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Research Article

Barriers and facilitators to community reintegration in adults following traumatic upper limb amputation: an exploratory study

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Received 14 Feb 2023, Accepted 04 Sep 2023, Published online: 18 Sep 2023

References

  • Saradjian A, Thompson AR, Datta D. The experience of men using an upper limb prosthesis following amputation: positive coping and minimizing feeling different. Disabil Rehabil. 2008;30(11):871–883. doi: 10.1080/09638280701427386.
  • Goldin-Meadow S, Alibali MW. Gesture’s role in speaking, learning, and creating language. Annu Rev Psychol. 2013;64(1):257–283. doi: 10.1146/annurev-psych-113011-143802.
  • Australian Institute of Health and Welfare. Procedures and health interventions (ACHI 10th) Australia 2017-2018. 2019. Available from: https://www.aihw.gov.au/reports/hospitals/procedures-data-cubes/contents/data-cubes.
  • Gallagher P, O’Donovan MA, Doyle A, et al. Environmental barriers, activity limitations and participation restrictions experienced by people with major limb amputation. Prosthet Orthot Int. 2011;35(3):278–284. doi: 10.1177/0309364611407108.
  • Desteli E, İmren Y, Erdoğan M, et al. Comparison of upper limb amputees and lower limb amputees: a psychosocial perspective. Eur J Trauma Emerg Surg. 2014;40(6):735–739. doi: 10.1007/s00068-014-0418-3.
  • Cheung E, Alvaro R, Colotla V. Psychological distress in workers with traumatic upper or lower limb amputations following industrial injuries. Rehabil Psychol. 2003; May48(2):109–112. doi: 10.1037/0090-5550.48.2.109.
  • Van der Sluis CK, Hartman PP, Schoppen T, et al. Job adjustments, job satisfaction and health experience in upper and lower limb amputees. Prosthet Orthot Int. 2009;33(1):41–51. doi: 10.1080/03093640802555917.
  • Korkmaz M, Erbahçeci F, Ulger O, et al. Evaluation of functionality in acquired and congenital upper extremity child amputees. Acta Orthop Traumatol Turc. 2012;46(4):262–268. doi: 10.3944/aott.2012.2631.
  • Smurr L, Gulick K, Yancosek K, et al. Managing the upper extremity amputee: a protocol for success. J Hand Ther. 2008;21(2):160–175; quiz 176. doi: 10.1197/j.jht.2007.09.006.
  • World Health Organization. Towards a common language for functioning, disability and health ICF, the international classification of functioning, disability and health. Geneva: World Health Organization; 2002.
  • Widehammar C, Lidström H, Hermansson L. Environmental barriers to participation and facilitators for use of three types of assistive technology devices. Assist Technol. 2019;31(2):68–76. doi: 10.1080/10400435.2017.1363828.
  • Widehammar C, Pettersson I, Janeslätt G, et al. The influence of environment: experiences of users of myoelectric arm prosthesis—a qualitative study. Prosthet Orthot Int. 2018;42(1):28–36. doi: 10.1177/0309364617704801.
  • Ligthelm EJ, Wright SD. Lived experience of persons with an amputation of the upper limb. Int J Orthop Trauma Nurs. 2014;18(2):99–106. doi: 10.1016/j.ijotn.2013.08.018.
  • Maxwell J, Friedland J, Kirsh B, et al. The value filter: a novel framework for psychosocial adjustment to traumatic upper extremity amputation. J Occup Rehabil. 2022;32(1):87–95. doi: 10.1007/s10926-021-09976-5.
  • Hutchison A, D’Cruz K, Ross P, et al. Exploring the barriers and facilitators to community reintegration for adults following traumatic upper limb amputation: a mixed methods systematic review. Disabil Rehabil. 2023; 1–14. [Epub ahead of print]. doi: 10.1080/09638288.2023.2200038.
  • Resnik L, Borgia M, Silver B. Measuring community integration in persons with limb trauma and amputation: a systematic review. Arch Phys Med Rehabil. 2017;98(3):561–580.e8. doi: 10.1016/j.apmr.2016.08.463.
  • McDonald CL, Bennett CL, Rosner DK, et al. Perceptions of ability among adults with upper limb absence: impacts of learning, identity, and community. Disabil Rehabil. 2020;42(23):3306–3315. doi: 10.1080/09638288.2019.1592243.
  • Reed D. Understanding and meeting the needs of farmers with amputations. Orthop Nurs. 2004;23(6):397–405.
  • Morgado Ramirez DZ, Nakandi B, Ssekitoleko R, et al. The lived experience of people with upper limb absence living in Uganda: a qualitative study. Afr j Disabil. 2022;11(1):1–13.
  • Department of Veterans Affairs, Department of Defense. VA/DoD Clinical Practice Guidelines for the Management of Upper Extremity Amputation Rehabilitation 2014. Available from: https://www.healthquality.va.gov/guidelines/Rehab/UEAR/VADoDCPGManagementofUEAR121614Corrected508.pdf.
  • ICare NSW. Guidance on the support pathway for people with a limb amputation (and trialling a prosthesis). Sydney (Australia): New South Wales Government; 2021.
  • Dijkers M. Community integration: conceptual issues and measurement approaches in rehabilitation research. Topics in Spinal Cord Injury Rehabilitation. 1998;4(1):1–15. doi: 10.1310/BJJA-2018-45KL-0VTL.
  • Sander AM, Clark A, Pappadis MR. What is community integration anyway?: defining meaning following traumatic brain injury. J Head Trauma Rehabil. 2010;25(2):121–127. doi: 10.1097/HTR.0b013e3181cd1635.
  • Levers M-JD. Philosophical paradigms, grounded theory, and perspectives on emergence. SAGE Open. 2013;3(4):215824401351724. doi: 10.1177/2158244013517243.
  • Australian Institute of Health and Welfare. Hospitals info & Downloads Glossary: Australian Government; 2023 [updated 06.05.2023; cited 2023 June 23]. Available from: https://www.aihw.gov.au/reports-data/myhospitals/content/glossary.
  • Keeves J, Hutchison A, D’Cruz K, et al. Social and community participation following traumatic lower limb amputation: an exploratory qualitative study. Disabil Rehabil. 2022; 1–9. [Epub ahead of print]. doi: 10.1080/09638288.2022.2152114.
  • Dahm J, Ponsford J. Predictors of global functioning and employment 10 years following traumatic brain injury compared with orthopaedic injury. Brain Inj. 2015;29(13-14):1539–1546. doi: 10.3109/02699052.2015.1075141.
  • Liamputtong P. Research methods and evidence-based practice. Melbourne (Australia): Oxford University Press; 2021.
  • Robinson-Wood T, Balogun-Mwangi O, Weber A, et al. What is it going to be like?": a phenomenological investigation of racial, gendered, and sexual microaggressions among highly educated individuals. Qual Psychol. 2020;7(1):43–58. doi: 10.1037/qup0000113.
  • Braun V, Clarke V. Successful qualitative research: a practical guide for beginners. London (England): Sage; 2013.
  • Braun V, Clarke V. Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern‐based qualitative analytic approaches. Couns and Psychother Res. 2021;21(1):37–47. doi: 10.1002/capr.12360.
  • Braun V, Clarke V. One size fits all? What counts as quality practice in (reflexive) thematic analysis? Qual Res Psychol. 2021;18(3):328–352. doi: 10.1080/14780887.2020.1769238.
  • Braun V, Clarke V. Conceptual and design thinking for thematic analysis. Qual Psychol. 2022;9(1):3–26. doi: 10.1037/qup0000196.
  • Dey I. Grounding grounded theory: guidelines for qualitative inquiry. San Diego (CA): Academic Press; 1999.
  • World Health Organization. WHO standards for prosthetics and orthotics. Geneva. World Health Organization; 2017.
  • Kristjansdottir F, Dahlin LB, Rosberg H, et al. Social participation in persons with upper limb amputation receiving an esthetic prosthesis. J Hand Ther. 2020;33(4):520–527. doi: 10.1016/j.jht.2019.03.010.
  • Messinger S, Bozorghadad S, Pasquina P. Social relationships in rehabilitation and their impact on positive outcomes among amputees with lower limb loss at Walter Reed national military medical center. J Rehabil Med. 2018;50(1):86–93. doi: 10.2340/16501977-2274.
  • Reichmann JP, Bartman KR. An integrative review of peer support for patients undergoing major limb amputation. J Vasc Nurs. 2018;36(1):34–39. doi: 10.1016/j.jvn.2017.10.002.
  • Radenovic M, Aguilar K, Wyrough AB, et al. Understanding transitions in care for people with major lower limb amputations from inpatient rehabilitation to home: a descriptive qualitative study. Disabil Rehabil. 2022;44(16):4211–4219. doi: 10.1080/09638288.2021.1882009.
  • Valizadeh S, Dadkhah B, Mohammadi E, et al. The perception of trauma patients from social support in adjustment to lower-limb amputation: a qualitative study. Indian J. 2014;20(3):229–238.
  • Stutts LA, Stanaland AW. Posttraumatic growth in individuals with amputations. Disabil Health J. 2016;9(1):167–171. doi: 10.1016/j.dhjo.2015.07.005.
  • Stutts LA, Bills SE, Erwin SR, et al. Coping and posttraumatic growth in women with limb amputations. Psychol Health Med. 2015;20(6):742–752. doi: 10.1080/13548506.2015.1009379.
  • Simpson GK, Daher M, Hodgkinson A, et al. Comparing the injury profile, service use, outcomes, and comorbidities of people with severe TBI across urban, regional, and remote populations in New South Wales: a multicentre study. J Head Trauma Rehabil. 2016;31(2):E26–E38. doi: 10.1097/HTR.0000000000000160.
  • Gabbe BJ, Sleney JS, Gosling CM, et al. Patient perspectives of care in a regionalised trauma system: lessons from the victorian state trauma system. Med J Aust. 2013;198(3):149–152. doi: 10.5694/mja12.11179.
  • Bandura A. Self-efficacy: the exercise of control. New York: W.H. Freeman; 1997.
  • Oaksford K, Frude N, Cuddihy R. Positive coping and stress-related psychological growth following lower limb amputation. Rehabil Psychol. 2005;50(3):266–277. doi: 10.1037/0090-5550.50.3.266.
  • Tse S, Tsoi EWS, Hamilton B, et al. Uses of strength-based interventions for people with serious mental illness: a critical review. Int J Soc Psychiatry. 2016;62(3):281–291. doi: 10.1177/0020764015623970.
  • McKenna S, Jones F, Glenfield P, et al. Bridges self-management program for people with stroke in the community: a feasibility randomized controlled trial. Int J Stroke. 2015;10(5):697–704. doi: 10.1111/ijs.12195.
  • Nott M, Wiseman L, Seymour T, et al. Stroke self-management and the role of self-efficacy. Disabil Rehabil. 2021;43(10):1410–1419. doi: 10.1080/09638288.2019.1666431.
  • Tedeschi RG, Calhoun LG. Posttraumatic growth: conceptual foundations and empirical evidence. Psychological Inquiry. 2004;15(1):1–18. doi: 10.1207/s15327965pli1501_01.
  • Dyball D, Bennett AN, Schofield S, et al. Post-traumatic growth amongst UK armed forces personnel who were deployed to Afghanistan and the role of combat injury, mental health and pain: the ADVANCE cohort study. Psychol Med. 2023;53(11):5322–5331. doi: 10.1017/S0033291722002410.
  • Coyne IT. Sampling in qualitative research. Purposeful and theoretical sampling; merging or clear boundaries? J Adv Nurs. 1997; 26(3):623–630. doi: 10.1046/j.1365-2648.1997.t01-25-00999.x.
  • Etikan I, Musa SA, Alkassim RS. Comparison of convenience sampling and purposive sampling. AJTAS. 2016;5(1):1–4. doi: 10.11648/j.ajtas.20160501.11.
  • Pezzin LE, Dillingham TR, MacKenzie EJ. Rehabilitation and the long-term outcomes of persons with trauma-related amputations. Arch Phys Med Rehabil. 2000;81(3):292–300. doi: 10.1016/s0003-9993(00)90074-1.
  • Østlie K, Skjeldal OH, Garfelt B, et al. Adult acquired major upper limb amputation in Norway: prevalence, demographic features and amputation specific features. A population-based survey. Disabil Rehabil. 2011;33(17-18):1636–1649. doi: 10.3109/09638288.2010.541973.
  • Kobayashi L, Inaba K, Barmparas G, et al. Traumatic limb amputations at a level I trauma center. Eur J Trauma Emerg Surg. 2011;37(1):67–72. doi: 10.1007/s00068-010-0011-3.
  • Robinson OC. Sampling in interview-based qualitative research: a theoretical and practical guide. Qual Res Psychol. 2014;11(1):25–41. doi: 10.1080/14780887.2013.801543.
  • Bellon M, Idle J, Lay K, et al. Community in the pandemic: experiences and strategies by people with acquired brain injury and their families during COVID-19. 1. Disabil Rehabil. 2023;45(6):1038–1045. doi: 10.1080/09638288.2022.2049377.
  • Liamputtong P. Research methods in health: foundations for evidence-based practice. 3rd ed. Melbourne (Australia): Oxford University Press; 2016.
  • Department of Health and Aged Care. Modified Monash Model 2021 [cited 2023 June 11]. Available from: https://www.health.gov.au/topics/rural-health-workforce/classifications/mmm.

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