. Value Health. 2004;7(1):79–92.
   PubMed Web of Science ®Google Scholar
• Fayed N, de Camargo OK, Kerr E, et al. Generic patient-reported outcomes in child health research: a review of conceptual content using world health organization definitions. Dev Med Child Neurol. 2012;54(12):1085–1095.
   PubMed Web of Science ®Google Scholar
• Law M, Hanna S, Anaby D, et al. Health-related quality of life of children with physical disabilities: a longitudinal study. BMC Pediatr. 2014;14(1):26.
   PubMedGoogle Scholar
• Arkkila E, Räsänen P, Roine RP, et al. Health-related quality of life of children with specific language impairment aged 8-11. Folia Phoniatr Logop. 2011;63(1):27–35.
   PubMed Web of Science ®Google Scholar