21
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Exploring the care coordination experiences of professionals and caregivers of youth with acquired brain injuries in rural areas

, , & ORCID Icon
Received 15 Dec 2023, Accepted 24 Jun 2024, Published online: 08 Jul 2024

References

  • Petranovich CL, Smith-Paine J, Wade SL, et al. From early childhood to adolescence: lessons about traumatic brain injury from the Ohio head injury outcomes study. J Head Trauma Rehabil. 2020;35(3):226–239. doi: 10.1097/HTR.0000000000000555.
  • Van Dijck JT, Dijkman MD, Ophuis RH, et al. In-hospital costs after severe traumatic brain injury: a systematic review and quality assessment. PLOS One. 2019;14(7):e0219529. doi: 10.1371/journal.pone.0216743.
  • Leonhard MJ, Wright DA, Fu R, et al. Urban/rural disparities in Oregon pediatric traumatic brain injury. Inj Epidemiol. 2015;2(1):32. doi: 10.1186/s40621-015-0063-2.
  • Eliacin J, Fortney SK, Rattray NA, et al. Patients’ and caregivers’ perspectives on healthcare navigation in central Indiana, USA, after brain injury. Health Soc Care Community. 2021;30(3):988–997. doi: 10.1111/hsc.13275.
  • Babikian T, Merkley T, Savage RC, et al. Chronic aspects of pediatric traumatic brain injury: review of the literature. J Neurotrauma. 2015;32(23):1849–1860. doi: 10.1089/neu.2015.3971.
  • Bradbury KR, Williams C, Leonard S, et al. Emotional aspects of pediatric post-intensive care syndrome following traumatic brain injury. J Child Adolesc Trauma. 2021;14(2):177–187. doi: 10.1007/s40653-020-00332-y.
  • Cady RG, Belew JL. Parent perspective on care coordination services for their child with medical complexity. Children (Basel). 2017;4(6):45. doi: 10.3390/children4060045.
  • Harrison AL, Hunter EG, Thomas H, et al. Living with traumatic brain injury in a rural setting: supports and barriers across the continuum of care. Disabil Rehabil. 2017;39(20):2071–2080. doi: 10.1080/09638288.2016.1217081.
  • Yue JK, Upadhyayula PS, Avalos LN, et al. Pediatric traumatic brain injury in the United States: rural-urban disparities and considerations. Brain Sci. 2020;10(3):135. doi: 10.3390/brainsci10030135.
  • Moore M, Robinson G, Mink R, et al. Developing a family-centered care model for critical care after pediatric traumatic brain injury. Pediatr Crit Care Med. 2015;16(8):758–765. doi: 10.1097/PCC.0000000000000494.
  • Agency for Healthcare Research and Quality. What is care coordination? AHRQ; 2014. https://ahrq.gov/ncepcr/care/coordination/atlas/chapter2.html
  • Bell A, Corfield M, Davies J, et al. Collaborative transdisciplinary intervention in early years—putting theory into practice. Child Care Health Dev. 2009;36(1):142–148. doi: 10.1111/J.1365-2214.2009.01027.x.
  • Keller-Margulis MA, Ochs S, Nowell KP, et al. Role of the school-based professional in linking systems of care. In: Dempsey AG, editor. Pediatric health conditions in schools: a clinician’s guide for working with children, families, and educators. Oxford: Oxford University Press; 2020. p. 61–77.
  • Haarbauer-Krupa J, Ciccia A, Dodd J, et al. Service delivery in the healthcare and educational systems for children following traumatic brain injury: gaps in care. J Head Trauma Rehabil. 2017;32(6):367–377. doi: 10.1097/HTR.0000000000000287.
  • Cady RG, Kelly AM, Finkelstein SM, et al. Attributes of advanced practice registered nurse care coordination for children with medical complexity. J Pediatr Health Care. 2014;28(4):305–312. doi: 10.1016/j.pedhc.2013.06.005.
  • Davies SC, Lundine JL, Justice AF. Care coordination for children with special healthcare needs: a scoping review to inform strategies for students with TBI. J Sch Health. 2021;92(3):270–281. doi: 10.1111/josh.13132.
  • Shook B, Palusak C, Davies SC, et al. A scoping review to inform care coordination strategies for youth with traumatic brain injuries: care coordination tools. Int J Care Coord. 2021;25(1):5–20. doi: 10.1177/20534345211070653.
  • Palusak C, Shook B, Davies SC, et al. A scoping review to inform care coordination strategies for youth with traumatic brain injuries: care coordination personnel. Int J Care Coord. 2022;25(1):21–38. doi: 10.1177/20534345211070647.
  • Daugherty J, Waltzman D, Popat S, et al. Rural primary care providers’ experience and usage of clinical recommendations in the CDC pediatric mild traumatic brain injury guideline: a qualitative study. J Rural Health. 2021;37(3):487–494. doi: 10.1111/jrh.12530.
  • Ranade-Kharkar P, Weir C, Norlin C, et al. Information needs of physicians, care coordinators, and families to support care coordination of children and youth with special health care needs (CYSHCN). J Am Med Inform Assoc. 2017;24(5):933–941. doi: 10.1093/jamia/ocx023.
  • Foster CC, Mangione-Smith R, Simon TD. Caring for children with medical complexity: perspectives of primary care providers. J Pediatr. 2017;182:275–282.e4. doi: 10.1016/j.jpeds.2016.11.017.
  • Dodd JN, Kajankova M, Nagele DA. Bridging gaps in care for children with acquired brain injury: perceptions of medical and educational service providers. J Pediatr Rehabil Med. 2019;12(1):37–47. doi: 10.3233/PRM-180558.
  • Arora PG, Levine JL, Goldstein TR. School psychologists’ interprofessional collaboration with medical providers: an initial examination of training, preparedness, and current practices. Psychology in the Schools. 2018;56(4):554–568. doi: 10.1002/pits.22208.
  • Jones TM, Bhanji A, Osman S, et al. Experiences of caregivers and individuals living with traumatic brain injury in accessing health information: a qualitative investigation. Brain Inj. 2023;37(4):293–302. doi: 10.1080/02699052.2022.2145366.
  • Giroux CM, Wilson LA, Corkett JK. Parents as partners: investigating the role(s) of mothers in coordinating health and education activities for children with chronic care needs. J Interprof Care. 2019;33(2):243–251. doi: 10.1080/13561820.2018.1531833.
  • Braaf S, Ameratunga S, Christie N, et al. Care coordination experiences of people with traumatic brain injury and their family members in the 4-years after injury: a qualitative analysis. Brain Inj. 2019;33(5):574–583. doi: 10.1080/02699052.2019.1566835.
  • Andersson K, Bellon M, Walker R. Parents’ experiences of their child’s return to school following acquired brain injury (ABI): a systematic review of qualitative studies. Brain Inj. 2016;30(7):829–838. doi: 10.3109/02699052.2016.1146963.
  • Davies S. School-based support for families of students with traumatic brain injuries. Journal of Applied School Psychology. 2020;36(3):275–292. doi: 10.1080/15377903.2020.1734708.
  • Gale NK, Heath G, Cameron E, et al. Using the framework method for the analysis of qualitative data in multi-disciplinary health research. BMC Med Res Methodol. 2013;13(1):117. doi: 10.1186/1471-2288-13-117.
  • Ingram DD, Franco SJ. 2013 NCHS urban–rural classification scheme for counties. National Center for Health Statistics. Vital Health Stat 2. 2014;2(166):1–73. https://www.cdc.gov/nchs/data/series/sr_02/sr02_166.pdf
  • Ingram DD, Franco SJ. NCHS urban-rural classification scheme for counties. Vital Health Stat 2. 2012;154:1–65.
  • Lingard L. Beyond the default colon: effective use of quotes in qualitative research. Perspect Med Educ. 2019;8(6):360–364. doi: 10.1007/s40037-019-00550-7.
  • Monroe P, Campbell JA, Harris M, et al. Racial/ethnic differences in social determinants of health and health outcomes among adolescents and youth ages 10–24 years old: a scoping review. BMC Public Health. 2023;23(1):410. doi: 10.1186/s12889-023-15274-x.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.