‘Su guagua no escucha nada’: Ecuadorian families confronting the deafness of a child

References

• Beazley, S., and M. Moore. 1995. Deaf Children, Their Families and Professionals. London: David Fulton.
   Google Scholar
• Blume, S. S. 2010. The Artificial Ear. Cochlear Implants and the Culture of Deafness. New Brunswick, NJ: Rutgers University Press.
   Google Scholar
• Bosteels, S., G. van Hove, and M. Vandebroeck. 2012. “The Roller-coaster of Experiences: Becoming the Parent of a Deaf Child.” Disability & Society 27 (7): 983–996.
   Web of Science ®Google Scholar
• Calton, C. 2010. “The Obscuring of Class in Memoirs of Parents of Children with Disabilities.” Disability & Society 25 (7): 849–860.
   Web of Science ®Google Scholar
• De Paepe, P., R. E. Tapia, E. A. Santacruz, and J.-P. Unger. 2012. “Ecuador’s Silent Health Reform.” International Journal of Health Services 42 (2): 219–233.10.2190/HS.42.2.e
   PubMed Web of Science ®Google Scholar
• Diamond, K. E., and S. Kontos. 2004. “Families’ Resources and Accommodations: Toddlers with Down Syndrome, Cerebral Palsy, and Developmental Delay.” Journal of Early Intervention 26 (4): 253–265.10.1177/105381510402600402
   Web of Science ®Google Scholar
• Fazil, Q., P. Bywaters, Z. Ali, L. Wallace, and G. Singh. 2002. “Disadvantage and Discrimination Compounded: The Experience of Pakistani and Bangladeshi Parents of Disabled Children in the UK.” Disability & Society 17 (3): 237–253.
   Web of Science ®Google Scholar
• Fitzpatrick, E., I. D. Graham, A. Durieux-Smith, D. Angus, and D. Coyle. 2007. “Parents’ Perspectives on the Impact of the Early Diagnosis of Childhood Hearing Loss.” International Journal of Audiology 46: 97–106.
   PubMed Web of Science ®Google Scholar
• Gilbey, P. 2010. “Qualitative Analysis of Parents’ Experience with Receiving the News of the Detection of Their Child’s Hearing Loss.” International Journal of Pediatric Otorhinolaryngology 74: 265–270.10.1016/j.ijporl.2009.11.017
   PubMed Web of Science ®Google Scholar
• Gilliver, M., T. Ching, and J. Sjahalam-King. 2013. “When Expectation Meets Experience: Parents’ Recollections of and Experiences with a Child Diagnosed with Hearing Loss Soon after Birth.” International Journal of Audiology 52: S10–S16.10.3109/14992027.2013.825051
   PubMed Web of Science ®Google Scholar
• Gilman, M., B. Heyman, and J. Swain. 2000. “What’s in a Name? The Implications of Diagnosis for People with Learning Difficulties and Their Family Carers.” Disability & Society 15 (3): 389–409.
   Web of Science ®Google Scholar
• Government of Ecuador. 2013. http://www.ecuadorencifras.gob.ec/pobreza-en-ecuador-cierra-el-2013-con-una-caida-de-176-puntos/.
   Google Scholar
• Graungaard, A. H., and L. Skov. 2006. “Why Do We Need a Diagnosis? A Qualitative Study of Parents’ Experiences, Coping and Needs, When the Newborn Child is Severely Disabled.” Child Care, Health and Development 33: 296–307.
   Web of Science ®Google Scholar
• Hoffman, K., and M. A. Centeno. 2003. “The Lopsided Continent: Inequality in Latin America.” Annual Review of Sociology 29: 363–390.10.1146/annurev.soc.29.010202.100141
   Web of Science ®Google Scholar
• Huiracocha, L., C. A. Almeida, K. Huiracocha, A. Arteaga, J. A. Arteaga, P. Barahona and J. E. Quezada. 2013. “Explorando los sentimientos de los padres, la familia y la sociedad a las personas con Síndrome de Down: Estudio observacional [Exploring the Feelings of Parents, Family and Society Toward People with Down's Syndrome. An Observational Study].” Maskana 4 (2) 47–57.
   Google Scholar
• Huiracocha, L., G. Robalino, M. S. Huiracocha, J. L. Garcia, C .G. Pazán and A. Angulo. 2012. “Retrasos del desarrollo psicomotriz en niños y niñas urbanos de 0 a 5 años: Estudio de caso en la zona urbana de Cuenca, Ecuador [Delays in Psychomotor Development in Urban Boys and Girls 0–5 Years: A Case Study in the Urban Area of Cuenca, Ecuador].” Maskana 3 (1): 13–27. http://diuc.ucuenca.edu.ec/revista-maskana.
   Google Scholar
• Hyde, M., R. Punch, and L. Komasaroff. 2010. “Coming to a Decision about Cochlear Implantation: Parents Making Choices for Their Deaf Children.” Journal of Deaf Studies and Deaf Education 15: 162–178.
   PubMed Web of Science ®Google Scholar
• Jackson, C. W. 2011. “Family Supports and Resources for Parents of Children Who Are Deaf or Hard of Hearing.” American Annals of the Deaf 156 (4): 343–362.10.1353/aad.2011.0038
   PubMed Web of Science ®Google Scholar
• Kurzer-White, E., and D. Luterman. 2003. “Families and Children with Hearing Loss: Grief and Coping.” Mental Retardation and Developmental Disabilities Research Reviews 9: 232–235.10.1002/(ISSN)1098-2779
   PubMedGoogle Scholar
• Larson, E. 1998. “Reframing the Meaning of Disability to Families: The Embrace of a Paradox.” Social Science and Medicine 47 (7): 865–875.10.1016/S0277-9536(98)00113-0
   PubMed Web of Science ®Google Scholar
• Lucio, R., N. Villacrés, and R. Henriquez. 2011. “Sistema De Salud De Ecuador [The Health System of Ecuador].” Salud Publica Mex 53 (suppl 2): S177–S187.
   PubMed Web of Science ®Google Scholar
• Padden, C., and T. Humphries. 2005. Inside Deaf Culture. Cambridge, Mass: Harvard University Press.
   Google Scholar
• Park, J., A. P. Turnbull, and H. R. Turnbull. 2002. “Impacts of Poverty on Quality of Life in Families of Children with Disabilities.” Exceptional Children 68 (2): 151–170.
   Web of Science ®Google Scholar
• Pinos Vélez, E., and P. Ingavélez Guerra. 2011. “Análisis de los diagnósticos de discapacidades en la provincia del Azuay y propuesta de desarrollo de tecnologías inclusivas [Analysis of Diagnoses of Disability in the Province of Azuay and Proposal for the Development of Inclusive Technologies].” Ingenius 6: 29–36. http://ingenius.ups.edu.ec/documents/2497096/2497486/Art4.pdf.
   Google Scholar
• Ramsey, C., and J. A. Noriega. 2001. “Niños Milagrizados: Language Attitudes, Deaf Education, and Miracle Cures in Mexico.” Sign Language Studies 1 (3): 254–280.10.1353/sls.2001.0011
   Google Scholar
• Rapp, R., and F. D. Ginsburg. 2001. “Enabling Disability: Rewriting Kinship, Reimagining Citizenship.” Public Culture 13 (3): 533–556.10.1215/08992363-13-3-533
   Web of Science ®Google Scholar
• Steinberg, A., L. Bain, Yuelin Li G. Delgado, and V. Ruperto. 2003. “Decisions Hispanic Families Make after the Identification of Deafness.” Journal of Deaf Studies and Deaf Education 8 (3): 291–314.10.1093/deafed/eng016
   PubMedGoogle Scholar
• Timmermans, S., and M. Buchbinder. 2010. “Patients-in-waiting: Living between Sickness and Health in the Genomics Era.” Journal of Health and Social Behavior 51 (4): 408–423.10.1177/0022146510386794
   PubMed Web of Science ®Google Scholar