Diagnosis as a sociocultural practice: critical personal narratives of Asian immigrant mothers with Autism-Spectrum Disorder children in Canada

References

• Bahruth, R. E., and S. F. Steiner. 2000. “Upstream in the Mainstream: Pedagogy against the Current.” In Freirean Pedagogy, Praxis, and Possibilities: Projects for the New Millennium, edited by S. F. Steiner, H. M. Krank, P. McLaren, & R. E. Bahruth, 119–146. New York & London: Falmer.
   Google Scholar
• Ben-Moshe, L., and S. Magaña. 2014. “An Introduction to Race, Gender, and Disability: Intersectionality, Disability Studies, and Families of Color.” Women, Gender, and Families of Color 2 (2): 105–114. doi:10.5406/womgenfamcol.2.2.0105.
   Google Scholar
• Chapman, V. L. 2004. “Using Critical Personal Narratives: A Poststructural Perspective on Practice.” New Directions for Adult and Continuing Education 2004 (102): 95–103. doi:10.1002/ace.142.
   Google Scholar
• Collins, P. H. 2015. “Intersectionality's Definitional Dilemmas.” Annual Review of Sociology 41 (1): 1–20. doi:10.1146/annurev-soc-073014-112142.
   Web of Science ®Google Scholar
• Crenshaw, K. 1989. “Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory, and Antiracist Politics.” University of Chicago Legal Forum 1989, 139–167.
   Google Scholar
• Freire, P. 2000. Pedagogy of the Oppressed. 30th anniversary ed. New York: Continuum.
   Google Scholar
• Gillborn, D. 2015. “Intersectionality, Critical Race Theory, and the Primacy of Racism: Race, Class, Gender, and Disability in Education.” Qualitative Inquiry 21 (3): 277–287. doi:10.1177/1077800414557827.
   Web of Science ®Google Scholar
• Gnaulati, E. 2013. That’s not autism: It’s simply a brainy, introverted boy. Salon. https://www.salon.com/2013/09/21/thats_not_autism_its_simply_a_brainy_introverted_boy/
   Google Scholar
• Grewal, S. 2010. Diagnosis and treatment barriers faced by South Asian families in Canada who have children diagnosed with an Autism-Spectrum-Disorder. Thesis, School of Professional Psychology, Pacific University.
   Google Scholar
• Guy, T. C. 1999. “Culture as Context for Adult Education: The Need for Culturally Relevant Adult Education.” New Directions for Adult and Continuing Education 1999 (82): 5–18. doi:10.1002/ace.8201.
   Google Scholar
• Haarmans, M., S. Noh, and F. Munger. 2004. A Review of Clinical Cultural Competence: Definitions, Key Components, Standards and Selected Trainings. Toronto, Ontario: Centre for Addiction and Mental Health.
   Google Scholar
• Jaarsma, P., and S. Welin. 2012. “Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement.” Health Care Analysis: HCA: Journal of Health Philosophy and Policy 20 (1): 20–30. doi:10.1007/s10728-011-0169-9.
   PubMed Web of Science ®Google Scholar
• Kediye, F., A. Valeo, and R. C. Berman. 2009. “Somali-Canadian Mothers' Experiences in Parenting a Child with Autism-Spectrum-Disorder.” Journal of the Motherhood Initiative for Research and Community Involvement 11 (1): 211–223.
   Google Scholar
• King, G., S. Lindsay, A. Klassen, V. Esses, and R. Mesterman. 2011. Barriers to health service utilization by immigrant families raising a disabled child: Unmet needs and the role of discrimination. Report prepared for Citizenship and Immigration Canada. https://www.amssa.org/wp-content/uploads/2016/01/families-with-disabled-child-final-report1.pdf
   Google Scholar
• Lai, Y., and, F. Ishu.Ishiyama. 2004. “Involvement of Immigrant Chinese Canadian Mothers of Children with Disabilities.” Exceptional Children 71 (1): 97–108. doi:10.1177/001440290407100106.
   Web of Science ®Google Scholar
• Marcus, G. E., and M. M. J. Fischer. 1986. Anthropology as Cultural Critique: An Experimental Moment in the Human Sciences. University of Chicago Press, Chicago.
   Google Scholar
• Molloy, H., and L. Vasil. 2002. “The Social Construction of Asperger Syndrome: The Pathologising of Difference?” Disability & Society 17 (6): 659–669. doi:10.1080/0968759022000010434.
   Web of Science ®Google Scholar
• Munroe, K., L. Hammond, and S. Cole. 2016. “The Experiences of African Immigrant Mothers Living in the United Kingdom with a Child Diagnosed with an Autism-Spectrum-Disorder: An Interpretive Phenomenological Analysis.” Disability & Society 31 (6): 798–819. doi:10.1080/09687599.2016.1200015.
   Web of Science ®Google Scholar
• Naples, N. A. 2014. Grassroots Warriors: Activist Mothering, Community Work, and the War on Poverty. London, England: Routledge.
   Google Scholar
• Norbury, C. F., and A. Sparks. 2013. “Difference or Disorder? Cultural Issues in Understanding Neurodevelopmental Disorders.” Developmental Psychology 49 (1): 45–58. doi:10.1037/a0027446.
   PubMed Web of Science ®Google Scholar
• Ozonoff, S., and S. J. Rogers. 2003. “From Kanner to the Millennium: Scientific Advances That Have Shaped Clinical Practice.” In Autism-Spectrum-Disorder s: A Research Review for Practitioners, edited by S. Ozonoff, S. J. Rogers, & R. L. Hendren, 3–33. Arlington, VA, US: American Psychiatric Publishing, Inc.
   Google Scholar
• Pondé, M. P., and C. Rousseau. 2013. “Immigrant Children with Autism-Spectrum-Disorder: The Relationship between the Perspective of the Professionals and the Parents’ Point of View.” Journal of the Canadian Academy of Child and Adolescent Psychiatry = Journal de L'Academie Canadienne de Psychiatrie de L'enfant et de L'adolescent 22 (2): 131–138.
   PubMedGoogle Scholar
• Ritvo, E. 2006. Understanding the Nature of Autism and Asperger’s Disorder: Forty Years of Clinical Practice and Pioneering Research. Philadelphia, U.S.: Jessica Kingsley.
   Google Scholar
• Rodó-de-Zárate. M. 2017. “Affective Inequality and Heteronormative Discomfort.” Tijdschrift Voor Economische en Sociale Geografie 108 (3): 302–317.
   Web of Science ®Google Scholar
• Rutter, M. 1978. “Diagnosis and Definition of Childhood Autism.” Journal of Autism and Childhood Schizophrenia 8 (2): 139–161. doi:10.1007/BF01537863.
   PubMedGoogle Scholar
• Traustadottir, R. 1991. “Mothers Who Care: Gender, Disability, and Family Life.” Journal of Family Issues 12 (2): 211–228. doi:10.1177/019251391012002005.
   Web of Science ®Google Scholar
• Trice, N. C.. 2008. “Reading Autistic Experience.” Dissertation Georgia State University. https://scholarworks.gsu.edu/english_diss/27
   Google Scholar
• Vygotsky, L. 1978. “Interaction between Learning and Development.” Readings on the Development of Children 23 (3): 34–41.
   Google Scholar
• Welterlin, A., and R. H. LaRue. 2007. “Serving the Needs of Immigrant Families of Children with Autism.” Disability & Society 22 (7): 747–760. doi:10.1080/09687590701659600.
   Web of Science ®Google Scholar