Exploring the experiences of ableism among Asian children and youth with disabilities and their families: a systematic review of qualitative studies

References

• World Health Organization. Towards a common language for functioning, disability and health: the internationality classification of functioning, disability and health. Geneva: World Health Organization; 2002.
   Google Scholar
• United Nations Children’s Fund (UNICEF). Seen, counted, included: using data to shed light on the well-being of children with disabilities. New York: UNICEF; 2021.
   Google Scholar
• Coleman-Fountain E. Youthful stories of normality and difference. Sociology. 2017;51(4):766–782.
   Google Scholar
• Flynn S. Towards parity in protection: barriers to effective child protection and welfare assessment with disabled children in the republic of Ireland. Child Care in Practice. 2021;27(4):333–351.
   Google Scholar
• Johannsdottir A, Egilson S, Haraldsdottir F. Implications of internalised ableism for the health and wellbeing of disabled young people. Sociol Health Illn. 2022;44(2):360–376.
   PubMed Web of Science ®Google Scholar
• Krueger-Henney P. Through space into the flesh: mapping inscriptions of anti-black racist and ableist schooling on young people’s bodies. Curriculum Inquiry. 2019;49(4):426–441.
   Web of Science ®Google Scholar
• Slater J, Agustsdottir E, Haraldsdottir F. Becoming intelligible woman: gender, disability and resistance at the border zone of youth. Fem Psychol. 2018;28(3):409–426.
   PubMed Web of Science ®Google Scholar
• Thomas-Skaf BA, Jenney A. Bringing social justice into focus: “trauma-informed” work with children with disabilities. Child Care Practice. 2021;27(4):316–332.
   Google Scholar
• Penketh C. ‘Children see before they speak’: an exploration of ableism in art education. Disabil Soc. 2017;32(1):110–127.
   Web of Science ®Google Scholar
• Statistics Canada. Educational experiences of youth with disabilities. 2019. Available from: https://www150.statcan.gc.ca/n1/pub/11-627-m/11-627-m2019049-eng.htm.
   Google Scholar
• Calder-Dawe O, Witten K, Carroll P. Being the body in question: young people’s accounts of everyday ableism, visibility and disability. Disabil Soc. 2020;35(1):132–155.
   Web of Science ®Google Scholar
• Watermeyer B, Görgens T. Disability and internalized oppression.In: Internalized oppression: the psychology of marginalized groups. New York: Springer; 2014. p. 253–280.
   Google Scholar
• Dovidio JF, Pagotto L, Hebl MR. Implicit attitudes and discrimination against people with physical disabilities, in disability and aging discrimination. 2011, Springer: new York. p. 157–183.
   Google Scholar
• Daley A, Phipps S, Branscombe NR. The social complexities of disability: discrimination, belonging and life satisfaction among Canadian youth. SSM Popul Health. 2018;5:55–63.
   PubMed Web of Science ®Google Scholar
• Duke TS. Lesbian, gay, bisexual, and transgender youth with disabilities: a meta-synthesis. Journal of LGBT Youth. 2011;8(1):1–52.
   Google Scholar
• Artiles AJ. Untangling the racialization of disabilities. Du Bois Rev. 2013;10(2):329–347.
   Web of Science ®Google Scholar
• Orange LM. Skills development for multicultural rehabilitation counseling: a quality of life perspective. In: Disability and diversity: new leadership for a new era. Washington (DC): Howard University Research and Training Center;1995.
   Google Scholar
• Blackorby J, Wagner M. Longitudinal postschool outcomes of youth with disabilities: findings from the national longitudinal transition study. Except Child. 1996;62(5):399–413.
   Web of Science ®Google Scholar
• Daudji A, Eby S, Foo T, et al. Perceptions of disability among South Asian immigrant mothers of children with disabilities in Canada: implications for rehabilitation service delivery. Disabil Rehabil. 2011;33(6):511–521.
   PubMed Web of Science ®Google Scholar
• Geenen S, Powers L, Vasquez AL, et al. Understanding and promoting the transition of minority adolescents. Career Dev Except Individuals. 2003;26(1):27–46.
   Google Scholar
• Lindsay S, Tetrault S, Desmaris C, et al. Social workers as “cultural brokers" in providing culturally sensitive care to immigrant families raising a child with a physical disability. Health Soc Work. 2014;39(2):e10–e20.
   Web of Science ®Google Scholar
• Achola EO. Practicing what We preach: reclaiming the promise of multicultural transition programming. Career Dev Transit Except Individuals. 2019;42(3):188–193.
   Web of Science ®Google Scholar
• Eilenberg JS, Paff M, Harrison AJ, et al. Disparities based on race, ethnicity, and socioeconomic status over the transition to adulthood among adolescents and young adults on the autism spectrum: a systematic review. Curr Psychiatry Rep. 2019;21(5):32.
   PubMed Web of Science ®Google Scholar
• Smith KA, Gehricke J-G, Iadarola S, et al. Disparities in service use among children with autism: a systematic review. Pediatrics. 2020;145(Suppl 1):S35–S46.
   PubMedGoogle Scholar
• Geenen S, Powers LE, Lopez-Vasquez A. Multicultural aspects of parent involvement in transition planning. Exceptional Children. 2001;67(2):265–282.
   Google Scholar
• Schuster JL, Timmons JC, Moloney M. Barriers to successful transition for young adults who receive SSI and their families. Career Dev Except Individuals. 2003;26(1):47–66.
   Google Scholar
• Landmark LJ, Zhang DD, Montoya L. Culturally diverse parents’ experiences in their children’s transition: knowledge and involvement. Career Dev Transit Except Individuals. 2007;30(2):68–79.
   Google Scholar
• Ali Z, Fazil Q, Bywaters P, et al. Disability, ethnicity and childhood: a critical review of research. Disabil Soc. 2001;16(7):949–967.
   Web of Science ®Google Scholar
• Lindsay S, et al. Exploring the relationships between race, ethnicity, and school and work outcomes among youth and young adults with disabilities: a scoping review. Disabil Rehabil. 2022;44(25):8110–8129.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Hsu S, Ragunathan S, et al. Exploring the lived experiences of ethnic minority youth with disabilities: a systematic review and meta synthesis of qualitative data. Disabil Rehabil. 2023;45(4):588–601.
   PubMed Web of Science ®Google Scholar
• Htut M, Ho E, Wiles J. A study of Asian children who are diagnosed with autism spectrum disorder and available support services in Auckland, New Zealand. J Autism Dev Disord. 2020;50(6):1855–1865.
   PubMed Web of Science ®Google Scholar
• Namkung V. Why Asian American kids are under-diagnosed when it comes to learning disabilities. 2021 [cited 2023 May 17]; Available from: https://www.nbcnews.com/news/asian-america/asian-american-kids-are-diagnosed-comes-learning-disabilities-rcna2425
   Google Scholar
• Yu T. The cultural dynamics of being Asian and disabled. 2021. Available from: https://rootedinrights.org/the-cultural-dynamics-of-being-asian-and-disabled/
   Google Scholar
• Yan KK, Accordino MP, Boutin DL, et al. Disability and the Asian culture. sgrjarc. 2014;45(2):4–8.
   Google Scholar
• Lu W. What it’s like being disabled and Asian in America. 2021. Available from: https://www.huffpost.com/entry/disability-asian-americans-immigrants-stigma_n_5cd1c2c7e4b0548b7360bf26.
   Google Scholar
• UNICEF. Children with disabilities. [cited 2023 May 30]. Available from: https://www.unicef.org/eap/what-we-do/children-with-disabilities.
   Google Scholar
• Raghavan R, Pawson N, Small N. Family carers’ perspectives on post-school transition of young people with intellectual disabilities with special reference to ethnicity. J Intellect Disabil Res. 2013;57(10):936–946.
   PubMed Web of Science ®Google Scholar
• Tait K, Fung F, Hu A, et al. Understanding Hong Kong Chinese families’ experiences of an autism/ASD diagnosis. J Autism Dev Disord. 2016;46(4):1164–1183.
   PubMed Web of Science ®Google Scholar
• Emerson E, Robertson J, Wood J. Levels of psychological distress experienced by family carers of children and adolescents with intellectual disabilities in an urban conurbation. J Appl Res Int Dis. 2004;17(2):77–84.
   Web of Science ®Google Scholar
• Kwon EH, et al. Adapted physical education: the perspective of Asian parents. Int J Environ Res Public Health. 2021;19(1):1–10.
   PubMed Web of Science ®Google Scholar
• Lai Y, Ishiyama FI. Involvement of immigrant Chinese Canadian mothers of children with disabilities. Except Children. 2004;71(1):97–108.
   Web of Science ®Google Scholar
• Jones L, Atkin K, Ahmad WIU. Supporting Asian Deaf Young People and their families: the role of professionals and services. Disabil Soc. 2001;16(1):51–70.
   Web of Science ®Google Scholar
• Sage KD, Jegatheesan B. Perceptions of siblings with autism and relationships with them: European American and Asian American siblings draw and tell. J Intellect Dev Disabil. 2010;35(2):92–103.
   PubMed Web of Science ®Google Scholar
• Su C, Khanlou N, Mustafa N. Chinese immigrant mothers of children with developmental disabilities: stressors and social support. Int J Ment Health Addiction. 2021;19(1):1–18.
   Web of Science ®Google Scholar
• Zechella AN, Raval VV. Parenting children with intellectual and developmental disabilities in Asian Indian families in the United States. J Child Fam Stud. 2016;25(4):1295–1309.
   Web of Science ®Google Scholar
• Lo L, Bui O. Transition planning: Voices of Chinese and Vietnamese parents of youth with autism and intellectual disabilities. Career Dev Transit Except Individuals. 2020;43(2):89–100.
   Web of Science ®Google Scholar
• Kirmayer LJ, Jarvis GE. Culturally responsive services as a path to equity in mental healthcare. Healthc Pap. 2019;18(2):11–23.
   PubMedGoogle Scholar
• Alves I, Fazzi L, Griffo G. Human rights, UN convention, and the International Classification of Functioning, Disability and Health: collecting data on persons with disabilities? Am J Phys Med Rehabil. 2012;91(13 Suppl 1):S159–S62.
   PubMedGoogle Scholar
• Saini M, Shlonsky A. Systematic synthesis of qualitative research. 2012, Oxford: Oxford University Press.
   Google Scholar
• Tong A, Jones J, Craig JC, et al. Children’s experiences of living with juvenile idiopathic arthritis: thematic synthesis of qualitative studies. Arthritis Care Res (Hoboken). 2012;64(9):1392–1404.
   PubMed Web of Science ®Google Scholar
• Luker J, Murray C, Lynch E, et al. Carers’ experiences, needs, and preferences during inpatient stroke rehabilitation: a systematic review of qualitative studies. Arch Phys Med Rehabil. 2017;98(9):1852–1862.e13.
   PubMed Web of Science ®Google Scholar
• Divanoglou A, Georgiou M. Perceived effectiveness and mechanisms of community peer-based programmes for spinal cord injuries—a systematic review of qualitative findings. Spinal Cord. 2017;55(3):225–234.
   PubMed Web of Science ®Google Scholar
• van Zyl C, Badenhorst M, Hanekom S, et al. Unravelling ‘low-resource settings’: a systematic scoping review with qualitative content analysis. BMJ Glob Health. 2021;6(6):e005190.
   PubMed Web of Science ®Google Scholar
• Covidence. Better systematic review management. [cited 2022 Aug 22]. Available from: https://www.covidence.org/.
   Google Scholar
• . World Health Organization. Disabilities. Geneva: World Health Organization; 2015. http://www.who.int/topics/disabilities/en/.
   Google Scholar
• The World Bank. Countries and economies. [cited 2023 May 14]. Available from: https://data.worldbank.org/country.
   Google Scholar
• Paterson BL, Thorne SE, Canam C, et al. Meta-study of qualitative health research: a practical guide to meta-analysis and meta-synthesis. Vol. 3. Thousand Oaks (CA): SAGE; 2001.
   Google Scholar
• Zimmer L. Qualitative meta-synthesis: a question of dialoguing with texts. J Adv Nurs. 2006;53(3):311–318.
   PubMed Web of Science ®Google Scholar
• Major CH, Savin-Baden M. An introduction to qualitative research synthesis: managing the information explosion in social science research. London: Routledge; 2012.
   Google Scholar
• Sandelowski M, Barroso J, Voils CI. Using qualitative metasummary to synthesize qualitative and quantitative descriptive findings. Res Nurs Health. 2007;30(1):99–111.
   PubMed Web of Science ®Google Scholar
• Kmet LM, L RC, Cook LS. Standard quality assessment criteria for evaluating primary research papers from a variety of fields. Edmonton: Alberta Heritage Foundation; 2004.
   Google Scholar
• Asa GA, Fauk NK, Ward PR, et al. The psychosocial and economic impacts on female caregivers and families caring for children with a disability in Belu District, Indonesia. PLoS One. 2020;15(11):e0240921.
   PubMed Web of Science ®Google Scholar
• Chen CH, Shu BC. The process of perceiving stigmatization: perspectives from Taiwanese young people with intellectual disability. J Appl Res Intellect Disabil. 2012;25(3):240–251.
   PubMed Web of Science ®Google Scholar
• Chin W-C, Li H-M, Chao K-Y, et al. Stressors experienced by children with autism spectrum disorder in Taiwan: perspectives of children and their parents. Nurs Health Sci. 2019;21(2):206–213.
   PubMed Web of Science ®Google Scholar
• Divan G, Vajaratkar V, Desai MU, et al. Challenges, coping strategies, and unmet needs of families with a child with autism spectrum disorder in Goa, India. Autism Res. 2012;5(3):190–200.
   PubMed Web of Science ®Google Scholar
• Feaster D, Franzen A. From stigma to acceptance: intellectual and developmental disabilities in Central China. J Intellect Disabil. 2021;25(4):507–526.
   PubMed Web of Science ®Google Scholar
• Ha VS, Whittaker A, Whittaker M, et al. Living with autism spectrum disorder in Hanoi, Vietnam. Soc Sci Med. 2014;120:278–285.
   PubMed Web of Science ®Google Scholar
• Huang Y-P, Wang S-Y, Kellett U, et al. Shame, suffering, and believing in the family: the experiences of grandmothers of a grandchild with a developmental delay or disability in the context of Chinese culture. J Fam Nurs. 2020;26(1):52–64.
   PubMed Web of Science ®Google Scholar
• Hussain MM, Raihan MMH. Disadvantage, discrimination, and despair: parental experiences of caring for children with disability in Bangladesh - Hussain - 2022 - Asian social work and policy review - Wiley online library. Asian Soc Wrk Pol Rev. 2022;16(1):80–91.
   Web of Science ®Google Scholar
• Kiling I, Due C, Li D, et al. Perceptions of disability, environmental risk factors and available services among local leaders and parents of young children with disabilities in West Timor, Indonesia. Disabil Rehabil. 2019;41(20):2421–2432.
   PubMed Web of Science ®Google Scholar
• Lam LW, Mackenzie AE. Coping with a child with down syndrome: the experiences of mothers in Hong Kong. Qual Health Res. 2002;12(2):223–237.
   PubMed Web of Science ®Google Scholar
• Lee S, Kim S-S. The life experiences of Korean children and adolescents with complex congenital heart disease: a qualitative study. Nurs Health Sci. 2012;14(3):398–404.
   PubMed Web of Science ®Google Scholar
• Lim F, Downs J, Li J, et al. Caring for a child with severe intellectual disability in China: the example of Rett syndrome. Disabil Rehabil. 2013;35(4):343–351.
   PubMed Web of Science ®Google Scholar
• Minhas A, Vajaratkar V, Divan G, et al. Parents’ perspectives on care of children with autistic spectrum disorder in South Asia - views from Pakistan and India. Int Rev Psychiatry. 2015;27(3):247–256.
   PubMed Web of Science ®Google Scholar
• Mufti G-E-R, Towell T, Cartwright T. Pakistani children’s experiences of growing up with beta-thalassemia major. Qual Health Res. 2015;25(3):386–396.
   PubMed Web of Science ®Google Scholar
• Nahal MS, Axelsson ÅB, Imam A, et al. Palestinian children’s narratives about living with spina bifida: stigma, vulnerability, and social exclusion. Child Care Health Dev. 2019;45(1):54–62.
   PubMed Web of Science ®Google Scholar
• Nuri RP, Aldersey HM, Ghahari S, et al. Experience of families in accessing government-led support for children with disabilities in Bangladesh. Disabil Rehabil. 2022;44(8):1354–1366.
   PubMed Web of Science ®Google Scholar
• Park J, Yoon J. A phenomenological study of parenting stress among Korean mothers of deaf children. Am Ann Deaf. 2018;163(4):440–462.
   PubMed Web of Science ®Google Scholar
• Roy T, Chatterjee SC. The experiences of adolescents with thalassemia in West Bengal, India. Qual Health Res. 2007;17(1):85–93.
   PubMed Web of Science ®Google Scholar
• Shang X, Fisher KR, Xie J. Discrimination against children with disability in China. Int J Soc Welfare. 2011;17(1):85–93.
   Google Scholar
• Shunmugasundaram C, Veeraiah S. Caregivers’ perception of psychosocial issues of pediatric. J Psychosoc Oncol Res Pract. 2020;2(1):e15.
   Google Scholar
• Sopaul T. An interpretative phenomenological analysis of families affected by autism in Dubai. Dubai Med J. 2019;2(3):82–89.
   Google Scholar
• Taheri L, Mirlashari J, Modaresi M, et al. Cough in adolescent with cystic fibrosis, from nightmare to COVID-19 stigma: a qualitative thematic analysis. J Pediatr Nurs. 2022;64:119–125.
   PubMed Web of Science ®Google Scholar
• Vadivelan K, Sekar P, Sruthi SS, et al. Burden of caregivers of children with cerebral palsy: an intersectional analysis of gender, poverty, stigma, and public policy. BMC Public Health. 2020;20(1):645.
   PubMed Web of Science ®Google Scholar
• Wu J. Mothering special children: negotiating gender, disability, and special education in contemporary China. Harv Educ Rev. 2020;90(1):26–48.
   Web of Science ®Google Scholar
• Yoosefi Lebni J, Ziapour A, Khosravi B, et al. Lived experience of mothers of children with disabilities: a qualitative study of Iran. J Public Health (Berl.). 2021;29(5):1173–1179.
   Web of Science ®Google Scholar
• Yousafzai AK, Farrukh Z, Khan K. A source of strength and empowerment? An exploration of the influence of disabled children on the lives of their mothers in Karachi, Pakistan. Disabil Rehabil. 2011;33(12):989–998.
   PubMed Web of Science ®Google Scholar
• Yu M, To S-M Exploring the identity constitution and identity capital of youth with physical disabilities: a qualitative study in mainland China. Child Youth Serv Rev. 2019;96:163–171.
   Web of Science ®Google Scholar
• Akbar S, Woods K. Understanding Pakistani parents’ experience of having a child with special educational needs and disability (SEND) in England. Eur J Spec Needs Educ. 2020;35(5):663–678.
   Web of Science ®Google Scholar
• Bywaters P, Ali Z, Fazil Q, et al. Attitudes towards disability amongst Pakistani and Bangladeshi parents of disabled children in the UK: considerations for service providers and the disability movement. Health Soc Care Community. 2003;11(6):502–509.
   PubMed Web of Science ®Google Scholar
• Croot EJ, Grant G, Cooper CL, et al. Perceptions of the causes of childhood disability among Pakistani families living in the UK. Health Soc Care Community. 2008;16(6):606–613.
   PubMed Web of Science ®Google Scholar
• Fazil Q, Bywaters P, Ali Z, et al. Disadvantage and discrimination compounded: the experience of Pakistani and Bangladeshi parents of disabled children in the UK. Disabil Soc. 2002;17(3):237–253.
   Web of Science ®Google Scholar
• Heer K, Larkin M, Burchess I, et al. The cultural context of care-giving: qualitative accounts from South Asian parents who care for a child with intellectual disabilities in the UK. Adv Mental Health Intellect Disabil. 2012;6(4):179–191.
   Google Scholar
• Heer K, Larkin M, Rose J. The experiences of British South Asian carers caring for a child with developmental disabilities in the UK. Tizard Learn Disabil Rev. 2015;20(4):228–238.
   Web of Science ®Google Scholar
• Jegatheesan B. Cross-cultural issues in parent-professional interactions: a qualitative study of perceptions of Asian American mothers of children with developmental disabilities. Res Pract Persons Severe Disabil. 2009;34(3–4):123–136.
   Web of Science ®Google Scholar
• Luong J, Yoder MK, Canham D. Southeast Asian parents raising a child with autism: a qualitative investigation of coping styles. J Sch Nurs. 2009;25(3):222–229.
   PubMed Web of Science ®Google Scholar
• Sim SS, Bourke-Taylor H, Fossey E, et al. Being more than a mother: a qualitative study of Asian immigrant mothers in Australia who have children with disabilities. Res Dev Disabil. 2021;117:104060.
   PubMed Web of Science ®Google Scholar
• Son E, Moring NS, Igdalsky L, et al. Navigating the health-care system in community: perspectives from Asian immigrant parents of children with special health-care needs. J Child Health Care. 2018;22(2):251–268.
   PubMed Web of Science ®Google Scholar
• Chew J, Carpenter J, Haase AM. Living with epilepsy in adolescence-a qualitative study of young people’s experiences in Singapore: peer socialization, autonomy, and self-esteem. Child Care Health Dev. 2019;45(2):241–250.
   PubMed Web of Science ®Google Scholar
• Kim KM, Hwang SK. Being a ‘good’ mother: immigrant mothers of disabled children. International Social Work. 2019;62(4):1198–1212.
   Web of Science ®Google Scholar
• Kumar N, Turbitt E, Biesecker BB, et al. Managing the need to tell: triggers and strategic disclosure of thalassemia major in Singapore. Am J Med Genet A. 2019;179(5):762–769.
   PubMed Web of Science ®Google Scholar
• Son E, Parish SL, Igdalsky L. Disparities in health care quality among Asian children with special health care needs. Health Soc Work. 2017;42(2):95–102.
   PubMed Web of Science ®Google Scholar
• Sim SS, Bourke-Taylor H, Fossey E, et al. The everyday occupations of East Asian mothers who have children with disabilities: a scoping review. Res Dev Disabil. 2021;110:103849.
   PubMed Web of Science ®Google Scholar
• Chen ES, Chang WC, Hui CL, et al. Self-stigma and affiliate stigma in first-episode psychosis patients and their caregivers. Soc Psychiatry Psychiatr Epidemiol. 2016;51(9):1225–1231.
   PubMed Web of Science ®Google Scholar
• Tucker JR, Hammer JH, Vogel DL, et al. Disentangling self-stigma: are mental illness and help-seeking self-stigmas different? J Couns Psychol. 2013;60(4):520–531.
   PubMed Web of Science ®Google Scholar
• Park S, Park KS. Family stigma: a concept analysis. Asian Nurs Res. 2014;8(3):165–171.
   Web of Science ®Google Scholar
• Kerrigan K, Green G. “Ghosts from the past”: the re-emergence of internalized religious stigma following diagnosis of HIV among Northern Irish Gay Men. J Homosex. 2019;66(5):635–652.
   PubMed Web of Science ®Google Scholar
• Quinn DM, Chaudoir SR. Living with a concealable stigmatized identity: the impact of anticipated stigma, centrality, salience, and cultural stigma on psychological distress and health. J Pers Soc Psychol. 2009;97(4):634–651.
   PubMed Web of Science ®Google Scholar
• Cooc N, Yang M. Underrepresented and overlooked: a review of Asian American children with disabilities. Multiple Voices Ethnically Diverse Except Learners. 2017;17(1):3–19.
   Google Scholar
• Rishworth A, Cao T, Niraula A, et al. Health care use and barriers to care for Chronic Inflammatory Diseases (CID) among first and second generation South Asian immigrant children and parents in Ontario Canada. Int J Environ Res Public Health. 2022;19(21):14608.
   PubMed Web of Science ®Google Scholar
• Mascayano F, Tapia T, Schilling S, et al. Stigma toward mental illness in Latin America and the Caribbean: a systematic review. Braz J Psychiatry. 2016;38(1):73–85.
   PubMed Web of Science ®Google Scholar
• Ali A, K E, Molteno C, et al. Ethnicity and self‐reported experiences of stigma in adults with intellectual disability in Cape Town, South Africa. J Intellect Disabil Res. 2015;59(6):530–540.
   PubMed Web of Science ®Google Scholar
• Tilahun D, Hanlon C, Fekadu A, et al. Stigma, explanatory models and unmet needs of caregivers of children with developmental disorders in a low-income African country: a cross-sectional facility-based survey. BMC Health Serv Res. 2016;16(1):152.
   PubMedGoogle Scholar
• Rodgers CR, Flores MW, Bassey O, et al. Racial/ethnic disparity trends in children’s mental health care access and expenditures from 2010–2017: disparities remain despite sweeping policy reform. J Am Acad Child Adolesc Psychiatry. 2022;61(7):915–925.
   PubMed Web of Science ®Google Scholar
• Won JW, Krajicek M, Lee H. Culturally and linguistically competent care of a Korean-American child with autism. Illness Crisis Loss. 2004;12(2):139–154.
   Google Scholar
• Yu SM, Huang ZJ, Singh GK. Health status and health services access and utilization among Chinese, Filipino, Japanese, Korean, South Asian, and Vietnamese children in California. Am J Public Health. 2010;100(5):823–830.
   PubMed Web of Science ®Google Scholar
• Sheridan J, Scior K. Attitudes towards people with intellectual disabilities: a comparison of young people from British South Asian and White British backgrounds. Res Dev Disabil. 2013;34(4):1240–1247.
   PubMed Web of Science ®Google Scholar
• Robertson J, Raghavan R, Emerson E, et al. What do we know about the health and health care of people with intellectual disabilities from minority ethnic groups in the United Kingdom? A systematic review. J Appl Res Intellect Disabil. 2019;32(6):1310–1334.
   PubMed Web of Science ®Google Scholar
• Mkabile S, Garrun KL, Shelton M, et al. African families’ and caregivers’ experiences of raising a child with intellectual disability: a narrative synthesis of qualitative studies. Afr J Disabil. 2021;10:827.
   PubMed Web of Science ®Google Scholar
• Kwok K, Ching SKLY. Navigating stigma and discrimination: experiences of migrant children with special needs and their families in accessing education and healthcare in Hong Kong. Int J Environ Res Public Health. 2022;19(10):1–16.
   Web of Science ®Google Scholar
• Balaraman KK, Dan S, Ortega N, et al. Psychological distress and mental health service utilization disparities in disaggregated Asian American populations, 2006–2018. Asian Am J Psychol. 2023;14(3):239–249.
   Web of Science ®Google Scholar
• UNICEF. Reducing stigma and discrimination against children with disabilities. New York: UNICEF; 2019.
   Google Scholar
• Holland Bloorview Kids Rehabilitation Hospital. It’s time to end ableism. Start by talking about it. 2023 [cited 2023 July 11]. Available from: https://deareverybody.hollandbloorview.ca/
   Google Scholar
• Rivera-Figueroa K, Marfo NYA, Eigsti IM. Parental perceptions of autism spectrum disorder in latinx and black sociocultural contexts: a systematic review. Am J Intellect Dev Disabil. 2022;127(1):42–63.
   PubMedGoogle Scholar
• Lindsay S, Cagliostro E, Albarico M, et al. Gender matters in the transition to employment for young adults with physical disabilities. Disabil Rehabil. 2019;41(3):319–332.
   PubMed Web of Science ®Google Scholar
• Lindsay S, Cagliostro E, Albarico M, et al. A systematic review of the role of gender in securing and maintaining employment among youth and young adults with disabilities. J Occup Rehabil. 2018;28(2):232–251.
   PubMed Web of Science ®Google Scholar