Selling your soul to the devil: an autoethnography of pain, pleasure and the quest for a child

References

• Bartlik , BD , Kaplan , P and Kaplan , HS . (1995) . Psychostimulants apparently reverse sexual dysfunction secondary to selective serotonin re‐uptake inhibitors . Journal of Sex and Marital Therapy , 21 : 264 – 271 .
   PubMed Web of Science ®Google Scholar
• Brewer J (2000) Ethnography (Buckingham, Open University Press)
   Google Scholar
• Clark , F . (1993) . Occupation embedded in a real life: interweaving occupational science and occupational therapy: 1993 Eleanor Clark Slagle Lecture . American Journal of Occupational Therapy , 47 : 1067 – 1078 .
   PubMed Web of Science ®Google Scholar
• Clark , F , Parham , D , Carlson , ME , Frank , G , Jackson , J , Pierce , D , Wolfe , R and Zemke , R . (1991) . Occupational science: academic innovation in the service of occupational therapy's future . American Journal of Occupational Therapy , 45 : 300 – 310 .
   PubMed Web of Science ®Google Scholar
• Ellis , C . (1993) . ‘There are survivors’: telling a story of sudden death . Sociological Quarterly , 34 : 711 – 730 .
   Web of Science ®Google Scholar
• Ellis C (1995) Final negotiations: a story of love, loss, and chronic illness (Philadelphia, Temple University Press)
   Google Scholar
• Ellis , C . (2002) . Shattered lives: making sense of September 11 and its aftermath . Journal of Contemporary Ethnography , 31 : 375 – 410 .
   Web of Science ®Google Scholar
• Ellis C Bochner A (1992) Telling and performing personal stories: the constraints of choice in abortion in: C. Ellis & M. Flaherty (Eds) Investigating subjectivity: research on lived experience (Newbury Park, Sage) 79 101
   Google Scholar
• Ellis C Bochner A (2000) Autoethnography, personal narrative, reflexivity in: N. K. Denzin & Y. S. Lincoln (Eds) Handbook of qualitative research (2nd edn) (Thousand Oaks, Sage Publications) 733 768
   Google Scholar
• Frank AW (1995) The wounded storyteller (Chicago, University of Chicago Press)
   Google Scholar
• Gillespie‐Sells K Hill M Robbins B (1998) She dances to different drums: research into disabled women's sexuality (London, Kings Fund)
   Google Scholar
• GlaxoSmith Kline (2002) Paxil: prescribing information (Research Triangle Park, Durham, NC, GlaxoSmithKline)
   Google Scholar
• Goodley , D . (2001) . ‘Learning difficulties’, the social model of disability and impairment: challenging epistemologies . Disability & Society , 16 : 207 – 231 .
   Web of Science ®Google Scholar
• Greenhalgh S (2001) Under the medical gaze: facts and fictions of chronic pain (Berkeley, University of California Press)
   Google Scholar
• Hughes , G and Paterson , K . (1997) . The social model of disability and the disappearing body: towards a sociology of impairment . Disability & Society , 12 : 325 – 340 .
   Web of Science ®Google Scholar
• Jackson J (2000) Camp pain (Philadelphia, University of Pennsylvania Press)
   Google Scholar
• Kaysen S (2001) The camera my mother gave me (New York, Knopf)
   Google Scholar
• Kinsman , SL and Doehring , MC . (1996) . The cost of preventable conditions and adaptive behavior spina bifida . European Journal of Pediatric Surgery (Germany) , 6 (Suppl 1) : 17 – 20 .
   PubMedGoogle Scholar
• Krotoski D Nosek M Turk M (1996) Women with physical disabilities: achieving and maintaining health and well‐being (Baltimore, Paul Brookes)
   Google Scholar
• Lary , JM and Edmonds , LD . (1996) . Prevalence of spina bifida at birth—United States, 1983–1990: a comparison of two surveillance systems . Mortality Weekly Report CDC Surveillance , 45 (Summer) : 15 – 26 .
   PubMedGoogle Scholar
• Marlowe C (1994) Dr Faustus (New York, Dover)
   Google Scholar
• Modelska , K and Cummings , S . (2003) . Female sexual dysfunction in postmenopausal women: systematic review of placebo‐controlled trials . American Journal of Obstetrics and Gynecology , 188 : 286 – 293 .
   PubMed Web of Science ®Google Scholar
• Montejo‐Gonzalez A Llorca J Izquirdo A Ledesma M Bousono A Calcedo J et al. (1997) SSRI‐induced sexual dysfunction: fluoxetine, paroxetine, sertraline, and fluvoxamine in a prospective, multicenter, and descriptive clinical study of 344 patients Journal of Sex and Marital Therapy 23 176 194
   PubMed Web of Science ®Google Scholar
• Murphy R (1990) The body silent (New York, W.W. Norton)
   Google Scholar
• Neville‐Jan , A . (2003) . Encounters in a world of pain: an autoethnography . American Journal of Occupational Therapy , 57 : 88 – 98 .
   PubMed Web of Science ®Google Scholar
• Oliver M (1990) The politics of disablement (Basingstoke, Macmillan)
   Google Scholar
• Oliver M (1996) Understanding disability: from theory to practice (Basingstoke, Macmillan)
   Google Scholar
• Plummer K (1995) Telling sexual stories: power, change and social worlds (London, Routledge)
   Google Scholar
• Price R (1994) A whole new life: an illness and a healing (New York, Atheneum)
   Google Scholar
• Reed‐Danahay D (1997) Introduction in: D. Reed‐Danahay (Ed.) Auto/ethnography: rewriting the self and the social (New York, Berg) 1 17
   Google Scholar
• Reeve , D . (2002) . Negotiating psycho‐emotional dimensions of disability and their influence on identity constructions . Disability & Society , 17 : 493 – 508 .
   Web of Science ®Google Scholar
• Ronai , CR . (1995) . Multiple reflections of child sex abuse: an argument for a layered account . Journal of Contemporary Ethnography , 23 : 395 – 426 .
   Web of Science ®Google Scholar
• Russell M (1998) Beyond ramps (Maine, Common Courage Press)
   Google Scholar
• Shakespeare T Gillespie‐Sells K Davies D (1996) The sexual politics of disability: untold desires (London, Cassell)
   Google Scholar
• Shakespeare , T and Watson , N . (2002) . The social model of disability: an outdated ideology? . Research in Social Science and Disability , 2 : 9 – 28 .
   Google Scholar
• Stineman , MG . (2001) . Defining the population, treatments, and outcomes of interest: reconciling the rules of biology with meaningfulness . American Journal of Physical Medicine & Rehabilitation , 80 : 147 – 159 .
   PubMed Web of Science ®Google Scholar
• Tepper , MS . (2000) . Sexuality and disability: the missing discourse of pleasure . Sexuality and Disability , 18 : 283 – 290 .
   Web of Science ®Google Scholar
• Tillman‐Healy LM (1996) A secret life in a culture of thinness: reflections on body, food and bulimia in: C. Ellis & A.P. Bochner (Eds) Composing ethnography: alternative forms of qualitative writing (Walnut Creek, AltaMira Press) 76 108
   Google Scholar
• World Health Organization (WHO) (2001) ICF: international classification of functioning, disability and health (Geneva, World Health Organization)
   Google Scholar
• Zola I 1982) Missing pieces: a chronicle of living with a disability (Philadelphia, Temple University Press)
   Google Scholar