‘I am not your nutter’: a personal reflection on commodification and comradeship in service user and survivor research

References

• Baldwin, J. 2017. I Am Not Your Negro. London: Penguin
   Google Scholar
• Beresford, P. 2010. “Re-Examining Relationships between Experience, Knowledge, Ideas and Research: A Key Role for Recipients of State Welfare and Their Movements.” SW&S Social Work and Society International Online Journal :8. Available at: http://www.socwork.net/sws/article/view/19/56. Accessed 30 August 2018.
   Google Scholar
• Beresford, P. 2013. “From ‘Other’ to Involved: user Involvement in Research: An Emerging Paradigm.” Nordic Social Work Research 3 (2):139–148. doi:10.1080/2156857X.2013.835138.
   Google Scholar
• Beresford, P., and J. Russo. 2015. “Between Exclusion and Colonization: seeking a Place for Mad People’s Knowledge in Academia.” Disability and Society 30 (1):153–157. doi:10.1080/09687599.2014.957925.
   Web of Science ®Google Scholar
• Coffé, H., and B. Geys. 2007. “Toward and Empirical Characterization of Bridging and Bonding Social Capital.” Nonprofit and Voluntary Sector Quarterly 36 (1):121–139. doi:10.1177/0899764006293181.
   Web of Science ®Google Scholar
• Crepaz-Keay, D. 2016. “Can We Co-Produce Reality, Normality and a World That Has Meaning for All?” Philosophy, Psychiatry & Psychology 23 (3–4):313–321. doi:10.1353/ppp.2016.0037.
   Web of Science ®Google Scholar
• Hook, S. 1971. In Defense of Academic Freedom. New York: Pegasus
   Google Scholar
• INVOLVE. 2012. Briefing Notes for Researchers: Public Involvement in NHS, Public Health and Social Care Research. Eastleigh: NIHR INVOLVE.
   Google Scholar
• Larsen, L., S. L. Harlan, B. Bolin, E. J. Hackett, D. Hope, A. Kirby, A. Nelson, et al. 2004. “Bonding and Bridging: Understanding the Relationship between Social Capital and Civic Action.” Journal of Planning, Education and Research 24 (1):64–77. doi:10.1177/0739456X04267181.
   Web of Science ®Google Scholar
• Mann, S., and J. Cowburn. 2005. “Emotional Labour and Stress within Mental Health Nursing.” Journal of Psychiatric and Mental Health Nursing 12 (2):154–162. doi:10.1111/j.1365-2850.2004.00807.x.
   PubMedGoogle Scholar
• Matinez-Iñigo, D., P. Totterdell, C. M. Alcover, and D. Holman. 2007. “Emotional Labour and Emotional Exhaustion: Interpersonal and Intrapersonal Mechanisms.” Work & Stress 21 (1):30–47. doi:10.1080/02678370701234274.
   Web of Science ®Google Scholar
• McAvoy, J. 2014. “Psy Disciplines.” In Encyclopedia of Critical Psychology, edited by Teo, T, 1527–1529. New York: Springer.
   Google Scholar
• McPin Foundation 2017. Patient and Public Involvement at the McPin Foundation: An Overview. London: McPin Foundation
   Google Scholar
• Menzies, R., B. A. LeFrançois, and G. Reaume. 2013. Introducing Mad Studies. In Mad Matters: A Critical Reader in Canadian Mad Studies, edited by B. A. LeFrançois, R. Menzies & G. Reaume, 1–22. Toronto, ON: Canadian Scholars’ Press
   Google Scholar
• Nasser, M., M. Clarke, I. Chalmers, K. G. Brurberg, H. Nykvist, H. Lund, and P. Glasziou. 2017. “What Are Funders Doing to Minimise Waste in Research?” Lancet (London, England) 389 (10073):1006–1007. doi:10.1016/S0140-6736(17)30657-8.
   PubMed Web of Science ®Google Scholar
• Patterson, S., J. Trite, and T. Weaver. 2014. “Activity and Views of Service Users Involved in Mental Health Research: UK Survey.” British Journal of Psychiatry 205 (01):68–75. doi:10.1192/bjp.bp.113.128637.
   PubMed Web of Science ®Google Scholar
• Research Councils UK. 2017a. Widening Cross-Disciplinary Research for Mental Health August. London: RCUK
   Google Scholar
• Research Councils UK. 2017b. Cross-Disciplinary Mental Health Network plus Call: Call Specification. London: RCUK
   Google Scholar
• Research Councils UK. 2017c. Cross-Council Mental Health Networking Event., October 2017 London: RCUK
   Google Scholar
• Rose, D. 2014. “Patient and Public Involvement in Health Research: Ethical Imperative and/or Radical Challenge?” Journal of Health Psychology 19 (1):149–158. doi:10.1177/1359105313500249.
   PubMed Web of Science ®Google Scholar
• Rose, D. 2017. “Service User/Survivor-Led Research in Mental Health: Epistemological Possibilities.” Disability & Society 32 (6):773–789. doi:10.1080/09687599.2017.1320270.
   Web of Science ®Google Scholar
• Rose, D., S. Carr, and P. Beresford. 2018. “Widening Cross-Disciplinary Research for Mental Health’: What Is Missing from the Research Councils UK Mental Health Agenda?” Disability and Society 33 (3):476–481. doi:10.1080/09687599.2018.1423907.
   Web of Science ®Google Scholar
• Russo, J., and Beresford, P. 2015. “Between Exclusion and Colonisation: Seeking a Place for Mad People's Knowledge in Academia.” Disability and Society 30 (1):153–157.
   Google Scholar
• Routledge, P., and K. D. Derickson. 2015. “Situated Solidarities and the Practice of Scholar-Activism.” Environment and Planning D: Society and Space 33 (3):391–407. doi:10.1177/0263775815594308.
   Web of Science ®Google Scholar
• SRN. 2018. SRN Manifesto. Survivor Researcher Network – Mental Health Knowledge Build by Service Users and Survivors. London: National Survivor User Network
   Google Scholar
• Sweeney, A. 2016. “Why Mad Studies Needs Survivor Research and Survivor Research Needs Mad Studies.” Social Work Analysis, Research, Polity, and Practice 5 (3):36–60.
   Web of Science ®Google Scholar
• Tritter, J. 2009. “Revolution or Evolution: The Challenges of conceptualizing patient and public involvement in a consumerist world.” Health Expectations: An International Journal of Public Participation in Health Care and Health Policy 12 (3):275–287. doi:10.1111/j.1369-7625.2009.00564.x.
   PubMed Web of Science ®Google Scholar
• Valentine, G., and C. Harris. 2014. “Strivers vs Skivers: Class Prejudice and the Demonisation of Dependency in Everyday Life.” Geoforum 53:84–92. doi:10.1016/j.geoforum.2014.02.007.
   Web of Science ®Google Scholar