Staff responses to age‐related health changes in people with an intellectual disability in group homes

References

• Australian Institute of Health and Welfare (AIHW) . 2005 . Australia’s , Canberra : AIHW . welfare 2005. AIHW cat. no. AUS65
   Google Scholar
• Bigby , C. 1998 . Shifting responsibilities: The patterns of formal service use by older people with intellectual disability in Victoria . Journal of Intellectual and Developmental Disability , 23 ( 3 ) : 229 – 43 .
   Web of Science ®Google Scholar
• Bigby , C. 2002 . Ageing people with a lifelong disability: Challenges for the aged care and disability sectors . Journal of Intellectual and Developmental Disability , 27 ( 4 ) : 231 – 41 .
   Web of Science ®Google Scholar
• Bigby , C. , Webber , R. , McKenzie‐Green , B. and Bowers , B. 2008 . A survey of people with intellectual disabilities living in residential aged care facilities in Victoria . Journal of Intellectual Disability Research , 52 : 404 – 14 .
   PubMed Web of Science ®Google Scholar
• Bland , R. , Hutchinson , N. , Oakes , P. and Yates , C. 2003 . Double Jeopardy? Needs and services for older people who have learning disabilities . Journal of Learning Disabilities , 7 ( 4 ) : 323 – 44 .
   Google Scholar
• Bowers , B.J. and Schatzman , L. 2009 . “ Dimensional analysis, as an approach to grounded theory ” . In Developing grounded theory , Edited by: Morse , J.M. , Stern , P.N. , Corbin , J. , Bowers , B.J. , Charmaz , K. and Clarke , A.E. Walnut Creek, CA : Left Coast Press .
   Google Scholar
• Caron , C. and Bowers , B. 2000 . “ Methods and application of dimensional analysis: A contribution to concept and knowledge development in nursing ” . In Concept development in nursing: Foundations, techniques and applications , (2nd ed) , Edited by: Rodgers , B.L. and Knafl , K.A. 285 – 319 . Philadelphia : Saunders .
   Google Scholar
• Chesterman , J. and Carter , B. 2009 . Supported decision‐making: Background and discussion paper , Melbourne : Office of the Public Advocate .
   Google Scholar
• Department of Health . 2001 . Valuing people: A new strategy for learning disability for the 21st Century , London : The Stationery Office . (CM 5068)
   Google Scholar
• Donaldson , S. 2002 . Work stress and people with Down syndrome and dementia . Down Syndrome Research and Practice , 8 ( 2 ) : 74 – 8 .
   PubMedGoogle Scholar
• Dunn , M. , Clare , I. and Holland , A. 2008 . Substitute decision‐making for adults with intellectual disabilities living in residential care: Learning through experience . Health Care Analysis , 16 : 52 – 64 .
   PubMed Web of Science ®Google Scholar
• Dunn , M. , Clare , I. , Holland , A. and Gunn , M. 2007 . Constructing and reconstructing ‘Best Interests’: An interpretative examination of substitute decision‐making under the Mental Capacity Act of 2005 . Journal of Social Welfare and Family Law , 29 ( 2 ) : 117 – 33 .
   Google Scholar
• Higgins , L. and Mansell , J. 2009 . Quality of life in group homes and older persons’ homes . British Journal of Learning Disabilities , 37 ( 3 ) : 207 – 12 .
   Web of Science ®Google Scholar
• Hogg , J. and Moss , S. 1994 . “ The characteristics of older people with intellectual disabilities in England ” . In International Review of Research in Mental Retardation , Edited by: Bray , N.W. Vol 19 , 71 – 96 . New York : Academic Press .
   Google Scholar
• Janicki , M. The aging dilemma: Is increasing longevity among people with intellectual disabilities creating a new population challenge in the Asia‐Pacific Region? . Paper presented at The 2nd IASSID Asia‐Pacific Regional Conference . June 27 , Singapore.
   Google Scholar
• Janicki , M. , McCallion , P. and Dalton , A. 2002 . Dementia‐related care decision making in group homes for persons with intellectual disabilities . Journal of Gerontological Social Work , 38 ( 1–2 ) : 179 – 96 .
   Google Scholar
• Jeevandanam , L. 2009 . Perspectives in intellectual disability in Asia: Epidemiology, policy and services for children and adults . Current Opinion in Psychiatry , 22 ( 5 ) : 462 – 68 .
   PubMed Web of Science ®Google Scholar
• Kayess , R. and French , P. 2008 . Out of darkness into light? Introducing the convention on the rights of persons with disabilities . Human Rights Law Review , 8 ( 1 ) : 1 – 34 .
   Google Scholar
• Kerr , K. 2008 . Understanding learning disability and dementia: Developing effective interventions , London : Jessica Kingsley Publishers .
   Google Scholar
• Kim , S. , Larson , S. and Lakin , K. 1999 . Behavioral outcomes of deinstitutionalization for people with intellectual disabilities: A review of studies conducted between 1980 and 1999 . Policy Research Brief , 10 ( 1 ) : 35 – 50 . University of Minnesota: Minneapolis, Institute on Community Integration
   Google Scholar
• Lloyd , V. , Kalsy , S. and Gatherer , A. 2008 . Impact of dementia upon residential care of individuals with Down syndrome . Journal of Policy and Practice in Intellectual Disabilities , 5 ( 1 ) : 33 – 8 .
   Web of Science ®Google Scholar
• McCarron , M. and Lawlor , B. 2003 . Responding to the challenges of ageing and dementia in intellectual disability in Ireland . Aging and Mental Health , 7 ( 6 ) : 413 – 7 .
   PubMed Web of Science ®Google Scholar
• Schatzman , L. 1991 . “ Dimensional analysis: Notes on an alternative approach to the rounding of theory in qualitative research ” . In Social organisation and social process: Essays in honour of Anselm Strauss , Edited by: Maines , D.R. 303 – 14 . New York : Aldine .
   Google Scholar
• Sheerin , F. and McConkey , R. 2008 . Frontline care in Irish intellectual disability services: The contribution of nurses and non‐nurse care staff . Journal of Intellectual Disabilities , 12 ( 2 ) : 127 – 41 .
   PubMedGoogle Scholar
• Strydom , A. , Lee , L. , Jokinen , N. , Shooshtari , S. , Raykar , V. , Torr , J. , J. Tsiouris , Courtenay , K. , Bass , N. , Sinnema , M. and Maaskant , M. 2009 . “ Report on the state of science on dementia in people with intellectual disabilities ” . In IASSID Special Interest Research Group on Ageing and Intellectual Disabilities (March). 13th World Congress of IASSID
   Google Scholar
• Thompson , D. , Ryrie , I. and Wright , S. 2004 . People with intellectual disabilities living in generic residential services for older people in the UK . Journal of Applied Research in Intellectual Disabilities , 17 : 101 – 8 .
   Web of Science ®Google Scholar
• Traustadóttir , R. and Rice , J. 2009 . ANED country report on the implementation of policies supporting independent living for disabled people , Iceland : Academic Network of European Disability experts (ANED . – VT/2007/005
   Google Scholar
• World Health Organization . 2000 . Ageing and intellectual disabilities – Improving longevity and promoting healthy ageing: Summative report , Geneva, , Switzerland : World Health Organization .
   Google Scholar