Lost in translation: implementing personal assistance in an East Asian context

References

• Askheim, O. P. 2005. “Personal Assistance - Direct Payments or Alternative Public Service. Does It Matter for the Promotion of User Control?” Disability & Society 20 (3): 247–260. doi:10.1080/09687590500060562.
   Web of Science ®Google Scholar
• Askheim, O. P., J. Andersen, I. Guldvik, and V. Johansen. 2013. “Personal Assistance: What Happens to the Arrangement When the Number of Users Increases and New User Groups Are Included?” Disability & Society 28 (3): 353–366. doi:10.1080/09687599.2012.710013.
   Web of Science ®Google Scholar
• Barnes, C. 2003. “Independent Living, Politics and Implications.” http://www.independentliving.org/docs6/barnes2003.html.
   Google Scholar
• Berg, S. 2005. “Personal Assistance Reforms in Sweden: Breaking the Assumption of Dependency.” In The Social Model of Disability: Europe and Majority World, edited by C. Barnes and G. Mercer, 32–48. Leeds: The Disability Press.
   Google Scholar
• Brennan, C., R. Traustadóttir, J. Rice, and P. Anderberg. 2016. “Negotiating Independence, Choice and Autonomy: Experiences of Parents Who Coordinate Personal Assistance on Behalf of Their Adult Son or Daughter.” Disability & Society 31 (5): 604–621. doi:10.1080/09687599.2016.1188768.
   Web of Science ®Google Scholar
• Chang, H. H. 2015. “Disabled Citizens’ Movement: Glocalization of Rights Discourse and Social Model in Taiwan.” Thought and Words: Journal of the Humanities and Social Science 53 (2): 89–136. [In Chinese]
   Google Scholar
• Chang, H. H. 2017. “From Advocacy to Service Provision: State Transformation and the Disability Rights Movement in Taiwan.” Disability & Society 32 (3): 308–322. doi:10.1080/09687599.2017.1294050.
   Web of Science ®Google Scholar
• Chang, H. H., and F. S. Su. 2009. “Representations of Disabled People in Elementary School Textbooks in Post-War Taiwan.” Taiwanese Journal of Sociology 42: 143–188.
   Google Scholar
• Chang, H. H., and J. Y. Wang. 2016. “From ‘Handicapped’ to ‘Disabled’: A Content Analysis of Disability Labels and Discourse in Taiwanese Newspapers.” Taiwanese Journal of Sociology 31: 1–41.
   Google Scholar
• Chen, L. J., and S. C. Wu. 2008. “Factors Associated with Hiring a Foreign Care Aide among Home-Dwelling Elderly.” Taiwan Journal of Public Health 27 (1): 32–43. [in Chinese]
   Google Scholar
• Chou, Y. C. 2001. Community Living among Adults with Intellectual Disability: Experiences and Development of the Pilot Project in Taiwan. Taipei: Syin-Lu Social Welfare Foundation. [in Chinese]
   Google Scholar
• Chou, Y. C. 2002. Community Living and Independent Living: Manual for Service Guidelines. Taipei: Syin-Lu Social Welfare Foundation. [in Chinese]
   Google Scholar
• Chou, Y. C., B. W. Chen, C. N. Chang, and New Vitality Independent Living Association of Taipei. 2019. “Is Personal Assistance a Supplement to Homecare? Myths and Barriers Related to the Provision of Personal Assistance by Local Authorities to People with Disabilities.” Journal of Social Welfare 15 (2): 1–56. doi:10.6265/TJSW.201912_15(2).01.
   Google Scholar
• Chou, Y. C., L. Y. Fu, T. Kröger, and R. Y. Chiu. 2011. “Job Satisfaction and Quality of Life among Home Care Workers: A Comparison of Home Care Workers Who Are and Who Are Not Informal Carers.” International Psychogeriatrics 23: 814–825. doi:10.1017/S104161021000219X.
   PubMed Web of Science ®Google Scholar
• Chou, Y. C., and T. Kröger. 2017. “Application of the ICF in Taiwan—Victory of the Medical Model?” Disability & Society 32 (7): 1043–1064. doi:10.1080/09687599.2017.1331836.
   Web of Science ®Google Scholar
• Chou, Y. C., T. Kröger, and C. Y. Pu. 2015. “Models of Long-Term Care Use among Older People with Disabilities in Taiwan: Institutional Care, Community Care, Live-in Migrant Care and Family Care.” European Journal of Ageing 12 (2): 95–104. doi:10.1007/s10433-014-0322-z.
   PubMed Web of Science ®Google Scholar
• Chou, Y. C., Y. C. Lee, L. C. Lin, A. L. Chang, and W. Y. Huang. 2008. “Social Services Utilization by Adults with Intellectual Disabilities and Their Families.” Social Science & Medicine 66 (12): 2474–2485. doi:10.1016/j.socscimed.2008.01.055.
   PubMed Web of Science ®Google Scholar
• Chou, Y. C., C. Y. Pu, T. Kröger, W. P. Lee, and S. C. Chang. 2011. “Outcomes of a New Residential Scheme for Adults with Intellectual Disabilities in Taiwan: A 2-Year Follow-up.” Journal of Intellectual Disability Research 55: 823–831. doi:10.1111/j.1365-2788.2011.01394.x.
   PubMed Web of Science ®Google Scholar
• Chou, Y. C., and R. L. Schalock. 2007. “Trends in Residential Policies and Services for People with Intellectual Disabilities in Taiwan.” Journal of Intellectual Disability Research 51 (2): 135–141. doi:10.1111/j.1365-2788.2006.00850.x.
   PubMed Web of Science ®Google Scholar
• Christensen, K. 2012. “Towards Sustainable Hybrid Relationships in Cash-for-Care Systems.” Disability & Society 27 (3): 399–412. doi:10.1080/09687599.2012.654990.
   Web of Science ®Google Scholar
• Christensen, K., and D. Pilling. 2014. “Policies of Personalisation in Norway and England: On the Impact of Political Context.” Journal of Social Policy 43 (3): 479–496. doi:10.1017/S0047279414000257.
   Web of Science ®Google Scholar
• Directorate General of Budget, Accounting and Statistics (DGBAS) of Executive Yuan, Taiwan. 2019. “Statistics of Older People.” Accessed 10 October 2019. https://www.dgbas.gov.tw/public/Data/9717160105LGQ42NT.pdf [in Chinese]
   Google Scholar
• Duskin Leadership Training in Japan. 2021. “ Alumni Biographies: Lin Chien Chieh (6th Trainee).” Accessed 27 March 2021, http://www.normanet.ne.jp/∼duskin/english/alumni-news/no06/person5/index.html)
   Google Scholar
• European Network on Independent Living (ENIL). 2015. Independent Living Manual. European Network on Independent Living, Centre for Independent Living. Accessed 10 October 2019. http://www.enil.eu/wp-content/uploads/2012/06/Independent-Living-Manual-FINAL.pdf
   Google Scholar
• Feng, X. M. 2009. “Relationship-Defined Obligations: The Five Cardinal Relationships and the Six Cardinal Relationships.” Accessed September 12, 2019 http://tsoidug.org/papers_lun_comp.php.
   Google Scholar
• Fisher, K., and J. Li. 2008. “Chinese Disability Independent Living Policy.” Disability & Society 23 (2): 171–185. doi:10.1080/09687590701841216.
   Web of Science ®Google Scholar
• Gibson, B. E., D. Brooks, D. DeMatteo, and A. King. 2009. “Consumer-Directed Personal Assistance and ‘Care’: perspectives of Workers and Ventilator Users.” Disability & Society 24 (3): 317–330. doi:10.1080/09687590902789487.
   Web of Science ®Google Scholar
• Glasby, J., and R. Littlechild. 2009. Direct Payments and Personal Budgets. Bristol: Policy Press.
   Google Scholar
• Goodman, R., and I. Peng. 1996. “The East Asian Welfare States: Peripatetic Learning, Adaptive Change, and Nation-Building.” In Welfare States in Transition: National Adaptations in Global Economies, edited by G. Esping-Andersen, 192–224. London: Sage.
   Google Scholar
• Graham, K. 2015. “Cash Payments in Context: (Self-)Regulation in the New Social Relations of Assistance.” Disability & Society 30 (4): 597–613. doi:10.1080/09687599.2015.1037951.
   Web of Science ®Google Scholar
• Hagglund, K. J., M. J. Clark, E. K. Mokelke, and B. J. Stout. 2004. “The Current State of Personal Assistance Services: Implications for Policy and Future Research.” NeuroRehabilitation 19 (2): 115–120. doi:10.3233/NRE-2004-19205.
   PubMed Web of Science ®Google Scholar
• Hayashi, R., and M. Okuhira. 2001. “The Disability Rights Movement in Japan: Past, Present and Future.” Disability & Society 16 (6): 855–869. doi:10.1080/09687590120083994.
   Web of Science ®Google Scholar
• Hayashi, R., and M. Okuhira. 2008. “The Independent Living Movement in Asia: Solidarity from Japan.” Disability & Society 23 (5): 417–429. doi:10.1080/09687590802176991.
   Web of Science ®Google Scholar
• Holliday, I. 2000. “Productivist Welfare Capitalism: Social Policy in East Asia.” Political Studies 48 (4): 706–723. doi:10.1111/1467-9248.00279.
   Web of Science ®Google Scholar
• Huang, H. L., M. C. Yeh, and Y. M. Y. Chao. 2006. “The Analysis and Recommendation of the Institutional Respite Care Policy in Taiwan.” Journal of Nursing 53 (2): 59–66. [in Chinese]
   Google Scholar
• Huang, B. P. 2016. “Paid by Hour Migrant Care Workers.” Liberty Times Net, August 11. Accessed 20 September 2020. https://news.ltn.com.tw/news/focus/paper/1020259
   Google Scholar
• Kim, K. M. 2008. “The Current Status and Future of Centers for Independent Living in Korea.” Disability & Society 23 (1): 67–76. doi:10.1080/09687590701725682.
   Web of Science ®Google Scholar
• Kohrman, M. 2008. “Grooming Quezi: Marriage Exclusion and Identity Formation among Disabled Men in Contemporary China.” American Ethnologist 26 (4): 890–909. doi:10.1525/ae.1999.26.4.890.
   Google Scholar
• Ku, Y. W. 1997. Welfare Capitalism in Taiwan: State, Economy and Social Policy. New York: Palgrave Macmillan.
   Google Scholar
• Leece, J., and S. Peace. 2010. “Developing New Understandings of Independence and Autonomy in the Personalised Relationship.” British Journal of Social Work 40 (6): 1847–1865. doi:10.1093/bjsw/bcp105.
   Web of Science ®Google Scholar
• Lin, F. C., and C. J. Chiou. 2004. “The Quality of Life and the Related Factors in Elders Who Obtain Home Services.” Journal of Long-Term Care 8 (1): 56–78. [in Chinese]
   Google Scholar
• Lin, C. C. 2012. “Change Our Life! Change Our Society!” Accessed 1 June 2017. http://www.dpiap.org/reports/ppt/APNIL_2012_Country_Report_Taiwan_12_11_02.ppt
   Google Scholar
• Matsuda, S. J., M. J. Clark, L. H. Schopp, K. J. Hagglund, and E. K. Mokelke. 2005. “Barriers and Satisfaction Associated with Personal Assistance Services: Results of Consumer and Personal Assistant Focus Groups.” OTJR: Occupation, Participation and Health 25 (2): 66–74. doi:10.1177/153944920502500204.
   Web of Science ®Google Scholar
• Mor, S. 2006. “Between Charity, Welfare, and Warfare: A Disability Legal Studies Analysis of Privilege and Neglect in Israeli Disability Policy.” Yale Journal of Law & the Humanities 18 (1): 63–137.
   Google Scholar
• Morris, J. 1993. Independent Lives: Community Care and Disabled People. Basingstoke: Macmillan.
   Google Scholar
• Morris, J. 2004. “Independent Living and Community Care: A Disempowering Framework.” Disability & Society 19 (5): 427–442. doi:10.1080/0968759042000235280.
   Web of Science ®Google Scholar
• National Development Council (NDC), Taiwan. 2018. Population Projection in Taiwan from 2018 to 2065. Taipei: NDC. Accessed 25 January 2020. https://www.ndc.gov.tw/News_Content.aspx?n=114AAE178CD95D4C&sms=DF717169EA26F1A3&s=E1EC042108072B67 [in Chinese]
   Google Scholar
• New Vitality Independent Living Association, Taipei (NVILAT). 2010. My Independent Living. Taipei: NVILAT. [in Chinese]
   Google Scholar
• Oliver, M. 1990. The Politics of Disablement. Basingstoke: Macmillan.
   Google Scholar
• Ping-An Social Welfare Foundation (PASWF). 2016. “Overview of all providers of Independent Living Services in 2016 in Taiwan.” Unpublished document, Ping-Tung: PASWF. [in Chinese]
   Google Scholar
• Qu, Y. 2020. “Understanding the Body and Disability in Chinese Contexts.” Disability & Society 35 (5): 738–759. doi:10.1080/09687599.2019.1649123.
   Web of Science ®Google Scholar
• Ratzka, A. 1996. “Introduction to Direct Payments for Personal Assistance.” Assessed 10 October 2019. https://www.independentliving.org/docs4/directpay.html
   Google Scholar
• Ratzka, A. 2003. Independent Living and Attendant care in Sweden: A Consumer Perspective. Stockholm: Independent Living Institute. Assessed 10 October 2019. http://www.independentliving.org/docs1/ar1986spr.html
   Google Scholar
• Ratzka, A. 2015. “Self-determination through Direct Payments and Personal Assistance cooperatives.” Accessed 10 October 2019. https://www.independentliving.org/docs7/direct-payments-personal-assistance-cooperatives.html
   Google Scholar
• Shakespeare, T. 2006. Disability Rights and Wrongs. New York: Routledge.
   Google Scholar
• Su, S. H. 2019. “2020 budget close to 400 billion for the cost of long-term care and 4 times risen up within 4 years.” China Times-Electronic Newspaper. Accessed September 6, 2019. tps://reurl.cc/5o7Dly [in Chinese]
   Google Scholar
• The League for Persons with Disabilities, Taiwan. 2020. “Historical Background.” Accessed 20 September 2020. https://www.enable.org.tw/about/index/284
   Google Scholar
• Ungerson, C., and S. Yeandle, eds. 2007. Cash for Care in Developed Welfare States. Basingstoke: Palgrave.
   Google Scholar
• United Nations (UN). 2006. “Convention on the Rights of Persons with Disabilities (CRPD).” https://www.un.org/development/desa/disabilities/convention-on-the-rights-of-persons-with-disabilities.html
   Google Scholar
• Wang, F. T. Y. 2004. “Examining Expert Power: Action Research in Taipei City Home Care Services.” Research in Applied Psychology 23: 51–77. [in Chinese]
   Google Scholar
• Wang, Y. Y. 2007. “Personal Assistance at Work: The Visual Assistance Service in Taiwan.” Disability & Society 22 (1): 79–92. doi:10.1080/09687590601056642.
   Web of Science ®Google Scholar
• White, G. W., J. L. Simpson, C. Gonda, C. Ravesloot, and Z. Coble. 2010. “Moving from Independence to Interdependence: A Conceptual Model for Better Understanding Community Participation of Centers for Independent Living Consumers.” Journal of Disability Policy Studies 20 (4): 233–240. doi:10.1177/1044207309350561.
   Web of Science ®Google Scholar
• Workforce Development Agency, Ministry of Labour, Taiwan. 2019. “Qualification and Regulations of Migrant Workers.” Accessed 30 September 2020. https://www.wda.gov.tw/NewsFAQ.aspx?n=9C9CC6640661FEBA&sms=A1CA5B0D37C1A94B
   Google Scholar
• Yamaki, C., and Y. Yamazaki. 2004. “Instruments, Employees, Companions, Social Assets: Understanding Relationships between Persons with Disabilities and Their Assistants in Japan.” Disability & Society 19 (1): 31–46. doi:10.1080/0968759032000155613.
   Web of Science ®Google Scholar
• Yang, C. 2014. “Being Independent from Whom? Analysing Two Interpretations in the Paradigm of ‘Independent Living.” Disability & Society 29 (5): 671–684. doi:10.1080/09687599.2013.844098.
   Web of Science ®Google Scholar
• Yeh, K. Y. 2019. “Last Migrant Care Worker Leaving from Taiwan, Policy for Paid by Hour Migrant Care Worker Failed.” United News Net, December 1. Accessed 20 September 2020. https://udn.com/news/story/7266/4199305
   Google Scholar
• You, D. C., and S. K. Hwang. 2018. “Achievements of and Challenges Facing the Korean Disabled People’s Movement.” Disability & Society 33 (8): 1259–1279. doi:10.1080/09687599.2018.1488676.
   Web of Science ®Google Scholar