Online mindfulness program (COndiVIDere) for people with multiple sclerosis in the time of COVID-19: a pilot longitudinal study

References

• World Health Organization. Coronavirus disease (COVID-19). URL 2022;https://www.who.int/emergencies/diseases/novel-coronavirus-2019 (accessed Mar 30, 2020).
   Google Scholar
• Altieri M, Capuano R, Bisecco A, et al. The psychological impact of covid-19 pandemic on people with multiple sclerosis: a meta-analysis. Mult Scler Relat Disord. 2022;61:103774. doi:10.1016/j.msard.2022.103774.
   PubMed Web of Science ®Google Scholar
• http://www.salute.gov.it/portale/nuovocoronavirus/dettaglioContenutiNuovoCoronavirus.jsp?lingua=italiano&id=5351&area=nuovoCoronavirus&menu=vuoto (accessed Mar 30, doi:10.1016/j.msard.2022.103774.
   Google Scholar
• Brooks SK, Webster RK, Smith LE, et al. The psychological impact of quarantine and how to reduce it: rapid review of the evidence. Lancet. 2020;395(10227):912–920. doi:10.1016/S0140-6736(20)30460-8.
   PubMed Web of Science ®Google Scholar
• Hawryluck L, Gold WL, Robinson S, et al. SARS control and psychological effects of quarantine, Toronto, Canada. Emerg Infect Dis. 2004;10(7):1206–1212. doi:10.3201/eid1007.030703.
   PubMed Web of Science ®Google Scholar
• Reynolds DL, Garay JR, Deamond SL, et al. Understanding, compliance and psychological impact of the SARS quarantine experience. Epidemiol Infect. 2008;136(7):997–1007. doi:10.1017/S0950268807009156.
   PubMed Web of Science ®Google Scholar
• Robertson E, Hershenfield K, Grace SL, et al. The psychosocial effects of being quarantined following exposure to SARS: a qualitative study of Toronto health care workers. Can J Psychiatry. 2004;49(6):403–407. doi:10.1177/070674370404900612.
   PubMed Web of Science ®Google Scholar
• Lerthattasilp T, Kosulwit L, Phanasathit M, et al. Effect of an online psychological support group on patients with COVID-19 in a Thai field hospital: a real world study. JHR. 2022;36(6):1040–1046. doi:10.1108/JHR-01-2021-0044.
   Google Scholar
• Avramchuk O, Nizdran-Fedorovych O, Blozva P, et al. Internet-delivered low-intensity CBT for people with social anxiety disorder in a period of COVID-19: results of pilot research. Wiad Lek. 2022;75(12):3109–3114. doi:10.36740/WLek202212136.
   PubMedGoogle Scholar
• Fazia T, Bubbico F, Nova A, et al. Online short-term mindfulness-based intervention during COVID-19 quarantine in Italy: effects on wellbeing, stress, and anxiety. Front Psychol. 2022;13:914183. Published 2022 Jul 4. doi:10.3389/fpsyg.2022.914183.
   PubMed Web of Science ®Google Scholar
• Pfefferbaum B, North CS. Mental health and the covid-19 pandemic. N Engl J Med. 2020;383(6):510–512. doi:10.1056/NEJMp2008017.
   PubMed Web of Science ®Google Scholar
• https://www.nationalmssociety.org/What-you-need-to-know-about-Coronavirus-(COVID-19). (accessed Jan 26, 2022)
   Google Scholar
• Chaudhry F, Jageka C, Levy PD, et al. Review of the COVID-19 risk in multiple sclerosis. J Cell Immunol. 2021;3(2):68–77. doi:10.33696/immunology.3.080.
   PubMedGoogle Scholar
• Morris-Bankole H, Ho AK. The COVID-19 pandemic experience in multiple sclerosis: the good, the bad and the neutral. Neurol Ther. 2021;10(1):279–291. doi:10.1007/s40120-021-00241-8.
   PubMed Web of Science ®Google Scholar
• Siegert RJ, Abernethy DA. Depression in multiple sclerosis: a review. J Neurol Neurosurg Psychiatry. 2005;76(4):469–475. PMID: 15774430 10. doi:10.1136/jnnp.2004.054635.
   PubMed Web of Science ®Google Scholar
• Korostil M, Feinstein A. Anxiety disorders and their clinical correlates in multiple sclerosis patients. Mult Scler. 2007;13(1):67–72. doi:10.1177/1352458506071161.
   PubMed Web of Science ®Google Scholar
• Mohr DC, Hart SL, Julian L, et al. Association between stressful life events and exacerbation in multiple sclerosis: a meta-analysis. BMJ. 2004;328(7442):731–735. PMID: 15033880 doi:10.1136/bmj.38041.724421.55.
   PubMed Web of Science ®Google Scholar
• Sbragia E, Colombo E, Pollio C, et al. Embracing resilience in multiple sclerosis: a new perspective from COVID-19 pandemic. Psychol Health Med. 2022;27(2):352–360. doi:10.1080/13548506.2021.1916964.
   PubMed Web of Science ®Google Scholar
• Simpson R, Booth J, Lawrence M, et al. Mindfulness based interventions in multiple sclerosis—a systematic review. BMC Neurol. 2014;14(1):15. doi:10.1186/1471-2377-14-1.
   PubMed Web of Science ®Google Scholar
• Brannen J. Mixing methods: qualitative and quantitative research. Aldershot, Ashgate; 1992.
   Google Scholar
• Simpson R, Simpson S, Ramparsad N, et al. Mindfulness-based interventions for mental well-being among people with multiple sclerosis: a systematic review and meta-analysis of randomised controlled trials. J Neurol Neurosurg Psychiatry. 2019;90(9):1051–1058. doi:10.1136/jnnp-2018-320165.
   PubMed Web of Science ®Google Scholar
• Simpson R, Simpson S, Ramparsad N, et al. Effects of mindfulness-based interventions on physical symptoms in people with multiple sclerosis - a systematic review and meta-analysis. Mult Scler Relat Disord. 2020;38:101493. doi:10.1016/j.msard.2019.101493.
   PubMed Web of Science ®Google Scholar
• Simpson R, Posa S, Langer L, et al. A systematic review and meta-analysis exploring the efficacy of mindfulness-based interventions on quality of life in people with multiple sclerosis. J Neurol. 2023;270(2):726–745. doi:10.1007/s00415-022-11451-x.
   PubMed Web of Science ®Google Scholar
• Bryman A. Quantity and quality in social research. London, Routledge; 1995.
   Google Scholar
• Polman CH, Reingold SC, Banwell B, et al. Diagnostic criteria for multiple sclerosis: 2010 revisions to the McDonald criteria. Ann Neurol. 2011;69(2):292–302. doi:10.1002/ana.22366.
   PubMed Web of Science ®Google Scholar
• Giordano A, Granella F, Lugaresi A, et al. Anxiety and depression in multiple sclerosis patients around diagnosis. J Neurol Sci. 2011;307(1-2):86–91. Aug 15 doi:10.1016/j.jns.2011.05.008.
   PubMed Web of Science ®Google Scholar
• Giovannetti AM, Brambilla L, Torri Clerici V, et al. Difficulties in adjustment to multiple sclerosis: vulnerability and unpredictability of illness in the foreground. Disabil Rehabil. 2017;39(9):897–903. May doi:10.3109/09638288.2016.1170212.
   PubMed Web of Science ®Google Scholar
• Kabat-Zinn J. 1990) Full catastrophe living: using the wisdom of your body and mind to face stress, pain, and illness. Dell.
   Google Scholar
• Teasdale JD, Segal ZV, Williams JM, et al. Prevention of relapse/recurrence in major depression by mindfulness-based cognitive therapy. J Consult Clin Psychol. 2000;68(4):615–623. doi:10.1037//0022-006x.68.4.615.
   PubMed Web of Science ®Google Scholar
• Gilbert P. 2019). The compassionate mind. A new approach to life’s challenges. Robinson (UK).
   Google Scholar
• Baer RA, Smith GT, Hopkins J, et al. Using self-report assessment methods to explore facets of mindfulness. Assessment. 2006;13(1):27–45. doi:10.1177/1073191105283504.
   PubMed Web of Science ®Google Scholar
• Baer RA, Smith GT, Lykins E, et al. Construct validity of the five facet mindfulness questionnaire in meditating and nonmeditating samples. Assessment. 2008;15(3):329–342. doi:10.1177/1073191107313003.
   PubMed Web of Science ®Google Scholar
• Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67(6):361–370. doi:10.1111/j.1600-0447.1983.tb09716.x.
   PubMed Web of Science ®Google Scholar
• Cohen S, Kamarck T, Mermelstein R. A global measure of perceived stress. J Health Soc Behav. 1983;24(4):385–396. doi:10.2307/2136404.
   PubMed Web of Science ®Google Scholar
• Russell D, Peplau LA, Ferguson ML. Developing a measure of loneliness. J Pers Assess. 1978;42(3):290–294. doi:10.1207/s15327752jpa4203_11.
   PubMed Web of Science ®Google Scholar
• Connor KM, Davidson JR. Development of a new resilience scale: the Connor-Davidson resilience scale (CD-RISC). Depress Anxiety. 2003;18(2):76–82. doi:10.1002/da.10113.
   PubMed Web of Science ®Google Scholar
• Giovannini C, Giromini L, Bonalume L, et al. The Italian five facet mindfulness questionnaire: a contribution to its validity and reliability. J Psychopathol Behav Assess. 2014;36(3):415–423. doi:10.1007/s10862-013-9403-0.
   Web of Science ®Google Scholar
• Costantini M, Musso M, Viterbori P, et al. Detecting psychological distress in cancer patients: validity of the Italian version of the hospital anxiety and depression scale. Support Care Cancer. 1999;7(3):121–127. doi:10.1007/s005200050241.
   PubMed Web of Science ®Google Scholar
• Boffo M, Mannarini S, Munari C. Exploratory structure equation modeling of the UCLA loneliness scale: a contribution to the Italian adaptation. TPM. 2012;19(4):345–363. doi:10.4473/TPM19.4.7.
   Google Scholar
• Kurtzke JF. Rating neurologic impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology. 1983;33(11):1444–1452. doi:10.1212/wnl.33.11.1444.
   PubMed Web of Science ®Google Scholar
• Armijo-Olivo S, Warren S, Magee D. Intention to treat analysis, compliance, drop outs and how to deal with missing data in clinical research: a review. Phys Ther Rev. 2009;14(1):36–49. doi:10.1179/174328809X405928.
   Google Scholar
• Thabane L, Mbuagbaw L, Zhang S, et al. A tutorial on sensitivity analyses in clinical trials: the what, why, when and how. BMC Med Res Methodol. 2013;13(1):92. Jul 16 PMID: 23855337; PMCID: PMC3720188. doi:10.1186/1471-2288-13-92.
   PubMed Web of Science ®Google Scholar
• Cohen J. A power primer. Psychol Bull. 1992;112(1):155–159. doi:10.1037//0033-2909.112.1.155.
   PubMed Web of Science ®Google Scholar
• Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3(2):77–101. doi:10.1191/1478088706qp063oa.
   Google Scholar
• Tong A, Sainsbury P, Craig J. Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups. Int J Qual Health Care. 2007;19(6):349–357. doi:10.1093/intqhc/mzm042.
   PubMed Web of Science ®Google Scholar
• Dunne J, Chih HJ, Begley A, et al. A randomised controlled trial to test the feasibility of online mindfulness programs for people with multiple sclerosis. Mult Scler Relat Disord. 2021;48:102728. doi:10.1016/j.msard.2020.102728.
   PubMed Web of Science ®Google Scholar
• Sesel AL, Sharpe L, Beadnall HN, et al. A randomized controlled trial of a web-based mindfulness programme for people with MS with and without a history of recurrent depression. Mult Scler. 2022;28(9):1392–1401. doi:10.1177/13524585211068002.
   PubMed Web of Science ®Google Scholar
• Sesel AL, Sharpe L, Naismith SL. Efficacy of psychosocial interventions for people with multiple sclerosis: a meta-analysis of specific treatment effects. Psychother Psychosom. 2018;87(2):105–111. doi:10.1159/000486806.
   PubMed Web of Science ®Google Scholar
• Cavalera C, Rovaris M, Mendozzi L, et al. Online meditation training for people with multiple sclerosis: a randomized controlled trial. Mult Scler. 2019;25(4):610–617. doi:10.1177/1352458518761187.
   PubMed Web of Science ®Google Scholar
• Giovannetti AM, Solari A, Pakenham KI, READY Facilitator Team. Effectiveness of a group resilience intervention for people with multiple sclerosis delivered via frontline services. Disabil Rehabil. 2022;44(22):6582–6592. doi:10.1080/09638288.2021.1960441.
   PubMed Web of Science ®Google Scholar
• Ferreira JC, Patino CM. Loss to follow-up and missing data: important issues that can affect your study results. J Bras Pneumol. 2019;45(2):e20190091. Published 2019 Apr 25. doi:10.1590/1806-3713/e20190091.
   PubMed Web of Science ®Google Scholar