570
Views
8
CrossRef citations to date
0
Altmetric
Articles

Parenting Children with Disabilities in Russia: Institutions, Discourses and Identities

References

  • Anderson, B. A., Silver, B. D. & Velkoff, V. A. (1987) ‘Education of the Handicapped in the USSR: Exploration of the Statistical Picture’, Soviet Studies, 34, 3.
  • Andreev, A. (2008) To Work or Not to Work? Labor Supply Decisions of Russia’s Disabled, Honors Thesis submitted in partial fulfilment of the requirements for Graduation with Distinction in Economics in Trinity College of Duke University (Durham, NC, Duke University).
  • Barnes, C. & Oliver, M. (1993) ‘Disability: A Sociological Phenomenon Ignored by Sociologists’, available at: http://www.leeds.ac.uk/disability-studies/archiveuk/Barnes/soc%20phenomenon.pdf1993, accessed 23 March 2014.
  • Barnes, M. (1999) ‘Users as Citizens: Collective Action and the Local Governance of Welfare’, Social Policy & Administration, 33, 1.
  • Batsiev, V., Dimenshtein, R., Korneev, V. & Larikova, I. (2003) Reabilitatsiya i obrazovanie osobogo rebenka: ot progressivnykh zakonov k ikh realizatsii (Moscow, Center for Curative Pedagogics).
  • Bloch, M., Holmlund, K., Moqvist, I. & Popkewitz, T. S. (2003) ‘Global and Local Patterns of Governing the Child, Family, Their Care, and Education: An Introduction’, in Bloch, M., Holmlund, K., Moqvist, I. & Popkewitz, T. S. (eds) Governing Children, Families and Education. Restructuring the Welfare State (New York, NY, Macmillan).
  • Clarke, J. (2006) ‘Consumers, Clients or Citizens? Politics, Policy and Practice in the Reform of Social Care’, European Societies, 8, 3.
  • Clarke, J. (2011) ‘Za ramkami gosudarstvennogo i chastnogo? Transformatsiya smeshannoi modeli gosudarstva vseobshego blagosostoyaniya’, Zhurnal issledovanii sotsial’noi politiki, 9, 2.
  • Clarke, J., Newman, J., Smith, N., Vidler, E. & Westmarland, L. (2007) Creating Citizen-Consumers: Changing Publics and Changing Public Services (London, Sage).
  • Cox, R. H. (2001), ‘The Social Construction of an Imperative: Why Welfare Reform Happened in Denmark and the Netherlands but not in Germany’, World Politics, 53, 3.
  • Daly, M. (2012) ‘Making Policy for Care: Experience in Europe and its Implications in Asia’, The International Journal of Sociology and Social Policy, 32, 11/12.
  • Daly, M. & Lewis, J. (2000) ‘The Concept of Social Care and the Analysis of Contemporary Welfare States’, British Journal of Sociology, 51, 2.
  • Dashkina, A. (2007) ‘Social Problems and Social Services in Russia’, Asian Journal of Social Policy, 3, 1, available at: http://aasw-asia.net/AJSP%2031.pdf, accessed 23 March 2014.
  • Davis, G. V. (2007) ‘Pop-psychology and the Spirit of Capitalism: Self-Help, Self-Work, and the Work Ethic as Neo-liberal Governmentality’, paper presented at the annual meeting of the Western Political Science Association, La Riviera Hotel, Las Vegas, available at: http://citation.allacademic.com/meta/p176065_index.html, accessed 23 March 2014.
  • Denzin, N. K. & Lincoln, Y. S. (2005) The SAGE Handbook of Qualitative Research (Thousand Oaks, CA, Sage).
  • Dobrovol’skaya, T. & Shabalina, N. (1992) ‘Invalidy: diskriminiruemoe men’shinstvo?’, Sotsiologicheskie issledovaniya, 5.
  • Dominelli, L. (2004) Social Work: Theory and Practice for a Changing Profession (Cambridge, Polity Press).
  • Donzelot, J. (1997) The Policing of Families (Baltimore, MD & London, The Johns Hopkins University Press).
  • Dowling, M. (2005) ‘To understand the meaning of disability for children, parents and providers in Bulgaria, Latvia and Russia’, in Children and Youth in Emerging and Transforming Societies, Oslo, 29 June–3 July. (Norway, University of Oslo).
  • Dunn, E. (2004) Privatizing Poland: Baby Food, Big Business, and the Remaking of Labour (New York, NY, Cornell University Press).
  • Ehrenreich, B. (1990) Fear of Falling: The Inner Life of the Middle Class (New York, NY, Harper Perennial).
  • Esdaile, S. A. (2009) ‘Valuing Difference: Caregiving by Mothers of Children with Disabilities’, Occupational Therapy International, 16, 2.
  • Fieseler, B. (2005) ‘The Bitter Legacy of the “Great Patriotic War”: Red Army Disabled Soldiers under Late Stalinism’, in Furst, J. (ed.) Late Stalinist Russia: Society between Reconstruction and Reinvention (London & New York, NY, Routledge).
  • Florian, L. & Becirevic, M. (2011) ‘Challenges for Teachers’ Professional Learning for Inclusive Education in Central and Eastern Europe and the Commonwealth of Independent States’, Prospects: Quarterly Review of Comparative Education, XLI, 41.
  • Foucault, M. (1980) ‘Two Lectures’, in Gordon, C. (ed.) Power/Knowledge: Selected Interviews & Other Writings, 1972–1977 (New York, NY, Pantheon).
  • Foucault, M. (1994) ‘Space, Knowledge and Power’, in Faubion, J. (ed.) Essential Works of Foucault: 1954–1984. Vol. 3: Power (New York, NY, The New Press).
  • Foucault, M. (2003) ‘Governmentality’, in Rabinow, P. & Rose, N. (eds) The Essential Foucault: Selections from Essential Works of Foucault 1954–1984 (London, The New Press).
  • Fraser, N. (2003) ‘Rethinking Recognition: Overcoming Displacement and Reification in Cultural Politics’, in Hobson, B. (ed.) Recognition Struggles and Social Movements (Cambridge, Cambridge University Press).
  • Fröhlich, C. (2010) ‘Balansirovanie na grani: rossiiskie NGO po rabote s invalidami mezhdu inostrannymi sponsorami i vnutrennei politikoi’, Zhurnal issledovanii sotsial’noi politiki, 8, 2.
  • George, V. & Manning, N. (1980) Socialism, Social Welfare and the Soviet Union (London, Routledge).
  • Gordon, C. (1991) ‘Governmental Rationality: An Introduction’, in Burchell, G., Gordon, C. & Miller, P. (eds) The Foucault Effect: Studies in Governmentality (Chicago, IL, University of Chicago Press).
  • Graham, L. R. (2004) Science in Russia and the Soviet Union. A Short History (Cambridge, Cambridge University Press).
  • Griffiths, C. B., Norwich, B. & Burden, B. (2004) ‘Parental Agency, Identity and Knowledge: Mothers of Children with Dyslexia’, Oxford Review of Education, 30, 3.
  • Hartblay, C. S. (2006) An Absolutely Different Life: Locating Disability, Motherhood, and Local Power in Rural Siberia, Anthropology Honors Project, Macalester College, available at: http://digitalcommons.macalester.edu/anth_honors/1, accessed 23 March 2014.
  • Hartblay, C. (2014) ‘Welcome to Sergeichburg: Disability, Crip Performance, and the Comedy of Recognition in Russia’, Zhurnal issledovanii sotsial’noi politiki, 11, 1.
  • Hochschild, A. R. (1995) ‘The Culture of Politics: Traditional, Post-modern, Cold-modern, and Warm-modern Ideals of Care’, Social Politics, 2, 3.
  • HRW (2013) ‘Barriers Everywhere: Lack of Accessibility for People with Disabilities in Russia’, Human Rights Watch, available at: http://www.hrw.org/sites/default/files/reports/russia0913_ForUpload.pdf, accessed 23 March 2014.
  • Iarskaia-Smirnova, E. (1997) ‘When There is a Handicapped Child in the Family’, Russian Education and Society, 39, 10.
  • Iarskaia-Smirnova, E. (1999) ‘“What the Future Will Bring I Do Not Know”: Mothering Children with Disabilities in Russia and the Politics of Exclusion’, Frontiers: A Journal of Women Studies, 20, 2.
  • Iarskaia-Smirnova, E. (2001) ‘Social Change and Self-empowerment: Stories of Disabled People in Russia’, in Priestley, M. (ed.) Disability and the Life Course (Cambridge, Cambridge University Press).
  • Iarskaia-Smirnova, E. (2011) ‘“A Girl Who Liked to Dance”: Life Experiences of Russian Women with Motor Impairments’, in Jäppinen, M., Kulmala, M. & Saarinen, A. (eds) Gazing at Welfare, Gender and Agency in Post-socialist Countries (Newcastle upon Tyne, Cambridge Scholars Publishing).
  • Iarskaia-Smirnova, E. & Romanov, P. (2006) ‘The Problem of Access to a Higher Education for Handicapped People’, Russian Education and Society, 48, 8.
  • Iarskaia-Smirnova, E. & Romanov, P. (2012) ‘Doing Class in Social Welfare Discourses: “Unfortunate Families” in Russia’, in Salmenniemi, S. (ed.) Rethinking Class in Russia (Farnham, Ashgate).
  • Iarskaia-Smirnova, E. & Romanov, P. (2013) ‘Heroes and Spongers: The Iconography of Disability in Soviet Posters and Film’, in Rasell, M. & Iarskaia-Smirnova, E. (eds) Disability in Eastern Europe and the Former Soviet Union: History, Policy and Everyday Life (Abingdon, Routledge).
  • Kaplan, R. L. (2010) ‘Caregiving Mothers of Children with Impairments: Coping and Support in Russia’, Disability & Society, 25, 6.
  • Khakhulina, L. A. (2005) ‘Monetizatsiya l’got v zerkale obshestvennogo mneniya’, SPERO, 3, available at: spero.socpol.ru/docs/spero_no3_khakhulina.pdf, accessed 23 March 2014.
  • Khlinovskaya-Rockhill, E. (2004) ‘Social Orphans and the Neblagopoluchnaiya Family: The Cycle of Child Displacement in the Russian North’, Sibirica: Journal of Siberian Studies, 4, 2.
  • Knijn, T. & Kremer, M. (1997) ‘Gender and the Caring Dimension of Welfare States: Towards Inclusive Citizenship’, Social Politics, 4, 3.
  • Kozyrev, O. (2009) Lozh’ v sotsial’noi reklame, available at: http://oleg-kozyrev.livejournal.com/1886529.html?thread=19273537, accessed 23 March 2014.
  • Madison, B. Q. (1968) Social Welfare in the Soviet Union (Stanford, CA, Stanford University Press).
  • Maleva, T., Vasin, S., Golodets, I. & Besfamil’naya, S. (1999) Invalidy v Rossii: prichiny i dinamika invalidnosti, protivorechiya i perspektivy sotsial’noi politiki (Moscow, ROSSPEN).
  • Matza, T. (2009) ‘Moscow’s Echo: Technologies of the Self, Publics, and Politics on the Russian Talk Show’, Cultural Anthropology, 24, 3.
  • Matza, T. (2012) ‘“Good Individualism”? Psychology, Ethics, and Neoliberalism in Postsocialist Russia’, American Ethnologist, 39, 4.
  • McCagg, W. & Siegelbaum, L. (eds) (1989) The Disabled in the Soviet Union (Pittsburgh, PA, University of Pittsburgh Press).
  • McCormack, K. (2004) ‘Resisting the Welfare Mother: The Power of Welfare Discourse and Tactics of Resistance’, Critical Sociology, 30, 2.
  • McDonald, C. & Marston, G. (2005) ‘Workfare as Welfare: Governing Unemployment in the Advanced Liberal State’, Critical Social Policy, 25, 3.
  • McKee, K. (2009) ‘Post-Foucauldian Governmentality: What Does it Offer Critical Social Policy Analysis?’, Critical Social Policy, 29, 3.
  • McWhorter, L. (2005) ‘Foreword’, in Tremain, Sh. (ed.) Foucault and the Government of Disability (Ann Arbor, MI, The University of Michigan Press).
  • Nussbaum, M. C. (2003) ‘Capabilities as Fundamental Entitlements: Sen and Social Justice’, Feminist Economics, 9, 2–3.
  • Oates, S. (2010) ‘From Parent to Protestor on the Post-Soviet Internet: Locating and Evaluating Political Web Spaces for Families of Children with Genetic Disabilities in Russia’, paper prepared for the Political Communication Section Pre-Conference. American Political Science Association Annual Meeting, George Washington University, Washington, DC, available at: http://papers.ssrn.com/sol3/papers.cfm?abstract_id=1664504, accessed 23 March 2014.
  • Ovcharova, L. & Popova, D. (2005) ‘Child Poverty in the Russian Federation’, UNICEF, available at: http://www.unicef.org/ceecis/Russiapoverty2005.doc, accessed 23 March 2014.
  • Pascall, G. & Manning, N. (2000) ‘Gender and Social Policy: Comparing Welfare States in Central and Eastern Europe and the Former Soviet Union’, Journal of European Social Policy, 10, 3.
  • Petryna, A. (2005) ‘Science and Citizenship under Postsocialism’, in Inda, J. X. (ed.) Anthropologies of Modernity. Foucault, Governmentality, and Life Politics (Malden, MA, Blackwell Publishing).
  • Powell, J. L. & Steel, R. (2012) ‘Policy, Governmentality and Governance’, Journal of Administration and Governance, 7, 1.
  • Rasell, M. (2011) Social Citizenship, Disability and Welfare Provision in Contemporary Russia: Views from Below, Ph.D. thesis, University of Birmingham (Birmingham, Centre for Russian and East European Studies, University of Birmingham).
  • Rasell, M. & Iarskaia-Smirnova, E. (2013) ‘Conceptualising Disability in Eastern Europe and the Former Soviet Union’, in Rasell, M. & Iarskaia-Smirnova, E. (eds). The Disabled in the Soviet Union: Past and Present, Theory and Practice (Pittsburgh, PA, University of Pittsburgh Press).
  • Raymond, P. D. (1989) ‘Dissidence as Disability: The Action Group to Defend the Rights of the Disabled in the USSR’, in McCagg, W. O. & Siegelbaum, L. (eds). Disability in Eastern Europe and the Former Soviet Union: History, Policy and Everyday Life (Abingdon, Routledge).
  • Rich, A. (1976) Of Woman Born. Motherhood as Experience and Institution (London, Virago).
  • Richter, J. (2004) ‘Upravlenitet, inostrannaya pomoshch’ i rossiiskie NKO’, Zhurnal issledovani sotsial’noi politiki, 2, 4.
  • Rodger, J. J. (1988) ‘Social Work as Social Control Re-examined: Beyond the Dispersal of Discipline Thesis’, Sociology, 22, 4.
  • Romanov, P. & Iarskaia-Smirnova, E. (2010) ‘Invalidy i obshchestvo’, Sotsiologicheskie issledovania, 9.
  • Rose, N. (1999) Powers of Freedom: Reframing Political Thought (Cambridge, Cambridge University Press).
  • Roudik, P. (2007) ‘Children’s Rights: Russian Federation’, Library of Congress, Washington, DC, available at: http://www.loc.gov/law/help/child-rights/russia.php, accessed 23 March 2014.
  • Safilios-Rothschild, C. (1970) The Sociology and Social Psychology of Disability and Rehabilitation (New York, NY, Random House).
  • Salmenniemi, S. (2012) ‘Post-Soviet Khoziain: Class, Self and Morality in Russian Self­help Literature’, in Salmenniemi, S. (ed.) Rethinking Class in Russia (Farnham, Ashgate).
  • Salmenniemi, S. & Vorona, M. (2014) ‘Reading Self-Help Literature in Russia: Governmentality, Psychology and Subjectivity’, The British Journal of Sociology, 65, 1.
  • Schram, S. (2000) ‘In the Clinic: The Medicalisation of Welfare’, Social Text, 18, 1.
  • Scott, J. C. (1999) Seeing Like a State. How Certain Schemes to Improve the Human Condition Have Failed (New Haven, CT, Yale University Press).
  • Sen, A. (1999) Development as Freedom (Oxford, Oxford University Press).
  • Tchernitsyna, M. (2009) ‘Khozhdenie za tri gorya. Troinyashki s DTsP—prigovor dlya roditelei’, Moskovskii Komsomolets, 26 August.
  • Tchernyavskiy, A. (2013) ‘Gosudarstvo ekonomit na zdorov’e’, Open Economy, October–November, available at: http://opec.ru/1578279.html, accessed 23 March 2014.
  • Thomson, K. (2002a) ‘Differentiating Integration: Special Education in the Russian Federation’, European Journal of Special Needs Education, 17, 1.
  • Thomson, K. (2002b) ‘Regional Welfare System Developments in Russia: Community Social Services’, Social Policy and Administration, 36, 2.
  • Thomson, K. (2006) ‘Disability Organisations in the Regions’, in Evans, A., Henry, L. & McIntosh, L. (eds) Russian Civil Society: A Critical Assessment (New York, NY, M.E. Sharpe).
  • Throop, E. A. (2009) Psychotherapy, American Culture, and Social Policy. Immoral Individualism (New York, NY, Palgrave Macmillan).
  • Timashova, N. (2003) ‘Strana bez budushchego’, Novye izvestiya, 10 September 2003, available at: http://www.newizv.ru/society/2003-09-10/1190-strana-bez-budushego.html, accessed 23 October 2011.
  • Tremain, Sh. (2005) ‘Foucault, Governmentality, and Critical Disability Theory: An Introduction’, in Tremain, Sh. (ed.) Foucault and the Government of Disability (Ann Arbor, MI, University of Michigan Press).
  • UNDP (2008) ‘Monitoring Women’s Rights in Russian Federation: Thousand of Women’s Stories’, United Nations Development Programme, available at: http://www.undp.ru/index.php?iso=ru&lid=1&cmd=news&id=529, accessed 23 March 2014.
  • UNICEF, NISP (2011) Analiz polozheniya detei v Rossiiskoi Federatsii: na puti k obshchestvu ravnykh vozmozhnostei, available at: http://www.unicef.ru/upload/iblock/b6e/b6e95c80c100fe40629a3024b2a59018.pdf, accessed 23 March 2014.
  • Verbilovich, O. (2013) ‘Mekhanizmy formirovaniya identichnosti v publichnoi sfere invalidnosti’, Zhurnal issledovanii sotsialnoi politiki, 11, 2.
  • Zaviršek, D. (2013) ‘“Those Who Do Not Work Shall Not Eat!” A Comparative Perspective on the Ideology of Work within Eastern European Disability Discourses’, in Rasell, M. & Iarskaia-Smirnova, E. (eds) Disability in Eastern Europe and the Former Soviet Union: History, Policy and Everyday Life (Abingdon, Routledge).

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.