1,887
Views
0
CrossRef citations to date
0
Altmetric
Research Article

Perceptions of disabilities among Native Americans within the state of Utah

, , , , &
Received 24 Feb 2022, Accepted 22 Mar 2023, Published online: 12 Apr 2023

References

  • Adakai, M., M. Sandoval-Rosario, F. Xu, T. Aseret-Manygoats, M. Allison, K. J. Greenlund, and K. E. Barbour. 2018. “Health Disparities among American Indians/Alaska Natives—Arizona, 2017.” Morbidity and Mortality Weekly Report 67 (47): 1314.
  • Alizadeh, S., and M. Chavan. 2016. “Cultural Competence Dimensions and Outcomes: A Systematic Review of the Literature.” Health and Social Care in the Community 24 (6): 117–130. doi:10.1111/hsc.12293.
  • Americans With Disabilities Act of 1990, 42 U.S.C. § 12101 et seq 1990.
  • Bialka, C. S., K. S. Brown, D. Morro, and G. Hannah. 2017. “On Their LEVEL: How Participation in a University Student Group Shapes Members’ Perceptions of Disability.” Journal of Diversity in Higher Education 10 (2): 117–135. doi:10.1037/dhe0000019.
  • Blume, A. K., M. Tehee, and R. V. Galliher. 2019. “Experiences of Discrimination and Prejudice among American Indian Youth: Links to Psychosocial Functioning.” In Fitzgerald H., Johnson D., Qin D., Villarruel F., & Norder J. (Eds.) Handbook of Children and Prejudice, (pp. 389–404). Springer, Cham. doi:10.1007/978-3-030-12228-7_22.
  • Burch, S. 2014. “Dislocated Histories”: the Canton Asylum for Insane Indians.” Women, Gender, and Families of Color 2 (2): 141–162. doi:10.5406/womgenfamcol.2.2.0141.
  • Burch, S. 2021. Committed: Remembering Native Kinship in and beyond Institutions. Chapel Hill, NC: University of North Carolina Press.
  • Carr, T., L. Arcand, R. Roberts, J. Sedgewick, A. Ali, and G. Groot. 2020. “The Experiences of Indigenous People with Cancer in Saskatchewan: A Patient-Oriented Qualitative Study using A Sharing Circle.” Canadian Medical Association Open Access Journal 8 (4): E852–E859.
  • Charmaz, K. 2006. Constructing Grounded Theory: A Practical Guide through Qualitative Analysis. Thousand Oaks, CA: Sage Publishing.
  • Courtney-Long, E. A., S. D. Romano, D. D. Carroll, and M. H. Fox. 2017. “Socioeconomic Factors at the Intersection of Race and Ethnicity Influencing Health Risks for People with Disabilities.” Journal of Racial and Ethnic Health Disparities 4 (2): 213–222. doi:10.1007/s40615-016-0220-5.
  • Cromer, K. J., L. Wofford, and D. Wyant. 2019. “Barriers to Healthcare Access Facing American Indian and Alaska Natives in Rural America.” Journal of Community Health Nursing 36 (4): 165–187. doi:10.1080/07370016.2019.1665320.
  • Darcy, S., T. Taylor, and J. Green. 2016. “But I Can Do the Job’: Examining Disability Employment Practice through Human Rights Complaint Cases.” Disability & Society 31 (9): 1242–1274. doi:10.1080/09687599.2016.1256807.
  • Donoghue, C. 2003. “Challenging the Authority of the Medical Definition of Disability: An Analysis of the Resistance to the Social Constructionist Paradigm.” Disability & Society 18 (2): 199–208. doi:10.1080/0968759032000052833.
  • Drawson, A. S., E. Toombs, and C. J. Mushquash. 2017. “Indigenous Research Methods: A Systematic Review.” International Indigenous Policy Journal 8 (2).
  • Executive Office of the President 2014. 2014 Native Youth Report. The White House. https://obamawhitehouse.archives.gov/sites/default/files/docs/20141129nativeyouthreport_final.pdf
  • Faircloth, S. C. 2006. “Early Childhood Education among American Indian/Alaskan Native Children with Disabilities: Implications for Research and Practice.”  Rural Special Education Quarterly,  25 (1): 25–31. doi:10.1177/875687050602500105.
  • Flowers, D. L. 2005. “Culturally Competent Nursing Care for American Indian Clients in a Critical Care Setting.” Critical Care Nurse 25 (1): 45–50. doi:10.4037/ccn2005.25.1.45.
  • Fryberg, S. A., W. Troop-Gordon, A. D’Arrisso, H. Flores, V. Ponizovskiy, J. D. Ranney, … J. A. Burack. 2013. “Cultural Mismatch and the Education of Aboriginal Youths: The Interplay of Cultural Identities and Teacher Ratings.” Developmental Psychology 49 (1): 72–79. doi:10.1037/A0029056.
  • Garrett, M. W. 1995. “Between Two Worlds: Cultural Discontinuity in the Dropout of Native American Youth.” The School Counselor 42 (3): 186–195.
  • Goldman, N., and T. Andrasfay. 2022. “Life Expectancy Loss among Native Americans during the COVID-19 Pandemic.” Demographic Research 47: 233–246. doi:10.4054/DemRes.2022.47.9.
  • Hechler, R. S. 2021. “The Fourth Lifeway: Recognizing the Legacy of Bodily Difference and Disability within the Inka Empire.” Disability Studies Quarterly 41 (4). doi:10.18061/dsq.v41i4.8459.
  • Herne, M. A., M. L. Bartholomew, and R. L. Weahkee. 2014. “Suicide Mortality among American Indians and Alaska Natives, 1999-2009.” American Journal of Public Health 104 (3): 336–342.
  • Indian Health Services 2012. Stand Up, Stand Strong. https://www.ihs.gov/mspi/campaigns/.
  • Individuals with Disabilities Education Act 2004., 20 U.S.C. § 1400
  • Institute of Medicine (US) Committee on Understanding and Eliminating Racial and Ethnic Disparities in Health Care, Smedley, B. D., A. Y. Stith, and A. R. Nelson. (Eds.). 2003. Unequal Treatment: Confronting Racial and Ethnic Disparities in Health Care. National Academies Press (US).
  • Jernigan, V. B. B., K. R. Huyser, J. Valdes, and V. W. Simonds. 2017. “Food Insecurity among American Indians and Alaska Natives: A National Profile Using the Current Population Survey-Food Security Supplement.” Journal of Hunger & Environmental Nutrition 12 (1): 1–10. doi:10.1080/19320248.2016.1227750.
  • Joinson, C. 2016. Vanished in Hiawatha: The Story of the Canton Asylum for Insane Indians. Lincoln, NE: UNP - Bison Books. doi:10.2307/j.ctt1d4v02q.
  • Kendall, L. 2016. “Higher Education and Disability: Exploring Student Experiences.” Cogent Education 3 (1): 1–12.
  • Kirmayer, L. J., J. P. Gone, and J. Moses. 2014. “Rethinking Historical Trauma.” Transcultural Psychiatry 51 (3): 299–319. https://doi.org/10.1177/1363461514536358
  • Larkin-Gilmore, J., E. Callow, and S. Burch. 2021. “Indigeneity & Disability: Kinship, Place, and Knowledge-Making.” Disability Studies Quarterly 41 (4). doi:10.18061/dsq.v41i4.8542.
  • Lavallée, L. F. 2009. “Practical Application of An Indigenous Research Framework and Two Qualitative Indigenous Research Methods: Sharing Circles and Anishnaabe Symbol-Based Reflection.” International Journal of Qualitative Methods 8 (1): 21–40.
  • Lovern, L. L. 2021. “Indigenous Concepts of Difference: An Alternative to Western Disability Labeling.” Disability Studies Quarterly 41 (4). doi:10.18061/dsq.v41i4.8468.
  • Ma, G. X., C. P. Coyle, D. Wares, and D. Cornell. 1999. “Assessment of Services to American Indians with Disabilities.”   Journal of Rehabilitation  65 (3): 11.
  • Medin, D. L., and M. Bang. 2014. Who’s Asking? Native Science, Western Science, and Science Education. Cambridge, MA: The MIT Press.
  • Mihesuah, D. 2021. “Becoming Insane: The Death of Arch Wolfe at the Canton Asylum for Insane Indians.” Disability Studies Quarterly 41 (4). doi:10.18061/dsq.v41i4.8444.
  • Monteau, H. 2016. Raising Awareness About Autism in Indian Country. https://www.indianz.com/News/2016/05/06/harold-monteau-raising-awarene.asp.
  • National Center for Education Statistics 2021. Status Dropout Rates. https://nces.ed.gov/programs/coe/indicator/coj
  • National Center for Learning Disabilities 2020. Significant Disproportionality in Special Education: Trends among American Indian and Alaska Native Students. National Center for Learning Disabilities.
  • National Council on Disability 2003. Understanding disabilities in American Indian & Alaska Native Communities. https://www.ncld.org/wp-content/uploads/2020/10/2020-NCLD-Disproportionality_-Native-Students_FINAL.pdf
  • National Congress of American Indians 2022. Tribal Governance. Policy issues. https://www.ncai.org/policy-issues/tribal-governance
  • Ngo-Metzger, Q., J. Telfair, D. H. Sorkin, B. Weidmer, R. Weech-Maldonado, M. Hurtado, and R. D. Hays. 2006. “Cultural Competency and Quality of Care: Obtaining the Patient’s Perspective.” The Commonwealth Fund 963: 1–50.
  • O’Keefe, V. M., L. R. Wingate, R. P. Tucker, S. Rhoades-Kerswill, M. L. Slish, and C. L. Davidson. 2014. “Interpersonal Suicide Risk for American Indians: Investigating Thwarted Belongingness and Perceived Burdonsomeness.” Cultural Diversity and Ethnic Minority Psychology 20 (1): 61–67. doi:10.1037/a0033540.
  • Rabang, N. J., A. E. West, E. Kurtz, J. Warne, and V. Hiratsuka. 2023. “Disability Decolonized: Indigenous Peoples Enacting Self-Determination.” Developmental Disabilities Network Journal 3 (1): 132–145.
  • Ramasamy, R., M. Duffy, and J. L. Camp. Jr, 2000. “Transition from School to Adult Life: Critical Issues for Native American Youth with and without Learning Disabilities.” Career Development for Exceptional Individuals 23 (2): 157–171. doi:10.1177/088572880002300204.
  • Rehabilitation Act of 1973. (45 CFR Part 84).
  • Roberts, S. O., and M. T. Rizzo. 2021. “The Psychology of American Racism.” American Psychologist 76 (3): 475–488. doi:10.1037/amp0000642.
  • Saravanabhavan, R. C., and C. A. Marshall. 1994. “The Older Native American Indian with Disabilities: Implications for Providers of Health Care and Human Services.” Journal of Multicultural Counseling and Development 22 (3): 182–194. doi:10.1002/j.2161-1912.1994.tb00464.x.
  • Schur, L. 2002. “The Difference a Job Makes: The Effects of Employment among People with Disabilities.”  Journal of Economic Issues,  36 (2): 339–347. doi:10.1080/00213624.2002.11506476.
  • stopbullying.gov 2018. Bullying and Youth with Disabilities and Special Health Needs. https://www.stopbullying.gov/at-risk/groups/special-needs/index.html.
  • Switzer, J. V. 2003. Disabled Rights: American Disability Policy and the Fight for Equality. Washington, D.C: Georgetown University Press.
  • Tehee, M., D. Isaacs, and M. M. Domenech Rodriguez. 2020. The Elusive Construct of Cultural Competence. In L. T. B. Benuto, F. R. Gonzalez, and J. Singer (Eds), Handbook of Cultural Factors in Behavioral Health, (pp.11–24). Springer International Publishing. https://doi.org/10.1007/978-3-030-32229-8_2
  • Utah Department of Health 2016. Moving forward in 2016: Fifteen years of health data for American Indians/Alaska Natives in Utah. https://health.utah.gov/disparities/data/race-ethnicity-report/AIANMovingForward2016.pdf
  • Utah Indian Health Advisory Board and Utah Department of Health Office of Health Disparities. 2016. Moving forward in 2016: Fifteen years of health data for American Indians/Alaska Natives in Utah. Data and reports. https://healthequity.utah.gov/wp-content/uploads/AIANMovingForward2016.pdf
  • Utah State Board of Education 2018. Special Education Rules. Retrieved from https://www.schools.utah.gov/file/bff61848-ae42-4265-a654-6dae5f398507
  • Utah State Board of Education. 2018. 2017-2018 Single-year Dropout Rate Report. https://www.schools.utah.gov/file/c99d587e-c127-485f-ab2b-4b1086259df2?TSPD_101_R0=08a7ed7a88ab2000d639f0437f46f5735248133a3e1b36c880a9e2ccb7ba292de80bc0918f2b79b0088424364e1430000aa12a91f81614dc9c998b649c8a3ec6479fd6d5b6736190e0b5545cab5ed8d10d702d29a76cab1cbee83bb36d0110c5
  • United States Census Bureau 2020. (Disability characteristics. https://data.census.gov/table?q=disability&tid=ACSST1Y2021.S1810
  • Warne, D., K. Dulacki, M. Spurlock, T. Meath, M. M. Davis, B. Wright, and K. J. McConnell. 2017. “Adverse Childhood Experiences (ACE) among American Indians in South Dakota and Associations with Mental Health Conditions, Alcohol Use, and Smoking.” Journal of Health Care for the Poor and Underserved 28 (4): 1559–1577. doi:10.1353/hpu.2017.0133.
  • Whitford, D. K. 2017. “School Discipline Disproportionality: American Indian Students in Special Education.” The Urban Review 49 (5): 693–706. doi:10.1007/s11256-017-0417-x.