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Original Articles

The power of difference in inclusive research

, , &
Pages 528-542 | Received 22 Sep 2014, Accepted 17 Mar 2015, Published online: 23 Apr 2015

References

  • Abma, T. A. 2005. “Patient Participation in Health Research: Research with and for People with Spinal Cord Injuries.” Qualitative Health Research 15: 1310–1328.10.1177/1049732305282382
  • Abma, T. A., C. Nierse, and G. A. M. Widdershoven. 2009. “Patients as Partners in Responsive Research. Methodological Notions for Collaborations in Research Agenda Setting.” Qualitative Health Research 19 (3): 401–415.10.1177/1049732309331869
  • Abma, T. A., and G. A. M. Widdershoven. 2006. Responsieve methodologie. Interactief onderzoek in de Praktijk [Responsive Methodology. Interactive Research in Practice]. Den Haag: Lemma.
  • Atkinson, D., M. McCarthy, J. Walmsley, M. Cooper, S. Rolph, and S. Aspis. 2000. Good times Bad times – Women with Learning Difficulties Tell Their Stories. Kidderminster: BILD.
  • Bank-Mikkelson, N. 1980. “Denmark.” In Normalisation, Integration and Community Services, edited by R. J. Flynn and K. E. Nitsch. Baltimore, MD: University Park Press.
  • Barnes, C. 1996. “Disability and the Myth of the Independent Researcher.” Disability and Society 11 (1): 107–112.10.1080/09687599650023362
  • Barnes, C. 2003. “What a Difference a Decade Makes: Reflections on Doing ‘Emancipatory’ Disability Research.” Disability & Society 18 (1): 3–17.
  • Bigby, C., and P. Frawley. 2010. “Reflections on Doing Inclusive Research in the ‘Making Life Good in the Community’ Study.” Journal of Intellectual & Developmental Disability 35 (2): 53–61.
  • Bochner, P., and C. Ellis. 1992. “Personal Narrative as a Social Approach to Interpersonal Communication.” Communication Theory 2 (2): 165–172.10.1111/comt.1992.2.issue-2
  • Booth, T., and W. Booth. 1996. “Sounds of Silence: Narrative Research with Inarticulate Subjects.” Disability & Society 11 (1): 55–69.
  • Chappell, A. 2000. “The Emergence of Participatory Methodology in Learning Disability Research: Understanding the Context.” British Journal of Learning Disabilities 28 (1): 38–43.10.1046/j.1468-3156.2000.00004.x
  • Charlton, J. 2000. Nothing about Us, without Us: Disability Oppression and Empowerment. Oakland, CA: University of California Press.
  • Culham, A. 2003. “Deconstructing Normalization: Clearing the Way for Inclusion.” Journal of Intellectual & Developmental Disability 28 (1): 65–78.
  • De Wit, M. 2013. “Patient Participation in Rheumatology Research. A Four Level Responsive Evaluation.” PhD diss., VU University, Stichting Tools, Zaltbommel.
  • Ellis, C., and A. P. Bochner. 2003. “Auto-ethnography, Personal Narrative, Reflexivity.” In Collecting and Interpreting Qualitative Materials. 2nd ed, edited by N. K. Denzin and Y. S. Lincoln, 199–258. Thousand Oaks, CA: Sage.
  • Finkelstein, V. 1999. “Doing Disability Research (Extended Book Review).” Disability and Society 14: 859–867.
  • French, S., and J. Swain. 1997. “Changing Disability Research: Participating and Emancipatory Research with Disabled People.” Physiotherapy 83 (1): 26–32.10.1016/S0031-9406(05)66107-X
  • Garcia Iriarte, E., J. C. Kramer, J. M. Kramer, and J. Hammel. 2009. “‘Who Did What?’: A Participatory Action Research Project to Increase Group Capacity for Advocacy.” Journal of Applied Research in Intellectual Disabilities 22: 10–22.10.1111/jar.2008.22.issue-1
  • Gorashi, H., and I. Sabelis. 2013. “Juggling Difference and Sameness: Rethinking Strategies for Diversity in Organizations.” Scandinavian Journal of Management 29: 78–86.10.1016/j.scaman.2012.11.002
  • Greene, J. C., and T. A. Abma. 2001. “Responsive Evaluation.” New Directions for Evaluation 92: 1–5.
  • Guba, E. G., and Y. S. Lincoln. 1989. Fourth Generation Evaluation. Beverly Hills: Sage.
  • Jackson, M. 1989. Paths toward a Clearing: Radical Empiricism and Ethnographic Inquiry. Bloomington: Indiana University Press.
  • McDonald, J. 2013. “Coming out in the Field: A Queer Reflexive Account of Shifting Research Identity.” Management Learning 44 (2): 127–143.10.1177/1350507612473711
  • Meininger, H. P. 2013. “Inclusion as Heterotopia: Spaces of Encounter between People with and without Intellectual Disability.” Journal of Social Inclusion 4 (1): 24–44.
  • Nierse, C. J., and T. A. Abma. 2011. “Developing Voice and Empowerment: The First Step towards a Broad Consultation in Research Agenda Setting.” Journal of Intellectual Disability Research 55 (4): 411–421.10.1111/jir.2011.55.issue-4
  • Nierse, C., K. Schipper, E. van Zadelhoff, J. van de Griendt, and T. A. Abma. 2012. “Collaboration and Co-ownership in Research: Dynamics and Dialogues between Patient Research Partners and Professional Researchers in a Research Team.” Health Expectations 15: 242–254.10.1111/hex.2012.15.issue-3
  • Nirje, B. 1980. “The Normalisation Principle.” In Normalisation, Integration and Community Services, edited by R. J. Flynn and K. E. Nitsch, 31–49. Baltimore, MD: University Park Press.
  • Oderwald, A. K., F. Meulenberg, and W. van Tilburg, eds. 2003. De taal van het gevoel [The Language of the Feeling]. Amsterdam: Atlas.
  • Oliver, M. 1992. “Changing the Social Relations of Research Production.” Disability, Handicap and Society 7 (2): 101–114.10.1080/02674649266780141
  • Renders, F. 2013. “Making Space for the Other: Auto-ethnographic Stories and Self-reflections about Life in Flemish Institution for People with an Intellectual Disability.” Dissertation, University of Leuven.
  • Schipper, K. 2011. Patient Participation & Knowledge. Amsterdam: VU University Press.
  • Schipper, K., T. A. Abma, E. van Zadelhoff, J. van de Griendt, C. Nierse, and G. A. M. Widdershoven. 2010. “What Does It Mean to Be a Patient Research Partner?” An Ethno Drama. Qualitative Inquiry 16 (6): 501–510.10.1177/1077800410364351
  • Sinason, V. 1992. Mental Handicap and the Human Condition. London: The Association Books.
  • Snoeren, M., T. Niessen, and T. Abma. 2011. “Engagement Enacted. Essentials of Initiating an Action Research Project”. Action Research 10, 2, 189–204.
  • Stake, R. 2004. Standards-based and Responsive Evaluation. CA, Sage: Thousand Oaks.
  • Stalker, K. 1998. “Some Ethical and Methodological Issues in Research with People with Learning Difficulties.” Disability & Society 13 (1): 5–19.
  • Stone, M., and M. Priestley. 1996. “Parasites, Pawns and Partners: Disability Research and the Role of Non-disabled Researchers.” British Journal of Sociology 47 (4): 699–716.10.2307/591081
  • Tuffrey-Wijne, I., and G. Butler. 2010. “Co-researching with People with Learning Disabilities: An Experience of Involvement in Qualitative Data Analysis.” Health Expectations 13: 174–184.
  • VanderPlaat, M. 1999. “Locating the Feminist Scholar: Relational Empowerment and Social Activism.” Qualitative Health Research 9: 773–785.10.1177/104973299129122270
  • Walmsley, J. 2001. “Normalisation, Emancipatory Research and Inclusive Research in Learning Disability.” Disability and Society 16 (2): 187–205.10.1080/09687590120035807
  • Walmsley, J. 2004. “Inclusive Learning Disability Research: The (Nondisabled) Researcher’s Role.” British Journal of Learning Disabilities 32: 65–71.10.1111/bld.2004.32.issue-2
  • Walmsley, J., and K. Johnson. 2003. Inclusive Research with People with Learning Disabilities: Past, Present and Futures. London: Jessica Kingsley Publishers.
  • Widdershoven, G. A. M. 2010. Reflectie als Interventie [Reflection as Intervention]. Amsterdam: Oratie, VUmc.
  • Williams, V. 1999. “Researching Together.” British Journal of Learning Disabilities 27: 48–51.10.1111/bld.1999.27.issue-2
  • Williams, V. 2005. “‘Did You Solve It Yourself?’ Evaluation of Self Narratives of Discrimination by People with ‘Learning Difficulties’.” Communication and Medicine 2 (1): 77–89.10.1515/come.2005.2.issue-1
  • Wolfensberger, W. 1983. “Social Role Valorization: A Proposed New Term for the Principle of Normalization.” Mental Retardation 21: 234–239.
  • Yates, S., S. Dyson, and D. Hiles. 2008. “Beyond Normalization and Impairment: Theorizing Subjectivity in Learning Difficulties – Theory and Practice.” Disability & Society 23 (3): 247–258.
  • Zarb, G. 1992. “On the Road to Damascus: First Steps towards Changing the Relations of Disability Research Production.” Disability, Handicap and Society 7: 125–138.10.1080/02674649266780161

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