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Articles

Retracted Article: Growth attenuation and young people with profound disabilities – why we need to talk about Charley

Pages 1055-1070 | Received 22 Feb 2015, Accepted 02 Jul 2015, Published online: 18 Aug 2015

References

  • Adolph, V. R.. 2013. “Bioethics in Practice – A Quarterly Column about Medical Ethics: Questioning Parents’ Medical Decisions.” Ochsner 13 (2), 180–182. PMCID: PMC3684323.
  • Allan, D., M. Kappy, D. Diekema, and G. Fost. 2009. “Growth Attenuation Therapy: Principles for Practice.” Paedatrics 123: 1556–1561. doi:10.1542/peds.2008-2951.
  • Arda, B. 2010. “Stopping Growing up Processes or Not? The Whole Problem in Children Who Have No Chance of Recovery.” Romanian Journal of Bioethics 8 (1): 143–149.
  • Braswell, H. 2015. “My Two Moms: Disability, Queer Kinship, and the Maternal Subject.” Hypatia 30 (1): 234–250.10.1111/hypa.2015.30.issue-1
  • Burman, Erica, and Ian Parker, eds. 1993. Discourse Analytic Research: Repertoires and Readings of Texts in Action. London: Routledge.
  • Butler, J. 2003. “Violence, Mourning.” Politics. Studies in Gender and Sexuality 4 (1): 9–37.10.1080/15240650409349213
  • Butler, Judith P. 2009. Frames of War. New York: Verso.
  • Chisholm, D. 2014 “We Need to Talk about Charley.” North and South 4: 66–75.
  • Clark, Peter, and Lauren Vasta. 2006. “The Ashley Treatment. An Ethical Analysis.” The Internet Journal of Law, Healthcare and Ethics 11. http://ispub.com/IJLHE/5/1/8005
  • Clarren, Rebecca. “Behind the Pillow Angel.” Salon. http://www.salon.com/2007/02/09/pillow_angel_2/
  • Davies, B. 2011. “Bullies as Guardians of the Moral Order or an Ethic of Truths?” Children and Society 25: 278–286.10.1111/chso.2011.25.issue-4
  • Debrett. M. 2004. “Branding Documentary: New Zealand’s Minimalist Solution to Cultural Subsidy.” Media, Culture & Society. 26 (1): 5–23. ProQuest Journal Database 038202 [ISSN: 0163-4437, doi: 10.1177/0163443704038202]
  • Ellis, C., and A. P. Bochner. 2000. “Autoethnography, Personal Narrative, Reflexivity: Researcher as Subject”. In Handbook of Qualitative Research, edited by N. K. Denzin and Y. S. Lincoln, 703–715. London: Sage Publications.
  • Foucault, M. 1978. The History of Sexuality Vol 1: An Introduction. Translated by R. Hurley. New York: Vintage.
  • Garland-Thomson, Rosemarie. 2002.“The Politics of Staring: Visual Rhetorics of Disability in Popular Photography.” In Disability Studies: Enabling the Humanities, edited by Sharon L. Snyder, Brenda Jo Brueggemann, and Rosemarie Garland-Thomson, 56–75. New York: Modern Language Association of America.
  • Gunther, Daniel F., and Douglas S. Diekema. 2006. “Attenuating Growth in Children with Profound Developmental Disability: A New Approach to an Old Dilemma.” Archives of Pediatrics & Adolescent Medicine 160 (10): 1013–1017.
  • Goodley, D., and K. Runswick-Cole. 2011. “The Violence of Disablism.” Sociology of Health & Illness 33 (4): 602–617.
  • Hamilton, C. 2011. “Community Member’s Responses to the Elective Hysterectomy of an Intellectually Disabled Girl.” Journal of Social Inclusion 2 (1): 24–38.
  • Hamilton, C. 2012. “Sterilisation and Intellectually Disabled People in New Zealand – Still on the Agenda?” Kotuitui: New Zealand Journal of Social Sciences Online 7 (2): 61–71.
  • Health and Disability Commissioner. 2008. “Midwife, Ms B; Midwife, Ms C; Midwife, Ms D: A Report by the Health and Disability Commissioner (Case 07HDC08615) Opinion 07HDC08615”. http://www.hdc.org.nz/media/14379/07hdc08615midwives.pdf
  • Hodder, I. 2000. “The Interpretation of Documents and Material Culture.” In Handbook of Qualitative Research, edited by N. K. Denzin and Y. S. Lincoln, 703–715. London: Sage Publications.
  • Holstein, James A., and Jaber F. Gubrium. 2000. Constructing the Life Course. Lanham, MD: Rowman & Littlefield.
  • Human Rights Commission. n.d.. “Caring for Disabled Family Members.” http://www.hrc.co.nz/enquiries-and-complaints-guide/faqs/caring-for-disabled-adult-family-members/I
  • Inahara, M. 2009. “This Body Which is Not One: The Body.” Femininity and Disability. Body Society 15 (1): 47–62.10.1177/1357034X08100146
  • Ingram, S. 2009. “What I Said and What I Didn’t Say.” In My Baby Rides the Short Bus: The Unabashedly Human Experience of Raising Kids with Disabilities, edited by Y. Bertelli, J. Sliverman, and S. Talbot, 41–46. Oakland, CA: PM Press.
  • Jennings, S. 2013. “Reflections on Personhood: Girls with Severe Disabilities and the Law.” CJDS 2 (3): 55–97.10.15353/cjds.v2i3
  • Jordan, J. 2005. “Reshaping the “Pillow Angel”: Plastic Bodies and the Rhetoric of Normal Surgical Solutions.” Quarterly Journal of Speech. 92 (1): 20–42.
  • Kittay, Eva Feder. 2011. “Forever Small: The Strange Case of Ashley X.” Hypatia 26 (3): 610–631.
  • Kafer, A. 2013. Feminist, Queer, Crip. Indiana: Indiana University Press.
  • Kumari Campbell, F. 2009. Contours of Abelism: The Reproduction of Disability and Ableness. Great Britain: Palgrave.10.1057/9780230245181
  • Lao, M., J. Savulescu, and M. Sheehan. 2007. “The Ashley Treatment: Best Interests, Convenience, and Parental Decision-making.” Hastings Centre Report (Mar/April): 16–20.10.1353/hcr.2007.0027
  • Law Healthc. Ethics. 2007; 5: 45. Available on: http://www.ispub.com/journal/the_internet_journal_of_law_healthcare_and_ethics/volume_5_number_1_45/article/the_ashley_treatment_an_ethical_analysis.html [accessed 27 July 2015].
  • McAvoy, Jean. 2015. “From Ideology to Feeling: Discourse, Emotion, and an Analytic Synthesis.” Qualitative Research in Psychology 12 (1): 22–33.
  • McAvoy, J. 2014. “From Ideology to Feeling: Discourse, Emotion and an Analytic Synthesis.” Qualitative Research in Psychology 12 (1): 22–33.
  • McGuire, A. 2010 “Disability, Non-disability and the Politics of Mourning – Reconfiguring the We.” Disability Studies Quarterly, 30 (3/4). http://dsq-sds.org/article/view/1282/1309
  • Newsom, R. 2007. “Seattle Syndrome.” Nursing Philosophy 8: 291–294.10.1111/nup.2007.8.issue-4
  • Oliver, Michael. 1990. The Politics of Disablement. London: RKP.
  • Ouellette, Alicia R. 2008.“Growth Attenuation, Parental Choice, and The Rights of Disabled Children: Lessons from the Ashley X Case.” Houston Journal of Health Law and Policy 8: 207.
  • Peace, W. 2007 January Thursday 18. “The Ashley Treatment and the Making of a Pillow Angel.” http://www.counterpunch.org/2007/01/18/protest-from-a-bad-cripple/
  • Peace W., and C. Roy. 2014. “Scrutinizing Ashley X: Presumed Medical “Solutions” Vs. Real Social Adaptation.” The Journal of Philosophy, Science & Law: Disability Special Issue 14 (2): 33–52.
  • Shakespeare. T. 2006. Honey, We Shrunk the (Developmentally Disabled) Kid! http://www.bbc.co.uk/ouch/opinion/honey_we_shrunk_the_developmentally_disabled_kid.shtml
  • Shildrick, M. 2002. Embodying the Monster, Encounters with the Vulnerable Self. London, United Kingdom: Sage Publications.
  • Sollied, Sissel. 2009. Undring og ubehag: et blikk på effecten av veiledning i specialpedagogisk praksis [Avhandling levert for graden philosophiae doctor, Universitetet I Tromsø]. http://munin.uit.no/bitstream/handle/10037/2451/?sequence=3
  • Squire, C. 2005. “Reading Narratives”. Group Analysis 38:91. ProQuest Education Journals Database. doi: 10.1177/0533316405049373.
  • Stace, H. 2007. “The Long Unfinished Journey towards Human Rights for Disabled People in Aotearoa New Zealand.” In Human Rights Research 5, edited by P. Morris and H. Greatrex. www.vuw.ac.nz\nzcpl\
  • Stake, R. 2000. “Case Studies.” In Handbook of Qualitative Research, edited by N. K. Denzin and Y. S. Lincoln, 435–454. London, United Kingdom: Sage Publications.
  • Starr, A. 2005. “Looking in the Mirror: Images of Abnormally Developed Infants.” Journal of Medical Humanities 26 (2/3): 97–106.10.1007/s10912-005-2912-4
  • Terry, A., and A. Campbell. 2009. “Family Myths of a Child’s Identity and the Effect on Service Provision.” Learning Disability Practice 12 (8): 24–29.10.7748/ldp2009.10.12.8.24.c7310
  • TVNZ. 2009. Thursday April 16 9:47 pm. 20/20 the Baby Business. Auckland, Sunday News, Television New Zealand.
  • TVNZ. 2014 Sunday May 18, 5:03 pm. 20/20 Charley Girl. Auckland, Sunday News, Television New Zealand.
  • United Nations. 2007. Convention on the Rights of Persons with Disabilities. Geneva: UN. http://www.un.org/disabilities/convention/conventionfull.shtml
  • Walton, Jean. 1995. “Re-placing Race in (White) Psychoanalytic Discourse: Founding Narratives of Feminism.” Critical Inquiry 21 (4): 775–804.

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