372
Views
0
CrossRef citations to date
0
Altmetric
Articles

‘I know that aside from my arms I’m normal’: negotiating the incoherencies of a ‘VACTERL identity’

Pages 65-79 | Received 04 May 2010, Accepted 01 Dec 2010, Published online: 20 Dec 2011

References

  • Barnes , C. , Mercer , G. and Shakespeare , T. 1999 . Exploring disability. A sociological introduction , Cambridge : Polity Press .
  • Bartky , S.L. 1997 . “ Foucault, femininity, and the modernization of patriarchal power ” . In Writing on the body: Female embodiment and feminist theory , Edited by: Conboy , K. , Medina , N. and Stanbury , S. 129 – 155 . New York : Columbia University Press .
  • Borbo , S. 1997 . “ The body and the reproduction of femininity ” . In Writing on the body: Female embodiment and feminist theory , Edited by: Conboy , K. , Medina , N. and Stanbury , S. 90 – 113 . New York : Columbia University Press .
  • Collins , K. and Valentine , D. 2003 . Discovering women with disabilities: Responsive and relevant practice . Journal of Social Work in Disability and Rehabilitation , 2 ( 4 ) : 29 – 44 .
  • Davis , L. 2002 . Bending over backwards , Disability, dismodernism and other difficult positions New York : New York University Press .
  • Davis , L.J. 1997 . “ Constructing normalcy: The bell curve, the novel and the invention of the disabled body in the nineteenth century ” . In The disability studies reader , New York : Routledge .
  • Denzin , N.K. and Lincoln , Y.S. 1998 . The landscape of qualitative research: Theories and issues , Thousand Oaks, CA : SAGE Publications .
  • Galvin , R.D. 2005 . Researching the disabled identity: Contextualizing the identity transformations which accompany the onset of impairment . Sociology of Health and Illness , 27 ( 3 ) : 393 – 413 .
  • Garland-Thomson, R. 2001. Re-shaping, re-thinking, re-defining: Feminist disability studies. Center for Women Policy Studies. http://www.centerwomenpolicy.org/pdfs/DIS2.pdf.
  • Goodley , D. 2003 . “ Against a politics of victimization: Disability culture and self-advocates with learning difficulties ” . In Disability culture and identity , Edited by: Riddell , S. and Watson , N. 105 – 128 . London : Pearson Education .
  • Khoury , M.J. , Cordero , J.F. , Greenberg , F. , James , L.M. and Erikcson , J.D. 1983 . A population study of the. VACTERL association: Evidence for its etiologic heterogeneity . Pediatrics , 71 ( 5 ) : 815 – 820 .
  • Kralik , D. , Toch , T. and Eastwood , S. 2002 . The salience of the body: Transition in sexual self identity for women living with multiple sclerosis . Journal of Advanced Nursing , 42 ( 1 ) : 11 – 20 .
  • Kundrat , A.L. and Nussbaum , J.F. 2003 . The impact of invisible illness on identity and contextual age across life span . Health Communication , 15 ( 3 ) : 331 – 347 .
  • Lloyd , M. 2001 . The politics of disability and feminism: Discord or synthesis? . Sociology , 35 ( 3 ) : 715 – 728 .
  • Low , J. 1996 . Negotiating identities, negotiating environments: An interpretation of the experiences of students with disabilities . Disability and Society , 11 ( 2 ) : 235 – 248 .
  • McCracken , G. 1988 . The long interview , Thousand Oaks, CA : Sage Publications .
  • Quan , L. and Smith , D. 1973 . The VATER association – vertebral defects, anal atresia, T–E fistula with esophageal atresia, radial and renal dysplasia: A spectrum of associated defects . The Journal of Pediatrics , 82 ( 1 ) : 104 – 107 .
  • Reeve , D. 2002 . Negotiating psycho-emotional dimensions of disability and their influence on identity construction . Disability & Society , 17 ( 5 ) : 493 – 508 .
  • Titchkosky , T. 2003 . Disability, self, and society , Toronto : University of Toronto Press .
  • VATER/VACTERL Connection. 2007. http://www.thevaterconnection.com.
  • Watson , N. 2003 . “ Daily denials: The routinisation of oppression and resistance ” . In Disability, culture, and identity , Edited by: Riddell , S. and Watson , N. Harlow : Pearson/Prentice Hall .
  • Wendell , S. 1996 . The rejected body: Feminist philosophical reflections on disability , New York : Routledge Publishing .
  • Whitney , C. 2006 . Intersections in identity – Identity development among queer women with disabilities . Sexuality and Disabilities , 24 ( 1 ) : 39 – 52 .
  • Zitzelsberger , H. 2005 . (In)Visibility: Accounts of embodiment of women with physical disabilities and differences . Disability & Society , 20 ( 4 ) : 389 – 403 .

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.