2,717
Views
22
CrossRef citations to date
0
Altmetric
Articles

Liminal still? Unmothering disabled children

ORCID Icon &
Pages 1125-1139 | Received 24 Aug 2018, Accepted 26 Mar 2019, Published online: 06 May 2019

References

  • Ahmed, S. 2009. “Embodying Diversity: Problems and Paradoxes for Black Feminists.” Race Ethnicity and Education 12 (1):41–52. doi: 10.1080/13613320802650931.
  • Bauman, Z. 2004. Wasted Lives: Modernity and Its Outcasts. Cambridge: Polity Press.
  • Berlant, L. 2006. “Cruel Optimism.” Journal of Feminist Cultural Studies 17 (3):20–36. doi: 10.1215/10407391-2006-009.
  • Contact a Family. n.d. Parent Carer Participation and Parent Carer Forums. https://contact.org.uk/media/759586/parent_carer_forums_nnpcf_caf_generic.pdf
  • Crow, L. 1996. Including all Our Lives: Re-Newing the Social Model of Disability. In Morris, J. (ed) (1996) Encounters with Strangers: Feminism and Disability. London: Women's Press.
  • de Benedictis, S. 2012. ‘‘Feral’ Parents: Austerity Parenting under Neoliberalism’ Studies in the Maternal 4 (2):1–21.
  • Department for Education & Department for Health and Social Care. 2015. SEND Code of Practice: 0-25 Years. London: HMSO.
  • Department of Health. 2001. Valuing People: A New Strategy for Learning Disability for the 21st Century. London, UK: Department of Health.
  • Department of Health. 2009. Valuing People Now: A New Three-Year Strategy for People with Learning Disabilities. London: DH Publications.
  • Department of Health. 2012. Transforming Care: a national response to Winterbourne View Hospital: Department of Health Review. Available online at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/213215/final-report.pdf. Accessed on: 9th April, 2019.
  • Department of Health. 2015. No Voice Unheard, No Right Ignored - a consultation for people with learning disabilities, autism and mental health conditions. Available online at: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/409816/Document.pdf. Accessed on 9th April, 2019.
  • Disabled Children’s Partnership. 2018. The Secret Life of Us. https://disabledchildrenspartnership.org.uk/secret-life-of-us/.
  • Douglas, P. 2015. Autism and mothering: pursuing the meaning of care. Unpublished PhD Thesis. The University of Toronto.
  • Finkelstein, V. 1999. Professions Allied to the Community (PACs). Leeds, The Disability Archive. wwwleedsacuk/disability-studies/archiveuk/indexhtml.
  • Garland-Thomson, R. 2002. “Integrating Disability, Transforming Feminist Theory.” National Women’s Studies Association Journal:1–32. doi: 10.1353/nwsa.2003.0005.
  • Gibson, M. 2014. Queering Motherhood: Narrative and Theoretical Perspectives. Bradford ON: Dimiter Press.
  • Goodley, D. 2005. “Empowerment, Self-Advocacy and Resilience, International.” Journal of Intellectual Disabilities 9 (4):333–343. doi: 10.1177/1744629505059267.
  • Goodley, D. 2014. Dis/Ability Studies: theorizing Disability and Ableism. London: Routledge.
  • Grey and Riley. 2013. “The Challenges and Benefits of Unschooling according to 232 Families Who Have Chosen That Route.” Journal of Unschooling and Alternative Learning 7 (14):1–27.
  • HM Treasury and DfES 2007. Aiming High for Disabled Children: Better Support for Families. http://www.everychildmatters.gov.uk/socialcare/disabledchildren.
  • Jensen, T. 2012. ‘Tough Love in Tough Times’ Studies in the Maternal 4 (2):1–26. doi: 10.16995/sim.35.
  • Lowe, P., E. Lee, and M. Macvarish. 2015. “Biologising Parenting: Neuroscience Discourse, English Social and Public Health Policy and Understandings of the Child.” Sociology of Health & Illness 0 (0):1–14. 10.1111/1467-9566.12223
  • Mazars 2015. Independent review of deaths of people with a Learning Disability or Mental Health problem in contact with Southern Health NHS Foundation Trust April 2011 to March 2015. https://www.england.nhs.uk/south/wp-content/uploads/sites/6/2015/12/mazars-rep.pdf
  • Morris, J. 1992. “Personal and Political: A Feminist Perspective on Researching Physical Disability.” Disability, Handicap & Society 7 (2):157–166. doi: 10.1080/02674649266780181.
  • NHS England 2017. Learning Disabilities Mortality Review Programme Annual Report (2017). https://www.hqip.org.uk/wp-content/uploads/2018/05/LeDeR-annual-report-2016-2017-Final-6.pdf
  • NHS England, Public Health England, Health Education England, Monitor, Care Quality Commission. NHS Trust Development Authority (2014) Five Year Forward View. http://www.england.nhs.uk/wp-content/uploads/2014/10/5yfv-web.pdf
  • O’Reilly, A. 2014. Ain’t I a Feminist? Matricentric Feminism, Feminist Mothers and Why Mothers Need a Feminist Movement/Theory of Their Own. Keynote Speech and Induction into the Motherhood Hall of Fame at the Museum of Motherhood. New York, 2014.
  • Oliver, M. 1990. The Politics of Disablement: A Sociological Approach. Buckingham: Palgrave MacMillan
  • Page, L., and S. Aspis. 1997. “Special Feature.” Viewpoint: 6–7.
  • Pinkola-Estes, C. 2005. Warming the Stone Child: myths and Stories about Abandonment and the Unmothered Child. Audio Book.
  • Puar, J. K. 2012. “Precarity Talk: A Virtual Roundtable with Lauren Berlant, Judith Butler, Bojana Cvejic, Isabell Lorey, Jasbir Puar, and Ana Vujanovic.” TDR: The Drama Review 56 (4):163–177.
  • Runswick-Cole, K. 2007. “The Tribunal Was the Most Stressful Thing: more Stressful than my Son’s Diagnosis or Behaviour’: The Experiences of Families Who Go to the Special Educational Needs and Disability Tribunal (SENDIST.)” Disability and Society 22 (3):315–328. doi: 10.1080/09687590701259674.
  • Runswick-Cole, K. 2008. “Between a Rock and a Hard Place: parents’ Attitudes to the Inclusion of Their Children with Special Educational Needs in Mainstream Schools.” British Journal of Special Education 35 (3):173–180. doi: 10.1111/j.1467-8578.2008.00390.x.
  • Runswick-Cole, K., and D. Goodley. 2011. “Big Society: A Dismodernist Critique.” Disability & Society 26 (7):881–885. doi: 10.1080/09687599.2011.618743.
  • Runswick-Cole, K., and D. Goodley. 2015. “Disability and Austerity: ‘Cruel Optimism’ in Big Society.” Canadian Journal of Disability Studies 4 (2):162–186. doi: 10.1080/09687599.2014.920125.
  • Runswick-Cole, K., and D. Goodley. 2017. ‘The Disability Commons’: re-thinking motherhood through disability. In Runswick-Cole, K., Curran, T. and Liddiard, K. (eds) Palgrave Handbook of Disabled Children’s Childhood Studies. Basingstoke: Palgrave.
  • Runswick-Cole, K., R. Lawthom, and D. Goodley. 2016. “The Trouble with Hard Working Families.” Community, Work & Family 9 (2):257–260. doi: 10.1080/13668803.2016.1134153.
  • Ryan, S. 2005. “Busy Behaviour in the ‘Land of the Golden M.” Journal of Applied Research in Intellectual Disabilities 18 (1):65–74. doi: 10.1111/j.1468-3148.2004.00225.x.
  • Ryan, S. 2017. Justice for Laughing Boy. London: Jessica Kingsley.
  • Ryan, S., and K. Runswick-Cole. 2008. “Repositioning Mothers: Mothers, Disabled Children and Disability Studies.” Disability & Society 23 (3):199–210. doi: 10.1080/09687590801953937.
  • Ryan, S., and K. Runswick-Cole. 2009. “From Advocate to Activist? Mapping the Experiences of Mothers of Children on the Autism Spectrum.” Journal of Applied Research in Intellectual Disabilities 22 (1):43–53. doi: 10.1111/j.1468-3148.2008.00438.x
  • Scope. 2015. A Hundred Stories in a Hundred Days. https://www.scope.org.uk/100stories
  • Skeggs, B. 2005. “The Making of Class and Gender through Visualizing Moral Subject Formation.” Sociology 39 (5):965–982. doi: 10.1177/0038038505058381.
  • Smith, S. 2017. National Network of Parent Carer Forums Annual Report. http://www.nnpcf.org.uk/wp-content/uploads/2013/06/NNPCF-2017-Annual-Report-Web.pdf
  • Thomas, C. 2007. Sociologies of Illness and Disability: Contested Ideas in Disability Studies and Medical Sociology. Basingstoke: Palgrave MacMillan.
  • Watermeyer, B. 2013. Towards a Contextual Psychology of Disablism. London: Routledge.
  • Watermeyer, B., and J. McKenzie. 2014. “Mothers of Disabled Children: In Mourning or on the March?” Journal of Social Work Practice 28 (4):405–416. doi: 10.1080/02650533.2014.889103.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.