Making connections across countries between creative approaches in qualitative interviewing with dis/abled communities

References

• Aitken, V. 2014. “From Teacher in Role to Researcher in Role: Possibilities for Repositioning Children through Role-Based Strategies in Classroom Research.” Research in Drama Education: The Journal of Applied Theatre and Performance 19 (3): 255–271. doi:10.1080/13569783.2014.928005.
   Web of Science ®Google Scholar
• Bailey, S. 2010. Barrier-Free Theatre, 37. Enumclaw, WA: Idyll Arbor.
   Google Scholar
• Bagnoli, A. 2009. “Beyond the Standard Interview: The Use of Graphic Elicitation and Arts Based Methods.” Qualitative Research 9 (5): 547–570. doi:10.1177/1468794109343625.
   Web of Science ®Google Scholar
• Boal, A. 2002. Games for Actors and Non-Actors. 2nd ed., 241–249. London: Routledge.
   Google Scholar
• Boydell, K. M., B. M. Gladstone, T. Volpe, B. Allemang, and E. Stasiulis. 2012. “The Production and Dissemination of Knowledge: A Scoping Review of Arts-Based Health Research.” Forum: Qualitative Social Research 13 (1): 1–30.
   Google Scholar
• Boxall, K., and C. Ralph. 2009. “Research Ethics and the Use of Visual Images in Research with People with Intellectual Disability.” Journal of Intellectual & Developmental Disability 34 (1): 45–54. doi:10.1080/13668250802688306.
   PubMed Web of Science ®Google Scholar
• Cameron, L., and J. Murphy. 2007. “Obtaining Consent to Participate in Research: The Issues Involved in Including People with a Range of Learning and Communication Difficulties.” British Journal of Learning Disabilities 35 (2): 113–120. doi:10.1111/j.1468-3156.2006.00404.x.
   Google Scholar
• Castrodale, M. A. 2017. “Mobilizing Dis/Ability Research: A Critical Discussion of Qualitative Go-along Interviews in Practice.” Qualitative Inquiry, 24 (1): 1–11.
   Web of Science ®Google Scholar
• Charmaz, K. 1990. “Discovering Chronic Illness: Using Grounded Theory.” Social Science & Medicine 30 (11): 1161–1172. doi:10.1016/0277-9536(90)90256-R.
   PubMed Web of Science ®Google Scholar
• Charmaz, K. 2014. Constructing Grounded Theory. 2nd ed. Los Angeles: SAGE.
   Google Scholar
• Charmaz, K. 2017. “The Power of Constructivist Grounded Theory for Critical Inquiry.” Qualitative Inquiry 23 (1): 34–45. doi:10.1177/1077800416657105.
   Web of Science ®Google Scholar
• Collier, T. 1993. “Dynamic Re-Enactment.” Marketing Research 5 (2): 35–37.
   Google Scholar
• Cook, K. E. 2012. “Stigma and the Interview Encounter.” In The Sage Handbook of Interview Research: The Complexity of the Craft, edited by J. F. Gubrium, et al., 333–345. Thousand Oaks: SAGE.
   Google Scholar
• Cook, A. 2020. Exploring Inclusion in a Therapeutic Theater Production. Cambridge, MA: DigitalCommons@Lesley.
   Google Scholar
• Cook, A. 2021. “A Post-Intentional Phenomenological Investigation of Inclusivity in a Therapeutic Theatre Production.” Drama Therapy Review 7 (2): 169–191. doi:10.1386/dtr_00072_1.
   Web of Science ®Google Scholar
• Coons, K. D., and S. L. Watson. 2013. “Conducting Research with Individuals Who Have Intellectual Disabilities: Ethical and Practical Implications for Qualitative Research.” Journal on Developmental Disabilities 19 (2): 14–24.
   Google Scholar
• Deacon, S. A. 2000. “Creativity within Qualitative Research on Families: New Ideas for Old Methods.” The Qualitative Report 4 (3): 1–11. doi:10.46743/2160-3715/2000.2077.
   Google Scholar
• Eisner, E. 2008. “Art and Knowledge.” In Handbook of the Arts in Qualitative Research: Perspectives, Methodologies, Examples, and Issues, edited by J. G. Knowles and A. L. Cole, 3–12. London: SAGE.
   Google Scholar
• Fairchild, R., and K. S. McFerran. 2019. ““Music Is Everything”: Using Collaborative Song-Writing as an Arts Based Method with Children Experiencing Homelessness and Family Violence.” Nordic Journal of Music Therapy 28 (2): 88–107. doi:10.1080/08098131.2018.1509106.
   Web of Science ®Google Scholar
• Fane, J., C. MacDougall, J. Jovanovic, G. Redmond, and L. Gibbs. 2018. “Exploring the Use of Emoji as a Visual Research Method for Eliciting Young Children’s Voices in Childhood Research.” Early Child Development and Care 188 (3): 359–374. doi:10.1080/03004430.2016.1219730.
   Web of Science ®Google Scholar
• Frankena, T. K., J. Naaldenberg, M. Cardol, C. Linehan, and H. van Schrojenstein Lantman-de Valk. 2015. “Active Involvement of People with Intellectual Disabilities in Health Research – A Structured Literature Review.” Research in Developmental Disabilities 45-46: 271–283. doi:10.1016/j.ridd.2015.08.004.
   PubMed Web of Science ®Google Scholar
• Fursland, E. 2004. “Play to Learn.” Nursing Standard (Royal College of Nursing (Great Britain) 18 (19): 20–21. doi:10.7748/ns.18.19.20.s33.
   PubMedGoogle Scholar
• Gjaerum, R. G., and B. Rasmussen. 2010. “The Achievements of Disability Art: A Study of Inclusive Theatre, Inclusive Research, and Extraordinary Actors.” Youth Theatre Journal 24 (2): 99–110. doi:10.1080/08929092.2010.518909.
   Google Scholar
• Halcomb, E. 2016. “Understanding the Importance of Collecting Qualitative Data Creatively.” Nurse Researcher 23 (3): 6–7. doi:10.7748/nr.23.3.6.s2.
   PubMedGoogle Scholar
• Hay-Smith, E. J. C., M. Brown, L. Anderson, and G. J. J. Treharne. 2016. “Once a Clinician, Always a Clinician: A Systematic Review to Develop a Typology of Clinician-Researcher Dual-Role Experiences in Health Research with Patient– Participants.” BMC Medical Research Methodology 16 (95): 95–17. doi:10.1186/s12874-016-0203-6.
   PubMedGoogle Scholar
• Hiller, A. J., and D. F. Vears. 2016. “Reflexivity and the Clinician-Researcher: Managing Participant Misconceptions.” Qualitative Research Journal 16 (1): 13–25. doi:10.1108/QRJ-11-2014-0065.
   Google Scholar
• Hodermarska, M., R. Landy, C. Dintino, D. Mowers, and N. Sajnani. 2015. “As Performance: Ethical and Aesthetic Considerations for Therapeutic Theatre.” Drama Therapy Review 1 (2): 173–186.
   Google Scholar
• James, D. M., A. Pilnick, A. Hall, and L. Collins. 2016. “Participants’ Use of Enacted Scenes in Research Interviews: A Method for Reflexive Analysis in Health and Social Care.” Social Science & Medicine (1982) 151: 38–45. doi:10.1016/j.socscimed.2015.12.040.
   PubMed Web of Science ®Google Scholar
• Jamshed, S. 2014. “Qualitative Research Method- Interviewing and Observation.” Journal of Basic and Clinical Pharmacy 5 (4): 87–88. doi:10.4103/0976-0105.141942.
   PubMedGoogle Scholar
• Jennings, S. 2011. Healthy Attachments and Neuro-Dramatic Play. London: Jessica Kingsley Publisher.
   Google Scholar
• Jones, P. 2016. “How Do Dramatherapists Understand Client Change?.” In Routledge International Handbook of Dramatherapy, edited by S. Jennings and C. Holmwood, 77–91. London: Routledge.
   Google Scholar
• Jurkowski, J. M. 2008. “Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development.” Intellectual and Developmental Disabilities 46 (1): 1–11. doi:10.1352/0047-6765(2008)46[1:PAPART.2.0.CO;2]
   PubMed Web of Science ®Google Scholar
• Knox, M., M. Mok, and T. R. Parmenter. 2000. “Working with the Experts: Collaborative Research with People with an Intellectual Disability.” Disability & Society 15 (1): 49–62. doi:10.1080/09687590025766.
   Web of Science ®Google Scholar
• Kramer, J. M., J. C. Kramer, E. García-Iriarte, and J. Hammel. 2011. “Following through to the End: The Use of Inclusive Strategies to Analyse and Interpret Data in Participatory Action Research with Individuals with Intellectual Disabilities.” Journal of Applied Research in Intellectual Disabilities 24 (3): 263–273. doi:10.1111/j.1468-3148.2010.00602.x.
   Web of Science ®Google Scholar
• Kramer-Roy, D. 2015. “Using Participatory and Creative Methods to Facilitate Emancipatory Research with People Facing Multiple Disadvantage: A Role for Health and Care Professionals.” Disability & Society 30 (8): 1207–1224. doi:10.1080/09687599.2015.1090955.
   Web of Science ®Google Scholar
• Landy, R. J. 1983. “The Use of Distancing in Drama Therapy.” The Arts in Psychotherapy 10 (3): 175–185. doi:10.1016/0197-4556(83)90006-0.
   Web of Science ®Google Scholar
• McNiff, S. 2007. “Arts-Based Research.” In Handbook of the Arts in Qualitative Research, edited by J. G. Knowles and A. L. Cole, 29–40. Thousand Oaks, CA: SAGE.
   Google Scholar
• McVilly, K. R., R. J. Stancliffe, T. R. Parmenter, and R. M. Burton-Smith. 2006. “Self-Advocates Have the Last Say on Friendship.” Disability & Society 21 (7): 693–708. doi:10.1080/09687590600995287.
   Web of Science ®Google Scholar
• Musicka-Williams, A. 2018. “Offering Space for Choice and Voice: Participant Assent as a Creative Workshop Informed by Dramatherapy Practice.” Creative Arts in Education and Therapy 4 (2): 206–213. doi:10.15212/CAET/2018/4/31.
   Google Scholar
• Musicka-Williams, A. 2020a. “No Innovation without Imitation: Using Group Dramatherapy to Explore Relationships and Interpersonal Learning Processes with Adolescents in Special Education.” Minerva-access.unimelb.edu.au. http://hdl.net/11343/258585
   Google Scholar
• Musicka-Williams, A. 2020b. “We Copy to Join in, to Not Be Lonely: Adolescents in Special Education Reflect on Using Dramatic Imitation in Group Dramatherapy to Enhance Relational Connection and Belonging.” Frontiers in Psychology 11: 1–8. doi:10.3389/fpsyg.2020.588650.
   PubMed Web of Science ®Google Scholar
• Nind, M. 2008. Conducting Qualitative Research with People with Learning, Communication and Other Disabilities: Methodological Challenges: ESRC National Centre for Research Methods Review Paper. South Hampton: University of South Hampton.
   Google Scholar
• Nind, M., and H. Vinha. 2016. “Creative Interactions with Data: Using Visual and Metaphorical Devices in Repeated Focus Groups.” Qualitative Research 16 (1): 9–26. doi:10.1177/1468794114557993.
   PubMed Web of Science ®Google Scholar
• Norris, J. 2016. “Drama as Research: Realizing the Potential of Drama in Education as a Research Methodology.” Youth Theatre Journal 30 (2): 122–135. doi:10.1080/08929092.2016.1227189.
   Google Scholar
• Povee, K. B., B. J. Bishop, and L. D. Roberts. 2014. “The Use of Photovoice with People with Intellectual Disabilities: Reflections, Challenges and Opportunities.” Disability & Society 29 (6): 893–907. doi:10.1080/09687599.2013.874331.
   Web of Science ®Google Scholar
• Short, K. G. 2012. “Story as World Making.” Language Arts 90 (1): 9–17.
   Google Scholar
• Snow, S., and M. D’Amico. 2009. “Facing the Challenges of Assessment.” In Assessment in the Creative Arts Therapies: Designing and Adapting Tools for Adults with Developmental Disabilities, edited by S. Snow and M. D’Amico, 3–27. Springfield, IL: Charles C. Thomas Publisher Ltd.
   Google Scholar
• Snow, S., M. D’Amico, E. Mongerson, E. Anthony, M. Rozenberg, C. Opolko, and S. Anandampillai. 2017. “Ethnodramatherapy Applied in a Project Focusing on Relationships in the Lives of Adults with Developmental Disabilities, Especially Romance, Intimacy and Sexuality.” Drama Therapy Review 3 (2): 241–260. doi:10.1386/dtr.3.2.241_1.
   Google Scholar
• Snow, S., and P. Herbison. 2011. Ethnodramatherapy: A New Methodology as Applied to Diversity Training Outreach. Montreal, QC: Concordia University.
   Google Scholar
• Snow, S., J. Maeng-Cleveland, and T. Steinfort. 2009. “The Development of the Dramatherapy Role Play Interview.” In Assessment in the Creative Arts Therapies, edited by S. Snow and M. D’Amico, 99–145. Springfield, IL: Charles C Thomas. Publishers Ltd.
   Google Scholar
• Waite, L., and C. Conn. 2011. “Creating a Space for Young Women’s Voices: Using Participatory Video Drama in Uganda.” Gender, Place and Culture: A Journal of Feminist Geography 18 (1): 115–135. doi:10.1080/0966369X.2011.535297.
   Web of Science ®Google Scholar
• Walmsley, J. 2001. “Normalisation, Emancipatory Research and Inclusive Research in Learning Disability.” Disability & Society 16 (2): 187–205. doi:10.1080/09687590120035807.
   Web of Science ®Google Scholar
• Walmsley, J. 2004. “Involving Users with Learning Difficulties in Health Improvement: Lessons from Inclusive Learning Disability Research.” Nursing Inquiry 11 (1): 54–64. doi:10.1111/j.1440-1800.2004.00197.x.
   PubMedGoogle Scholar
• Walmsley, J., and K. Johnson. 2003. Inclusive Research with People with Learning Disabilities: Past, Present and Future. London: Jessica Kingsley Publishers.
   Google Scholar
• Whitehurst, T. 2007. “Liberating Silent Voices – Perspectives of Children with Profound and Complex Learning Needs on Inclusion.” British Journal of Learning Disabilities 35 (1): 55–61. doi:10.1111/j.1468-3156.2006.00405.x.
   Google Scholar
• The United Nations. 2006. “Convention on the Rights of Persons with Disabilities.” Treaty Series 2515: 3.
   Google Scholar