References
- Abbott, D. 2012. “Other Voices, Other Rooms: Reflections on Talking to Young Men with Duchenne Muscular Dystrophy and Their Families about Transition to Adulthood.” Children & Society 26 (3): 241–250.
- Abbott, D., and J. Carpenter. 2010. Becoming an Adult: Transition for Young Men with Duchenne Muscular Dystrophy (DMD). London: Muscular Dystrophy Campaign.
- Baldwin, S., and J. Carlisle. 1994. Social Support for Disabled Children and their Families: A Review of the Literature. London: HMSO.
- Blackburn, C. M., N. J. Spencer, and J. M. Read. 2010. “Prevalence of Childhood Disability and the Characteristics and Circumstances of Disabled Children in the UK: Secondary Analysis of the Family Resources Survey.” BMC Paediatrics 10 (21). http://www.biomedcentral.com/content/pdf/1471-2431-10-21.pdf.
- Byrne, E. A., and C. C. Cunningham. 1985. “The Effects of Mentally Handicapped Children on Families–a Conceptual Review.” Journal of Child Psychoanalysis and Psychiatry. 26 (6): 847–864.
- Cavet, J. 1998. “Leisure and Friendship.” In Growing up with Disability, edited by C. Robinson and K. Stalker. London: Jessica Kingsley.
- Cole, S. 2011. Disabled Children and Young People and Access to Transport.NCB and Young NCB Briefing for Westminster Hall debate on ‘Disabled Access to Transport’. http://www.ncb.org.uk/media/467744/111012_ncb_briefing_disabled_transport_commons_debate_final.pdf (accessed 20/01/13).
- Colville, G., and C. Pierce. 2010. “Children’s Self-reported Health-related Quality of Life After Intensive Care Treatment.” Critical Care 14 (1): 438.
- Connors, C., and K. Stalker. 2007. “Children’s Experiences of Disability: Pointers to a Social Model of Childhood Disability.” Disability & Society 22 (1): 19–33.
- Dickinson, H. O., K. N. Parkinson, U. Ravens-Sieberer, G. Schirripa, U. Theyn, C. Arnaud, E. Beckung, J. Fauconnier, V. McManus, S. I. Michelsen, J. Parkes, and A. Colver. 2009. “Self-reported Quality of Life of 8-12 Year Old Children with Cerebral Palsy: A Cross-sectional European Study.” The Lancet 30 (369): 2171–2178.
- Emerson, E. 2010b. “The Quality of Life of Disabled Children.” In Enhancing the Quality of Life of Persons with Disabilities: From Theory to Practice, edited by R. Kober. Dordrecht, Netherlands: Springer.
- Emerson, E. 2012a. “Understanding Disabled Childhoods: What Can We Learn From Population-Based Studies?” Children & Society 26 (3): 214–222.
- Fallowfield, L. 2007. What is Quality of Life? Health Economics What is …? Series.http://www.medicine.ox.ac.uk/bandolier/painres/download/whatis/WhatisQOL.pdf.
- Fauconnier, J., H. O. Dickinson, E. Beckung, M. Marcelli, V. McManus, S. I. Michelsen, J. Parkes, K. N. Parkinson, U. Thyen, C. Arnaud, and A. B. Volver. 2009. “Participation in Life Situations of 8-12 Year Old Children with Cerebral Palsy: Cross Sectional European Analysis.” British Medical Journal 338: b1458.
- Flynn, M., and M. Hirst. 1992. This Year, Next Year, Sometime …? Learning Disability and Adulthood. London: National Development Team.
- Heath, J., D. MacKinlay, A. R. Watson, A. Hamwes, L. Wirz, S. S. Scott, E. Klewchuk, D. Milford, and K. Mc Hugh. 2011. “Self-reported Quality of Life in Children and Young People with Chronic Kidney Disease.” Paediatric Nephrology 26 (5): 767–773.
- James, A., and A. Prout, eds. 1990. Constructing and Reconstructing Childhoods. London: Falmer.
- Kalyva, E., E. Malakonaki, C. Eiser, and D. Mamoulakis. 2010. “Health-related Quality of Life (HRQoL) of Children with Type 1 Diabetes Mellitus (T1DM): Self and Parental Perceptions.” Paediatric Diabetes 12 (1): 34–40.
- Karande, S., and S. Kulkarni. 2009. “Quality of Life of Parents of Children with Newly Diagnosed Specific Learning Disability.” Journal of Postgraduate Medicine 55 (2): 97–103.
- Kheir, N., G. Ghoneim, A. L. Sandridge, M. Al-Ismail, S. Hayder, and F. Al-Rawl. 2012. “Quality of Life of Caregivers of Children with Autism in Qatar.” Autism 166 (3): 293–298.
- McConkey, R. 2011. Working Outside the Box: An Evaluation of Short Break and Intensive Support Services to Families and Disabled Young People Whose Behaviour is Severely Challenging. University of Ulster/ Action for Children. http://www.actionforchildren.org.uk/media/142723/working_outside_the_box.pdf.
- Mencap. 2007. Don’t Stick It: Stop It! http://www.dontstickit.org.uk/
- Millar, S., and S. Aitkin. 2005. FE and Complex Needs: Views of Children and Young People. Edinburgh: CALL Centre. http://www.scotland.gov.uk/Resource/Doc/95345/0023087.pdf.
- Murray, P. 2002. Disabled Teenagers’ Experiences of Access to Inclusive Leisure. UK: Joseph Rowntree Foundation. http://www.jrf.org.uk/publications/disabled-teenagers-experiences-access-inclusive-leisure.
- Newman, G. 2009. What makes a Good Life? Views of Some Young People with Additional Support Needs: Summary Report. Highland Children’s Forum. http://www.highlandchildrensforum.org/library.asp.
- Oliver, M. 1990. The Politics of Disablement. Basingstoke: Macmillan.
- Priestley, M., P. Rabiee, and J. Harris. 2003. “Young Disabled People and the ‘New Arrangements’ for Leaving Care in England and Wales.” Children and Youth Services Review 25 (3): 863–890.
- Ravens-Sieberer, U., P. Auquier, M. Erhart, A. Gosch, L. Rajmil, J. Bruil, M. Power, W. Duer, B. Cloetta, L. Czemy, J. Mazur, A. Czimbalmos, Y. Tountas, C. Hagquist, J. Kilroe and Euroepan KIDSCREEN Group. 2007. “The KIDSCREEN-27 Quality of Life Measure for Children and Adolescents: Psychometric Results from a Cross- cultural Suurvey in 13 European Countries.” Quality of Life Research 16 (8): 1347–1356.
- Ravens-Sieberer, U., A. Gosch, L. Rajmil, M. Erhart, J. Bruil, W. Duer, P. Auquier, M. Power, T. Abel, L. Czemy, J. Mazur, A. Czimbalmos, Y. Tountas, C. Hagquist, J. Kilroe, and the European KIDSCREEN Group. 2005. “KIDSCREEN-52 Quality-of-life Measure for Children and Adolescents.” Expert Review of Pharmacoeconomics & Outcomes Research 5 (3): 353–364.
- Ridley, J., H. Spandler, A. Rosengard, S. Little, M. Cornes, J. Manthorpe, S. Hunter, T. Kinder, and B. Gray. 2011. Evaluation of Self- directed Support Test Sites in Scotland. UK: Scottish Government Research Funds No. 109/2011. http://www.scotland.gov.uk/Resource/Doc/358217/0121080.pdf.
- Rosenthal, R., and L. F. Jacobson. 1968. “Teacher Expectations for the Disadvantaged.” ScientificAmerican 218 (4).
- Shu, B.-C. 2009. “Quality of Life of Family Caregivers of Children with Autism: The Mother’s Perspectve.” Autism 13 (1): 81–91.
- Stalker, K., and L. Moscardini. 2012. A Critical Review and Analysis of Current Research and Policy Relating to Disabled Children and Young People in Scotland. Scotland’s Commissioner for Children and Young People. http://www.sccyp.org.uk/downloads/Critical_review_and_analysis_of_research_research_and_policy_relating_to_disabled_children1.pdf.pdf. (accessed 21/01/13)
- The KIDSCREEN Group Europe. 2006. The KIDSCREEN Questionnaires - Quality of Life Questionnaires for Children and Adolescents. Handbook. Lengerich: Pabst Science Publishers.
- Thomas, C. 1999. Female Forms: Experiencing and Understanding Disability. Buckingham: Open University Press.
- Thomas, C. 2007. Sociologies of Disability and Illness: Contested ideas in Disability Studies and Medical Sociology. Basingstoke: Palgrave Macmillan.
- Thurston, S., L. Paul, P. Loney, M. Wong, and G. Browne. 2010. “The Quality of Life of a Mutli-diagnosis Group of Special Needs Children: Associations and Costs.” International Journal of Paediatrics. On-line Article ID 940101: 13 pp.
- Trust, S. H. S. 2002. Real Choices: A Participatory Action Research Project Involving Young People with Learning Difficulties Who are about to Leave School. Edinburgh: SHS Trust.
- United Nations Convention on the Rights of Persons with Disabilities and Optional Protocol (UNCRPD). 2006. http://www.un.org/disabilities/documents/convention/convoptprot-e.pdf.
- Van Gameren-Oosterom, H. B. M., M. Fekkes, S. E. Buitendijk, A. D. Mohangoo, and J. Bruil. 2011. “Development, Problem Behavior, and Quality of Life in a Population Based Sample of Eight-Year-Old Children with Down Syndrome.” PLoS ONE 6 (7): e21879. doi:10.1371/journal.pone.0021879.
- Watson, N., T. Shakespeare, S. Cunningham-Burley, C. Barnes, J. Davis, M. Corker, and M. Priestley. 1999. “Life as a Disabled Child: A Qualitative Study of Young People’s Experiences and Perspectives.” http://www.leeds.ac.uk/disability-studies/projects/children.htm
- WHO. 1997. WHOQOL Measuring Quality of Life. World Health Organisation. Mental Health Division. http://www.who.int/mental_health/media/68.pdf.
- WHO. 2009. Percentage of Physically Active Children and Adolescents.ENHIS Fact Sheet 2.4. http://www.euro.who.int/en/what-we-do/conferences/fifth-ministerial-conference-on-environment-and-health/sections/news/2010/02/mehr-korperlich-aktive-kinder-in-der-europaischen-region,-doch-adipositasraten-steigen-weiter.
- Wickenden, M. 2011. ‘Talk to Me Like a Teenage Girl’: How do Disabled Teenagers with Little or no Speech See their Friendships? Paper given at ESRC seminar series Researching the Lives of Disabled Children, Bristolhttp://www.strath.ac.uk/humanities/schoolofappliedsocialsciences/socialwork/esrcseminarseries/
- Woolfson, R. C., M. Harker, D. Lowe, M. Shields, and H. Mackintosh. 2007. “Consulting with Children and Young People who have Disabilities: Views of Accessibility to Education.” British Journal of Special Education 34 (1): 40–49.
- Youthlink Scotland. 2009. Being Young in Scotland http://www.youthlinkscotland.org/Items/View.asp?ItemID=7042&MainID=7616&ID=245