1,447
Views
1
CrossRef citations to date
0
Altmetric
Research Articles

Experiences of identifying pre-school children with disabilities in resource limited settings – an account from Malawi, Pakistan and Uganda

ORCID Icon, , , , ORCID Icon, ORCID Icon, , , , ORCID Icon & ORCID Icon show all
Pages 2053-2073 | Received 11 May 2022, Accepted 30 Jan 2023, Published online: 21 Feb 2023

References

  • Al-Busaidi, Z. Q. 2008. “Qualitative Research and Its Uses in Health Care.” Sultan Qaboos University Medical Journal 8 (1): 11–19.
  • Ayob, Z., C. Christopher, and D. Naidoo. 2021. “Caregivers’ Perception of Their Role in Early Childhood Development and Stimulation Programmes in the Early Childhood Development Phase within a Sub-Saharan African Context: An Integrative Review.” South African Journal of Occupational Therapy 51 (3): 84–92. doi:10.17159/2310-3833/2021/vol51n3a10.
  • Bayley, N. 2006. Bayley Scales of Infant and Toddler Development: Technical Manual. San Antonio, TX: Harcourt.
  • Bourgeault, I., Dingwall, R. D. E, and Vries, R. 2010. The SAGE Handbook of Qualitative Methods in Health Research. London: SAGE Publications Ltd.
  • Braun, V., and V. Clarke. 2006. “Using Thematic Analysis in Psychology.” Qualitative Research in Psychology 3 (2): 77–101. doi:10.1191/1478088706qp063oa.
  • Diallo, A. H., A. S. M. Sayeem BIN Shahid, A. F. Khan, A. F. Saleem, B. O. Singa, B. S. Gnoumou, C. Tigoi, et al. 2021. Childhood mortality during and after acute illness in sub-Saharan Africa and South Asia - The CHAIN cohort study. Cold Spring Harbor Laboratory.
  • Frankenburg, William K., Josiah Dodds, Philip Archer, Howard Shapiro, and Beverly Bresnick. 1992. “The DENVER II: A Major Revision and Re-Standardization of the Denver Developmental Screening Test.” Pediatrics 89 (1): 91–97. doi:10.1542/peds.89.1.91.
  • Franklin, A., P. Lund, C. Bradbury-Jones, and J. Taylor. 2018a. “Children with Albinism in African Regions: Their Rights to ‘Being’ and ‘Doing.” BMC International Health and Human Rights 18 (1). doi:10.1186/s12914-018-0144-8.
  • Franklin, A., P. Lund, C. Bradbury-Jones, and J. Taylor. 2018b. “Children with Albinism in African Regions: Their Rights to ‘Being’ and ‘Doing.” BMC International Health and Human Rights 18: 2. doi:10.1186/s12914-018-0144-8.
  • Garg, P., M. Y. Trinh, H. Eastwood, J. Harvey, S. Woolfenden, S. Murphy, E. Dissanayake, et al. 2017. “Explaining Culturally and Linguistically Diverse (CALD) Parents’ Access of Healthcare Services for Developmental Surveillance and Anticipatory Guidance: Qualitative Findings from the ‘Watch Me Grow’ Study.” BMC Health Services Research 17 (1): 1–12. doi:10.1186/s12913-017-2143-1.
  • Gladstone, M., G. A. Lancaster, E. Umar, M. Nyirenda, E. Kayira, N. R. VAN DEN Broek, and R. L. Smyth. 2010. “The Malawi Developmental Assessment Tool (MDAT): the Creation, Validation, and Reliability of a Tool to Assess Child Development in Rural African Settings.” PLoS Medicine 7 (5): e1000273. doi:10.1371/journal.pmed.1000273.
  • Global Research on Developmental Disabilities, C. 2018. “Developmental Disabilities among Children Younger than 5 Years in 195 Countries and Territories, 1990-2016: A Systematic Analysis for the Global Burden of Disease Study 2016.” Lancet Global Health, 6: e1100–e1121.
  • Grischow, J., M. Mfoafo-M’Carthy, A. Vermeyden, and J. Cammaert. 2019. “Physical Disability, Rights and Stigma in Ghana: A Review of Literature.” Disability, CBR & Inclusive Development 29 (4): 5–24. doi:10.5463/dcid.v29i4.752.
  • Hagan, J. F., J. S. Shaw, and P. M. Duncan. 2017. Bright Futures: Guidelines for Health Supervision of Infants, Children, and Adolescents. Elk Grove Village, IL: American Academy of Pediatrics.
  • Hohlfeld, A. S. J., M. Harty, and M. E. Engel. 2018. “Parents of Children with Disabilities: A Systematic Review of Parenting Interventions and Self-Efficacy.” African Journal of Disability 7: 2226–7220. doi:10.4102/ajod.v7i0.437.
  • Kamath-Rayne, B. D., A. Thukral, M. K. Visick, E. Schoen, E. Amick, A. Deorari, C. J. Cain, et al. 2018. “Helping Babies Breathe, Second Edition: A Model for Strengthening Educational Programs to Increase Global Newborn Survival.” Global Health: Science and Practice 6: 538–551.
  • Koerting, J., E. Smith, M. M. Knowles, S. Latter, H. Elsey, D. C. Mccann, M. Thompson, and E. J. Sonuga-Barke. 2013. “Barriers to, and Facilitators of, Parenting Programmes for Childhood Behaviour Problems: A Qualitative Synthesis of Studies of Parents’ and Professionals’ Perceptions.” European Child & Adolescent Psychiatry 22 (11): 653–670. doi:10.1007/s00787-013-0401-2.
  • Kvale, S. 1996. An Introduction to Qualitative Research. Thousand Oaks, CA: SAGE.
  • Lynch, P., P. Lund, and B. Massah. 2014. “Identifying Strategies to Enhance the Educational Inclusion of Visually Impaired Children with Albinism in Malawi.” International Journal of Educational Development 39: 216–224. doi:10.1016/j.ijedudev.2014.07.002.
  • Mason, E., R. Scherpbier, and O. Lawe-Davies. 2009. “WHO Position Statement on IMCI.” The Lancet 374 (9692): 782–783. doi:10.1016/S0140-6736(09)61452-5.
  • Morris, A. 2015. The What and Why of in-Depth Interviewing. A Practical Introduction to in-Depth Interviewing. Thousand Oaks, CA: SAGE Publications Ltd.
  • National Academies of Sciences, E., Medicine, Division of, B., Social, S., Education, Board on Children, Y., (2016) Families & Committee on Supporting the Parents of Young, C 2016. In: Breiner, H., Ford, M. & Gadsden, V. L. (eds.) Parenting Matters: Supporting Parents of Children Ages 0-8. Washington, DC: National Academies Press (US).
  • Copyright 2016 by the National Academy of Sciences. All rights reserved.
  • Olusanya, B. O., R. Halpern, V. G. Cheung, M. K. C. Nair, N. Y. Boo, M. Hadders-Algra, O. N. Global Research, and C. Developmental Disabilities. 2022. “Disability in Children: A Global Problem Needing a Well-Coordinated Global Action.” BMJ Paediatr Open, 6: e661397.
  • Patton, M. 1990. Qualitative Evaluation and Research Methods. Beverly Hills, CA: Sage.
  • Patton, M. 1999. “Enhancing the Quality and Credibility of Qualitative Analysis.” Health Services Research 34 (5 Pt 2): 1189–1208; PMCD:PMC1089059
  • Ritchie, J., and J. E. Lewis. 2003. Qualitative Research Practice: A Guide for Social Science Students and Researchers/edited by Jane Ritchie and Jane Lewis, London: SAGE.
  • Salomone, E., L. Pacione, S. Shire, F. L. Brown, B. Reichow, and C. Servili. 2019. “Development of the WHO Caregiver Skills Training Program for Developmental Disorders or Delays.” Frontiers in Psychiatry 10: 769–769. doi:10.3389/fpsyt.2019.00769.
  • Scherzer, A. L., M. Chhagan, S. Kauchali, and E. Susser. 2012. “Global Perspective on Early Diagnosis and Intervention for Children with Developmental Delays and Disabilities.” Developmental Medicine and Child Neurology 54 (12): 1079–1084. doi:10.1111/j.1469-8749.2012.04348.x.
  • Tekola, B., M. Kinfe, F. Girma, C. Hanlon, and R. A. Hoekstra. 2020. “Perceptions and Experiences of Stigma among Parents of Children with Developmental Disorders in Ethiopia: A Qualitative Study.” Social Science & Medicine 256: 113034. doi:10.1016/j.socscimed.2020.113034.
  • Thomas, C. 2004. “Developing the Social Relational in the Social Model of Disability: A Theoretical Agenda.” In: BARNES, C. (ed.) The Social Model of Disability ‐ Theory and Research. Leeds, UK: The Disability Press.
  • Tong, A., P. Sainsbury, and J. Craig. 2007. “Consolidated Criteria for Reporting Qualitative Research (COREQ): a 32-Item Checklist for Interviews and Focus Groups.” International Journal for Quality in Health Care 19 (6): 349–357. doi:10.1093/intqhc/mzm042.
  • United Nations Inter-Agency Group for Child Mortality Estimation (UN IGME) 2020. Levels & Trends in Child Mortality; Estimates Developed by the UN Inter-Agency Group for Child Mortality Estimation. New York: UNICEF.
  • World Health Organization 2005. Emergency Triage Assessment and Treatment (ETAT) - Manual for participants - Facilitator Guide. Geneva: World Health Organization.
  • Yousafzai, A. K., P. Lynch, and M. Gladstone. 2014. “Moving beyond Prevalence Studies: Screening and Interventions for Children with Disabilities in Low-Income and Middle-Income Countries.” Archives of Disease in Childhood 99 (9): 840–848. doi:10.1136/archdischild-2012-302066.